Re: NO PAIN WITH MINOCYCLINE

[Guest guest]

Diane,

I am so glad to hear that the minocycline is working

for you!!! I plan on trying that after my baby is

due.

-Janet

--- Diane <carol.incognito@...> wrote:

> If you remember me I was on MTX and Meloxicam for 3

> 1/2 years for my

> RA. After finding out about Minocycline just last

> month and being sick

> with a bronchial infection for almost 2 months...I

> stopped the MTX on

> 2/9. I saw my Rheumatoid Dr and told him I wanted

> to try Minocycline.

> I started on 2/28. I just wanted to give an update

> of how I am doing.

> Today is the 3rd. day that I woke up with NO PAIN

> AND no signs of RA.

> I am in shock, this is unbelievable. I have even

> stopped the

> Prednisone and Meloxicam. Could it really be this

> simple for me? Why

> wasn't I offered this AB therapy 5 years ago? At

> least given the

> option. I am trying not to be angry about it. I am

> very grateful to

> be having pain free days and I am very optimistic

> that the AB treatment

> will work for me.

> I hope everyone knows about this therapy. I had

> never heard of it. I

> thought I was well read and intelligent when it came

> to RA. I was

> nothing short of ignorant I see now.

> Diane

>

>

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____

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[Guest guest]

Hi, Diane,

I am glad you have found something that works. Could you tell me

what dosage you are on and what schdule?

THanks.

--- In , " Diane " <carol.incognito@...>

wrote:

>

> If you remember me I was on MTX and Meloxicam for 3 1/2 years for

my

> RA. After finding out about Minocycline just last month and being

sick

> with a bronchial infection for almost 2 months...I stopped the MTX

on

> 2/9. I saw my Rheumatoid Dr and told him I wanted to try

Minocycline.

> I started on 2/28. I just wanted to give an update of how I am

doing.

> Today is the 3rd. day that I woke up with NO PAIN AND no signs of

RA.

> I am in shock, this is unbelievable. I have even stopped the

> Prednisone and Meloxicam. Could it really be this simple for me?

Why

> wasn't I offered this AB therapy 5 years ago? At least given the

> option. I am trying not to be angry about it. I am very grateful

to

> be having pain free days and I am very optimistic that the AB

treatment

> will work for me.

> I hope everyone knows about this therapy. I had never heard of

it. I

> thought I was well read and intelligent when it came to RA. I was

> nothing short of ignorant I see now.

> Diane

>

[Guest guest]

Hi ,

I only take 100 mgs of Minocycline a day. After over 5 years of the

typical RA meds, the last being MTX...I am thrilled to be pain free

for the past 6 days...I have not had a pain free day in years. I am

also not taking any Prednisone or NSAIDS. I stopped them all. I

remain very optimistic that I have found my answer to this nightmare.

Diane

> >

> > If you remember me I was on MTX and Meloxicam for 3 1/2 years for

> my

> > RA. After finding out about Minocycline just last month and

being

> sick

> > with a bronchial infection for almost 2 months...I stopped the

MTX

> on

> > 2/9. I saw my Rheumatoid Dr and told him I wanted to try

> Minocycline.

> > I started on 2/28. I just wanted to give an update of how I am

> doing.

> > Today is the 3rd. day that I woke up with NO PAIN AND no signs of

> RA.

> > I am in shock, this is unbelievable. I have even stopped the

> > Prednisone and Meloxicam. Could it really be this simple for

me?

> Why

> > wasn't I offered this AB therapy 5 years ago? At least given the

> > option. I am trying not to be angry about it. I am very

grateful

> to

> > be having pain free days and I am very optimistic that the AB

> treatment

> > will work for me.

> > I hope everyone knows about this therapy. I had never heard of

> it. I

> > thought I was well read and intelligent when it came to RA. I

was

> > nothing short of ignorant I see now.

