Re: ****MY APOLOGIES***** [LBD_caringspouses] COUNTING DOWN THE DAYS...........

[Guest guest]

OMG -- jo! you have NOTHING to apologize for! What good is this board if you

can't use it to vent once in awhile to people who KNOW what you're going through

and will not judge! (b/c they've been there, done that!)

Please don't apologize... if you want me to delete the initial post, I will,

although it will be part of an email once b/c it's already gone through - but if

you insist I can delete it off the board...

but seriously that's what this board is for -- not only to ask questions but to

VENT! I've certainly had my share of venting on here!

>

> My Lewy Family:

> I apologize profusely...my earlier email sent this morning was totally

unacceptable and uncalled for and, if I could be granted one wish....it would be

to " UNSEND " my earlier hateful and bitching email!  Make that two wishes,

please....my second wish would be for a " headectomy "   that's where I would pull

my head out of my............

>  

> There was absolutely no need whatsoever for me to write and send that

email off.....and, in fact, it really didn't cause me to feel any better,

either (cuss words).....Right now I'm sitting here, feeling tremendous guilt and

frustration......seeing, living and feeling the helplessness that comes after

too many days of no sleep, no help and a plethora of incidents that I was

ill-equipped to deal with, apparently.

>  

> I promise you all this will be the last of this sort of email that you'll be

receiving from me...

> I ought to be ashamed and please know that IS exactly how I feel at this

moment.

> I promise to do better in the future.

> Hopefully, 's full-time, 40 hour a week caregiver will show up and I will

be able to go to my room, lock the door, crawl into my trundle bed, pull the

covers over my head and sleep for a week (or two).

>  

> Thank you all for hopefully understanding and also for accepting my humble

apology.

>  

> Always,

> All Ways,

> MJ

>  

>  

>

>  Jo

>

>

> >________________________________

> >

> >To: " LBD_caringspouses " <LBD_caringspouses >;

" LBDPatientFamilyCaregiversandFriends "

<LBDPatientFamilyCaregiversandFriends >;

" LBDcaregivers " <LBDcaregivers >

> >Sent: Monday, July 23, 2012 7:25 AM

> >Subject: [LBD_caringspouses] COUNTING DOWN THE DAYS...........

> >

> >

> > 

> >Is anyone else out there in LewyLand AS eagerly looking forward to the

opening ceremonies of the Olympic Games  AS I AM?

> > 

> >Sorry to vent; but, in my frustrated frame of mind (no other care givers for

the last 8 days.....except myself) here to see to 's needs, wants, desires,

answer questions, pick up after, fix meals for, do laundry for, quiet his fears,

change his bedding, change him, clean up after, chase after, etc. etc. etc.

> > 

> >The " GAMES " and thus, his interest in them, will... prayerfully allow me some

much-deserved 'quiet time' and peace of mind!  To put it mildly, I am pretty

much Sick-up and Fed with Lewy!!!!!  I want to be entertained, thoroughly by

another, more likeable 'team' .....one that I won't have to pick up after, be

verbably abused by and, I can just Turn Off when I am tired and have had more

than I can take....POOR  PITIFUL ME!!!

> > 

> >Sign me: 

> >HAVE HAD ALMOST MORE THAN I CAN BEAR.

> >

> > Jo

> >

> >

> >

>

>

[Guest guest]

OMG -- jo! you have NOTHING to apologize for! What good is this board if you

can't use it to vent once in awhile to people who KNOW what you're going through

and will not judge! (b/c they've been there, done that!)

Please don't apologize... if you want me to delete the initial post, I will,

although it will be part of an email once b/c it's already gone through - but if

you insist I can delete it off the board...

but seriously that's what this board is for -- not only to ask questions but to

VENT! I've certainly had my share of venting on here!

>

> My Lewy Family:

> I apologize profusely...my earlier email sent this morning was totally

unacceptable and uncalled for and, if I could be granted one wish....it would be

to " UNSEND " my earlier hateful and bitching email!  Make that two wishes,

please....my second wish would be for a " headectomy "   that's where I would pull

my head out of my............

>  

> There was absolutely no need whatsoever for me to write and send that

email off.....and, in fact, it really didn't cause me to feel any better,

either (cuss words).....Right now I'm sitting here, feeling tremendous guilt and

frustration......seeing, living and feeling the helplessness that comes after

too many days of no sleep, no help and a plethora of incidents that I was

ill-equipped to deal with, apparently.

>  

> I promise you all this will be the last of this sort of email that you'll be

receiving from me...

> I ought to be ashamed and please know that IS exactly how I feel at this

moment.

> I promise to do better in the future.

> Hopefully, 's full-time, 40 hour a week caregiver will show up and I will

be able to go to my room, lock the door, crawl into my trundle bed, pull the

covers over my head and sleep for a week (or two).

