Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 Yes, I take Vit D for the same reason. A low level puts you at a much higher risk of getting a fracture from a fall, etc. A lot of research is going on and showing that adequate Vitamin D helps prevent diseases. Most people, depending on where you live, do not get enough sunshine, which is your main source of Vitamin D. I'm not sure what the climate is like where you live but perhaps this is what is going on with you. Some medications also leach Vitamin D out of bones as a side effect but this is not nearly as common as inadequate sunshine. America's rate of Vitamin D insufficiency is also thought to be much higher due to the fact that many of us now use sunscreen. It's a catch 22. You also need calcium to go with your Vitamin D. Hope this is helpful. Abby In a message dated 2/6/2008 3:53:21 P.M. Pacific Standard Time, man_u8@... writes: My question is if anyone else has ever been told this by their rheumatologist? Is anyone taking a speical vitamin D medication to help make my joints/bones stronger so the RA doesn't damange at a faster rate? This is the first time I heard anything about Vitamin D levels related to my RA. **************Biggest Grammy Award surprises of all time on AOL Music. (http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\ 5 48) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 hi I wanted to let you know you are not alone either I have been dealing with low vitamin d levels for a little over a month now my rheumy has me on 50000 iu's a week for the next 3 months and then he will retest my levels I have RA and Fibro also been fighting with liver levels being to high I am 34 so there isn't much difference in age unlike you I do not like milk but do like cheese Thans Angie <man_u8@...> wrote: Hello everyone, hope everyone is well. I saw a new rheumatologist last week and I just got the results of my labs/x-rays. They told me yes, I have RA but that I also have extremely low vitamin D levels. Their concern is that my bones are weak and with the combination of RA, the bones in my joints are at an increased risk. They can't do anything about the damage that is already done, but to help my bones stronger so the RA doesn't damage my joints at a faster rate. They want me to take a special vitamin D beta medication which is stronger and more concentrated then any vitamin D supplement I can get over the counter. I am 30, but they want me to start to get bone scans when I hit 40. I drink milk everday, I love cheese...I thought I was getting enough vitamin D through my diet, but I guess that is not the case. I asked them if this is herditary (my grandma has osteoprosis and takes foxamax); but he said no. My question is if anyone else has ever been told this by their rheumatologist? Is anyone taking a speical vitamin D medication to help make my joints/bones stronger so the RA doesn't damange at a faster rate? This is the first time I heard anything about Vitamin D levels related to my RA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 Hi ! I posted a study awhile back..I can't find the link but might still be on the board. They have found recently that those with chronic pain diseases tend to have low vitamin d levels and vitamin d deficiency. My rheumatologist has had me taking calcium and vitamin d since the RA hit but it happens with FMS as well. Hope this helps! If I can find that link i will repost, maybe I can do a search on the message board. --- <man_u8@...> wrote: > Hello everyone, hope everyone is well. I saw a new > rheumatologist > last week and I just got the results of my > labs/x-rays. They told me > yes, I have RA but that I also have extremely low > vitamin D levels. > Their concern is that my bones are weak and with the > combination of > RA, the bones in my joints are at an increased risk. > They can't do > anything about the damage that is already done, but > to help my bones > stronger so the RA doesn't damage my joints at a > faster rate. > They want me to take a special vitamin D beta > medication which is > stronger and more concentrated then any vitamin D > supplement I can > get over the counter. I am 30, but they want me to > start to get bone > scans when I hit 40. I drink milk everday, I love > cheese...I thought > I was getting enough vitamin D through my diet, but > I guess that is > not the case. > I asked them if this is herditary (my grandma has > osteoprosis and > takes foxamax); but he said no. > > My question is if anyone else has ever been told > this by their > rheumatologist? Is anyone taking a speical vitamin D > medication to > help make my joints/bones stronger so the RA doesn't > damange at a > faster rate? This is the first time I heard > anything about Vitamin D > levels related to my RA. > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 10-15 minutes out in the sun without sunscreen is another way to get that natural vit D that your body was designed for. If you are dark skinned add 5-10 minutes. If you are fair skinned then 10 minutes is good. It is the burning that raises the cancer factor. Vit D helps with depression and pain too. What was the Vit D medication that they wanted you to take? Kate G Hashi's AS At 05:53 PM 2/6/2008, you wrote: >Hello everyone, hope everyone is well. I saw a new rheumatologist >last week and I just got the results of my labs/x-rays. They told me >yes, I have RA but that I also have extremely low vitamin D levels. >Their concern is that my bones are weak and with the combination of >RA, the bones in my joints are at an increased risk. They can't do >anything about the damage that is already done, but to help my bones >stronger so the RA doesn't damage my joints at a faster rate. >They want me to take a special vitamin D beta medication which is >stronger and more concentrated then any vitamin D supplement I can >get over the counter. I am 30, but they want me to start to get bone >scans when I hit 40. I drink milk everday, I love cheese...I thought >I was getting enough vitamin D through my diet, but I guess that is >not the case. >I asked them if this is herditary (my grandma has osteoprosis and >takes foxamax); but he said no. > >My question