> > Diane

> >

>

[Guest guest]

Check out this website for more information on using antibotics to

treat RA: http://www.roadback.org/index.cfm/fuseaction/home.main.html

It even has material you can print and take to your doctor to help with

a discussion of this alternative.

[Guest guest]

Also check out rheumaticsupport.net...

On Mondays and Thursdays there is a live chat at 9 PM...it is awesome...

>

> Check out this website for more information on using antibotics to

> treat RA: http://www.roadback.org/index.cfm/fuseaction/home.main.html

>

> It even has material you can print and take to your doctor to help

with

> a discussion of this alternative.

>

[Guest guest]

Hi Diane:

What exactly is MINOCYCLINE? Is it a biological drug? I am on the top dose of

MTX injections, and biological drugs have been ruled out for me. The worst

thing for me are my feet and ankles...... they hurt so bad some days I want to

chop them off!!!!! Both feet and ankles are so stiff, that I walk like someone

who staggers!!!! I can deal with the other parts with the R.A.,

but this is just unbearable most days. I just found this website last week, and

it has been so helpful, with all the e-mails, support, etc. I am an extremely

positive person, but...................................... this R.A. is really

getting to me. It has changed my life, but not for the better. I have always

enjoyed being active, use to walk 3 miles every day, I enjoy taking care of my

home, and I am a stenciler and a folk art painter. I moved here from N.E. 3 1/2

years ago due to the fact I can't tolerate the weather any more. Well, I am now

mostly home, can't sit for long due to pain, etc. Haven't been able to paint at

all, as my hands and writsts are so swollen, and painful. I am an advid reader,

so this is what I do mostly. Also, get on line often.

I want to have a much better quality of life then I have now, as I am sure all

of you do too.

As I see from all the e-mails, many are suffering from depression, and I am

fighting that now.

This R.A. is moving so fast, it scares me to death. I am 68, and very late to

be getting R.A. I got diagnosed 5 years ago. I just wish I could get my feet

and ankles better. Does anyone else have this same problem with their feet,

etc.? Have you tried anything that helps? I had 4 injections in my heels, and

it was brutal!!! Didn't do much for me...........

Sorry this is so long, but I am having a really bad day, and just needed to say

some things on my mind. I pray that each one of you can get some relief from

this terrible disease...... Thanks, Barbara

[ ] Re: NO PAIN WITH MINOCYCLINE

Hi ,

I only take 100 mgs of Minocycline a day. After over 5 years of the

typical RA meds, the last being MTX...I am thrilled to be pain free

for the past 6 days...I have not had a pain free day in years. I am

also not taking any Prednisone or NSAIDS. I stopped them all. I

remain very optimistic that I have found my answer to this nightmare.

Diane

> >

> > If you remember me I was on MTX and Meloxicam for 3 1/2 years for

> my

> > RA. After finding out about Minocycline just last month and

being

> sick

> > with a bronchial infection for almost 2 months...I stopped the

MTX

> on

> > 2/9. I saw my Rheumatoid Dr and told him I wanted to try

> Minocycline.

> > I started on 2/28. I just wanted to give an update of how I am

> doing.

> > Today is the 3rd. day that I woke up with NO PAIN AND no signs of

> RA.

> > I am in shock, this is unbelievable. I have even stopped the

> > Prednisone and Meloxicam. Could it really be this simple for

me?

> Why

> > wasn't I offered this AB therapy 5 years ago? At least given the

> > option. I am trying not to be angry about it. I am very

grateful

> to

> > be having pain free days and I am very optimistic that the AB

> treatment

> > will work for me.

> > I hope everyone knows about this therapy. I had never heard of

> it. I

> > thought I was well read and intelligent when it came to RA. I

was

> > nothing short of ignorant I see now.

> > Diane

> >

>

________________________________________________________________________________\

____

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[Guest guest]

Barbara, minocycline is an antibiotic, not a biologic. It has been

used extensively for years in the treatment of acne and is a very

safe drug. I have been on minocycline since last October, and my RA

is very well controlled now.