>  

> Thank you all for hopefully understanding and also for accepting my humble

apology.

>  

> Always,

> All Ways,

> MJ

>  

>  

>

>  Jo

>

>

> >________________________________

> >

> >To: " LBD_caringspouses " <LBD_caringspouses >;

" LBDPatientFamilyCaregiversandFriends "

<LBDPatientFamilyCaregiversandFriends >;

" LBDcaregivers " <LBDcaregivers >

> >Sent: Monday, July 23, 2012 7:25 AM

> >Subject: [LBD_caringspouses] COUNTING DOWN THE DAYS...........

> >

> >

> > 

> >Is anyone else out there in LewyLand AS eagerly looking forward to the

opening ceremonies of the Olympic Games  AS I AM?

> > 

> >Sorry to vent; but, in my frustrated frame of mind (no other care givers for

the last 8 days.....except myself) here to see to 's needs, wants, desires,

answer questions, pick up after, fix meals for, do laundry for, quiet his fears,

change his bedding, change him, clean up after, chase after, etc. etc. etc.

> > 

> >The " GAMES " and thus, his interest in them, will... prayerfully allow me some

much-deserved 'quiet time' and peace of mind!  To put it mildly, I am pretty

much Sick-up and Fed with Lewy!!!!!  I want to be entertained, thoroughly by

another, more likeable 'team' .....one that I won't have to pick up after, be

verbably abused by and, I can just Turn Off when I am tired and have had more

than I can take....POOR  PITIFUL ME!!!

> > 

> >Sign me: 

> >HAVE HAD ALMOST MORE THAN I CAN BEAR.

> >

> > Jo

> >

> >

> >

>

>

[Guest guest]

OMG -- jo! you have NOTHING to apologize for! What good is this board if you

can't use it to vent once in awhile to people who KNOW what you're going through

and will not judge! (b/c they've been there, done that!)

Please don't apologize... if you want me to delete the initial post, I will,

although it will be part of an email once b/c it's already gone through - but if

you insist I can delete it off the board...

but seriously that's what this board is for -- not only to ask questions but to

VENT! I've certainly had my share of venting on here!

>

> My Lewy Family:

> I apologize profusely...my earlier email sent this morning was totally

unacceptable and uncalled for and, if I could be granted one wish....it would be

to " UNSEND " my earlier hateful and bitching email!  Make that two wishes,

please....my second wish would be for a " headectomy "   that's where I would pull

my head out of my............

>  

> There was absolutely no need whatsoever for me to write and send that

email off.....and, in fact, it really didn't cause me to feel any better,

either (cuss words).....Right now I'm sitting here, feeling tremendous guilt and

frustration......seeing, living and feeling the helplessness that comes after

too many days of no sleep, no help and a plethora of incidents that I was

ill-equipped to deal with, apparently.

>  

> I promise you all this will be the last of this sort of email that you'll be

receiving from me...

> I ought to be ashamed and please know that IS exactly how I feel at this

moment.

> I promise to do better in the future.

> Hopefully, 's full-time, 40 hour a week caregiver will show up and I will

be able to go to my room, lock the door, crawl into my trundle bed, pull the

covers over my head and sleep for a week (or two).

>  

> Thank you all for hopefully understanding and also for accepting my humble

apology.

>  

> Always,

> All Ways,

> MJ

>  

>  

>

>  Jo

>

>

> >________________________________

> >

> >To: " LBD_caringspouses " <LBD_caringspouses >;

" LBDPatientFamilyCaregiversandFriends "

<LBDPatientFamilyCaregiversandFriends >;

" LBDcaregivers " <LBDcaregivers >

> >Sent: Monday, July 23, 2012 7:25 AM

> >Subject: [LBD_caringspouses] COUNTING DOWN THE DAYS...........

> >

> >

> > 

> >Is anyone else out there in LewyLand AS eagerly looking forward to the

opening ceremonies of the Olympic Games  AS I AM?

> > 

> >Sorry to vent; but, in my frustrated frame of mind (no other care givers for

the last 8 days.....except myself) here to see to 's needs, wants, desires,

answer questions, pick up after, fix meals for, do laundry for, quiet his fears,

change his bedding, change him, clean up after, chase after, etc. etc. etc.

> > 

> >The " GAMES " and thus, his interest in them, will... prayerfully allow me some

much-deserved 'quiet time' and peace of mind!  To put it mildly, I am pretty

much Sick-up and Fed with Lewy!!!!!  I want to be entertained, thoroughly by

another, more likeable 'team' .....one that I won't have to pick up after, be

verbably abused by and, I can just Turn Off when I am tired and have had more

than I can take....POOR  PITIFUL ME!!!

> > 

> >Sign me: 

> >HAVE HAD ALMOST MORE THAN I CAN BEAR.