is if anyone else has ever been told this by their >rheumatologist? Is anyone taking a speical vitamin D medication to >help make my joints/bones stronger so the RA doesn't damange at a >faster rate? This is the first time I heard anything about Vitamin D >levels related to my RA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Kate, I don't know what type of vitamin D they gave me. I am having a flare up today and I am unable to go to the pharmacy to pick it up. Someone mentioned they are on 50,000 ui per week and I am assuiming I would be on the same thing. I am outside during the summer (I try to swim), but during the winter, it's harder for me. gave me a link to a great article on vitamin D definencey. They told me I need to take this medication for the next 2-3 months. I will let everyone know once I get the medication. > >Hello everyone, hope everyone is well. I saw a new rheumatologist > >last week and I just got the results of my labs/x-rays. They told me > >yes, I have RA but that I also have extremely low vitamin D levels. > >Their concern is that my bones are weak and with the combination of > >RA, the bones in my joints are at an increased risk. They can't do > >anything about the damage that is already done, but to help my bones > >stronger so the RA doesn't damage my joints at a faster rate. > >They want me to take a special vitamin D beta medication which is > >stronger and more concentrated then any vitamin D supplement I can > >get over the counter. I am 30, but they want me to start to get bone > >scans when I hit 40. I drink milk everday, I love cheese...I thought > >I was getting enough vitamin D through my diet, but I guess that is > >not the case. > >I asked them if this is herditary (my grandma has osteoprosis and > >takes foxamax); but he said no. > > > >My question is if anyone else has ever been told this by their > >rheumatologist? Is anyone taking a speical vitamin D medication to > >help make my joints/bones stronger so the RA doesn't damange at a > >faster rate? This is the first time I heard anything about Vitamin D > >levels related to my RA. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 There is a wealth of information on Vitamin D at this URL http://www.vitamindcouncil.com " il faut d'abord durer " Hemingway [ ] Re: low Vitamin D levels > Kate, > > I don't know what type of vitamin D they gave me. I am having a flare > up today and I am unable to go to the pharmacy to pick it up. > Someone mentioned they are on 50,000 ui per week and I am assuiming > I would be on the same thing. > I am outside during the summer (I try to swim), but during the > winter, it's harder for me. gave me a link to a great > article on vitamin D definencey. They told me I need to take this > medication for the next 2-3 months. I will let everyone know once I > get the medication. > > > > > >> >Hello everyone, hope everyone is well. I saw a new rheumatologist >> >last week and I just got the results of my labs/x-rays. They told > me >> >yes, I have RA but that I also have extremely low vitamin D levels. >> >Their concern is that my bones are weak and with the combination of >> >RA, the bones in my joints are at an increased risk. They can't do >> >anything about the damage that is already done, but to help my > bones >> >stronger so the RA doesn't damage my joints at a faster rate. >> >They want me to take a special vitamin D beta medication which is >> >stronger and more concentrated then any vitamin D supplement I can >> >get over the counter. I am 30, but they want me to start to get > bone >> >scans when I hit 40. I drink milk everday, I love cheese...I > thought >> >I was getting enough vitamin D through my diet, but I guess that is >> >not the case. >> >I asked them if this is herditary (my grandma has osteoprosis and >> >takes foxamax); but he said no. >> > >> >My question is if anyone else has ever been told this by their >> >rheumatologist? Is anyone taking a speical vitamin D medication to >> >help make my joints/bones stronger so the RA doesn't damange at a >> >faster rate? This is the first time I heard anything about > Vitamin D >> >levels related to my RA. >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2009 Report Share Posted May 31, 2009 > > Bee, I recently had my D levels tested at the doctors. Mine are extremely low. I am unable to get into the sun because of my job hours are during the day. I get off work at 6:00, so I can't get the sun. On my days off it is usually cold, rainy or cloudy. My doctor said to take 2,000 iu of D3. What do you think? I have been taking cod liver oil(for 5 years) and following your diet for 3 years. My levels are still very low. +++Hi Val. I don't believe in relying on tests to determine nutrients levels of any particular vitamin or mineral since it is impossible to test all of the nutrients that work together, i.e. vitamin D doesn't work without proper amounts of A & E, cal/mag, trace minerals, protein, fats, etc. Ensure you are taking the correct " kind of " cod liver oil that doesn't contain synthetic vitamins A and D, and also that you are taking the correct amounts of omega 3, and vitamins A, D & E, along with the other supplements I recommend. There's only 2 products in North America that I trust, which are Garden of Life Olde World Icelandic CLO, and Premier Quantum Norwegian Cod Liver Oil - here's the reference for Cod Liver Oil: http://www.healingnaturallybybee.com/articles/cod2.php I don't believe taking 2,000 IU of vitamin D will hurt you. Taking more that amount will increase your need for other supplements such as calcium and magnesium, etc. I've seen many people misled by nutrient lab test levels. What doctors and other alternative health practitioners don't understand is that IF you simply give your body the basic set of nutrients it requires to heal itself naturally, it is very capable of balancing out all of its nutrient levels - of course that also includes the diet and eliminating toxins and damaging foods. All nutrients work in unison with many others! So " more is not better! " All the best, Bee Quote Link to comment Share on other sites More sharing options...
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