Re: Newbie - recently diagosed

[Guest guest]

Hi Jackie! I am brand new as well, and also presented with problems

in my wrist. (Although RF negative). Sounds like you have weathered

quite a bit already. I just found out that my uncle has RA in his

hands, and my father has 's (also autoimmune). Does the mast

cell issue ever give you trouble with your bladder? I've had two

bouts of IC that both resolved within a month or so, with

modifications to diet, but the last one was quite painful. It flared

right when my wrist pain started. I mention that only because I know

that IC involves mast cells somehow.

I don't have any info on fibro but I'm sure there are many here who

can help.

>

> Greetings, everyone. My name is Jackie, and I was recently dx'd

with

> RA. Started with a broken wrist, was having a lot of problems with

it

> and also other joints hurting, so dr ran an RF which came back

> positive. Not surprising, since I have a long history of autoimmune

> problems - chronic urticaria (hives - in remission), Hashimoto's

> thyroiditis, membranous glomerulonephritis (kidney disease - also

in

> remission), endometriosis (had 2 surgeries for that years ago), and

> now this. Also have a rare blood disorder called systemic

> mastocytosis - basically my body makes too many mast cells, and

it's

> like I am constantly having allergic reactions, although I have no

> allergies (except to sulfa drugs).

>

> Anyhow, started meds last week, taking methotrexate 10mg once a

week,

> prednisone 10mg 3x a day, and Lyrica 75mg once a day, on top of my

> meds for other conditions. Doctor thinks I also have fibromyalgia,

> and in reading through some of the archives, it appears to be

> something that many others here have. Is fibro another

manifestation

> of RA, or are they two separate conditions? I had a flare of what

we

> figured was fibro back when I was being treated with cyclosporine

for

> the kidney disease, then it gradually subsided by itself after

about

> a year. Now it seems to be back in full force, just as painful as I

> remember...

>

> Jackie

>

[Guest guest]

> >

> > Greetings, everyone. My name is Jackie, and I was recently dx'd

> with

> > RA. Started with a broken wrist, was having a lot of problems

with

> it

> > and also other joints hurting, so dr ran an RF which came back

> > positive. Not surprising, since I have a long history of

autoimmune

> > problems - chronic urticaria (hives - in remission), Hashimoto's

> > thyroiditis, membranous glomerulonephritis (kidney disease -

also

> in

> > remission), endometriosis (had 2 surgeries for that years ago),

and

> > now this. Also have a rare blood disorder called systemic

> > mastocytosis - basically my body makes too many mast cells, and

> it's

> > like I am constantly having allergic reactions, although I have

no

> > allergies (except to sulfa drugs).

> >

> > Anyhow, started meds last week, taking methotrexate 10mg once a

> week,

> > prednisone 10mg 3x a day, and Lyrica 75mg once a day, on top of

my

> > meds for other conditions. Doctor thinks I also have

fibromyalgia,

> > and in reading through some of the archives, it appears to be

> > something that many others here have. Is fibro another

> manifestation

> > of RA, or are they two separate conditions? I had a flare of

what

> we

> > figured was fibro back when I was being treated with

cyclosporine

> for

> > the kidney disease, then it gradually subsided by itself after

> about

> > a year. Now it seems to be back in full force, just as painful

as I

> > remember...

> >

> > Jackie

> >

>

[Guest guest]

Hi Jackie!

Welcome to the group! My FMS was diagnosed at the age

of 30 (I'm 36 now). For me, the RA came later. I

know several individuals that are older than me, that

simply just have FMS. I also have friends that have

Lupus and later got FMS. And then I have some friends

with just RA. I have endometriosis too. As well as

Polycistic ovarian syndrome. This is a great forum

for support, questions, and medical research

--- vaughan1962 <itchyone@...> wrote:

> Greetings, everyone. My name is Jackie, and I was

> recently dx'd with

> RA. Started with a broken wrist, was having a lot of

> problems with it

> and also other joints hurting, so dr ran an RF which

> came back

> positive. Not surprising, since I have a long

> history of autoimmune

> problems - chronic urticaria (hives - in remission),

> Hashimoto's

> thyroiditis, membranous glomerulonephritis (kidney

> disease - also in

> remission), endometriosis (had 2 surgeries for that

> years ago), and

> now this. Also have a rare blood disorder called

> systemic

> mastocytosis - basically my body makes too many mast

> cells, and it's

> like I am constantly having allergic reactions,

> although I have no

> allergies (except to sulfa drugs).

>

> Anyhow, started meds last week, taking methotrexate

> 10mg once a week,

> prednisone 10mg 3x a day, and Lyrica 75mg once a

> day, on top of my

> meds for other conditions. Doctor thinks I also have

> fibromyalgia,

> and in reading through some of the archives, it

> appears to be

> something that many others here have. Is fibro

> another manifestation

> of RA, or are they two separate conditions? I had a

> flare of what we

> figured was fibro back when I was being treated with

> cyclosporine for

> the kidney disease, then it gradually subsided by

> itself after about

> a year. Now it seems to be back in full force, just

> as painful as I

> remember...