> >

> > Jo

> >

> >

> >

>

>

[Guest guest]

Jo,

I agree with ! I read your post and found it rather cathartic!

Sometimes, reading the venting of others is just what I need to feel the

" I'm not alone " camaraderie of a forum such as this. Give yourself a break

and know that it's okay to share your innermost feelings, frustrations,

guilts and pain.

Debbie O.

> **

>

>

> OMG -- jo! you have NOTHING to apologize for! What good is this board

> if you can't use it to vent once in awhile to people who KNOW what you're

> going through and will not judge! (b/c they've been there, done that!)

>

> Please don't apologize... if you want me to delete the initial post, I

> will, although it will be part of an email once b/c it's already gone

> through - but if you insist I can delete it off the board...

>

> but seriously that's what this board is for -- not only to ask questions

> but to VENT! I've certainly had my share of venting on here!

>

>

>

>

>

> >

> > My Lewy Family:

> > I apologize profusely...my earlier email sent this morning was totally

> unacceptable and uncalled for and, if I could be granted one wish....it

> would be to " UNSEND " my earlier hateful and bitching email! Make that two

> wishes, please....my second wish would be for a " headectomy " Â that's where

> I would pull my head out of my............

> > Â

> > There was absolutely no need whatsoever for me to write and send that

> email off.....and, in fact, it really didn't cause me to feel any better,

> either (cuss words).....Right now I'm sitting here, feeling tremendous

> guilt and frustration......seeing, living and feeling the helplessness that

> comes after too many days of no sleep, no help and a plethora of incidents

> that I was ill-equipped to deal with, apparently.

> > Â

>

> > I promise you all this will be the last of this sort of email that

> you'll be receiving from me...

> > I ought to be ashamed and please know that IS exactly how I feel at

> this moment.

>

> > I promise to do better in the future.

> > Hopefully, 's full-time, 40 hour a week caregiver will show up and I

> will be able to go to my room, lock the door, crawl into my trundle bed,

> pull the covers over my head and sleep for a week (or two).

> > Â

>

> > Thank you all for hopefully understanding and also for accepting my

> humble apology.

> > Â

> > Always,

> > All Ways,

> > MJ

> > Â

> > Â

> >

> > Â Jo

> >

> >

> > >________________________________

> > >

>

> > >To: " LBD_caringspouses " <

> LBD_caringspouses >; "

> LBDPatientFamilyCaregiversandFriends " <

> LBDPatientFamilyCaregiversandFriends >; "

> LBDcaregivers " <LBDcaregivers >

> > >Sent: Monday, July 23, 2012 7:25 AM

> > >Subject: [LBD_caringspouses] COUNTING DOWN THE DAYS...........

> > >

> > >

> > >Â

> > >Is anyone else out there in LewyLand AS eagerly looking forward to the

> opening ceremonies of the Olympic Games AS I AM?

> > >Â

>

> > >Sorry to vent; but, in my frustrated frame of mind (no other care

> givers for the last 8 days.....except myself) here to see to 's needs,

> wants, desires, answer questions, pick up after, fix meals for, do laundry

> for, quiet his fears, change his bedding, change him, clean up after, chase

> after, etc. etc. etc.

> > >Â

> > >The " GAMES " and thus, his interest in them, will... prayerfully allow

> me some much-deserved 'quiet time' and peace of mind! To put it mildly, I

> am pretty much Sick-up and Fed with Lewy!!!!! I want to be entertained,

> thoroughly by another, more likeable 'team' .....one that I won't have to

> pick up after, be verbably abused by and, I can just Turn Off when I am

> tired and have had more than I can take....POORÂ PITIFUL ME!!!

> > >Â

> > >Sign me:Â

> > >HAVE HAD ALMOST MORE THAN I CAN BEAR.

> > >

> > >Â Jo

>

> > >

> > >

> > >

> >

> >

[Guest guest]

There is nothing to apologize for. You didn't say anything that the rest

of us, in some for or other, haven't said, wanted to say or just felt.

When things get to that point, this is one of the few safe places

available to vent. Better here than almost anyplace else.

Kate

On Mon, Jul 23, 2012 at 9:49 AM, Jo Blume wrote:

> **

>

>

> My Lewy Family:

> I apologize profusely...my earlier email sent this morning was totally

> unacceptable and uncalled for and, if I could be granted one wish....it

> would be to " UNSEND " my earlier hateful and bitching email! Make that two

> wishes, please....my second wish would be for a " headectomy " that's where

> I would pull my head out of my............

>

> There was absolutely no need whatsoever for me to write and send that

> email off.....and, in fact, it really didn't cause me to feel any better,

> either (cuss words).....Right now I'm sitting here, feeling tremendous

> guilt and frustration......seeing, living and feeling the helplessness that

> comes after too many days of no sleep, no help and a plethora of incidents

> that I was ill-equipped to deal with, apparently.

