Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 K, I think you are meaning IPF, Idiopathic Pulmonary Fibrosis. That is the medical term.. Keep on Keepin on. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Thanks Joyce, Peggy and Sher. I know I've a lot to learn. Are you in Oregon Sher? My father had Lupus Joyce and now my 2nd cousin has it and her sis Scleroderma. Both opposite sides of the family. They are not related. Strange huh? I am wondering how long many of you have had IPD? When I look back and put the pieces together, I believe I've had this for at least 12 years. Thought I was just out of shape, although six years ago, I was walking three miles, three times a week. No wonder I was so exhausted. Kay Sjogren's IPD/HHT 9-18-07 If there is no bright side, polish up the dark side. Re: abbreviations , For medical abreviations click on:http://www.copd-international.com/ library/Medabbreviations.htm Some of the abreviations we use here we have made up ourselves. But, most are on this list. Just ask.... PFT is the pulmonary function test where you blow into the machines and it rates your lung volumes, etc. I dread it because it is such an exhausting effort at this point in my disease and it hurts to blow as hard as I can and then hold it, etc. I am totally soaked with sweat when it is finished. That is what they use to measure the progression of the disease and I have no choice but to do it. Apria is an oxygen (and other healthcare equipment) provider. It seems that they perform according to which insurance that you have or which location it is. Some people have had good experiences with them. Not me! ABSOLUTLY you should have a pulmonary doctor. The sooner the better. Hugs, Joyce D. PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > Hi Joyce, > > As a new member I am really lost when it comes to the abbreviations that are used by everyone. It may take me a bit to " catch on " . > > What do you mean when you say you are short of breath on 8L? You are having another PFT soon, I would guess means pulmonary fibrosis test? For someone like me, who has just been diagnosed, there is so much I don't know. Why do you dread the test? > > Is the Apria that you all are talking about, an insurance company or medical supplier? > > I don't have a pulmonary doctor and don't know if I should or not. > > Also, how does everyone get their info such as: /Sjogren's IPD, etc., to automatically be printed beneath their name? I see there is another here besides me. > > Thank s. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 K, I think you are meaning IPF, Idiopathic Pulmonary Fibrosis. That is the medical term.. Keep on Keepin on. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Thanks Joyce, Peggy and Sher. I know I've a lot to learn. Are you in Oregon Sher? My father had Lupus Joyce and now my 2nd cousin has it and her sis Scleroderma. Both opposite sides of the family. They are not related. Strange huh? I am wondering how long many of you have had IPD? When I look back and put the pieces together, I believe I've had this for at least 12 years. Thought I was just out of shape, although six years ago, I was walking three miles, three times a week. No wonder I was so exhausted. Kay Sjogren's IPD/HHT 9-18-07 If there is no bright side, polish up the dark side. Re: abbreviations , For medical abreviations click on:http://www.copd-international.com/ library/Medabbreviations.htm Some of the abreviations we use here we have made up ourselves. But, most are on this list. Just ask.... PFT is the pulmonary function test where you blow into the machines and it rates your lung volumes, etc. I dread it because it is such an exhausting effort at this point in my disease and it hurts to blow as hard as I can and then hold it, etc. I am totally soaked with sweat when it is finished. That is what they use to measure the progression of the disease and I have no choice but to do it. Apria is an oxygen (and other healthcare equipment) provider. It seems that they perform according to which insurance that you have or which location it is. Some people have had good experiences with them. Not me! ABSOLUTLY you should have a pulmonary doctor. The sooner the better. Hugs, Joyce D. PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > Hi Joyce, > > As a new member I am really lost when it comes to the abbreviations that are used by everyone. It may take me a bit to " catch on " . > > What do you mean when you say you are short of breath on 8L? You are having another PFT soon, I would guess means pulmonary fibrosis test? For someone like me, who has just been diagnosed, there is so much I don't know. Why do you dread the test? > > Is the Apria that you all are talking about, an insurance company or medical supplier? > > I don't have a pulmonary doctor and don't know if I should or not. > > Also, how does everyone get their info such as: /Sjogren's IPD, etc., to automatically be printed beneath their name? I see there is another here besides me. > > Thank s. