Re: 46 YOA PCa Diagnosis/NYC Metro Area

[Guest guest]

I don't know if I agree with your internist. He may be right about

the possibility that in a teaching hospital you will be " worked on "

by residents and other doctors working with your surgeon. But

conventional wisdom says that you should have surgery done at a

hospital and with a surgeon who does the type of surgery you are

considering in the most volume. Typically, those tend to be the

larger hospitals ... and often, they turn out to be teaching

institutions. If you wish to consider MA and FL, by all means do so.

But I would check on their stats also.

Larry E.

>

> Hello All, i've been reading all yours posts with interest. I just

> joined the group a few days ago. I was diagnosed with PCa a few

weeks

> ago.

> I'm 46yoa male with no family history of PCa. Diagnosis is a

result of

> DRE, palable nodule (node), ultrasound and biopsy with 13 core

samples

> taken. PSA was 1.5, Gleason was 6 (Urologist did not give me the

> breakdown of two different breakdowns of the Gleason scores). Nor

did

> doctor give me staging information yet. He said several core

samples

> were positive for PCa. Although it does not seem to be agressive.

To

> say the least I've been doing a lot of research since the

diagnosis.

> The urologist gave me the dx and immediately began to talk about

> surgery and or radiation - whichever I preferred, but disease

> contingent. I asked the doctor to send lab work to a second lab for

> verification. I'm in the New York City metro area and am

considering

> going into NYC for second opinion etc. Although in speaking to my

> internist today (who incidentally found the intial enlarged

prostate

> and node), mentioned not not liking the larger NY City hospitals

as

> they are teaching hospitals and generally you don't get the same

doctor

> working on you who you have consulted with. Internist brought up

about

> notion of private hospitals (Boston & Florida), particularly one

or two

> in Flordia where daVinci robotic suregery for PCa is there

specialty.

> Doctor could not recall name of doctors there nor hospitals, but

is

> checking for me.

> Any suggestions, thoughts or advice? I'm scheduled for a CT and

Bone

> scan within the this Thursday, but from what I've read may not

officer

> that much help. I've also read about Dr. Bard (clinical

radiologist),

> in NYC, doing power doppler imaging ultrasound using blood flow

> ultrasound technology to differntiate between cancer and benign

> prostatic hypertrophy. Any help and suggestions would be

appreciated!

>

[Guest guest]

I don't know if I agree with your internist. He may be right about

the possibility that in a teaching hospital you will be " worked on "

by residents and other doctors working with your surgeon. But

conventional wisdom says that you should have surgery done at a

hospital and with a surgeon who does the type of surgery you are

considering in the most volume. Typically, those tend to be the

larger hospitals ... and often, they turn out to be teaching

institutions. If you wish to consider MA and FL, by all means do so.

But I would check on their stats also.

Larry E.

>

> Hello All, i've been reading all yours posts with interest. I just

> joined the group a few days ago. I was diagnosed with PCa a few

weeks

> ago.

> I'm 46yoa male with no family history of PCa. Diagnosis is a

result of

> DRE, palable nodule (node), ultrasound and biopsy with 13 core

samples

> taken. PSA was 1.5, Gleason was 6 (Urologist did not give me the

> breakdown of two different breakdowns of the Gleason scores). Nor

did

> doctor give me staging information yet. He said several core

samples

> were positive for PCa. Although it does not seem to be agressive.

To

> say the least I've been doing a lot of research since the

diagnosis.

> The urologist gave me the dx and immediately began to talk about

> surgery and or radiation - whichever I preferred, but disease

> contingent. I asked the doctor to send lab work to a second lab for

> verification. I'm in the New York City metro area and am

considering

> going into NYC for second opinion etc. Although in speaking to my

> internist today (who incidentally found the intial enlarged

prostate

> and node), mentioned not not liking the larger NY City hospitals

as

> they are teaching hospitals and generally you don't get the same

doctor

> working on you who you have consulted with. Internist brought up

about

> notion of private hospitals (Boston & Florida), particularly one

or two

> in Flordia where daVinci robotic suregery for PCa is there

specialty.

> Doctor could not recall name of doctors there nor hospitals, but

is

> checking for me.

> Any suggestions, thoughts or advice? I'm scheduled for a CT and

Bone

> scan within the this Thursday, but from what I've read may not

officer

> that much help. I've also read about Dr. Bard (clinical

radiologist),

> in NYC, doing power doppler imaging ultrasound using blood flow

> ultrasound technology to differntiate between cancer and benign

> prostatic hypertrophy. Any help and suggestions would be

appreciated!

>

[Guest guest]

I don't know if I agree with your internist. He may be right about

the possibility that in a teaching hospital you will be " worked on "

by residents and other doctors working with your surgeon. But

conventional wisdom says that you should have surgery done at a

hospital and with a surgeon who does the type of surgery you are

considering in the most volume. Typically, those tend to be the

larger hospitals ... and often, they turn out to be teaching

institutions. If you wish to consider MA and FL, by all means do so.

But I would check on their stats also.

Larry E.

>

> Hello All, i've been reading all yours posts with interest. I just

> joined the group a few days ago. I was diagnosed with PCa a few

weeks

> ago.

> I'm 46yoa male with no family history of PCa. Diagnosis is a

result of

> DRE, palable nodule (node), ultrasound and biopsy with 13 core

samples

> taken. PSA was 1.5, Gleason was 6 (Urologist did not give me the

> breakdown of two different breakdowns of the Gleason scores). Nor

did

> doctor give me staging information yet. He said several core

samples

> were positive for PCa. Although it does not seem to be agressive.

To

> say the least I've been doing a lot of research since the

diagnosis.

> The urologist gave me the dx and immediately began to talk about

> surgery and or radiation - whichever I preferred, but disease

> contingent. I asked the doctor to send lab work to a second lab for

> verification. I'm in the New York City metro area and am

considering

> going into NYC for second opinion etc. Although in speaking to my

> internist today (who incidentally found the intial enlarged

prostate

> and node), mentioned not not liking the larger NY City hospitals

as

> they are teaching hospitals and generally you don't get the same

doctor

> working on you who you have consulted with. Internist brought up

about

> notion of private hospitals (Boston & Florida), particularly one

or two

> in Flordia where daVinci robotic suregery for PCa is there

specialty.

> Doctor could not recall name of doctors there nor hospitals, but

is

> checking for me.

