Re: Re: Psychotic episode and a few other things (thanks)-Tania

[Guest guest]

Lynn,

You stated,

Mom couldn't remember names of those who cared for her. Instead, she assigned

them different names (quite confusing until we figured out what she was doing).

What was amazing was that while she couldn't remember their real names, she did

remember the names she assigned to them. One was assigned " Dr. Stone " for some

odd reason. <smile>

 

My husband with LBD did that also. And the samething, he always remembered the

names he assigned to the staff at the nursing home.  I have never heard anyone

mention this before.

Thankfully, the staff went along with it and recognized their given name when he

called them.

Jan Colello

________________________________

To: LBDcaregivers

Sent: Sunday, June 3, 2012 5:08 AM

Subject: Re: Psychotic episode and a few other things

(thanks)-Tania

Tania, does your dad have a hearing problem?  Maybe he's trying to concentrate

on watching your faces as part of hearing?  I've seen others with hearing

problems do the same thing, as well as those whose first language is not

English.  Mom was hard of hearing but I believe the disease had its own aspects

that complicated hearing further.  The woman who took Mom's space after she

passed has also been diagnosed with LBD.  But, her hearing is heightened.  She

can hear a whisper in another room, even when she's unable to see the person

whispering.  Each person is so very different in how this disease affects them.

Also, I remember asking Mom (she passed on March 5) a question and not getting

an answer from her.  Only the stare.  When I'd ask her the question a second

time, she'd promptly say, " I'm thinking! "   It took her time to process the

question and then come up with an answer.

Another time, our son was visiting her with a high school friend.  This friend

had not seen Mom for almost two years.  Mom looked at her, looked at our son,

repeating this for about a minute.  Suddenly, she popped up with, " His

girlfriend! "   Her watching back and forth and quiet time allowed her to sift

through her memory to pull out who this person was even if she couldn't remember

her name.

A light note here...Mom couldn't remember names of those who cared for her. 

Instead, she assigned them different names (quite confusing until we figured out

what she was doing).  What was amazing was that while she couldn't remember

their real names, she did remember the names she assigned to them.  One was

assigned " Dr. Stone " for some odd reason.  <smile> 

Best wishes to you and your family,

Lynn in Florida

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

..

>

> Has anyone observed their LO with LBD/PDD staring at them? Mum and I

frequently find Dad staring at us when we think he's watching the TV. It's a

little unnerving because it seems as though he doesn't know us but the second we

say something to him, he's (more or less) normal, or as normal can be...ie.

knows who we are, what we're talking about.

------------------------------------

Welcome to LBDcaregivers. 

[Guest guest]

Lynn,

You stated,

Mom couldn't remember names of those who cared for her. Instead, she assigned

them different names (quite confusing until we figured out what she was doing).

What was amazing was that while she couldn't remember their real names, she did

remember the names she assigned to them. One was assigned " Dr. Stone " for some

odd reason. <smile>

 

My husband with LBD did that also. And the samething, he always remembered the

names he assigned to the staff at the nursing home.  I have never heard anyone

mention this before.

Thankfully, the staff went along with it and recognized their given name when he

called them.

Jan Colello

________________________________

To: LBDcaregivers

Sent: Sunday, June 3, 2012 5:08 AM

Subject: Re: Psychotic episode and a few other things

(thanks)-Tania

Tania, does your dad have a hearing problem?  Maybe he's trying to concentrate

on watching your faces as part of hearing?  I've seen others with hearing

problems do the same thing, as well as those whose first language is not

English.  Mom was hard of hearing but I believe the disease had its own aspects

that complicated hearing further.  The woman who took Mom's space after she

passed has also been diagnosed with LBD.  But, her hearing is heightened.  She

can hear a whisper in another room, even when she's unable to see the person

whispering.  Each person is so very different in how this disease affects them.

Also, I remember asking Mom (she passed on March 5) a question and not getting

an answer from her.  Only the stare.  When I'd ask her the question a second

time, she'd promptly say, " I'm thinking! "   It took her time to process the

question and then come up with an answer.

