Re: New to this group...and Rheumatoid

[Guest guest]

--

Hi I'm new too! I've had RA for 8 years now! I have been on

Methorexate,Planqueil, folic acid, Celbrex. It take a while to work

but when it does you'll feel better I did! I use to get trigger finger

if you know what that is. Your fingers have a spasm and it hurts big

time. But know they are fine alittle stiff at times. Having RA is

painful but without meds you'll hurt alot worse.

- In , " jmkaliko " <jmkaliko@...> wrote:

>

> Hi my name is and I'm new to Rheumtoid. I've been displaying

> symptoms of Rheumatoid for four years, and about a month ago seven of

> my joints inflammed and I was diagnose a week ago. I'm 26 years old

> and tired. I have been put on Methotrexate and Prednisone they have

> also given me darvoset for pain.

>

> My question is how long does it normally take to get acclimated to the

> medication, I'm really having a hard time feeling good enough to lead a

> half way normal day. Is this just the way it is or is there light at

> the end of the tunnel? And the swelling in my hands hasn't decreased

> at all.

>

> Any advice?

>

>

>

[Guest guest]

>HI JAMIE,WELCOME TO THE GROUP..MY NAME IS MELYNDA,I LIVE IN TX. IVE

HAD RA SINCE I WAS 5YRS.OLD,IM NOW 38.I TO TAKE MTX & PREDNISONE.IT

DOES TAKE A LIL WHILE FOR THE MEDS TO KICK IN,B PATIENT!!I SOOO

TOTALLY KNOW WHAT U R GOING THROUGH.GOOD LUCK & GOD BLESS

melyndagamez@...>wrote

> Hi my name is and I'm new to Rheumtoid. I've been

displaying

> symptoms of Rheumatoid for four years, and about a month ago seven

of

> my joints inflammed and I was diagnose a week ago. I'm 26 years

old

> and tired. I have been put on Methotrexate and Prednisone they

have

> also given me darvoset for pain.

>

> My question is how long does it normally take to get acclimated to

the

> medication, I'm really having a hard time feeling good enough to

lead a

> half way normal day. Is this just the way it is or is there light

at

> the end of the tunnel? And the swelling in my hands hasn't

decreased

> at all.

>

> Any advice?

>

>

>

[Guest guest]

,

I take MTX and it took me about 3-4 months to feel better. But I can always

expect to feel like crap about 2 -3 days after I take it. The Rhy put me on

folic acid but it never really helped the feeling, however I think it

actuall has more to do with protecting the liver. I have just learend to

plan my days according to the meds. I am sorry I can't give you any better

news, but I can tell you I had to go off it once when I had an infection and

I really learned how much it does help. So hang in there.

Heidi M

On Feb 16, 2008 4:21 PM, mapgamez <mapgamez@...> wrote:

>

> >HI JAMIE,WELCOME TO THE GROUP..MY NAME IS MELYNDA,I LIVE IN TX. IVE

> HAD RA SINCE I WAS 5YRS.OLD,IM NOW 38.I TO TAKE MTX & PREDNISONE.IT

> DOES TAKE A LIL WHILE FOR THE MEDS TO KICK IN,B PATIENT!!I SOOO

> TOTALLY KNOW WHAT U R GOING THROUGH.GOOD LUCK & GOD BLESS

> melyndagamez@... <melyndagamez%40>>wrote

> > Hi my name is and I'm new to Rheumtoid. I've been

> displaying

> > symptoms of Rheumatoid for four years, and about a month ago seven

> of

> > my joints inflammed and I was diagnose a week ago. I'm 26 years

> old

> > and tired. I have been put on Methotrexate and Prednisone they

> have

> > also given me darvoset for pain.

> >

> > My question is how long does it normally take to get acclimated to

> the

> > medication, I'm really having a hard time feeling good enough to

> lead a

> > half way normal day. Is this just the way it is or is there light

> at

> > the end of the tunnel? And the swelling in my hands hasn't

> decreased

> > at all.

> >

> > Any advice?

> >

> >

> >

>

>

>

[Guest guest]

,

Enbrel is a weekly injection the works along with MTX to help with pain and

lessen the distruction of the joints.

Heidi M

On Feb 18, 2008 5:35 PM, smith <jmkaliko@...> wrote:

> I took vicoden for a few months and it made me a spazoid. I had to quit

> taking it. What is Enbrel, my mom mentioned it to me and I'm not sure what

> it is and what the side effects are. This RA is crazy, I had no idea about

> this disease until I got it. I feel overwhelmed.

> but I'm learning and I'm getting more optomistic about it.

> I hope you are having a good day today.

>

> thanks for the info:)

>

> Heidi Mendelsohn <hmendelsohn@... <hmendelsohn%40gmail.com>> wrote:

> ,

> I have been on MTX for about a year. I was om Enbrel as well but it was

> not

> doing as much as the Rhummy thought so he is trying to get me on Humra (

> Insurance delays !!!) I was diagnosed with Interstitial cystitis ( another

> auto immune disease) first. It attacked my bladder causing severe

> abdominal

> pain. The they diagnosed the Fibro. and when I was not getting better they

> went to RA. My labs were negative but the MRi found the RA. I take so many

> meds its hard to say which one helps which. I also take Vicodan for

> pain.Good day and bad days that is what I say. On the good ones I just

> rejoice that the pain is not severe. I hope you have a lot of good days

> and

> that the MTX works for you.