> Any suggestions, thoughts or advice? I'm scheduled for a CT and

Bone

> scan within the this Thursday, but from what I've read may not

officer

> that much help. I've also read about Dr. Bard (clinical

radiologist),

> in NYC, doing power doppler imaging ultrasound using blood flow

> ultrasound technology to differntiate between cancer and benign

> prostatic hypertrophy. Any help and suggestions would be

appreciated!

>

[Guest guest]

NYC has great hospitals with great doctors. Even though they are teaching hospitals you will be worked on by the best if you make the right decisions.Get written copies of all your tests, including any scans and your biopsy. Ask your doc to explain all the information, bring another person with you to all your doctor appointments to ask questions and listen to all answers. Then discuss with your partner what was said to be sure you heard everything and did not forget anything. At this moment you are under stress and should not rely on your memory.

Go to a support group before you make any treatment decisions and meet other guys who have already been where you are. Find out what decisions they made, what the results and ramifications have been as a result of their decisions. In the New York City there are a number of groups. Malecare has a weekly group of just discussion every Wednesday at 6 p.m. This is an excellent support group, I strongly recommend it and go almost every week myself. I also can recommend the USTOO NY group that meets the third Thursday of the month. This group starts with a lecture and then breaks down to a support group. Both f these groups are excellent.

If you are interested in additional information send me a an email off the list and I will reply with specific locations, times etc. Go a head with the planned scans, they are the right next step.

Hello All, i've been reading all yours posts with interest. I just

joined the group a few days ago. I was diagnosed with PCa a few weeks

ago.

I'm 46yoa male with no family history of PCa. Diagnosis is a result of

DRE, palable nodule (node), ultrasound and biopsy with 13 core samples

taken. PSA was 1.5, Gleason was 6 (Urologist did not give me the

breakdown of two different breakdowns of the Gleason scores). Nor did

doctor give me staging information yet. He said several core samples

were positive for PCa. Although it does not seem to be agressive. To

say the least I've been doing a lot of research since the diagnosis.

The urologist gave me the dx and immediately began to talk about

surgery and or radiation - whichever I preferred, but disease

contingent. I asked the doctor to send lab work to a second lab for

verification. I'm in the New York City metro area and am considering

going into NYC for second opinion etc. Although in speaking to my

internist today (who incidentally found the intial enlarged prostate

and node), mentioned not not liking the larger NY City hospitals as

they are teaching hospitals and generally you don't get the same doctor

working on you who you have consulted with. Internist brought up about

notion of private hospitals (Boston & Florida), particularly one or two

in Flordia where daVinci robotic suregery for PCa is there specialty.

Doctor could not recall name of doctors there nor hospitals, but is

checking for me.

Any suggestions, thoughts or advice? I'm scheduled for a CT and Bone

scan within the this Thursday, but from what I've read may not officer

that much help. I've also read about Dr. Bard (clinical radiologist),

in NYC, doing power doppler imaging ultrasound using blood flow

ultrasound technology to differntiate between cancer and benign

prostatic hypertrophy. Any help and suggestions would be appreciated!

-- T NowakTo learn about the Petition to Make Prostate Cancer a National Priority go to http://www.prostatecancerpetition.org

[Guest guest]

As far as surgery goes, I have read some really good things about the hospital and one of the affiliated doctors with the hospital in Celebration, Florida (a Disney created community) that is just south of the Orlando area, in this forum. Another good resource is to visit www.pcref.org, listen to the broadcast via the website on Tuesday, 9PM EST, or sign up for coaching at the site by Dr. Israel Barken.

Considering your age of onset (if you are African-American, screening starting age for PCA is at age 40 rather then 50), the earlier the age of diagnosis, the stronger is the possibility of the cancer becoming aggressive.

Louis. . . .

46 YOA PCa Diagnosis/NYC Metro Area

Hello All, i've been reading all yours posts with interest. I justjoined the group a few days ago. I was diagnosed with PCa a few weeks ago.I'm 46yoa male with no family history of PCa. Diagnosis is a result ofDRE, palable nodule (node), ultrasound and biopsy with 13 core samplestaken. PSA was 1.5, Gleason was 6 (Urologist did not give me thebreakdown of two different breakdowns of the Gleason scores). Nor diddoctor give me staging information yet. He said several core sampleswere positive for PCa. Although it does not seem to be agressive. Tosay the least I've been doing a lot of research since the diagnosis.The urologist gave me the dx and immediately began to talk aboutsurgery and or radiation - whichever I preferred, but diseasecontingent. I asked the doctor to send lab work to a second lab forverification. I'm in the New York City metro area and am consideringgoing into NYC for second opinion etc. Although in speaking to my internist today (who incidentally found the intial enlarged prostate and node), mentioned not not liking the larger NY City hospitals as they are teaching hospitals and generally you don't get the same doctor working on you who you have consulted with. Internist brought up about notion of private hospitals (Boston & Florida), particularly one or two in Flordia where daVinci robotic suregery for PCa is there specialty. Doctor could not recall name of doctors there nor hospitals, but is checking for me.Any suggestions, thoughts or advice? I'm scheduled for a CT and Bone scan within the this Thursday, but from what I've read may not officer that much help. I've also read about Dr. Bard (clinical radiologist), in NYC, doing power doppler imaging ultrasound using blood flow ultrasound technology to differntiate between cancer and benign prostatic hypertrophy. Any help and suggestions would be appreciated!

[Guest guest]

If you are in the NYC area you may want to take a look at Hackensack University Hospital in Hackensack NJ.

It is the home of the Prostate Cancer Institute of New Jersey and the web site is www.humed.com/prostate

I was referred there in 2007 when I was diagnosed and had daVinci in May 2007 there.

They have many good groups of urologist that are there and offer many treatment options.

This is a teaching hospital as well but the surgeon I chose was the one that did the surgery. I chose him because of the number of daVinci procedures he had done and I made sure to ask him if he would be doing it.

If you should elect to have surgery they specialize in daVinci robotic and have six machines.

If you want any doctor information let me know.

This is a great group and you will get lots of useful information from the members here.

Just remember that surgery is not the only treatment and in most cases you have time to research and learn as much as you can about this miserable disease and make the right decision for you. Your a young guy and no matter what treatment option you choose there will be negative side effects that you will have to live with the rest of your life.

