Guest guest Posted July 23, 2007 Report Share Posted July 23, 2007 Hey Gayleen & Lynda - Greetings from Memphis! Gayleen, I too had ARDS & the 2 1/2 month coma. As I guess you know, we beat the odds big time! I Woke up from my coma just before Thanksgiving & had total paralysis. I had to build up some muscle then learn to walk & write again - they use some kinda serious medicine. Anyway, I finally got to go home on the second week of January. I'm just now gettting to the point where I can move around the house on my own. Besides the ARDS I have had 2 surgeries on my right lung, there isnt much of it left - and we just found that the cancer has come back in it. I'm supposed to be on oxygen 24/7, but I only use it when I feel that I need to. I keep the house clean & cold so I can get away with it. I have chronic pain on my right side that we can only dull with the meds (wehn I send a post that makes no sense, it's the pain med's). I say all this just to reiterate to you gusy that when we tell you that we know where you're coming from, it isn't lip service/ We know. But despite all the " fun " i've had the past 4 years with the cancer, the ARDS, and all the other excitement ... life is great! My younger son is getting married on New Years Eve (this wedding I DONT have to pay for). I'm a new grandpa (2nd grandchild) - Bethany was born Saturday afternoon and, of course, not only is she absolutely beautiful, but she can already say , " I love my Papa Richie. " So hang on in there everybody & when you have the occasional bad day we're here. Stay Positive! RR May the words of my mouth and the meditations of my heart be ever pleasing to Thee, O L-RD, my Rock, and my Redeemer. Psalms 19:14 ________________________________________________________________________________\ ____ Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2007 Report Share Posted July 23, 2007 Hey Gayleen & Lynda - Greetings from Memphis! Gayleen, I too had ARDS & the 2 1/2 month coma. As I guess you know, we beat the odds big time! I Woke up from my coma just before Thanksgiving & had total paralysis. I had to build up some muscle then learn to walk & write again - they use some kinda serious medicine. Anyway, I finally got to go home on the second week of January. I'm just now gettting to the point where I can move around the house on my own. Besides the ARDS I have had 2 surgeries on my right lung, there isnt much of it left - and we just found that the cancer has come back in it. I'm supposed to be on oxygen 24/7, but I only use it when I feel that I need to. I keep the house clean & cold so I can get away with it. I have chronic pain on my right side that we can only dull with the meds (wehn I send a post that makes no sense, it's the pain med's). I say all this just to reiterate to you gusy that when we tell you that we know where you're coming from, it isn't lip service/ We know. But despite all the " fun " i've had the past 4 years with the cancer, the ARDS, and all the other excitement ... life is great! My younger son is getting married on New Years Eve (this wedding I DONT have to pay for). I'm a new grandpa (2nd grandchild) - Bethany was born Saturday afternoon and, of course, not only is she absolutely beautiful, but she can already say , " I love my Papa Richie. " So hang on in there everybody & when you have the occasional bad day we're here. Stay Positive! RR May the words of my mouth and the meditations of my heart be ever pleasing to Thee, O L-RD, my Rock, and my Redeemer. Psalms 19:14 ________________________________________________________________________________\ ____ Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2007 Report Share Posted July 23, 2007 Richie, Little Bethany is surely a highly intelligent newborn! Don't you just love that new baby smell. (well, not the bottom half) I hate that your cancer has returned. Your attitude is uplifting. Anytime that I am beginning to have a pity party I come here and find someone who is fighting a more difficult war than am I. Faith is everything....attitude is a part of faith. May God continue to give you that! You have my admiration. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> Hey Gayleen & Lynda - Greetings from Memphis!> > Gayleen, I too had ARDS & the 2 1/2 month coma. As I> guess you know, we beat the odds big time! I Woke up> from my coma just before Thanksgiving & had total> paralysis. I had to build up some muscle then learn> to walk & write again - they use some kinda serious> medicine. Anyway, I finally got to go home on the> second week of January. I'm just now gettting to the> point where I can move around the house on my own.> > Besides the ARDS I have had 2 surgeries on my right> lung, there isnt much of it left - and we just found> that the cancer has come back in it. I'm supposed to> be on oxygen 24/7, but I only use it when I feel that> I need to. I keep the house clean & cold so I can get> away with it. I have chronic pain on my right side> that we can only dull with the meds (wehn I send a> post that makes no sense, it's the pain med's).> > I say all this just to reiterate to you gusy that > when we tell you that we know where you're coming> from, it isn't lip service/ We know.> > But despite all the "fun" i've had the past 4 years> with the cancer, the ARDS, and all the other> excitement ... life is great! My younger son is> getting married on New Years Eve (this wedding I DONT> have to pay for). I'm a new grandpa (2nd grandchild)> - Bethany was born Saturday afternoon and, of> course, not only is she absolutely beautiful, but she> can already say ,"I love my Papa Richie."> > So hang on in there everybody & when you have the> occasional bad day we're here.> > Stay Positive!> > RR> > May the words of my mouth and the meditations of my heart be ever pleasing to Thee, O L-RD, my Rock, and my Redeemer. Psalms 19:14> > > ____________________________________________________________________________________> Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2008 Report Share Posted August 13, 2008 The following new members have joined in today: hornyhairybears elhorizonte@... who says: have recently been diagnosed with pc, need knowledge or information to make the right choice and honestrick honestrick@... who says Recently diagnosed with prostate cancer and considering the da vinci robotic prostatectomy. Would like to read about others and their experiences. Thanks... Welcome to the club you never wanted to join and welcome to the Prostate Cancer Support Forum. This can be a frightening time and it is important to bear in mind what Dr Jon Oppenheimer, one of the leading pathologists in the US has to say on his blog at http://theprostateblog.blogspot.com/ For the vast majority of men with a recent diagnosis of prostate cancer the most important question is not what treatment is needed, but whether any treatment at all is required. Active surveillance is the logical choice for most men (and the families that love them) to make. You might find it useful to visit YANA - You Are Not Alone Now www.yananow.net a site set up for newly diagnosed people. The first section gives some basic information in plain language with links to more complex and technical sites. There is a section dealing with the management of the disease, including some dietary hints at http://www.yananow.net/MyersManagement.htm there is also a section suggesting the questions that you should seek answers to before making any treatment decision at http://www.yananow.net/questions.htm The second section of the site is where men are invited to tell their prostate cancer stories and how they arrived at their decisions regarding treatment. Many people have mailed to say how useful they have found this, especially because most of the men are happy to respond to specific questions. The section of the site can be found by clicking the link labelled Experiences or going to http://www.yananow.net/Experiences.html The sections of the site dealing with the Da Vinci procedure are at http://www.yananow.net/choices.htm#laprp and http://www.yananow.net/Experiences.html#lrrp If you have a female partner, they might also be interested in joining the special Ladies Only Forum at http://www.ladies-prostate-forum.org/ladies/ for the womenfolk of men with prostate cancer. It is closed to men so I can’t verify the quality of the discussions, but from all reports the women who go there get tremendous support and I know that Judy Thurman who is the Moderator of the site lost her husband, so she can relate to the issues you touch on very well. But in any event, please post some details of your diagnosis – Age, PSAs leading up to the diagnosis, Gleason Score and Staging (these terms are all explained on the YANA site) and any questions you might have. Just remember – there are no dumb questions. We all started off where you are now, but we’ve collectively learned a lot over the years. All the best Terry Herbert I have no medical qualifications but I was diagnosed in ‘96: and have learned a bit since then. My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za Dr “Snuffy” Myers : " As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data " Quote Link to comment Share on other sites More sharing options...
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