>

> I promise you all this will be the last of this sort of email that you'll

> be receiving from me...

> I ought to be ashamed and please know that IS exactly how I feel at this

> moment.

> I promise to do better in the future.

> Hopefully, 's full-time, 40 hour a week caregiver will show up and I

> will be able to go to my room, lock the door, crawl into my trundle bed,

> pull the covers over my head and sleep for a week (or two).

>

> Thank you all for hopefully understanding and also for accepting my humble

> apology.

>

> Always,

> All Ways,

> MJ

>

>

>

> Jo

>

> >________________________________

> >

> >To: " LBD_caringspouses " <

> LBD_caringspouses >; "

> LBDPatientFamilyCaregiversandFriends " <

> LBDPatientFamilyCaregiversandFriends >; "

> LBDcaregivers " <LBDcaregivers >

> >Sent: Monday, July 23, 2012 7:25 AM

> >Subject: [LBD_caringspouses] COUNTING DOWN THE DAYS...........

> >

> >

> >

> >Is anyone else out there in LewyLand AS eagerly looking forward to the

> opening ceremonies of the Olympic Games AS I AM?

> >

> >Sorry to vent; but, in my frustrated frame of mind (no other care givers

> for the last 8 days.....except myself) here to see to 's needs, wants,

> desires, answer questions, pick up after, fix meals for, do laundry for,

> quiet his fears, change his bedding, change him, clean up after, chase

> after, etc. etc. etc.

> >

> >The " GAMES " and thus, his interest in them, will... prayerfully allow me

> some much-deserved 'quiet time' and peace of mind! To put it mildly, I am

> pretty much Sick-up and Fed with Lewy!!!!! I want to be entertained,

> thoroughly by another, more likeable 'team' .....one that I won't have to

> pick up after, be verbably abused by and, I can just Turn Off when I am

> tired and have had more than I can take....POOR PITIFUL ME!!!

> >

> >Sign me:

> >HAVE HAD ALMOST MORE THAN I CAN BEAR.

> >

> > Jo

> >

> >

> >

>

>

[Guest guest]

There is nothing to apologize for. You didn't say anything that the rest

of us, in some for or other, haven't said, wanted to say or just felt.

When things get to that point, this is one of the few safe places

available to vent. Better here than almost anyplace else.

Kate

On Mon, Jul 23, 2012 at 9:49 AM, Jo Blume wrote:

> **

>

>

> My Lewy Family:

> I apologize profusely...my earlier email sent this morning was totally

> unacceptable and uncalled for and, if I could be granted one wish....it

> would be to " UNSEND " my earlier hateful and bitching email! Make that two

> wishes, please....my second wish would be for a " headectomy " that's where

> I would pull my head out of my............

>

> There was absolutely no need whatsoever for me to write and send that

> email off.....and, in fact, it really didn't cause me to feel any better,

> either (cuss words).....Right now I'm sitting here, feeling tremendous

> guilt and frustration......seeing, living and feeling the helplessness that

> comes after too many days of no sleep, no help and a plethora of incidents

> that I was ill-equipped to deal with, apparently.

>

> I promise you all this will be the last of this sort of email that you'll

> be receiving from me...

> I ought to be ashamed and please know that IS exactly how I feel at this

> moment.

> I promise to do better in the future.

> Hopefully, 's full-time, 40 hour a week caregiver will show up and I

> will be able to go to my room, lock the door, crawl into my trundle bed,

> pull the covers over my head and sleep for a week (or two).

>

> Thank you all for hopefully understanding and also for accepting my humble

> apology.

>

> Always,

> All Ways,

> MJ

>

>

>

> Jo

>

> >________________________________

> >

> >To: " LBD_caringspouses " <

> LBD_caringspouses >; "

> LBDPatientFamilyCaregiversandFriends " <

> LBDPatientFamilyCaregiversandFriends >; "

> LBDcaregivers " <LBDcaregivers >

> >Sent: Monday, July 23, 2012 7:25 AM

> >Subject: [LBD_caringspouses] COUNTING DOWN THE DAYS...........

> >

> >

> >

> >Is anyone else out there in LewyLand AS eagerly looking forward to the

> opening ceremonies of the Olympic Games AS I AM?

> >

> >Sorry to vent; but, in my frustrated frame of mind (no other care givers

> for the last 8 days.....except myself) here to see to 's needs, wants,

> desires, answer questions, pick up after, fix meals for, do laundry for,

> quiet his fears, change his bedding, change him, clean up after, chase

> after, etc. etc. etc.