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 Yes, I do mean IPF.....the D was for disease :-) I'll catch on darn it. K Sjogren's IPF/HHT 9-18-07 Oregon If there is no bright side polish up the dark side. Re: abbreviations,For medical abreviations click on:http://www.copd-international.com/ library/Medabbreviations.htmSome of the abreviations we use here we have made up ourselves. But, most are on this list. Just ask....PFT is the pulmonary function test where you blow into the machines and it rates your lung volumes, etc. I dread it because it is such an exhausting effort at this point in my disease and it hurts to blow as hard as I can and then hold it, etc. I am totally soaked with sweat when it is finished. That is what they use to measure the progression of the disease and I have no choice but to do it.Apria is an oxygen (and other healthcare equipment) provider. It seems that they perform according to which insurance that you have or which location it is. Some people have had good experiences with them. Not me!ABSOLUTLY you should have a pulmonary doctor. The sooner the better.Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA2 COR. 12:10 ....when I am weak, then I am strong.>> Hi Joyce,>> As a new member I am really lost when it comes to the abbreviations that are used by everyone. It may take me a bit to "catch on".>> What do you mean when you say you are short of breath on 8L? You are having another PFT soon, I would guess means pulmonary fibrosis test? For someone like me, who has just been diagnosed, there is so much I don't know. Why do you dread the test?>> Is the Apria that you all are talking about, an insurance company or medical supplier?>> I don't have a pulmonary doctor and don't know if I should or not.>> Also, how does everyone get their info such as: /Sjogren's IPD, etc., to automatically be printed beneath their name? I see there is another here besides me.>> Thank s.>> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 not to worry. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Yes, I do mean IPF.....the D was for disease :-) I'll catch on darn it. K Sjogren's IPF/HHT 9-18-07 Oregon If there is no bright side polish up the dark side. Re: abbreviations , For medical abreviations click on:http://www.copd-international.com/ library/Medabbreviations.htm Some of the abreviations we use here we have made up ourselves. But, most are on this list. Just ask.... PFT is the pulmonary function test where you blow into the machines and it rates your lung volumes, etc. I dread it because it is such an exhausting effort at this point in my disease and it hurts to blow as hard as I can and then hold it, etc. I am totally soaked with sweat when it is finished. That is what they use to measure the progression of the disease and I have no choice but to do it. Apria is an oxygen (and other healthcare equipment) provider. It seems that they perform according to which insurance that you have or which location it is. Some people have had good experiences with them. Not me! ABSOLUTLY you should have a pulmonary doctor. The sooner the better. Hugs, Joyce D. PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > Hi Joyce, > > As a new member I am really lost when it comes to the abbreviations that are used by everyone. It may take me a bit to " catch on " . > > What do you mean when you say you are short of breath on 8L? You are having another PFT soon, I would guess means pulmonary fibrosis test? For someone like me, who has just been diagnosed, there is so much I don't know. Why do you dread the test? > > Is the Apria that you all are talking about, an insurance company or medical supplier? > > I don't have a pulmonary doctor and don't know if I should or not. > > Also, how does everyone get their info such as: /Sjogren's IPD, etc., to automatically be printed beneath their name? I see there is another here besides me. > > Thank s. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Hi , I am so happy for you that all is going so well. Ralph seems to be doing very well, so good to hear. My husband started his IMRT treatments three weeks ago but only got one treatment the first week, then we lost a week while they had to reprogram the machine. It wouldn't shoot because everything was not lined up perfectly. So he had a CT scan and reprogramed and we started again this week. He has had three treatments without any problems. I'll keep you posted. Take care and God Bless. Sincerely, Sheila -------------- Original message -------------- Glad to hear you are doing so well too, Teri! Teri <funhogstignatius (DOT) net> wrote: ,Glad to hear Ralph is doing so good! I was wondering. We are also pleased with 's lack of incontinence and optimistic about the probably of erections. > Hello everyone. I am Steve and have recently been diagnosed with an> early stage cancer of the prostate. I am wanti ng to make a wise> decision on treatment. I talked with my urologist last week and will> be at the radiation therapy clinic Friday. After 7 major surgeries, I> did not want to go through another. I have PC on both sides of my> family - dad and 2 of his brothers and 2 of mom's brothers. I am> emphatic about getting the annual check-up. This year, the PSA went> from 1.3 in March '07 to 2.5 in Feb '08 and 3.8 in March (was passing> blood in the urine. Typical-right? ). The Dr. stated that it was very> early in development and highly treatable. At 56, this is not hard to> accept. I have helped others deal with problems as I am a pastor and> have dealt with cancer, heart attack families, deaths of accident> victims, Alzheimers, and many other issues.> > What I would like would be honest opinions on radiation, cryotherapy,> and surgery (cancer is highly localized). I am r eading on-line> articles, researching through the library, and reading all brochures I> can get my hands on.> > Thank you for your honesty.> Steve> Quote Link to comment Share on other sites More sharing options...
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