Good luck,

Rick

To: ProstateCancerSupport Sent: Monday, December 1, 2008 7:45:03 PMSubject: 46 YOA PCa Diagnosis/NYC Metro Area

Hello All, i've been reading all yours posts with interest. I justjoined the group a few days ago. I was diagnosed with PCa a few weeks ago.I'm 46yoa male with no family history of PCa. Diagnosis is a result ofDRE, palable nodule (node), ultrasound and biopsy with 13 core samplestaken. PSA was 1.5, Gleason was 6 (Urologist did not give me thebreakdown of two different breakdowns of the Gleason scores). Nor diddoctor give me staging information yet. He said several core sampleswere positive for PCa. Although it does not seem to be agressive. Tosay the least I've been doing a lot of research since the diagnosis.The urologist gave me the dx and immediately began to talk aboutsurgery and or radiation - whichever I preferred, but diseasecontingent. I asked the doctor to send lab work to a second lab forverification. I'm in the New York City metro area and am consideringgoing into NYC for second

opinion etc. Although in speaking to my internist today (who incidentally found the intial enlarged prostate and node), mentioned not not liking the larger NY City hospitals as they are teaching hospitals and generally you don't get the same doctor working on you who you have consulted with. Internist brought up about notion of private hospitals (Boston & Florida), particularly one or two in Flordia where daVinci robotic suregery for PCa is there specialty. Doctor could not recall name of doctors there nor hospitals, but is checking for me.Any suggestions, thoughts or advice? I'm scheduled for a CT and Bone scan within the this Thursday, but from what I've read may not officer that much help. I've also read about Dr. Bard (clinical radiologist) , in NYC, doing power doppler imaging ultrasound using blood flow ultrasound technology to differntiate between cancer and benign prostatic hypertrophy.

Any help and suggestions would be appreciated!

[Guest guest]

If you are in the NYC area you may want to take a look at Hackensack University Hospital in Hackensack NJ.

It is the home of the Prostate Cancer Institute of New Jersey and the web site is www.humed.com/prostate

I was referred there in 2007 when I was diagnosed and had daVinci in May 2007 there.

They have many good groups of urologist that are there and offer many treatment options.

This is a teaching hospital as well but the surgeon I chose was the one that did the surgery. I chose him because of the number of daVinci procedures he had done and I made sure to ask him if he would be doing it.

If you should elect to have surgery they specialize in daVinci robotic and have six machines.

If you want any doctor information let me know.

This is a great group and you will get lots of useful information from the members here.

Just remember that surgery is not the only treatment and in most cases you have time to research and learn as much as you can about this miserable disease and make the right decision for you. Your a young guy and no matter what treatment option you choose there will be negative side effects that you will have to live with the rest of your life.

Good luck,

Rick

To: ProstateCancerSupport Sent: Monday, December 1, 2008 7:45:03 PMSubject: 46 YOA PCa Diagnosis/NYC Metro Area

Hello All, i've been reading all yours posts with interest. I justjoined the group a few days ago. I was diagnosed with PCa a few weeks ago.I'm 46yoa male with no family history of PCa. Diagnosis is a result ofDRE, palable nodule (node), ultrasound and biopsy with 13 core samplestaken. PSA was 1.5, Gleason was 6 (Urologist did not give me thebreakdown of two different breakdowns of the Gleason scores). Nor diddoctor give me staging information yet. He said several core sampleswere positive for PCa. Although it does not seem to be agressive. Tosay the least I've been doing a lot of research since the diagnosis.The urologist gave me the dx and immediately began to talk aboutsurgery and or radiation - whichever I preferred, but diseasecontingent. I asked the doctor to send lab work to a second lab forverification. I'm in the New York City metro area and am consideringgoing into NYC for second

opinion etc. Although in speaking to my internist today (who incidentally found the intial enlarged prostate and node), mentioned not not liking the larger NY City hospitals as they are teaching hospitals and generally you don't get the same doctor working on you who you have consulted with. Internist brought up about notion of private hospitals (Boston & Florida), particularly one or two in Flordia where daVinci robotic suregery for PCa is there specialty. Doctor could not recall name of doctors there nor hospitals, but is checking for me.Any suggestions, thoughts or advice? I'm scheduled for a CT and Bone scan within the this Thursday, but from what I've read may not officer that much help. I've also read about Dr. Bard (clinical radiologist) , in NYC, doing power doppler imaging ultrasound using blood flow ultrasound technology to differntiate between cancer and benign prostatic hypertrophy.

Any help and suggestions would be appreciated!

[Guest guest]

Hi,

I had pretty similar " stats " when i got diagnised this year at age 47. After a

lot of research, I'm pretty set on proton radiation. I'm opposed to surgery, and

the proton treatment seems to offer the best chance of fewer secondary cancers

from the treatment which is important for someone our age.

My biggest decision is to delay treatment as long as possible. My doctor at

University of Penn had me get an MRI to get a closer reading on the size and

most importantly to location of the tumor. Since the treatment is always the

same (i.e. cut out or kill the whole prostate) and the biggest risk is the

cancer spreading outside the prostate, why not monitor it VERY closely and take

action when the doctor feels it's time.

I'm comfortable with having the cancer in my body and getting as many years in

as I can before dealing with it.

Best of Luck,

>

> Subject: Re: 46 YOA PCa Diagnosis/NYC Metro Area

> To: ProstateCancerSupport

> Date: Tuesday, December 2, 2008, 10:45 AM

> If you are in the NYC area you may want to take a look at

> Hackensack University Hospital in Hackensack NJ.

> It is the home of the Prostate Cancer Institute of New

> Jersey and the web site is www.humed.com/prostate

> I was referred there in 2007 when I was diagnosed and had

> daVinci in May 2007 there..

> They have many good groups of urologist that are there and

> offer many treatment options.

> This is a teaching hospital as well but the surgeon I chose

> was the one that did the surgery. I chose him because of the

> number of daVinci procedures he had done and I made sure to

> ask him if he would be doing it.

> If you should elect to have surgery they specialize in

> daVinci robotic and have six machines.

> If you want any doctor information let me know.

>

> This is a great group and you will get lots of useful

> information from the members here. 

> Just remember that surgery is not the only treatment and in

> most cases you have time to research and learn as much as

> you can about this miserable disease and make the right

> decision for you. Your a young guy and no matter what

> treatment option you choose there will be negative side

> effects that you will have to live with the rest of your

> life.