> >

> >The " GAMES " and thus, his interest in them, will... prayerfully allow me

> some much-deserved 'quiet time' and peace of mind! To put it mildly, I am

> pretty much Sick-up and Fed with Lewy!!!!! I want to be entertained,

> thoroughly by another, more likeable 'team' .....one that I won't have to

> pick up after, be verbably abused by and, I can just Turn Off when I am

> tired and have had more than I can take....POOR PITIFUL ME!!!

> >

> >Sign me:

> >HAVE HAD ALMOST MORE THAN I CAN BEAR.

> >

> > Jo

> >

> >

> >

>

>

[Guest guest]

There is nothing to apologize for. You didn't say anything that the rest

of us, in some for or other, haven't said, wanted to say or just felt.

When things get to that point, this is one of the few safe places

available to vent. Better here than almost anyplace else.

Kate

On Mon, Jul 23, 2012 at 9:49 AM, Jo Blume wrote:

> **

>

>

> My Lewy Family:

> I apologize profusely...my earlier email sent this morning was totally

> unacceptable and uncalled for and, if I could be granted one wish....it

> would be to " UNSEND " my earlier hateful and bitching email! Make that two

> wishes, please....my second wish would be for a " headectomy " that's where

> I would pull my head out of my............

>

> There was absolutely no need whatsoever for me to write and send that

> email off.....and, in fact, it really didn't cause me to feel any better,

> either (cuss words).....Right now I'm sitting here, feeling tremendous

> guilt and frustration......seeing, living and feeling the helplessness that

> comes after too many days of no sleep, no help and a plethora of incidents

> that I was ill-equipped to deal with, apparently.

>

> I promise you all this will be the last of this sort of email that you'll

> be receiving from me...

> I ought to be ashamed and please know that IS exactly how I feel at this

> moment.

> I promise to do better in the future.

> Hopefully, 's full-time, 40 hour a week caregiver will show up and I

> will be able to go to my room, lock the door, crawl into my trundle bed,

> pull the covers over my head and sleep for a week (or two).

>

> Thank you all for hopefully understanding and also for accepting my humble

> apology.

>

> Always,

> All Ways,

> MJ

>

>

>

> Jo

>

> >________________________________

> >

> >To: " LBD_caringspouses " <

> LBD_caringspouses >; "

> LBDPatientFamilyCaregiversandFriends " <

> LBDPatientFamilyCaregiversandFriends >; "

> LBDcaregivers " <LBDcaregivers >

> >Sent: Monday, July 23, 2012 7:25 AM

> >Subject: [LBD_caringspouses] COUNTING DOWN THE DAYS...........

> >

> >

> >

> >Is anyone else out there in LewyLand AS eagerly looking forward to the

> opening ceremonies of the Olympic Games AS I AM?

> >

> >Sorry to vent; but, in my frustrated frame of mind (no other care givers

> for the last 8 days.....except myself) here to see to 's needs, wants,

> desires, answer questions, pick up after, fix meals for, do laundry for,

> quiet his fears, change his bedding, change him, clean up after, chase

> after, etc. etc. etc.

> >

> >The " GAMES " and thus, his interest in them, will... prayerfully allow me

> some much-deserved 'quiet time' and peace of mind! To put it mildly, I am

> pretty much Sick-up and Fed with Lewy!!!!! I want to be entertained,

> thoroughly by another, more likeable 'team' .....one that I won't have to

> pick up after, be verbably abused by and, I can just Turn Off when I am

> tired and have had more than I can take....POOR PITIFUL ME!!!

> >

> >Sign me:

> >HAVE HAD ALMOST MORE THAN I CAN BEAR.

> >

> > Jo

> >

> >

> >

>

>

[Guest guest]

Jo

Like the others i reiterate you have absolutely nothing to apologise for. In

fact I think you were restrained. This is a horrid illness we are having to

cope with and when you live with it 24/7 it's very hard to cope. I find it

reassuring that others need to blow sometimes. And I'm not alone. I am not a

natural carer and find the constant demands so wearing. I am looking forward to

the Olympics as well as sport is one thing my husband will watch even if he

doesn't very often follow whats going on.

Regards

Sent from my iPad

> My Lewy Family:

> I apologize profusely...my earlier email sent this morning was totally

unacceptable and uncalled for and, if I could be granted one wish....it would be

to " UNSEND " my earlier hateful and bitching email! Make that two wishes,

please....my second wish would be for a " headectomy " that's where I would pull

my head out of my............

>

> There was absolutely no need whatsoever for me to write and send that email

off.....and, in fact, it really didn't cause me to feel any better, either (cuss

words).....Right now I'm sitting here, feeling tremendous guilt and

frustration......seeing, living and feeling the helplessness that comes after

too many days of no sleep, no help and a plethora of incidents that I was

ill-equipped to deal with, apparently.

>

> I promise you all this will be the last of this sort of email that you'll be

receiving from me...