But it is not necessarily an easy road either. Definitely check out

the Road Back website, www.roadback.org. The use of minocycline is

controversial -- most rheumatologists do not believe in an infection

theory of RA, and believe there is an anti-inflammatory response to

minocycline. Some will not prescribe minocycline. Many of us believe

there is some liklihood that RA is caused by infection, rather than

an autoimmune disorder.

The www.rheumatic.org is another good site for info. Don't give up

hope. You can get your life back ....

Bonnie

> > >

> > > If you remember me I was on MTX and Meloxicam for 3 1/2 years

for

> > my

> > > RA. After finding out about Minocycline just last month and

> being

> > sick

> > > with a bronchial infection for almost 2 months...I stopped the

> MTX

> > on

> > > 2/9. I saw my Rheumatoid Dr and told him I wanted to try

> > Minocycline.

> > > I started on 2/28. I just wanted to give an update of how I am

> > doing.

> > > Today is the 3rd. day that I woke up with NO PAIN AND no signs

of

> > RA.

> > > I am in shock, this is unbelievable. I have even stopped the

> > > Prednisone and Meloxicam. Could it really be this simple for

> me?

> > Why

> > > wasn't I offered this AB therapy 5 years ago? At least given

the

> > > option. I am trying not to be angry about it. I am very

> grateful

> > to

> > > be having pain free days and I am very optimistic that the AB

> > treatment

> > > will work for me.

> > > I hope everyone knows about this therapy. I had never heard of

> > it. I

> > > thought I was well read and intelligent when it came to RA. I

> was

> > > nothing short of ignorant I see now.

> > > Diane

> > >

> >

>

>

>

>

>

>

_____________________________________________________________________

_______________

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> Find them fast with Search.

http://tools.search./newsearch/category.php?

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>

>

[Guest guest]

HI Barbara

I have been reading your e-mail regarding using minocycline, my question

it controls the pain, but what about joint damages does it stop or slow

down the progression

thanks

bonlucas <bonlucas@...> wrote: Barbara, minocycline is an antibiotic, not

a biologic. It has been

used extensively for years in the treatment of acne and is a very

safe drug. I have been on minocycline since last October, and my RA

is very well controlled now.

But it is not necessarily an easy road either. Definitely check out

the Road Back website, www.roadback.org. The use of minocycline is

controversial -- most rheumatologists do not believe in an infection

theory of RA, and believe there is an anti-inflammatory response to

minocycline. Some will not prescribe minocycline. Many of us believe

there is some liklihood that RA is caused by infection, rather than

an autoimmune disorder.

The www.rheumatic.org is another good site for info. Don't give up

hope. You can get your life back ....

Bonnie

> > >

> > > If you remember me I was on MTX and Meloxicam for 3 1/2 years

for

> > my

> > > RA. After finding out about Minocycline just last month and

> being

> > sick

> > > with a bronchial infection for almost 2 months...I stopped the

> MTX

> > on

> > > 2/9. I saw my Rheumatoid Dr and told him I wanted to try

> > Minocycline.

> > > I started on 2/28. I just wanted to give an update of how I am

> > doing.

> > > Today is the 3rd. day that I woke up with NO PAIN AND no signs

of

> > RA.

> > > I am in shock, this is unbelievable. I have even stopped the

> > > Prednisone and Meloxicam. Could it really be this simple for

> me?

> > Why

> > > wasn't I offered this AB therapy 5 years ago? At least given

the

> > > option. I am trying not to be angry about it. I am very

> grateful

> > to

> > > be having pain free days and I am very optimistic that the AB

> > treatment

> > > will work for me.

> > > I hope everyone knows about this therapy. I had never heard of

> > it. I

> > > thought I was well read and intelligent when it came to RA. I

> was

> > > nothing short of ignorant I see now.

> > > Diane

> > >

> >

>

>

>

>

>

>

_____________________________________________________________________

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