Re: Introduction/NYC LBDcaregivers?

[Guest guest]

Welcome to the board! You're lucky Arlinda! You could join NYC's LBD group by

Norma Loeb -- who is also the latest LBDA Volunteer of the Year!

http://www.lbda.org/content/family-caregiver-named-lbda-volunteer-year

Here's details of the group:

New York Metro Area Support Group

When: Second Tuesday of every month, 12:30 p.m. – 2:00 p.m.

Who: LBD caregivers.

Location: Manhattan; call for location.

Address: Manhattan; call for location. Manhattan; call for location., NY 10018

Contact:

Norma Loeb

normal@...

http://www.lbda.org/content/local-lbd-support-groups

>

> Hi All,

>

> I'm relatively new to this group....I only found it a few weeks before my dad

passed away (which was Feb 7th). At times I get panicky because I feel I found

this group too late. I feel like there is so much advice and support here that

we (my family and esp my dad) could have used when he was still here. I feel

like we made a lot of mistakes along the way and in the end it's not something

we can go back and fix.

>

> But then there are times I feel okay because reading all the advice and

support you all give each other, makes me feel comforted to know that my dad and

our family weren't alone in this terrible disease. I know I'm not explaining

myself very well, and I've been waiting to post until I came up with the right

words. However, all in all, I'm not really handling my father's passing that

well, and tonight is a bad night (most nights are bad...I guess because there's

less distractions around). I feel like I didn't do enough to help him, and I

wasn't there enough for him. He was in a nursing home and I wish so bad that we

would have been able to figure out a way that we didn't have to send him there

because in the end, I believe that contributed to his rapid decline. Right now

we are in the process of having a lawyer look at his medical records and see if

we have a case against the nursing home..so I may need some help from you guys

in the near future.

>

> Right now I'm wondering if there are any groups that meet up in New York City?

I think I've seen some people mention that they meet up in other cities...so I

was just wondering about here. Even though I have never posted before, and I

only recently found this group, (and my dad is not here), I still feel a

connection with you all, and if anyone meets up in this area, I would love to

join you one of these times.

>

> Also, thanks for reading because again, I know I'm not explaining myself very

well right now...

>

> Arlinda

>

[Guest guest]

Arlinda,

My condolences on the loss of your father. Have you considered grief

counseling? I think a grief counselor could help sort through your feelings of

anger towards yourself and the nursing home.

Robin

>

> Hi All,

>

> I'm relatively new to this group....I only found it a few weeks before my dad

passed away (which was Feb 7th). At times I get panicky because I feel I found

this group too late. I feel like there is so much advice and support here that

we (my family and esp my dad) could have used when he was still here. I feel

like we made a lot of mistakes along the way and in the end it's not something

we can go back and fix.

>

....