> Good luck,

> Rick

>

>

>

>

>  

>

>

>

> ________________________________

>

> To: ProstateCancerSupport

> Sent: Monday, December 1, 2008 7:45:03 PM

> Subject: 46 YOA PCa Diagnosis/NYC

> Metro Area

>

>

> Hello All, i've been reading all yours posts with

> interest. I just

> joined the group a few days ago. I was diagnosed with PCa a

> few weeks

> ago.

> I'm 46yoa male with no family history of PCa. Diagnosis

> is a result of

> DRE, palable nodule (node), ultrasound and biopsy with 13

> core samples

> taken. PSA was 1.5, Gleason was 6 (Urologist did not give

> me the

> breakdown of two different breakdowns of the Gleason

> scores). Nor did

> doctor give me staging information yet. He said several

> core samples

> were positive for PCa. Although it does not seem to be

> agressive. To

> say the least I've been doing a lot of research since

> the diagnosis.

> The urologist gave me the dx and immediately began to talk

> about

> surgery and or radiation - whichever I preferred, but

> disease

> contingent. I asked the doctor to send lab work to a second

> lab for

> verification. I'm in the New York City metro area and

> am considering

> going into NYC for second opinion etc. Although in speaking

> to my

> internist today (who incidentally found the intial enlarged

> prostate

> and node), mentioned not not liking the larger NY City

> hospitals as

> they are teaching hospitals and generally you don't get

> the same doctor

> working on you who you have consulted with. Internist

> brought up about

> notion of private hospitals (Boston & Florida),

> particularly one or two

> in Flordia where daVinci robotic suregery for PCa is there

> specialty.

> Doctor could not recall name of doctors there nor

> hospitals, but is

> checking for me.

> Any suggestions, thoughts or advice? I'm scheduled for

> a CT and Bone

> scan within the this Thursday, but from what I've read

> may not officer

> that much help. I've also read about Dr. Bard (clinical

> radiologist) ,

> in NYC, doing power doppler imaging ultrasound using blood

> flow

> ultrasound technology to differntiate between cancer and

> benign

> prostatic hypertrophy. Any help and suggestions would be

> appreciated!

[Guest guest]

Hi,

I had pretty similar " stats " when i got diagnised this year at age 47. After a

lot of research, I'm pretty set on proton radiation. I'm opposed to surgery, and

the proton treatment seems to offer the best chance of fewer secondary cancers

from the treatment which is important for someone our age.

My biggest decision is to delay treatment as long as possible. My doctor at

University of Penn had me get an MRI to get a closer reading on the size and

most importantly to location of the tumor. Since the treatment is always the

same (i.e. cut out or kill the whole prostate) and the biggest risk is the

cancer spreading outside the prostate, why not monitor it VERY closely and take

action when the doctor feels it's time.

I'm comfortable with having the cancer in my body and getting as many years in

as I can before dealing with it.

Best of Luck,

>

> Subject: Re: 46 YOA PCa Diagnosis/NYC Metro Area

> To: ProstateCancerSupport

> Date: Tuesday, December 2, 2008, 10:45 AM

> If you are in the NYC area you may want to take a look at

> Hackensack University Hospital in Hackensack NJ.

> It is the home of the Prostate Cancer Institute of New

> Jersey and the web site is www.humed.com/prostate

> I was referred there in 2007 when I was diagnosed and had

> daVinci in May 2007 there..

> They have many good groups of urologist that are there and

> offer many treatment options.

> This is a teaching hospital as well but the surgeon I chose

> was the one that did the surgery. I chose him because of the

> number of daVinci procedures he had done and I made sure to

> ask him if he would be doing it.

> If you should elect to have surgery they specialize in

> daVinci robotic and have six machines.

> If you want any doctor information let me know.

>

> This is a great group and you will get lots of useful

> information from the members here. 

> Just remember that surgery is not the only treatment and in

> most cases you have time to research and learn as much as

> you can about this miserable disease and make the right

> decision for you. Your a young guy and no matter what

> treatment option you choose there will be negative side

> effects that you will have to live with the rest of your

> life.

> Good luck,

> Rick

>

>

>

>

>  

>

>

>

> ________________________________

>

> To: ProstateCancerSupport

> Sent: Monday, December 1, 2008 7:45:03 PM

> Subject: 46 YOA PCa Diagnosis/NYC

> Metro Area

>

>

> Hello All, i've been reading all yours posts with

> interest. I just

> joined the group a few days ago. I was diagnosed with PCa a

> few weeks

> ago.

> I'm 46yoa male with no family history of PCa. Diagnosis

> is a result of

> DRE, palable nodule (node), ultrasound and biopsy with 13

> core samples

> taken. PSA was 1.5, Gleason was 6 (Urologist did not give

> me the

> breakdown of two different breakdowns of the Gleason

> scores). Nor did

> doctor give me staging information yet. He said several

> core samples

> were positive for PCa. Although it does not seem to be

> agressive. To

> say the least I've been doing a lot of research since

> the diagnosis.

> The urologist gave me the dx and immediately began to talk

> about

> surgery and or radiation - whichever I preferred, but

> disease

> contingent. I asked the doctor to send lab work to a second

> lab for

> verification. I'm in the New York City metro area and

> am considering

> going into NYC for second opinion etc. Although in speaking

> to my

> internist today (who incidentally found the intial enlarged

> prostate

> and node), mentioned not not liking the larger NY City

> hospitals as

> they are teaching hospitals and generally you don't get

> the same doctor

> working on you who you have consulted with. Internist

> brought up about

> notion of private hospitals (Boston & Florida),

> particularly one or two

> in Flordia where daVinci robotic suregery for PCa is there

> specialty.

> Doctor could not recall name of doctors there nor

> hospitals, but is

> checking for me.

> Any suggestions, thoughts or advice? I'm scheduled for

> a CT and Bone

> scan within the this Thursday, but from what I've read

> may not officer

> that much help. I've also read about Dr. Bard (clinical

> radiologist) ,

> in NYC, doing power doppler imaging ultrasound using blood

> flow

> ultrasound technology to differntiate between cancer and

> benign

> prostatic hypertrophy. Any help and suggestions would be

> appreciated!