> I ought to be ashamed and please know that IS exactly how I feel at this

moment.

> I promise to do better in the future.

> Hopefully, 's full-time, 40 hour a week caregiver will show up and I will

be able to go to my room, lock the door, crawl into my trundle bed, pull the

covers over my head and sleep for a week (or two).

>

> Thank you all for hopefully understanding and also for accepting my humble

apology.

>

> Always,

> All Ways,

> MJ

>

>

>

> Jo

>

> >________________________________

> >

> >To: " LBD_caringspouses " <LBD_caringspouses >;

" LBDPatientFamilyCaregiversandFriends "

<LBDPatientFamilyCaregiversandFriends >;

" LBDcaregivers " <LBDcaregivers >

> >Sent: Monday, July 23, 2012 7:25 AM

> >Subject: [LBD_caringspouses] COUNTING DOWN THE DAYS...........

> >

> >

> >

> >Is anyone else out there in LewyLand AS eagerly looking forward to the

opening ceremonies of the Olympic Games AS I AM?

> >

> >Sorry to vent; but, in my frustrated frame of mind (no other care givers for

the last 8 days.....except myself) here to see to 's needs, wants, desires,

answer questions, pick up after, fix meals for, do laundry for, quiet his fears,

change his bedding, change him, clean up after, chase after, etc. etc. etc.

> >

> >The " GAMES " and thus, his interest in them, will... prayerfully allow me some

much-deserved 'quiet time' and peace of mind! To put it mildly, I am pretty

much Sick-up and Fed with Lewy!!!!! I want to be entertained, thoroughly by

another, more likeable 'team' .....one that I won't have to pick up after, be

verbably abused by and, I can just Turn Off when I am tired and have had more

than I can take....POOR PITIFUL ME!!!

> >

> >Sign me:

> >HAVE HAD ALMOST MORE THAN I CAN BEAR.

> >

> > Jo

> >

> >

> >

>

>

[Guest guest]

Jo

Like the others i reiterate you have absolutely nothing to apologise for. In

fact I think you were restrained. This is a horrid illness we are having to

cope with and when you live with it 24/7 it's very hard to cope. I find it

reassuring that others need to blow sometimes. And I'm not alone. I am not a

natural carer and find the constant demands so wearing. I am looking forward to

the Olympics as well as sport is one thing my husband will watch even if he

doesn't very often follow whats going on.

Regards

Sent from my iPad

> My Lewy Family:

> I apologize profusely...my earlier email sent this morning was totally

unacceptable and uncalled for and, if I could be granted one wish....it would be

to " UNSEND " my earlier hateful and bitching email! Make that two wishes,

please....my second wish would be for a " headectomy " that's where I would pull

my head out of my............

>

> There was absolutely no need whatsoever for me to write and send that email

off.....and, in fact, it really didn't cause me to feel any better, either (cuss

words).....Right now I'm sitting here, feeling tremendous guilt and

frustration......seeing, living and feeling the helplessness that comes after

too many days of no sleep, no help and a plethora of incidents that I was

ill-equipped to deal with, apparently.

>

> I promise you all this will be the last of this sort of email that you'll be

receiving from me...

> I ought to be ashamed and please know that IS exactly how I feel at this

moment.

> I promise to do better in the future.

> Hopefully, 's full-time, 40 hour a week caregiver will show up and I will

be able to go to my room, lock the door, crawl into my trundle bed, pull the

covers over my head and sleep for a week (or two).

>

> Thank you all for hopefully understanding and also for accepting my humble

apology.

>

> Always,

> All Ways,

> MJ

>

>

>

> Jo

>

> >________________________________

> >

> >To: " LBD_caringspouses " <LBD_caringspouses >;

" LBDPatientFamilyCaregiversandFriends "

<LBDPatientFamilyCaregiversandFriends >;

" LBDcaregivers " <LBDcaregivers >

> >Sent: Monday, July 23, 2012 7:25 AM

> >Subject: [LBD_caringspouses] COUNTING DOWN THE DAYS...........

> >

> >

> >

> >Is anyone else out there in LewyLand AS eagerly looking forward to the

opening ceremonies of the Olympic Games AS I AM?

> >

> >Sorry to vent; but, in my frustrated frame of mind (no other care givers for

the last 8 days.....except myself) here to see to 's needs, wants, desires,

answer questions, pick up after, fix meals for, do laundry for, quiet his fears,

change his bedding, change him, clean up after, chase after, etc. etc. etc.

> >

> >The " GAMES " and thus, his interest in them, will... prayerfully allow me some

much-deserved 'quiet time' and peace of mind! To put it mildly, I am pretty

much Sick-up and Fed with Lewy!!!!! I want to be entertained, thoroughly by

another, more likeable 'team' .....one that I won't have to pick up after, be

verbably abused by and, I can just Turn Off when I am tired and have had more

than I can take....POOR PITIFUL ME!!!