Another time, our son was visiting her with a high school friend.  This friend

had not seen Mom for almost two years.  Mom looked at her, looked at our son,

repeating this for about a minute.  Suddenly, she popped up with, " His

girlfriend! "   Her watching back and forth and quiet time allowed her to sift

through her memory to pull out who this person was even if she couldn't remember

her name.

A light note here...Mom couldn't remember names of those who cared for her. 

Instead, she assigned them different names (quite confusing until we figured out

what she was doing).  What was amazing was that while she couldn't remember

their real names, she did remember the names she assigned to them.  One was

assigned " Dr. Stone " for some odd reason.  <smile> 

Best wishes to you and your family,

Lynn in Florida

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

..

>

> Has anyone observed their LO with LBD/PDD staring at them? Mum and I

frequently find Dad staring at us when we think he's watching the TV. It's a

little unnerving because it seems as though he doesn't know us but the second we

say something to him, he's (more or less) normal, or as normal can be...ie.

knows who we are, what we're talking about.

------------------------------------

Welcome to LBDcaregivers. 

[Guest guest]

Lynn,

You stated,

Mom couldn't remember names of those who cared for her. Instead, she assigned

them different names (quite confusing until we figured out what she was doing).

What was amazing was that while she couldn't remember their real names, she did

remember the names she assigned to them. One was assigned " Dr. Stone " for some

odd reason. <smile>

 

My husband with LBD did that also. And the samething, he always remembered the

names he assigned to the staff at the nursing home.  I have never heard anyone

mention this before.

Thankfully, the staff went along with it and recognized their given name when he

called them.

Jan Colello

________________________________

To: LBDcaregivers

Sent: Sunday, June 3, 2012 5:08 AM

Subject: Re: Psychotic episode and a few other things

(thanks)-Tania

Tania, does your dad have a hearing problem?  Maybe he's trying to concentrate

on watching your faces as part of hearing?  I've seen others with hearing

problems do the same thing, as well as those whose first language is not

English.  Mom was hard of hearing but I believe the disease had its own aspects

that complicated hearing further.  The woman who took Mom's space after she

passed has also been diagnosed with LBD.  But, her hearing is heightened.  She

can hear a whisper in another room, even when she's unable to see the person

whispering.  Each person is so very different in how this disease affects them.

Also, I remember asking Mom (she passed on March 5) a question and not getting

an answer from her.  Only the stare.  When I'd ask her the question a second

time, she'd promptly say, " I'm thinking! "   It took her time to process the

question and then come up with an answer.

Another time, our son was visiting her with a high school friend.  This friend

had not seen Mom for almost two years.  Mom looked at her, looked at our son,

repeating this for about a minute.  Suddenly, she popped up with, " His

girlfriend! "   Her watching back and forth and quiet time allowed her to sift

through her memory to pull out who this person was even if she couldn't remember

her name.

A light note here...Mom couldn't remember names of those who cared for her. 

Instead, she assigned them different names (quite confusing until we figured out

what she was doing).  What was amazing was that while she couldn't remember

their real names, she did remember the names she assigned to them.  One was

assigned " Dr. Stone " for some odd reason.  <smile> 

Best wishes to you and your family,

Lynn in Florida

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

..

>

> Has anyone observed their LO with LBD/PDD staring at them? Mum and I

frequently find Dad staring at us when we think he's watching the TV. It's a

little unnerving because it seems as though he doesn't know us but the second we

say something to him, he's (more or less) normal, or as normal can be...ie.

knows who we are, what we're talking about.

------------------------------------

Welcome to LBDcaregivers. 

[Guest guest]

does anyone know what pain killers we can use. my dad fell and broke his

arm and needs something stronger that tylenol.

Connected by DROID on Verizon Wireless

Re: Psychotic episode and a few other things

(thanks)-Tania

Hi Lynn & Jan.