[Guest guest]

Hi,

I had pretty similar " stats " when i got diagnised this year at age 47. After a

lot of research, I'm pretty set on proton radiation. I'm opposed to surgery, and

the proton treatment seems to offer the best chance of fewer secondary cancers

from the treatment which is important for someone our age.

My biggest decision is to delay treatment as long as possible. My doctor at

University of Penn had me get an MRI to get a closer reading on the size and

most importantly to location of the tumor. Since the treatment is always the

same (i.e. cut out or kill the whole prostate) and the biggest risk is the

cancer spreading outside the prostate, why not monitor it VERY closely and take

action when the doctor feels it's time.

I'm comfortable with having the cancer in my body and getting as many years in

as I can before dealing with it.

Best of Luck,

>

> Subject: Re: 46 YOA PCa Diagnosis/NYC Metro Area

> To: ProstateCancerSupport

> Date: Tuesday, December 2, 2008, 10:45 AM

> If you are in the NYC area you may want to take a look at

> Hackensack University Hospital in Hackensack NJ.

> It is the home of the Prostate Cancer Institute of New

> Jersey and the web site is www.humed.com/prostate

> I was referred there in 2007 when I was diagnosed and had

> daVinci in May 2007 there..

> They have many good groups of urologist that are there and

> offer many treatment options.

> This is a teaching hospital as well but the surgeon I chose

> was the one that did the surgery. I chose him because of the

> number of daVinci procedures he had done and I made sure to

> ask him if he would be doing it.

> If you should elect to have surgery they specialize in

> daVinci robotic and have six machines.

> If you want any doctor information let me know.

>

> This is a great group and you will get lots of useful

> information from the members here. 

> Just remember that surgery is not the only treatment and in

> most cases you have time to research and learn as much as

> you can about this miserable disease and make the right

> decision for you. Your a young guy and no matter what

> treatment option you choose there will be negative side

> effects that you will have to live with the rest of your

> life.

> Good luck,

> Rick

>

>

>

>

>  

>

>

>

> ________________________________

>

> To: ProstateCancerSupport

> Sent: Monday, December 1, 2008 7:45:03 PM

> Subject: 46 YOA PCa Diagnosis/NYC

> Metro Area

>

>

> Hello All, i've been reading all yours posts with

> interest. I just

> joined the group a few days ago. I was diagnosed with PCa a

> few weeks

> ago.

> I'm 46yoa male with no family history of PCa. Diagnosis

> is a result of

> DRE, palable nodule (node), ultrasound and biopsy with 13

> core samples

> taken. PSA was 1.5, Gleason was 6 (Urologist did not give

> me the

> breakdown of two different breakdowns of the Gleason

> scores). Nor did

> doctor give me staging information yet. He said several

> core samples

> were positive for PCa. Although it does not seem to be

> agressive. To

> say the least I've been doing a lot of research since

> the diagnosis.

> The urologist gave me the dx and immediately began to talk

> about

> surgery and or radiation - whichever I preferred, but

> disease

> contingent. I asked the doctor to send lab work to a second

> lab for

> verification. I'm in the New York City metro area and

> am considering

> going into NYC for second opinion etc. Although in speaking

> to my

> internist today (who incidentally found the intial enlarged

> prostate

> and node), mentioned not not liking the larger NY City

> hospitals as

> they are teaching hospitals and generally you don't get

> the same doctor

> working on you who you have consulted with. Internist

> brought up about

> notion of private hospitals (Boston & Florida),

> particularly one or two

> in Flordia where daVinci robotic suregery for PCa is there

> specialty.

> Doctor could not recall name of doctors there nor

> hospitals, but is

> checking for me.

> Any suggestions, thoughts or advice? I'm scheduled for

> a CT and Bone

> scan within the this Thursday, but from what I've read

> may not officer

> that much help. I've also read about Dr. Bard (clinical

> radiologist) ,

> in NYC, doing power doppler imaging ultrasound using blood

> flow

> ultrasound technology to differntiate between cancer and

> benign

> prostatic hypertrophy. Any help and suggestions would be

> appreciated!

[Guest guest]

:

Thanks for sharing... I'm 45 same stats more or less same except PSA

5.4 and you are the 1st person who stated other than my Doctor that

time was NOT something we didn't have and was more than willing not

to push any procedure right now. Had my bone scan done yesterday

results tomorrow but expected at least I hope that all will be

negative and he is not even sceduled to see me till May 1st.

Till such time I'm going to gather as much info as possible and visit

several more urologist specialist to hear what they all have to say.

Thanks!

>

> >

> > Subject: Re: 46 YOA PCa Diagnosis/NYC

Metro Area

> > To: ProstateCancerSupport

> > Date: Tuesday, December 2, 2008, 10:45 AM

> > If you are in the NYC area you may want to take a look at

> > Hackensack University Hospital in Hackensack NJ.

> > It is the home of the Prostate Cancer Institute of New

> > Jersey and the web site is www.humed.com/prostate

> > I was referred there in 2007 when I was diagnosed and had

> > daVinci in May 2007 there..

> > They have many good groups of urologist that are there and

> > offer many treatment options.

> > This is a teaching hospital as well but the surgeon I chose

> > was the one that did the surgery. I chose him because of the

> > number of daVinci procedures he had done and I made sure to

> > ask him if he would be doing it.

> > If you should elect to have surgery they specialize in

> > daVinci robotic and have six machines.

> > If you want any doctor information let me know.

> >

> > This is a great group and you will get lots of useful

> > information from the members here. 

> > Just remember that surgery is not the only treatment and in

> > most cases you have time to research and learn as much as

> > you can about this miserable disease and make the right

> > decision for you. Your a young guy and no matter what

> > treatment option you choose there will be negative side

> > effects that you will have to live with the rest of your

> > life.

> > Good luck,

> > Rick

> >

> >

> >

> >

> >  

> >

> >

> >

> > ________________________________

> >

> > To: ProstateCancerSupport

> > Sent: Monday, December 1, 2008 7:45:03 PM

> > Subject: 46 YOA PCa Diagnosis/NYC

> > Metro Area

> >

> >

> > Hello All, i've been reading all yours posts with

> > interest. I just

> > joined the group a few days ago. I was diagnosed with PCa a

> > few weeks

> > ago.