> >

> >Sign me:

> >HAVE HAD ALMOST MORE THAN I CAN BEAR.

> >

> > Jo

> >

> >

> >

>

>

[Guest guest]

Jo

Like the others i reiterate you have absolutely nothing to apologise for. In

fact I think you were restrained. This is a horrid illness we are having to

cope with and when you live with it 24/7 it's very hard to cope. I find it

reassuring that others need to blow sometimes. And I'm not alone. I am not a

natural carer and find the constant demands so wearing. I am looking forward to

the Olympics as well as sport is one thing my husband will watch even if he

doesn't very often follow whats going on.

Regards

Sent from my iPad

> My Lewy Family:

> I apologize profusely...my earlier email sent this morning was totally

unacceptable and uncalled for and, if I could be granted one wish....it would be

to " UNSEND " my earlier hateful and bitching email! Make that two wishes,

please....my second wish would be for a " headectomy " that's where I would pull

my head out of my............

>

> There was absolutely no need whatsoever for me to write and send that email

off.....and, in fact, it really didn't cause me to feel any better, either (cuss

words).....Right now I'm sitting here, feeling tremendous guilt and

frustration......seeing, living and feeling the helplessness that comes after

too many days of no sleep, no help and a plethora of incidents that I was

ill-equipped to deal with, apparently.

>

> I promise you all this will be the last of this sort of email that you'll be

receiving from me...

> I ought to be ashamed and please know that IS exactly how I feel at this

moment.

> I promise to do better in the future.

> Hopefully, 's full-time, 40 hour a week caregiver will show up and I will

be able to go to my room, lock the door, crawl into my trundle bed, pull the

covers over my head and sleep for a week (or two).

>

> Thank you all for hopefully understanding and also for accepting my humble

apology.

>

> Always,

> All Ways,

> MJ

>

>

>

> Jo

>

> >________________________________

> >

> >To: " LBD_caringspouses " <LBD_caringspouses >;

" LBDPatientFamilyCaregiversandFriends "

<LBDPatientFamilyCaregiversandFriends >;

" LBDcaregivers " <LBDcaregivers >

> >Sent: Monday, July 23, 2012 7:25 AM

> >Subject: [LBD_caringspouses] COUNTING DOWN THE DAYS...........

> >

> >

> >

> >Is anyone else out there in LewyLand AS eagerly looking forward to the

opening ceremonies of the Olympic Games AS I AM?

> >

> >Sorry to vent; but, in my frustrated frame of mind (no other care givers for

the last 8 days.....except myself) here to see to 's needs, wants, desires,

answer questions, pick up after, fix meals for, do laundry for, quiet his fears,

change his bedding, change him, clean up after, chase after, etc. etc. etc.

> >

> >The " GAMES " and thus, his interest in them, will... prayerfully allow me some

much-deserved 'quiet time' and peace of mind! To put it mildly, I am pretty

much Sick-up and Fed with Lewy!!!!! I want to be entertained, thoroughly by

another, more likeable 'team' .....one that I won't have to pick up after, be

verbably abused by and, I can just Turn Off when I am tired and have had more

than I can take....POOR PITIFUL ME!!!

> >

> >Sign me:

> >HAVE HAD ALMOST MORE THAN I CAN BEAR.

> >

> > Jo

> >

> >

> >

>

>

[Guest guest]

No need to apologize at all!

Sent from Yahoo! Mail on Android

[Guest guest]

No need to apologize at all!

Sent from Yahoo! Mail on Android

[Guest guest]

No need to apologize at all!

Sent from Yahoo! Mail on Android

[Guest guest]

Dear Jo,

You have NOTHING to apologize for! We have all been there (and often still

are)! This is the perfect place to vent and share how you feel!

Hugs from humid and rainy NY,

Helene

>

> My Lewy Family:

> I apologize profusely...my earlier email sent this morning was totally

unacceptable and uncalled for and, if I could be granted one wish....it would be

to " UNSEND " my earlier hateful and bitching email!  Make that two wishes,

please....my second wish would be for a " headectomy "   that's where I would pull

my head out of my............

>  

> There was absolutely no need whatsoever for me to write and send that

email off.....and, in fact, it really didn't cause me to feel any better,

either (cuss words).....Right now I'm sitting here, feeling tremendous guilt and

frustration......seeing, living and feeling the helplessness that comes after

too many days of no sleep, no help and a plethora of incidents that I was

ill-equipped to deal with, apparently.

>  

> I promise you all this will be the last of this sort of email that you'll be

receiving from me...

> I ought to be ashamed and please know that IS exactly how I feel at this

moment.

> I promise to do better in the future.

