Guest guest Posted July 29, 2012 Report Share Posted July 29, 2012 Nora,  This is just a suggestion. I don't know how old your Mom is or how long she has been suffering from this disease, but it sounds as though she needs to be in the hospital,-(behavioral health) for a while to get her medications right.  I hope she is taking an antidepressant and sometimes a person needs more than one. There are many different medications and if one doesn't work, something else must be tried.  Maybe if you stayed with her for a while in the (hospital) room, it would comfort her enough that she wouldn't feel like she had been committed, because that is not what I'm suggesting.  When my Dad had to be in the hospital for a while, my Mom stayed during the day and I stayed during the night. He never felt like he had been left somewhere because there was always someone he recognized in the room. His doctor told me that was the reason my Dad didn't have any paranoia while he was there.  Praying for you and your family,  ________________________________ To: LBDcaregivers Sent: Saturday, July 28, 2012 8:36 PM Subject: Mom  I am new to this group, however have been reading the post. I understand the frustration and concern I have read in your post. We recently have experienced much with Mom. She has had two suicide attempts in the past week and much paranoid and mean behavior. My baby sister was the main focus of this until yesterday. My poor father is the on-site caregiver and is receiving most of the anger. We have gotten something to calm her down, and it seems to be better today, but I ust received an email from her about my father telling her to apology to me or he was going to committ her. I know he did not do that, but this is her fear. I am not sure how we are going to make it through this, my middle sister and brother have just stopped responding to any request for help. We ust feel so lost. Thank you for letting me vent. Nora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2012 Report Share Posted July 29, 2012 ,  Thank you for the suggestion. I wish being there was so easy, but I live in TX and they are in AZ. I agree she needs to be in for help.  Again, thank you! Nora Bell To: " LBDcaregivers " <LBDcaregivers > Sent: Sunday, July 29, 2012 12:59 PM Subject: Re: Mom  Nora,  This is just a suggestion. I don't know how old your Mom is or how long she has been suffering from this disease, but it sounds as though she needs to be in the hospital,-(behavioral health) for a while to get her medications right.  I hope she is taking an antidepressant and sometimes a person needs more than one. There are many different medications and if one doesn't work, something else must be tried.  Maybe if you stayed with her for a while in the (hospital) room, it would comfort her enough that she wouldn't feel like she had been committed, because that is not what I'm suggesting.  When my Dad had to be in the hospital for a while, my Mom stayed during the day and I stayed during the night. He never felt like he had been left somewhere because there was always someone he recognized in the room. His doctor told me that was the reason my Dad didn't have any paranoia while he was there.  Praying for you and your family,  ________________________________ From: norabell64 <mailto:norabell64%40yahoo.com> To: mailto:LBDcaregivers%40yahoogroups.com Sent: Saturday, July 28, 2012 8:36 PM Subject: Mom  I am new to this group, however have been reading the post. I understand the frustration and concern I have read in your post. We recently have experienced much with Mom. She has had two suicide attempts in the past week and much paranoid and mean behavior. My baby sister was the main focus of this until yesterday. My poor father is the on-site caregiver and is receiving most of the anger. We have gotten something to calm her down, and it seems to be better today, but I ust received an email from her about my father telling her to apology to me or he was going to committ her. I know he did not do that, but this is her fear. I am not sure how we are going to make it through this, my middle sister and brother have just stopped responding to any request for help. We ust feel so lost. Thank you for letting me vent. Nora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2012 Report Share Posted July 30, 2012 Hi Nora, I am here to say that every LBDer is different and being with that person does not always work, so don't worry that you are in TX and they are in AZ. My husband recognized me until the day he died, I was with him everyday, but when he had paranoia there was no changing it, he had delusions I was a spy once and he hurt me by twisting my arm so badly, I was bruised all the way up my arm and chest. I don't know how I did it, he had such a grip on me, but I managed to pull away before I was hurt anymore. Another time, he tried to hit me over the head with a vase when my back was turned. While in the hospital to get his medications adjusted, he thought I was in a conspiracy with all the medical staff to do him in. I had to put him in a nursing home, I couldn't live looking behind my back all the time. After he was in the nursing home, he did not harm me anymore. I felt secure with all the people there too. I was with him for 8 or more hours everyday that he was there. He always knew me, unless he had " Capgras. " When my husband wasn't paranoid or delusional, he was very loving and knew me and everything was fine. There is a symptom of LBD that some have and it is called, " Capgras, " and my husband had it. He knew me, but I looked like an imposter of me at times, and to him I wasn't me, even though I looked like me and sometimes this triggered his paranoia. This " Capgras " was not a daily thing, only ocassional. Vent away Nora, it is something I always did here, and it helps when other people identify with what you are going through. You are not alone. I feel sorry for your family and can relate to the problem. You poor dad is so frustrated he told her he would have her committed in a time of desperation. Of course, he didn't mean it, but we say things we don't mean in times of desperation. Can your dad get any respite? I had to create ways to get away, I would even stay for the weekend in our Community Hilton. I didn't care, I could be anywhere as soon as I checked in, and I had a wonderful relaxing weekend and was ready to go again and face LBD head on. Take care Nora. Jan Colello, husband, Jim Colello, dx w/LBD Oct. 2003 Deceased, January 22, 2011 ________________________________ To: " LBDcaregivers " <LBDcaregivers > Sent: Sunday, July 29, 2012 1:40 PM Subject: Re: Mom , Thank you for the suggestion. I wish being there was so easy, but I live in TX and they are in AZ. I agree she needs to be in for