> > I'm 46yoa male with no family history of PCa. Diagnosis

> > is a result of

> > DRE, palable nodule (node), ultrasound and biopsy with 13

> > core samples

> > taken. PSA was 1.5, Gleason was 6 (Urologist did not give

> > me the

> > breakdown of two different breakdowns of the Gleason

> > scores). Nor did

> > doctor give me staging information yet. He said several

> > core samples

> > were positive for PCa. Although it does not seem to be

> > agressive. To

> > say the least I've been doing a lot of research since

> > the diagnosis.

> > The urologist gave me the dx and immediately began to talk

> > about

> > surgery and or radiation - whichever I preferred, but

> > disease

> > contingent. I asked the doctor to send lab work to a second

> > lab for

> > verification. I'm in the New York City metro area and

> > am considering

> > going into NYC for second opinion etc. Although in speaking

> > to my

> > internist today (who incidentally found the intial enlarged

> > prostate

> > and node), mentioned not not liking the larger NY City

> > hospitals as

> > they are teaching hospitals and generally you don't get

> > the same doctor

> > working on you who you have consulted with. Internist

> > brought up about

> > notion of private hospitals (Boston & Florida),

> > particularly one or two

> > in Flordia where daVinci robotic suregery for PCa is there

> > specialty.

> > Doctor could not recall name of doctors there nor

> > hospitals, but is

> > checking for me.

> > Any suggestions, thoughts or advice? I'm scheduled for

> > a CT and Bone

> > scan within the this Thursday, but from what I've read

> > may not officer

> > that much help. I've also read about Dr. Bard (clinical

> > radiologist) ,

> > in NYC, doing power doppler imaging ultrasound using blood

> > flow

> > ultrasound technology to differntiate between cancer and

> > benign

> > prostatic hypertrophy. Any help and suggestions would be

> > appreciated!

>

[Guest guest]

:

Thanks for sharing... I'm 45 same stats more or less same except PSA

5.4 and you are the 1st person who stated other than my Doctor that

time was NOT something we didn't have and was more than willing not

to push any procedure right now. Had my bone scan done yesterday

results tomorrow but expected at least I hope that all will be

negative and he is not even sceduled to see me till May 1st.

Till such time I'm going to gather as much info as possible and visit

several more urologist specialist to hear what they all have to say.

Thanks!

>

> >

> > Subject: Re: 46 YOA PCa Diagnosis/NYC

Metro Area

> > To: ProstateCancerSupport

> > Date: Tuesday, December 2, 2008, 10:45 AM

> > If you are in the NYC area you may want to take a look at

> > Hackensack University Hospital in Hackensack NJ.

> > It is the home of the Prostate Cancer Institute of New

> > Jersey and the web site is www.humed.com/prostate

> > I was referred there in 2007 when I was diagnosed and had

> > daVinci in May 2007 there..

> > They have many good groups of urologist that are there and

> > offer many treatment options.

> > This is a teaching hospital as well but the surgeon I chose

> > was the one that did the surgery. I chose him because of the

> > number of daVinci procedures he had done and I made sure to

> > ask him if he would be doing it.

> > If you should elect to have surgery they specialize in

> > daVinci robotic and have six machines.

> > If you want any doctor information let me know.

> >

> > This is a great group and you will get lots of useful

> > information from the members here. 

> > Just remember that surgery is not the only treatment and in

> > most cases you have time to research and learn as much as

> > you can about this miserable disease and make the right

> > decision for you. Your a young guy and no matter what

> > treatment option you choose there will be negative side

> > effects that you will have to live with the rest of your

> > life.

> > Good luck,

> > Rick

> >

> >

> >

> >

> >  

> >

> >

> >

> > ________________________________

> >

> > To: ProstateCancerSupport

> > Sent: Monday, December 1, 2008 7:45:03 PM

> > Subject: 46 YOA PCa Diagnosis/NYC

> > Metro Area

> >

> >

> > Hello All, i've been reading all yours posts with

> > interest. I just

> > joined the group a few days ago. I was diagnosed with PCa a

> > few weeks

> > ago.

> > I'm 46yoa male with no family history of PCa. Diagnosis

> > is a result of

> > DRE, palable nodule (node), ultrasound and biopsy with 13

> > core samples

> > taken. PSA was 1.5, Gleason was 6 (Urologist did not give

> > me the

> > breakdown of two different breakdowns of the Gleason

> > scores). Nor did

> > doctor give me staging information yet. He said several

> > core samples

> > were positive for PCa. Although it does not seem to be

> > agressive. To

> > say the least I've been doing a lot of research since

> > the diagnosis.

> > The urologist gave me the dx and immediately began to talk

> > about

> > surgery and or radiation - whichever I preferred, but

> > disease

> > contingent. I asked the doctor to send lab work to a second

> > lab for

> > verification. I'm in the New York City metro area and

> > am considering

> > going into NYC for second opinion etc. Although in speaking

> > to my

> > internist today (who incidentally found the intial enlarged

> > prostate

> > and node), mentioned not not liking the larger NY City

> > hospitals as

> > they are teaching hospitals and generally you don't get

> > the same doctor

> > working on you who you have consulted with. Internist

> > brought up about

> > notion of private hospitals (Boston & Florida),

> > particularly one or two

> > in Flordia where daVinci robotic suregery for PCa is there

> > specialty.

> > Doctor could not recall name of doctors there nor

> > hospitals, but is

> > checking for me.

> > Any suggestions, thoughts or advice? I'm scheduled for

> > a CT and Bone

> > scan within the this Thursday, but from what I've read

> > may not officer

> > that much help. I've also read about Dr. Bard (clinical

> > radiologist) ,

> > in NYC, doing power doppler imaging ultrasound using blood

> > flow

> > ultrasound technology to differntiate between cancer and

> > benign

> > prostatic hypertrophy. Any help and suggestions would be

> > appreciated!

>

[Guest guest]

:

Thanks for sharing... I'm 45 same stats more or less same except PSA

5.4 and you are the 1st person who stated other than my Doctor that

time was NOT something we didn't have and was more than willing not

to push any procedure right now. Had my bone scan done yesterday

results tomorrow but expected at least I hope that all will be

negative and he is not even sceduled to see me till May 1st.

Till such time I'm going to gather as much info as possible and visit

several more urologist specialist to hear what they all have to say.

Thanks!