> Heidi M

> On Feb 18, 2008 2:48 PM, smith

<jmkaliko@...<jmkaliko%40>>

> wrote:

>

> > Thanks Heidi,

> > Over the past few days I've been reading and reading. I'm feeling better

> > than last week but still really tired. I guess you're right, I was

> feeling a

> > lot worse when I couldn't bend my knees, use my hands, and my jaw was

> out of

> > commision. I guess the hardest part is accepting and adjusting my life.

> How

> > long have you been on MTX, have you ever tried any other meds?

> >

> >

> > Heidi Mendelsohn <hmendelsohn@...

<hmendelsohn%40gmail.com><hmendelsohn%40gmail.com>> wrote:

> > ,

> > I take MTX and it took me about 3-4 months to feel better. But I can

> > always

> > expect to feel like crap about 2 -3 days after I take it. The Rhy put me

> > on

> > folic acid but it never really helped the feeling, however I think it

> > actuall has more to do with protecting the liver. I have just learend to

> > plan my days according to the meds. I am sorry I can't give you any

> better

> > news, but I can tell you I had to go off it once when I had an infection

> > and

> > I really learned how much it does help. So hang in there.

> > Heidi M

> >

> > On Feb 16, 2008 4:21 PM, mapgamez <mapgamez@...<mapgamez%40>

> <mapgamez%40>>

> > wrote:

> >

> > >

> > > >HI JAMIE,WELCOME TO THE GROUP..MY NAME IS MELYNDA,I LIVE IN TX. IVE

> > > HAD RA SINCE I WAS 5YRS.OLD,IM NOW 38.I TO TAKE MTX & PREDNISONE.IT

> > > DOES TAKE A LIL WHILE FOR THE MEDS TO KICK IN,B PATIENT!!I SOOO

> > > TOTALLY KNOW WHAT U R GOING THROUGH.GOOD LUCK & GOD BLESS

> > > melyndagamez@...

<melyndagamez%40><melyndagamez%40><melyndagamez%40>>w\

rote

>

> > > > Hi my name is and I'm new to Rheumtoid. I've been

> > > displaying

> > > > symptoms of Rheumatoid for four years, and about a month ago seven

> > > of

> > > > my joints inflammed and I was diagnose a week ago. I'm 26 years

> > > old

> > > > and tired. I have been put on Methotrexate and Prednisone they

> > > have

> > > > also given me darvoset for pain.

> > > >

> > > > My question is how long does it normally take to get acclimated to

> > > the

> > > > medication, I'm really having a hard time feeling good enough to

> > > lead a

> > > > half way normal day. Is this just the way it is or is there light

> > > at

> > > > the end of the tunnel? And the swelling in my hands hasn't

> > > decreased

> > > > at all.

> > > >

> > > > Any advice?

> > > >

> > > >

> > > >

> > >

> > >

> > >

> >

> >

[Guest guest]

>

> ,

> I take MTX and it took me about 3-4 months to feel better. But I

can always

> expect to feel like crap about 2 -3 days after I take it. The Rhy

put me on

> folic acid but it never really helped the feeling, however I think it

> actuall has more to do with protecting the liver. I have just learend to

> plan my days according to the meds. I am sorry I can't give you any

better

> news, but I can tell you I had to go off it once when I had an

infection and

> I really learned how much it does help. So hang in there.

> Heidi M

>

Hi Heidi--

Regarding feeling like crap after you take your MTX--you might want to

ask your Rheummy about Leucovorin (folinic acid). That's what my

Rheummy has me take. He says that it helps with the side effects of

MTX better than folic acid. I take 10mgs at the same time I take my

MTX. (A lot of doctors have you take it the next day, but mine says

just to take it at the same time). Anyway, I don't really have any

side effects from the MTX at all.

dordale

[Guest guest]

Hi ,

I'm I'm 24, I was diagnosed when I was 21. I don't know if I

have any answers for you, I am still in the dark about a lot of

stuff. BUT I am in the boat with you. I totally know how you feel,

and that it can be so overwhelming! Maybe I should have joined this

group sooner, as you did. I am learning alot. Maybe I will get

somewhere now with my doctors.

Hope you are feeling better soon.

-

>

> Hi my name is and I'm new to Rheumtoid. I've been displaying

> symptoms of Rheumatoid for four years, and about a month ago seven

of

> my joints inflammed and I was diagnose a week ago. I'm 26 years

old

> and tired. I have been put on Methotrexate and Prednisone they

have

> also given me darvoset for pain.

>

> My question is how long does it normally take to get acclimated to

the

> medication, I'm really having a hard time feeling good enough to

lead a

> half way normal day. Is this just the way it is or is there light

at

> the end of the tunnel? And the swelling in my hands hasn't

decreased

> at all.

>

> Any advice?

>

>

>