Yes, Dad does have a hearing problem. He has hearing aids but resists

wearing them. I've read that noise can be very overwhelming for people with

PDD/LBD and I suspect that's why he's like that. We even set them to

'medium' so they're not too loud but it's still too loud for him. He only

got them last year so he's gone many years with little hearing (industrial

deafness) and that probably makes it harder for him.

But the staring is something different because we're not talking when we

find him doing it. It's a little strange but then, so is this awful disease.

I love the stories about assigning/remembering caregivers' names. The brain

is a very complex thing.

And about needing time to answer a question. Mum sometimes gets impatient

when needing an answer from Dad and that just seems to confuse him more.

The same goes for his body. He has apraxia so the command from his brain

isn't always followed by his body. Last week, we had a physiotherapist come

to the house and she was very impatient with Dad when he was trying to get

out of the car. I told her about the apraxia but she still didn't seem to

get it.

Tania....

>

> Tania, does your dad have a hearing problem? Maybe he's trying to

concentrate on watching your faces as part of hearing? I've seen others

with hearing problems do the same thing, as well as those whose first

language is not English. Mom

[Guest guest]

does anyone know what pain killers we can use. my dad fell and broke his

arm and needs something stronger that tylenol.

Connected by DROID on Verizon Wireless

Re: Psychotic episode and a few other things

(thanks)-Tania

Hi Lynn & Jan.

Yes, Dad does have a hearing problem. He has hearing aids but resists

wearing them. I've read that noise can be very overwhelming for people with

PDD/LBD and I suspect that's why he's like that. We even set them to

'medium' so they're not too loud but it's still too loud for him. He only

got them last year so he's gone many years with little hearing (industrial

deafness) and that probably makes it harder for him.

But the staring is something different because we're not talking when we

find him doing it. It's a little strange but then, so is this awful disease.

I love the stories about assigning/remembering caregivers' names. The brain

is a very complex thing.

And about needing time to answer a question. Mum sometimes gets impatient

when needing an answer from Dad and that just seems to confuse him more.

The same goes for his body. He has apraxia so the command from his brain

isn't always followed by his body. Last week, we had a physiotherapist come

to the house and she was very impatient with Dad when he was trying to get

out of the car. I told her about the apraxia but she still didn't seem to

get it.

Tania....

>

> Tania, does your dad have a hearing problem? Maybe he's trying to

concentrate on watching your faces as part of hearing? I've seen others

with hearing problems do the same thing, as well as those whose first

language is not English. Mom

[Guest guest]

Hi Tania,

How about Tylenol number 3?

My mom was able to take dilaudid and other opiod based meds for years with no

ill effects. I wouldn’t hesitate to treat to the pain. Best to you both.

Courage

From: ljcusack@...

Sent: Sunday, June 03, 2012 9:58 PM

To: LBDcaregivers

Subject: Re: Re: Psychotic episode and a few other things

(thanks)-Tania

does anyone know what pain killers we can use. my dad fell and broke his

arm and needs something stronger that tylenol.

Connected by DROID on Verizon Wireless

Re: Psychotic episode and a few other things

(thanks)-Tania

Hi Lynn & Jan.

Yes, Dad does have a hearing problem. He has hearing aids but resists

wearing them. I've read that noise can be very overwhelming for people with

PDD/LBD and I suspect that's why he's like that. We even set them to

'medium' so they're not too loud but it's still too loud for him. He only

got them last year so he's gone many years with little hearing (industrial

deafness) and that probably makes it harder for him.

But the staring is something different because we're not talking when we

find him doing it. It's a little strange but then, so is this awful disease.

I love the stories about assigning/remembering caregivers' names. The brain

is a very complex thing.

And about needing time to answer a question. Mum sometimes gets impatient

when needing an answer from Dad and that just seems to confuse him more.