>

> >

> > Subject: Re: 46 YOA PCa Diagnosis/NYC

Metro Area

> > To: ProstateCancerSupport

> > Date: Tuesday, December 2, 2008, 10:45 AM

> > If you are in the NYC area you may want to take a look at

> > Hackensack University Hospital in Hackensack NJ.

> > It is the home of the Prostate Cancer Institute of New

> > Jersey and the web site is www.humed.com/prostate

> > I was referred there in 2007 when I was diagnosed and had

> > daVinci in May 2007 there..

> > They have many good groups of urologist that are there and

> > offer many treatment options.

> > This is a teaching hospital as well but the surgeon I chose

> > was the one that did the surgery. I chose him because of the

> > number of daVinci procedures he had done and I made sure to

> > ask him if he would be doing it.

> > If you should elect to have surgery they specialize in

> > daVinci robotic and have six machines.

> > If you want any doctor information let me know.

> >

> > This is a great group and you will get lots of useful

> > information from the members here. 

> > Just remember that surgery is not the only treatment and in

> > most cases you have time to research and learn as much as

> > you can about this miserable disease and make the right

> > decision for you. Your a young guy and no matter what

> > treatment option you choose there will be negative side

> > effects that you will have to live with the rest of your

> > life.

> > Good luck,

> > Rick

> >

> >

> >

> >

> >  

> >

> >

> >

> > ________________________________

> >

> > To: ProstateCancerSupport

> > Sent: Monday, December 1, 2008 7:45:03 PM

> > Subject: 46 YOA PCa Diagnosis/NYC

> > Metro Area

> >

> >

> > Hello All, i've been reading all yours posts with

> > interest. I just

> > joined the group a few days ago. I was diagnosed with PCa a

> > few weeks

> > ago.

> > I'm 46yoa male with no family history of PCa. Diagnosis

> > is a result of

> > DRE, palable nodule (node), ultrasound and biopsy with 13

> > core samples

> > taken. PSA was 1.5, Gleason was 6 (Urologist did not give

> > me the

> > breakdown of two different breakdowns of the Gleason

> > scores). Nor did

> > doctor give me staging information yet. He said several

> > core samples

> > were positive for PCa. Although it does not seem to be

> > agressive. To

> > say the least I've been doing a lot of research since

> > the diagnosis.

> > The urologist gave me the dx and immediately began to talk

> > about

> > surgery and or radiation - whichever I preferred, but

> > disease

> > contingent. I asked the doctor to send lab work to a second

> > lab for

> > verification. I'm in the New York City metro area and

> > am considering

> > going into NYC for second opinion etc. Although in speaking

> > to my

> > internist today (who incidentally found the intial enlarged

> > prostate

> > and node), mentioned not not liking the larger NY City

> > hospitals as

> > they are teaching hospitals and generally you don't get

> > the same doctor

> > working on you who you have consulted with. Internist

> > brought up about

> > notion of private hospitals (Boston & Florida),

> > particularly one or two

> > in Flordia where daVinci robotic suregery for PCa is there

> > specialty.

> > Doctor could not recall name of doctors there nor

> > hospitals, but is

> > checking for me.

> > Any suggestions, thoughts or advice? I'm scheduled for

> > a CT and Bone

> > scan within the this Thursday, but from what I've read

> > may not officer

> > that much help. I've also read about Dr. Bard (clinical

> > radiologist) ,

> > in NYC, doing power doppler imaging ultrasound using blood

> > flow

> > ultrasound technology to differntiate between cancer and

> > benign

> > prostatic hypertrophy. Any help and suggestions would be

> > appreciated!

>

[Guest guest]

,Who is your doctor at U of P?Rich

Lafayette Hill> From: White <white.richard54@ yahoo.com>> Subject: Re: [ProstateCancerSupp ort] 46 YOA PCa Diagnosis/NYC Metro Area> To: ProstateCancerSuppo rtyahoogroups (DOT) com> Date: Tuesday, December 2, 2008, 10:45 AM> If you are in the NYC area you may want to take a look at> Hackensack University Hospital in Hackensack NJ.> It is the home of the Prostate Cancer Institute of New> Jersey and the web site is www.humed.com/ prostate > I was referred there in 2007 when I was diagnosed and had> daVinci in May 2007 there..> They have many good groups of urologist that are there and> offer many

treatment options.> This is a teaching hospital as well but the surgeon I chose> was the one that did the surgery. I chose him because of the> number of daVinci procedures he had done and I made sure to> ask him if he would be doing it.> If you should elect to have surgery they specialize in> daVinci robotic and have six machines.> If you want any doctor information let me know.> > This is a great group and you will get lots of useful> information from the members here. > Just remember that surgery is not the only treatment and in> most cases you have time to research and learn as much as> you can about this miserable disease and make the right> decision for you. Your a young guy and no matter what> treatment option you choose there will be negative side> effects that you will have to live with the rest of your>

life.> Good luck,> Rick> > > > > > > > > ____________ _________ _________ __> From: theyank1 <saratogaspa@ hotmail.com>> To: ProstateCancerSuppo rtyahoogroups (DOT) com> Sent: Monday, December 1, 2008 7:45:03 PM> Subject: [ProstateCancerSupp ort] 46 YOA PCa Diagnosis/NYC> Metro Area> > > Hello All, i've been reading all yours posts with> interest. I just> joined the group a few days ago. I was diagnosed with PCa a> few weeks > ago.> I'm 46yoa male with no family history of PCa. Diagnosis> is a result of> DRE, palable nodule (node), ultrasound and biopsy with 13> core samples> taken. PSA was

1.5, Gleason was 6 (Urologist did not give> me the> breakdown of two different breakdowns of the Gleason> scores). Nor did> doctor give me staging information yet. He said several> core samples> were positive for PCa. Although it does not seem to be> agressive. To> say the least I've been doing a lot of research since> the diagnosis.> The urologist gave me the dx and immediately began to talk> about> surgery and or radiation - whichever I preferred, but> disease> contingent. I asked the doctor to send lab work to a second> lab for> verification. I'm in the New York City metro area and> am considering> going into NYC for second opinion etc. Although in speaking> to my > internist today (who incidentally found the intial enlarged> prostate > and node), mentioned not not liking the larger NY City>

hospitals as > they are teaching hospitals and generally you don't get> the same doctor > working on you who you have consulted with. Internist> brought up about > notion of private hospitals (Boston & Florida),> particularly one or two > in Flordia where daVinci robotic suregery for PCa is there> specialty. > Doctor could not recall name of doctors there nor> hospitals, but is > checking for me.> Any suggestions, thoughts or advice? I'm scheduled for> a CT and Bone > scan within the this Thursday, but from what I've read> may not officer > that much help. I've also read about Dr. Bard (clinical> radiologist) , > in NYC, doing power doppler imaging ultrasound using blood> flow > ultrasound technology to differntiate between cancer and> benign > prostatic hypertrophy. Any help and suggestions would

be> appreciated!