help. Again, thank you! Nora Bell To: " LBDcaregivers " <LBDcaregivers > Sent: Sunday, July 29, 2012 12:59 PM Subject: Re: Mom Nora, This is just a suggestion. I don't know how old your Mom is or how long she has been suffering from this disease, but it sounds as though she needs to be in the hospital,-(behavioral health) for a while to get her medications right. I hope she is taking an antidepressant and sometimes a person needs more than one. There are many different medications and if one doesn't work, something else must be tried. Maybe if you stayed with her for a while in the (hospital) room, it would comfort her enough that she wouldn't feel like she had been committed, because that is not what I'm suggesting. When my Dad had to be in the hospital for a while, my Mom stayed during the day and I stayed during the night. He never felt like he had been left somewhere because there was always someone he recognized in the room. His doctor told me that was the reason my Dad didn't have any paranoia while he was there. Praying for you and your family, ________________________________ From: norabell64 <mailto:norabell64%40yahoo.com> To: mailto:LBDcaregivers%40yahoogroups.com Sent: Saturday, July 28, 2012 8:36 PM Subject: Mom I am new to this group, however have been reading the post. I understand the frustration and concern I have read in your post. We recently have experienced much with Mom. She has had two suicide attempts in the past week and much paranoid and mean behavior. My baby sister was the main focus of this until yesterday. My poor father is the on-site caregiver and is receiving most of the anger. We have gotten something to calm her down, and it seems to be better today, but I ust received an email from her about my father telling her to apology to me or he was going to committ her. I know he did not do that, but this is her fear. I am not sure how we are going to make it through this, my middle sister and brother have just stopped responding to any request for help. We ust feel so lost. Thank you for letting me vent. Nora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2012 Report Share Posted July 30, 2012 Hi Nora, I am here to say that every LBDer is different and being with that person does not always work, so don't worry that you are in TX and they are in AZ. My husband recognized me until the day he died, I was with him everyday, but when he had paranoia there was no changing it, he had delusions I was a spy once and he hurt me by twisting my arm so badly, I was bruised all the way up my arm and chest. I don't know how I did it, he had such a grip on me, but I managed to pull away before I was hurt anymore. Another time, he tried to hit me over the head with a vase when my back was turned. While in the hospital to get his medications adjusted, he thought I was in a conspiracy with all the medical staff to do him in. I had to put him in a nursing home, I couldn't live looking behind my back all the time. After he was in the nursing home, he did not harm me anymore. I felt secure with all the people there too. I was with him for 8 or more hours everyday that he was there. He always knew me, unless he had " Capgras. " When my husband wasn't paranoid or delusional, he was very loving and knew me and everything was fine. There is a symptom of LBD that some have and it is called, " Capgras, " and my husband had it. He knew me, but I looked like an imposter of me at times, and to him I wasn't me, even though I looked like me and sometimes this triggered his paranoia. This " Capgras " was not a daily thing, only ocassional. Vent away Nora, it is something I always did here, and it helps when other people identify with what you are going through. You are not alone. I feel sorry for your family and can relate to the problem. You poor dad is so frustrated he told her he would have her committed in a time of desperation. Of course, he didn't mean it, but we say things we don't mean in times of desperation. Can your dad get any respite? I had to create ways to get away, I would even stay for the weekend in our Community Hilton. I didn't care, I could be anywhere as soon as I checked in, and I had a wonderful relaxing weekend and was ready to go again and face LBD head on. Take care Nora. Jan Colello, husband, Jim Colello, dx w/LBD Oct. 2003 Deceased, January 22, 2011 ________________________________ To: " LBDcaregivers " <LBDcaregivers > Sent: Sunday, July 29, 2012 1:40 PM Subject: Re: Mom , Thank you for the suggestion. I wish being there was so easy, but I live in TX and they are in AZ. I agree she needs to be in for help. Again, thank you! Nora Bell To: " LBDcaregivers " <LBDcaregivers > Sent: Sunday, July 29, 2012 12:59 PM Subject: Re: Mom Nora, This is just a suggestion. I don't know how old your Mom is or how long she has been suffering from this disease, but it sounds as though she needs to be in the hospital,-(behavioral health) for a while to get her medications right. I hope she is taking an antidepressant and sometimes a person needs more than one. There are many different medications and if one doesn't work, something else must be tried. Maybe if you stayed with her for a while in the (hospital) room, it would comfort her enough that she wouldn't feel like she had been committed, because that is not what I'm suggesting. When my Dad had to be in the hospital for a while, my Mom stayed during the day and I stayed during the night. He never felt like he had been left somewhere because there was always someone he recognized in the room. His doctor told me that was the reason my Dad didn't have any paranoia while he was there. Praying for you and your family, ________________________________ From: norabell64 <mailto:norabell64%40yahoo.com> To: mailto:LBDcaregivers%40yahoogroups.com Sent: Saturday, July 28, 2012 8:36 PM Subject: Mom I am new to this group, however have been reading the post. I understand the frustration and concern I have read in your post. We recently have experienced much with Mom. She has had two suicide attempts in the past week and much paranoid and mean behavior. My baby sister was the main focus of this until yesterday. My poor father is the on-site caregiver and is receiving most of the anger. We have gotten something to calm her down, and it seems to be better today, but I ust received an email from her about my father telling her to apology to me or he was going to committ her. I know he did not do that, but this is her fear. I am not sure how we are going to make it through this, my middle sister and brother have just stopped responding to any request for help. We ust feel so lost. Thank you for letting me vent. Nora Quote Link to comment Share on other sites More sharing options...
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