> Hopefully, 's full-time, 40 hour a week caregiver will show up and I will

be able to go to my room, lock the door, crawl into my trundle bed, pull the

covers over my head and sleep for a week (or two).

>  

> Thank you all for hopefully understanding and also for accepting my humble

apology.

>  

> Always,

> All Ways,

> MJ

>  

>  

>

>  Jo

>

>

> >________________________________

> >

> >To: " LBD_caringspouses " <LBD_caringspouses >;

" LBDPatientFamilyCaregiversandFriends "

<LBDPatientFamilyCaregiversandFriends >;

" LBDcaregivers " <LBDcaregivers >

> >Sent: Monday, July 23, 2012 7:25 AM

> >Subject: [LBD_caringspouses] COUNTING DOWN THE DAYS...........

> >

> >

> > 

> >Is anyone else out there in LewyLand AS eagerly looking forward to the

opening ceremonies of the Olympic Games  AS I AM?

> > 

> >Sorry to vent; but, in my frustrated frame of mind (no other care givers for

the last 8 days.....except myself) here to see to 's needs, wants, desires,

answer questions, pick up after, fix meals for, do laundry for, quiet his fears,

change his bedding, change him, clean up after, chase after, etc. etc. etc.

> > 

> >The " GAMES " and thus, his interest in them, will... prayerfully allow me some

much-deserved 'quiet time' and peace of mind!  To put it mildly, I am pretty

much Sick-up and Fed with Lewy!!!!!  I want to be entertained, thoroughly by

another, more likeable 'team' .....one that I won't have to pick up after, be

verbably abused by and, I can just Turn Off when I am tired and have had more

than I can take....POOR  PITIFUL ME!!!

> > 

> >Sign me: 

> >HAVE HAD ALMOST MORE THAN I CAN BEAR.

> >

> > Jo

> >

> >

> >

>

>

[Guest guest]

Jo,

I've felt that this way this week waiting for in home care to start (and mom is

resistant). You said nothing you need to appologize for...

Heddy

>

> > My Lewy Family:

> > I apologize profusely...my earlier email sent this morning was totally

unacceptable and uncalled for and, if I could be granted one wish....it would be

to " UNSEND " my earlier hateful and bitching email! Make that two wishes,

please....my second wish would be for a " headectomy " that's where I would pull

my head out of my............

> >

> > There was absolutely no need whatsoever for me to write and send that email

off.....and, in fact, it really didn't cause me to feel any better, either (cuss

words).....Right now I'm sitting here, feeling tremendous guilt and

frustration......seeing, living and feeling the helplessness that comes after

too many days of no sleep, no help and a plethora of incidents that I was

ill-equipped to deal with, apparently.

> >

> > I promise you all this will be the last of this sort of email that you'll be

receiving from me...

> > I ought to be ashamed and please know that IS exactly how I feel at this

moment.

> > I promise to do better in the future.

> > Hopefully, 's full-time, 40 hour a week caregiver will show up and I

will be able to go to my room, lock the door, crawl into my trundle bed, pull

the covers over my head and sleep for a week (or two).

> >

> > Thank you all for hopefully understanding and also for accepting my humble

apology.

> >

> > Always,

> > All Ways,

> > MJ

> >

> >

> >

> > Jo

> >

> > >________________________________

> > >

> > >To: " LBD_caringspouses "

<LBD_caringspouses >;

" LBDPatientFamilyCaregiversandFriends "

<LBDPatientFamilyCaregiversandFriends >;

" LBDcaregivers " <LBDcaregivers >

> > >Sent: Monday, July 23, 2012 7:25 AM

> > >Subject: [LBD_caringspouses] COUNTING DOWN THE DAYS...........

> > >

> > >

> > >

> > >Is anyone else out there in LewyLand AS eagerly looking forward to the

opening ceremonies of the Olympic Games AS I AM?

> > >

> > >Sorry to vent; but, in my frustrated frame of mind (no other care givers

for the last 8 days.....except myself) here to see to 's needs, wants,

desires, answer questions, pick up after, fix meals for, do laundry for, quiet

his fears, change his bedding, change him, clean up after, chase after, etc.

etc. etc.

> > >

> > >The " GAMES " and thus, his interest in them, will... prayerfully allow me

some much-deserved 'quiet time' and peace of mind! To put it mildly, I am

pretty much Sick-up and Fed with Lewy!!!!! I want to be entertained, thoroughly

by another, more likeable 'team' .....one that I won't have to pick up after, be

verbably abused by and, I can just Turn Off when I am tired and have had more

than I can take....POOR PITIFUL ME!!!

> > >

> > >Sign me:

> > >HAVE HAD ALMOST MORE THAN I CAN BEAR.

> > >

> > > Jo

> > >

> > >

> > >

> >

> >