[Guest guest]

,Who is your doctor at U of P?Rich

Lafayette Hill> From: White <white.richard54@ yahoo.com>> Subject: Re: [ProstateCancerSupp ort] 46 YOA PCa Diagnosis/NYC Metro Area> To: ProstateCancerSuppo rtyahoogroups (DOT) com> Date: Tuesday, December 2, 2008, 10:45 AM> If you are in the NYC area you may want to take a look at> Hackensack University Hospital in Hackensack NJ.> It is the home of the Prostate Cancer Institute of New> Jersey and the web site is www.humed.com/ prostate > I was referred there in 2007 when I was diagnosed and had> daVinci in May 2007 there..> They have many good groups of urologist that are there and> offer many

treatment options.> This is a teaching hospital as well but the surgeon I chose> was the one that did the surgery. I chose him because of the> number of daVinci procedures he had done and I made sure to> ask him if he would be doing it.> If you should elect to have surgery they specialize in> daVinci robotic and have six machines.> If you want any doctor information let me know.> > This is a great group and you will get lots of useful> information from the members here. > Just remember that surgery is not the only treatment and in> most cases you have time to research and learn as much as> you can about this miserable disease and make the right> decision for you. Your a young guy and no matter what> treatment option you choose there will be negative side> effects that you will have to live with the rest of your>

life.> Good luck,> Rick> > > > > > > > > ____________ _________ _________ __> From: theyank1 <saratogaspa@ hotmail.com>> To: ProstateCancerSuppo rtyahoogroups (DOT) com> Sent: Monday, December 1, 2008 7:45:03 PM> Subject: [ProstateCancerSupp ort] 46 YOA PCa Diagnosis/NYC> Metro Area> > > Hello All, i've been reading all yours posts with> interest. I just> joined the group a few days ago. I was diagnosed with PCa a> few weeks > ago.> I'm 46yoa male with no family history of PCa. Diagnosis> is a result of> DRE, palable nodule (node), ultrasound and biopsy with 13> core samples> taken. PSA was

1.5, Gleason was 6 (Urologist did not give> me the> breakdown of two different breakdowns of the Gleason> scores). Nor did> doctor give me staging information yet. He said several> core samples> were positive for PCa. Although it does not seem to be> agressive. To> say the least I've been doing a lot of research since> the diagnosis.> The urologist gave me the dx and immediately began to talk> about> surgery and or radiation - whichever I preferred, but> disease> contingent. I asked the doctor to send lab work to a second> lab for> verification. I'm in the New York City metro area and> am considering> going into NYC for second opinion etc. Although in speaking> to my > internist today (who incidentally found the intial enlarged> prostate > and node), mentioned not not liking the larger NY City>

hospitals as > they are teaching hospitals and generally you don't get> the same doctor > working on you who you have consulted with. Internist> brought up about > notion of private hospitals (Boston & Florida),> particularly one or two > in Flordia where daVinci robotic suregery for PCa is there> specialty. > Doctor could not recall name of doctors there nor> hospitals, but is > checking for me.> Any suggestions, thoughts or advice? I'm scheduled for> a CT and Bone > scan within the this Thursday, but from what I've read> may not officer > that much help. I've also read about Dr. Bard (clinical> radiologist) , > in NYC, doing power doppler imaging ultrasound using blood> flow > ultrasound technology to differntiate between cancer and> benign > prostatic hypertrophy. Any help and suggestions would

be> appreciated!

[Guest guest]

1. Since the Memorial Sloan Kettering website is one of the key

sources of information on the Web, perhaps MSKCC (in Manhattan, the

last I knew) would be worth visiting. " Teaching hospital " or not,

there are lots of experts there.

2. You're probably a candidate for " active surveillance " , given your

low PSA and Gleason scores. Gleason 6 is always " 3+3 " . You have the

option of doing nothing, at least for a while.

Take your time in deciding on treatment, and on who does it. You'll

be living with the side effects for a long time.

> ________________________________

>

> To: ProstateCancerSupport

> Sent: Monday, December 1, 2008 7:45:03 PM

> Subject: 46 YOA PCa Diagnosis/NYC Metro Area

>

>

> Hello All, i've been reading all yours posts with interest. I just

> joined the group a few days ago. I was diagnosed with PCa a few weeks

> ago.

> I'm 46yoa male with no family history of PCa. Diagnosis is a result of

> DRE, palable nodule (node), ultrasound and biopsy with 13 core samples

> taken. PSA was 1.5, Gleason was 6 (Urologist did not give me the

> breakdown of two different breakdowns of the Gleason scores). Nor did

> doctor give me staging information yet. He said several core samples

> were positive for PCa. Although it does not seem to be agressive. To

> say the least I've been doing a lot of research since the diagnosis.

> The urologist gave me the dx and immediately began to talk about

> surgery and or radiation - whichever I preferred, but disease

> contingent. I asked the doctor to send lab work to a second lab for

> verification. I'm in the New York City metro area and am considering

> going into NYC for second opinion etc. Although in speaking to my

> internist today (who incidentally found the intial enlarged prostate

> and node), mentioned not not liking the larger NY City hospitals as

> they are teaching hospitals and generally you don't get the same doctor

> working on you who you have consulted with. Internist brought up about

> notion of private hospitals (Boston & Florida), particularly one or two

> in Flordia where daVinci robotic suregery for PCa is there specialty.

> Doctor could not recall name of doctors there nor hospitals, but is

> checking for me.

> Any suggestions, thoughts or advice? I'm scheduled for a CT and Bone

> scan within the this Thursday, but from what I've read may not officer

> that much help. I've also read about Dr. Bard (clinical radiologist) ,

> in NYC, doing power doppler imaging ultrasound using blood flow

> ultrasound technology to differntiate between cancer and benign

> prostatic hypertrophy. Any help and suggestions would be appreciated!

>