Re: Psychotic episode and a few other things (thanks)-Tania

[Guest guest]

Tania, does your dad have a hearing problem? Maybe he's trying to concentrate

on watching your faces as part of hearing? I've seen others with hearing

problems do the same thing, as well as those whose first language is not

English. Mom was hard of hearing but I believe the disease had its own aspects

that complicated hearing further. The woman who took Mom's space after she

passed has also been diagnosed with LBD. But, her hearing is heightened. She

can hear a whisper in another room, even when she's unable to see the person

whispering. Each person is so very different in how this disease affects them.

Also, I remember asking Mom (she passed on March 5) a question and not getting

an answer from her. Only the stare. When I'd ask her the question a second

time, she'd promptly say, " I'm thinking! " It took her time to process the

question and then come up with an answer.

Another time, our son was visiting her with a high school friend. This friend

had not seen Mom for almost two years. Mom looked at her, looked at our son,

repeating this for about a minute. Suddenly, she popped up with, " His

girlfriend! " Her watching back and forth and quiet time allowed her to sift

through her memory to pull out who this person was even if she couldn't remember

her name.

A light note here...Mom couldn't remember names of those who cared for her.

Instead, she assigned them different names (quite confusing until we figured out

what she was doing). What was amazing was that while she couldn't remember

their real names, she did remember the names she assigned to them. One was

assigned " Dr. Stone " for some odd reason. <smile>

Best wishes to you and your family,

Lynn in Florida

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

..

>

> Has anyone observed their LO with LBD/PDD staring at them? Mum and I

frequently find Dad staring at us when we think he's watching the TV. It's a

little unnerving because it seems as though he doesn't know us but the second we

say something to him, he's (more or less) normal, or as normal can be...ie.

knows who we are, what we're talking about.

[Guest guest]

Tania, does your dad have a hearing problem? Maybe he's trying to concentrate

on watching your faces as part of hearing? I've seen others with hearing

problems do the same thing, as well as those whose first language is not

English. Mom was hard of hearing but I believe the disease had its own aspects

that complicated hearing further. The woman who took Mom's space after she

passed has also been diagnosed with LBD. But, her hearing is heightened. She

can hear a whisper in another room, even when she's unable to see the person

whispering. Each person is so very different in how this disease affects them.

Also, I remember asking Mom (she passed on March 5) a question and not getting

an answer from her. Only the stare. When I'd ask her the question a second

time, she'd promptly say, " I'm thinking! " It took her time to process the

question and then come up with an answer.

Another time, our son was visiting her with a high school friend. This friend

had not seen Mom for almost two years. Mom looked at her, looked at our son,

repeating this for about a minute. Suddenly, she popped up with, " His

girlfriend! " Her watching back and forth and quiet time allowed her to sift

through her memory to pull out who this person was even if she couldn't remember

her name.

A light note here...Mom couldn't remember names of those who cared for her.

Instead, she assigned them different names (quite confusing until we figured out

what she was doing). What was amazing was that while she couldn't remember

their real names, she did remember the names she assigned to them. One was

assigned " Dr. Stone " for some odd reason. <smile>

Best wishes to you and your family,

Lynn in Florida

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

..

>

> Has anyone observed their LO with LBD/PDD staring at them? Mum and I

frequently find Dad staring at us when we think he's watching the TV. It's a

little unnerving because it seems as though he doesn't know us but the second we

say something to him, he's (more or less) normal, or as normal can be...ie.

knows who we are, what we're talking about.

[Guest guest]

Hi Lynn & Jan.

Yes, Dad does have a hearing problem. He has hearing aids but resists wearing

them. I've read that noise can be very overwhelming for people with PDD/LBD and

I suspect that's why he's like that. We even set them to 'medium' so they're not

too loud but it's still too loud for him. He only got them last year so he's

gone many years with little hearing (industrial deafness) and that probably

makes it harder for him.

But the staring is something different because we're not talking when we find

him doing it. It's a little strange but then, so is this awful disease.

I love the stories about assigning/remembering caregivers' names. The brain is a

very complex thing.

And about needing time to answer a question. Mum sometimes gets impatient when

needing an answer from Dad and that just seems to confuse him more.

The same goes for his body. He has apraxia so the command from his brain isn't

always followed by his body. Last week, we had a physiotherapist come to the

house and she was very impatient with Dad when he was trying to get out of the

car. I told her about the apraxia but she still didn't seem to get it.

Tania....

> .

