new to group and prostate cancer

[Guest guest]

Hi everyone, my name is Bobbie. My husband was diagnosed with

metastatic( sorry if I don't have the spelling right) prostate cancer.

He went in to the orthopedic w/ shoulder pain, he saw dense spots on x-

ray ( Oct 1.), went next day for MRI, confirmed tumors as being a

secondary site. We then saw our internal med. doctor, had blood work

and CAT Scan Oct. 3. It confirmed problem was in prostate, no organs

involved with tumors on bone throughout the body. Oct., 7 had a bone

biopsy and saw oncologist Oct. 8. Results of biopsy confirmed

prostate being primary Friday. Today CM started hormone therapy...

lupron, casodex, zometta and a calcium supplement. CM will be 53 next

month..PSA was 264. I just found out when he went in for his physical

at 50 he was also having other problems and no PSA was done. Three

years ago he had 2 stints put in as a stress test showed he had two

bad arteries.

We are still in a bit of shock but know finding out this was was a

blessing. His oncologist said he would like to put him in a couple of

trials but they require the hormone therapy first. We expect to hear

more at CM's next doctor appointment next month. This makes me feel

really kinda dumb about everything...he is not one to read about

things and I am very overwhelmed.

Glad the group is available.

Bobbie, south Louisiana

[Guest guest]

> Hi everyone, my name is Bobbie. My husband was diagnosed with

> metastatic( sorry if I don't have the spelling right) prostate cancer.

(snip)

The spelling is correct.

Welcome to the club no one wants to join.

I have some suggestions that will help to make well-informed decisions.

I earnestly recommend that CM participate directly. It would be best for

all concerned.

Anecdotes contributed by other patients can be interesting, but should

never, ever, be relied upon as authority for one's own decisions. In

other words, what helps me might harm you and vice versa.

There is a lot to do.

(1) If applicable, I recommend having the biopsy specimens examined by

a pathology lab that specializes in prostate cancer (PCa). Everything

that is done from here on depends upon the accuracy of the Gleason

scoring. Here is a list of such labs:

Bostwick Laboratories [800] 214-6628

Dianon Laboratories [800] 328-2666 (select 5 for client services)

Jon Epstein (s Hopkins) [410] 955-5043 or [410] 955-2162

Grignon (Michigan) [313] 745-2520

Jon Oppenheimer (Tennessee) [888] 868-7522

UroCor, Inc. [800] 411-1839

This is a " second opinion " and should be covered by insurance/Medicare.

The cost, last I heard, was about $350. More if further tests, which

might be prudent, are ordered.

The chosen lab can give instructions on shipment arrangements.

In civilized jurisdictions, those specimens are the property of the

patient and not the medic, not the lab. Sometimes it is necessary to

educate them on that point.

(2) The authoritative website of the Prostate Cancer Research

Institute (PCRI) at http://prostate-cancer.org/index.html

is an excellent beginning.

See also http://prostate-cancer.org/education/education.html#newly_diagnosed

Some medics who specialize in treatment (tx) of PCa are listed via

this portal: http://prostate-cancer.org/resource/find-a-physician.html

If a particular medic is not suitable due to distance (but there are men

who travel thousands of miles for treatment) or otherwise, there is no

harm and much possible gain in simply asking for a referral.

There are also men whose primary medic is some distance away, but who

receive their routine treatment (tx) near home.

(3) I heartily recommend this comprehensive text on PCa: _A Primer on

Prostate Cancer_ 2nd ed., subtitled " The Empowered Patient's Guide " by

medical oncologist and PCa specialist B. Strum, MD and PCa warrior

Donna Pogliano. It is available from the PCRI website and the like, as

well as Amazon (30+ five-star reviews), & Noble, and

bookstores. A lifesaver, as I very well know.

(4) Personal contact with other patients can be very helpful. Local

chapters of the international support group Us Too can be found via

their website at http://www.ustoo.com/chapter_nearyou.asp

Regards,

Steve J

" Empowerment: taking responsibility for and authority over one's own

outcomes based on education and knowledge of the consequences and

contingencies involved in one's own decisions. This focus provides the

uplifting energy that can sustain in the face of crisis. "

--Donna Pogliano, co-author of _A Primer on Prostate Cancer_, subtitled

" The Empowered Patient's Guide. "

[Guest guest]

> Hi everyone, my name is Bobbie. My husband was diagnosed with

> metastatic( sorry if I don't have the spelling right) prostate cancer.

(snip)

The spelling is correct.

Welcome to the club no one wants to join.

I have some suggestions that will help to make well-informed decisions.

I earnestly recommend that CM participate directly. It would be best for

all concerned.

Anecdotes contributed by other patients can be interesting, but should

never, ever, be relied upon as authority for one's own decisions. In

other words, what helps me might harm you and vice versa.

There is a lot to do.

(1) If applicable, I recommend having the biopsy specimens examined by

a pathology lab that specializes in prostate cancer (PCa). Everything

that is done from here on depends upon the accuracy of the Gleason

scoring. Here is a list of such labs:

Bostwick Laboratories [800] 214-6628

Dianon Laboratories [800] 328-2666 (select 5 for client services)

Jon Epstein (s Hopkins) [410] 955-5043 or [410] 955-2162

Grignon (Michigan) [313] 745-2520

Jon Oppenheimer (Tennessee) [888] 868-7522

UroCor, Inc. [800] 411-1839

This is a " second opinion " and should be covered by insurance/Medicare.

The cost, last I heard, was about $350. More if further tests, which

might be prudent, are ordered.

The chosen lab can give instructions on shipment arrangements.

In civilized jurisdictions, those specimens are the property of the

patient and not the medic, not the lab. Sometimes it is necessary to

educate them on that point.

(2) The authoritative website of the Prostate Cancer Research

Institute (PCRI) at http://prostate-cancer.org/index.html

is an excellent beginning.

See also http://prostate-cancer.org/education/education.html#newly_diagnosed

Some medics who specialize in treatment (tx) of PCa are listed via

this portal: http://prostate-cancer.org/resource/find-a-physician.html

If a particular medic is not suitable due to distance (but there are men

who travel thousands of miles for treatment) or otherwise, there is no

harm and much possible gain in simply asking for a referral.

There are also men whose primary medic is some distance away, but who

receive their routine treatment (tx) near home.

(3) I heartily recommend this comprehensive text on PCa: _A Primer on

Prostate Cancer_ 2nd ed., subtitled " The Empowered Patient's Guide " by

medical oncologist and PCa specialist B. Strum, MD and PCa warrior

Donna Pogliano. It is available from the PCRI website and the like, as

well as Amazon (30+ five-star reviews), & Noble, and

bookstores. A lifesaver, as I very well know.

(4) Personal contact with other patients can be very helpful. Local

chapters of the international support group Us Too can be found via

their website at http://www.ustoo.com/chapter_nearyou.asp

Regards,

Steve J

" Empowerment: taking responsibility for and authority over one's own

outcomes based on education and knowledge of the consequences and

contingencies involved in one's own decisions. This focus provides the

uplifting energy that can sustain in the face of crisis. "

--Donna Pogliano, co-author of _A Primer on Prostate Cancer_, subtitled

" The Empowered Patient's Guide. "