The same goes for his body. He has apraxia so the command from his brain

isn't always followed by his body. Last week, we had a physiotherapist come

to the house and she was very impatient with Dad when he was trying to get

out of the car. I told her about the apraxia but she still didn't seem to

get it.

Tania....

>

> Tania, does your dad have a hearing problem? Maybe he's trying to

concentrate on watching your faces as part of hearing? I've seen others

with hearing problems do the same thing, as well as those whose first

language is not English. Mom

[Guest guest]

Hi Tania,

How about Tylenol number 3?

My mom was able to take dilaudid and other opiod based meds for years with no

ill effects. I wouldn’t hesitate to treat to the pain. Best to you both.

Courage

From: ljcusack@...

Sent: Sunday, June 03, 2012 9:58 PM

To: LBDcaregivers

Subject: Re: Re: Psychotic episode and a few other things

(thanks)-Tania

does anyone know what pain killers we can use. my dad fell and broke his

arm and needs something stronger that tylenol.

Connected by DROID on Verizon Wireless

Re: Psychotic episode and a few other things

(thanks)-Tania

Hi Lynn & Jan.

Yes, Dad does have a hearing problem. He has hearing aids but resists

wearing them. I've read that noise can be very overwhelming for people with

PDD/LBD and I suspect that's why he's like that. We even set them to

'medium' so they're not too loud but it's still too loud for him. He only

got them last year so he's gone many years with little hearing (industrial

deafness) and that probably makes it harder for him.

But the staring is something different because we're not talking when we

find him doing it. It's a little strange but then, so is this awful disease.

I love the stories about assigning/remembering caregivers' names. The brain

is a very complex thing.

And about needing time to answer a question. Mum sometimes gets impatient

when needing an answer from Dad and that just seems to confuse him more.

The same goes for his body. He has apraxia so the command from his brain

isn't always followed by his body. Last week, we had a physiotherapist come

to the house and she was very impatient with Dad when he was trying to get

out of the car. I told her about the apraxia but she still didn't seem to

get it.

Tania....

>

> Tania, does your dad have a hearing problem? Maybe he's trying to

concentrate on watching your faces as part of hearing? I've seen others

with hearing problems do the same thing, as well as those whose first

language is not English. Mom

[Guest guest]

thanks . . . the doctor prescribed hydrocodone-acetaminophen . . . has anyone

had any experience with that?

Connected by DROID on Verizon Wireless

Re: Psychotic episode and a few other things

(thanks)-Tania

Hi Lynn & Jan.

Yes, Dad does have a hearing problem. He has hearing aids but resists

wearing them. I've read that noise can be very overwhelming for people with

PDD/LBD and I suspect that's why he's like that. We even set them to

'medium' so they're not too loud but it's still too loud for him. He only

got them last year so he's gone many years with little hearing (industrial

deafness) and that probably makes it harder for him.

But the staring is something different because we're not talking when we

find him doing it. It's a little strange but then, so is this awful disease.

I love the stories about assigning/remembering caregiv

[Guest guest]

thanks . . . the doctor prescribed hydrocodone-acetaminophen . . . has anyone

had any experience with that?

Connected by DROID on Verizon Wireless

Re: Psychotic episode and a few other things

(thanks)-Tania

Hi Lynn & Jan.

Yes, Dad does have a hearing problem. He has hearing aids but resists

wearing them. I've read that noise can be very overwhelming for people with

PDD/LBD and I suspect that's why he's like that. We even set them to

'medium' so they're not too loud but it's still too loud for him. He only

got them last year so he's gone many years with little hearing (industrial

deafness) and that probably makes it harder for him.

But the staring is something different because we're not talking when we

find him doing it. It's a little strange but then, so is this awful disease.

I love the stories about assigning/remembering caregiv

[Guest guest]

thanks . . . the doctor prescribed hydrocodone-acetaminophen . . . has anyone

had any experience with that?

Connected by DROID on Verizon Wireless

Re: Psychotic episode and a few other things

(thanks)-Tania

Hi Lynn & Jan.