> >

> > Has anyone observed their LO with LBD/PDD staring at them? Mum and I

frequently find Dad staring at us when we think he's watching the TV. It's a

little unnerving because it seems as though he doesn't know us but the second we

say something to him, he's (more or less) normal, or as normal can be...ie.

knows who we are, what we're talking about.

>

[Guest guest]

Hi Lynn & Jan.

Yes, Dad does have a hearing problem. He has hearing aids but resists wearing

them. I've read that noise can be very overwhelming for people with PDD/LBD and

I suspect that's why he's like that. We even set them to 'medium' so they're not

too loud but it's still too loud for him. He only got them last year so he's

gone many years with little hearing (industrial deafness) and that probably

makes it harder for him.

But the staring is something different because we're not talking when we find

him doing it. It's a little strange but then, so is this awful disease.

I love the stories about assigning/remembering caregivers' names. The brain is a

very complex thing.

And about needing time to answer a question. Mum sometimes gets impatient when

needing an answer from Dad and that just seems to confuse him more.

The same goes for his body. He has apraxia so the command from his brain isn't

always followed by his body. Last week, we had a physiotherapist come to the

house and she was very impatient with Dad when he was trying to get out of the

car. I told her about the apraxia but she still didn't seem to get it.

Tania....

> .

> >

> > Has anyone observed their LO with LBD/PDD staring at them? Mum and I

frequently find Dad staring at us when we think he's watching the TV. It's a

little unnerving because it seems as though he doesn't know us but the second we

say something to him, he's (more or less) normal, or as normal can be...ie.

knows who we are, what we're talking about.

>

[Guest guest]

Basically, that is tylenol 3. Nan

>

> thanks . . . the doctor prescribed hydrocodone-acetaminophen . . . has anyone

had any experience with that?

>

> Connected by DROID on Verizon Wireless

>

> Re: Psychotic episode and a few other things

> (thanks)-Tania

>

> Hi Lynn & Jan.

>

> Yes, Dad does have a hearing problem. He has hearing aids but resists

> wearing them. I've read that noise can be very overwhelming for people with

> PDD/LBD and I suspect that's why he's like that. We even set them to

> 'medium' so they're not too loud but it's still too loud for him. He only

> got them last year so he's gone many years with little hearing (industrial

> deafness) and that probably makes it harder for him.

>

> But the staring is something different because we're not talking when we

> find him doing it. It's a little strange but then, so is this awful disease.

>

> I love the stories about assigning/remembering caregiv

>

>

>

[Guest guest]

Basically, that is tylenol 3. Nan

>

> thanks . . . the doctor prescribed hydrocodone-acetaminophen . . . has anyone

had any experience with that?

>

> Connected by DROID on Verizon Wireless

>

> Re: Psychotic episode and a few other things

> (thanks)-Tania

>

> Hi Lynn & Jan.

>

> Yes, Dad does have a hearing problem. He has hearing aids but resists

> wearing them. I've read that noise can be very overwhelming for people with

> PDD/LBD and I suspect that's why he's like that. We even set them to

> 'medium' so they're not too loud but it's still too loud for him. He only

> got them last year so he's gone many years with little hearing (industrial

> deafness) and that probably makes it harder for him.

>

> But the staring is something different because we're not talking when we

> find him doing it. It's a little strange but then, so is this awful disease.

>

> I love the stories about assigning/remembering caregiv

>

>

>

[Guest guest]

Basically, that is tylenol 3. Nan

>

> thanks . . . the doctor prescribed hydrocodone-acetaminophen . . . has anyone

had any experience with that?

>

> Connected by DROID on Verizon Wireless

>

> Re: Psychotic episode and a few other things

> (thanks)-Tania

>

> Hi Lynn & Jan.

>

> Yes, Dad does have a hearing problem. He has hearing aids but resists

> wearing them. I've read that noise can be very overwhelming for people with

> PDD/LBD and I suspect that's why he's like that. We even set them to

> 'medium' so they're not too loud but it's still too loud for him. He only

> got them last year so he's gone many years with little hearing (industrial

> deafness) and that probably makes it harder for him.

>

> But the staring is something different because we're not talking when we

> find him doing it. It's a little strange but then, so is this awful disease.

>

> I love the stories about assigning/remembering caregiv

>

>

>

[Guest guest]

My dad did the same thing. I was sweety and mom was honey. One time mom

answered when he said sweety and he told her he was not talking to her. He

asked is your name sweety?

[Guest guest]

My dad did the same thing. I was sweety and mom was honey. One time mom

answered when he said sweety and he told her he was not talking to her. He

asked is your name sweety?