>

> Jackie

>

>

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

[Guest guest]

>>>Does the mast cell issue ever give you trouble with your

bladder? I've had two bouts of IC that both resolved

within a month or so, with modifications to diet, but the

last one was quite painful. It flared right when my wrist

pain started. I mention that only because I know that IC

involves mast cells somehow.<<<

Thank you for the warm welcome. No, I don't have any

problems with bladder, but a lot of masto's do have IC. And

yes, it does involve mast cells.

Jackie

Life is an itch; it's how you deal with the itch that gives

you your style....

[Guest guest]

Thanks for the welcome and information, Gretchen.

Jackie

Life is an itch; it's how you deal with the itch that gives

you your style....

[Guest guest]

Thank you for the warm welcome, .

Air hugs,

Jackie

Life is an itch; it's how you deal with the itch that gives

you your style....

[Guest guest]

hi jackie,WELCOME!! my name is melynda & i have had ra since i was 5 yrs of

age,im now38.since then i also have severe osteo & neuropathy,due to steroids. i

HATE to even say that name,its caused me miserible PAIN & along with that severe

depression.. im married to a wonderful man & have an 11yr.old daughter,alyssa.the

two of them r sooo HELPFUL & UNDERSTANDING TO MY ILLNESS, when sometimes i just

dont know HOW TO DEAL OR DONT FEEL LIKE DEALING AT ALL!!! i now that god will

only give you as much as you can HANDLE & no more,but im sooooo TIRED.anyway i

WISH you the BEST of LUCK,god bless.melynda<melyndagamez@...>wrote:3/19/08

at1:22a.m.

Jackie V <itchyone@...> wrote: Thank you for the warm

welcome, .

Air hugs,

Jackie

Life is an itch; it's how you deal with the itch that gives

you your style....

---------------------------------

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[Guest guest]

Hi stephanie,

I was just recently diagnosed with polycistic ovarian syndrome also.

have you had a lot of problems with that? they just have be on birth

control right now and then when i want to try to have kids we will

have to try some other medications.

>

> > Greetings, everyone. My name is Jackie, and I was

> > recently dx'd with

> > RA. Started with a broken wrist, was having a lot of

> > problems with it

> > and also other joints hurting, so dr ran an RF which

> > came back

> > positive. Not surprising, since I have a long

> > history of autoimmune

> > problems - chronic urticaria (hives - in remission),

> > Hashimoto's

> > thyroiditis, membranous glomerulonephritis (kidney

> > disease - also in

> > remission), endometriosis (had 2 surgeries for that

> > years ago), and

> > now this. Also have a rare blood disorder called

> > systemic

> > mastocytosis - basically my body makes too many mast

> > cells, and it's

> > like I am constantly having allergic reactions,

> > although I have no

> > allergies (except to sulfa drugs).

> >

> > Anyhow, started meds last week, taking methotrexate

> > 10mg once a week,

> > prednisone 10mg 3x a day, and Lyrica 75mg once a

> > day, on top of my

> > meds for other conditions. Doctor thinks I also have

> > fibromyalgia,

> > and in reading through some of the archives, it

> > appears to be

> > something that many others here have. Is fibro

> > another manifestation

> > of RA, or are they two separate conditions? I had a

> > flare of what we

> > figured was fibro back when I was being treated with

> > cyclosporine for

> > the kidney disease, then it gradually subsided by

> > itself after about

> > a year. Now it seems to be back in full force, just

> > as painful as I

> > remember...

> >

> > Jackie

> >

> >

>

>

>

>

______________________________________________________________________

______________

> Never miss a thing. Make your home page.

> http://www./r/hs

>

[Guest guest]

i was dx'd with them seperately...FMS at 16 and RA at 21 (about a

month ago). my mom also has FMS, but doesnt have RA, so we've done a

lot of comparing to see which symptoms come from which disease. there

are def a lot of similarities with the two, but they are very

distinct. the RA is what has really knocked me down. has the lyrica

been successful for the FMS? my mom and i have had mixed results with

it. i hope your pain decreases!!

>

> Greetings, everyone. My name is Jackie, and I was recently dx'd

with

> RA. Started with a broken wrist, was having a lot of problems with

it

> and also other joints hurting, so dr ran an RF which came back

> positive. Not surprising, since I have a long history of autoimmune

> problems - chronic urticaria (hives - in remission), Hashimoto's

> thyroiditis, membranous glomerulonephritis (kidney disease - also

in

> remission), endometriosis (had 2 surgeries for that years ago), and

> now this. Also have a rare blood disorder called systemic

> mastocytosis - basically my body makes too many mast cells, and

it's

> like I am constantly having allergic reactions, although I have no

> allergies (except to sulfa drugs).

>

> Anyhow, started meds last week, taking methotrexate 10mg once a

week,

> prednisone 10mg 3x a day, and Lyrica 75mg once a day, on top of my

> meds for other conditions. Doctor thinks I also have fibromyalgia,

> and in reading through some of the archives, it appears to be

> something that many others here have. Is fibro another

manifestation

> of RA, or are they two separate conditions? I had a flare of what

we

> figured was fibro back when I was being treated with cyclosporine

for

> the kidney disease, then it gradually subsided by itself after

about

> a year. Now it seems to be back in full force, just as painful as I

> remember...

>

> Jackie

>