Guest guest Posted June 19, 2012 Report Share Posted June 19, 2012 The decline in her walking makes me think of another possibility. My mother was diagnosed with Normal Pressure Hydrocephalus (NPH) when she was 75. I'd taken her for a geriatric assessment because of her memory going downhill and repeating herself a lot, but the doctors were more concerned about her gait, which was kind of shuffling. Turns out that this is frequently mistaken for Parkinson's. I didn't even know that seniors got this, it's something associated with newborn babies. It's just extra fluid that builds up around the brain and puts pressure on the brain, affecting cognitive ability and walking. Anyhow, she had a shunt put into her head that drains the extra fluid into her abdomen. The idea was to prevent further damage, not to fix what damage was already done. She was doing fine after this, until a random fall in March resulted in a hip fracture. She was not the same since the surgery, she is very confused now. It may have something to do with her brain being in a more fragile state when the surgery happened (due to her prior surgery on her head). Whatever the reason, she's not the independent lady she was before her hip fracture. > > > Hello !! I am new . I honestly believe my beautiful Mother has this disease. I printed infomation for her neurologist and highlighted every single system that I have witness. Her Doctor said he has never seen anyone who has this and its not as common as I am to believe. He order a pep-test ..Waiting for the results .. I am noticing a decline in her walking and she is hallunating more. > How do I find a Doctor who acknowledges this disease.?..I hope I make sense as the days seem longer . > My husband and I have POA .She lives with us . Been adjustment since we also have guardianship of 2 of our beautiful granddaughters. > Right now we have care givers . Not for sure how long . I am checking into nursing homes . Want to be prepare. > Thanks to all who share and for all the infomation that is posted. > ...Mother has been diagnosed with PA > Gods will be done !! > > T-Mobile, America's First Nationwide 4G Network > > --- Re: Rx for Lewy Body > > To: " LBDcaregivers " <LBDcaregivers > > CC: > > Thanks for your input and ideas.  We have tried reducing her Seroquel, but that has not been with good results.  She does struggle with the violent, unpleasant hallucinations and delusions.  If they were just benign, we wouldn't try so hard to find a better solution and just let it be I think. > Thanks! > F > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2012 Report Share Posted June 30, 2012 Although my mom is not to the point where she does not care about the hallucinations and delusions, I was talking to the head nurse at her assisted care facility and she did say that the other person there who has LBD and was moved to the memory care wing, did go off all her drugs because she had gotten to the point of not caring and the drugs weren't keeping the hallucinations and delusions at bay anyway. I think when my mom gets to that point we will probably do the same thing unless she is having scary and violent hallucinations and delusions. Her pre-medicated state was full of horrible stuff and I would not want that to come back for sure. But if she is relatively calm I think I would try it. I imagine each person responds differently. F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2012 Report Share Posted June 30, 2012 Although my mom is not to the point where she does not care about the hallucinations and delusions, I was talking to the head nurse at her assisted care facility and she did say that the other person there who has LBD and was moved to the memory care wing, did go off all her drugs because she had gotten to the point of not caring and the drugs weren't keeping the hallucinations and delusions at bay anyway. I think when my mom gets to that point we will probably do the same thing unless she is having scary and violent hallucinations and delusions. Her pre-medicated state was full of horrible stuff and I would not want that to come back for sure. But if she is relatively calm I think I would try it. I imagine each person responds differently. F Quote Link to comment Share on other sites More sharing options...
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