Yes, Dad does have a hearing problem. He has hearing aids but resists

wearing them. I've read that noise can be very overwhelming for people with

PDD/LBD and I suspect that's why he's like that. We even set them to

'medium' so they're not too loud but it's still too loud for him. He only

got them last year so he's gone many years with little hearing (industrial

deafness) and that probably makes it harder for him.

But the staring is something different because we're not talking when we

find him doing it. It's a little strange but then, so is this awful disease.

I love the stories about assigning/remembering caregiv

[Guest guest]

thank you!

Connected by DROID on Verizon Wireless

Re: Psychotic episode and a few other things

> (thanks)-Tania

>

> Hi Lynn & Jan.

>

> Yes, Dad does have a hearing problem. He has hearing aids but resists

> wear

[Guest guest]

My wife, Kathy, tolerated that pain med very well, back in Dec 2010 following a

double mastectomy. I think it is available under various names, depending upon

the amount of each of the ingredients, such as Vicodin, I could be wrong.

Since then her Lewy has progressed and I am not sure how well she would tolerate

it today. Fortunately, she has a high pain threshold and didn't require much for

very long. Her geriatrician recommended we use the least amount for as short a

period as necessary, in order to keep her clinical situation as " clean " as

possible. That way any significant cognitive changes could be noted and

addressed.

Good luck

 

Jeff 

When you feel like giving up, remember why you held on for so long in the first

place. " ~ Unknown

>________________________________

>

>To: LBDcaregivers

>Sent: Sunday, June 3, 2012 11:38 PM

>Subject: Re: Re: Psychotic episode and a few other things

(thanks)-Tania

>

>

> 

>thanks . . . the doctor prescribed hydrocodone-acetaminophen . . . has anyone

had any experience with that?

>

>Connected by DROID on Verizon Wireless

>

> Re: Psychotic episode and a few other things

>(thanks)-Tania

>

>Hi Lynn & Jan.

>

>Yes, Dad does have a hearing problem. He has hearing aids but resists

>wearing them. I've read that noise can be very overwhelming for people with

>PDD/LBD and I suspect that's why he's like that. We even set them to

>'medium' so they're not too loud but it's still too loud for him. He only

>got them last year so he's gone many years with little hearing (industrial

>deafness) and that probably makes it harder for him.

>

>But the staring is something different because we're not talking when we

>find him doing it. It's a little strange but then, so is this awful disease.

>

>I love the stories about assigning/remembering caregiv

>

>

[Guest guest]

Thanks Jeff!

Sent from my iPad

> My wife, Kathy, tolerated that pain med very well, back in Dec 2010 following

a double mastectomy. I think it is available under various names, depending upon

the amount of each of the ingredients, such as Vicodin, I could be wrong. Since

then her Lewy has progressed and I am not sure how well she would tolerate it

today. Fortunately, she has a high pain threshold and didn't require much for

very long. Her geriatrician recommended we use the least amount for as short a

period as necessary, in order to keep her clinical situation as " clean " as

possible. That way any significant cognitive changes could be noted and

addressed.

> Good luck

>

>

> Jeff

>

> When you feel like giving up, remember why you held on for so long in the

first place. " ~ Unknown

>

> >________________________________

> >

> >To: LBDcaregivers

> >Sent: Sunday, June 3, 2012 11:38 PM

> >Subject: Re: Re: Psychotic episode and a few other things

(thanks)-Tania

> >

> >

> >

> >thanks . . . the doctor prescribed hydrocodone-acetaminophen . . . has anyone

had any experience with that?

> >

> >Connected by DROID on Verizon Wireless

> >

> > Re: Psychotic episode and a few other things

> >(thanks)-Tania

> >

> >Hi Lynn & Jan.

> >

> >Yes, Dad does have a hearing problem. He has hearing aids but resists

> >wearing them. I've read that noise can be very overwhelming for people with

> >PDD/LBD and I suspect that's why he's like that. We even set them to

> >'medium' so they're not too loud but it's still too loud for him. He only

> >got them last year so he's gone many years with little hearing (industrial

> >deafness) and that probably makes it harder for him.

> >

> >But the staring is something different because we're not talking when we

> >find him doing it. It's a little strange but then, so is this awful disease.

> >

> >I love the stories about assigning/remembering caregiv

> >

> >

[Guest guest]

And your dad was cutie? Sounds like it would fit.

On Mon, Jun 4, 2012 at 9:24 AM, Sharon Dowling wrote:

> **

>

>

> My dad did the same thing. I was sweety and mom was honey. One time mom

> answered when he said sweety and he told her he was not talking to her. He

> asked is your name sweety?

>

>

[Guest guest]

Yes, my husband had hydrocodone-acetaminophen. Is that Vicodin? He did really

well on it. It was only given when he was in pain, so he wouldn't get addicted

to it. He had Restless Leg Syndrome and that is what the doctor ended up

prescribing for him and it worked wonderfully to deaden the restlessness he

felt, so he could relax and sleep. There were no other medications that helped

him. Klonopin gave him a horrible reaction. He was allergic to it.

________________________________

To: LBDcaregivers

Sent: Sunday, June 3, 2012 8:38 PM

Subject: Re: Re: Psychotic episode and a few other things

(thanks)-Tania

thanks . . . the doctor prescribed hydrocodone-acetaminophen . . . has anyone

had any experience with that?

Connected by DROID on Verizon Wireless

Re: Psychotic episode and a few other things

(thanks)-Tania

Hi Lynn & Jan.

Yes, Dad does have a hearing problem. He has hearing aids but resists

wearing them. I've read that noise can be very overwhelming for people with

PDD/LBD and I suspect that's why he's like that. We even set them to

'medium' so they're not too loud but it's still too loud for him. He only

got them last year so he's gone many years with little hearing (industrial

deafness) and that probably makes it harder for him.

But the staring is something different because we're not talking when we

find him doing it. It's a little strange but then, so is this awful disease.

I love the stories about assigning/remembering caregiv

[Guest guest]

Hydrocodone-acetaminophen, like oxycodone-acetaminophen, is a form of

Tylenol 3. The nursing home used it for pain for most residents. In my

mom's case, that seemed to be enough. Isn't Vicodin more of a naproxin?

Kate

On Tue, Jun 5, 2012 at 7:02 PM, Janet Colello wrote:

> **

>

>

> Yes, my husband had hydrocodone-acetaminophen. Is that Vicodin? He did

> really well on it. It was only given when he was in pain, so he wouldn't

> get addicted to it. He had Restless Leg Syndrome and that is what the

> doctor ended up prescribing for him and it worked wonderfully to deaden the

> restlessness he felt, so he could relax and sleep. There were no other

> medications that helped him. Klonopin gave him a horrible reaction. He was

> allergic to it.

>

>

> ________________________________

>

> To: LBDcaregivers

> Sent: Sunday, June 3, 2012 8:38 PM

>

> Subject: Re: Re: Psychotic episode and a few other things

> (thanks)-Tania

>

> thanks . . . the doctor prescribed hydrocodone-acetaminophen . . . has

> anyone had any experience with that?

>

> Connected by DROID on Verizon Wireless

>

> Re: Psychotic episode and a few other things

> (thanks)-Tania

>

> Hi Lynn & Jan.

>

> Yes, Dad does have a hearing problem. He has hearing aids but resists

> wearing them. I've read that noise can be very overwhelming for people

> with

> PDD/LBD and I suspect that's why he's like that. We even set them to

> 'medium' so they're not too loud but it's still too loud for him. He only

> got them last year so he's gone many years with little hearing (industrial

> deafness) and that probably makes it harder for him.

>

> But the staring is something different because we're not talking when we

> find him doing it. It's a little strange but then, so is this awful

> disease.

>

> I love the stories about assigning/remembering caregiv

>

>