Re: UCSF Diagnosis correct

[Guest guest]

,

It's good to heat from you and know that you have made peace with 's

passing. This may not sound right but I think you and were blessed to

not have to endure his LBD till the better end!

I wanted to ask you since the autopsy showed LBD if you'd share with us

your experience with the disease as far as when the hallucinations etc

started and when the movement become difficult etc.

It would help to know the trajectory for me at least !

All the best,

Judy

> **

>

>

> Hello everyone,

>

> I continue to read this forum and think often about you and your loved

> ones. died February 21 and I still haven't taken it all in. I'm just

> grateful he didn't have to suffer to the full extent this disease would

> have taken him. He did, indeed, have Lewy Body based on the autopsy that

> was done at UCSF. Had he not contracted multiple myeloma, I imagine he

> would have continued to deteriorate to the point at which he needed to go

> to a nursing home. I'm so grateful he was able to be at home. Please know

> that my empathy and care extends to you all and my respect for your long

> term care giving is deep and sincere. 's memorial is coming up on the

> 24 of June and I am looking forward to celebrating him and his life with

> friends and his fellow scientific co-workers. I'm told that at some point

> the memories get easier. Warmly, Wild

>

>

>

--

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[Guest guest]

Dear ,

It's so good to hear from you. Thank you for sharing your thoughts and

feelings, and what has been going on. Celebrate 's life and your steadfast

commitment to him on the 24th, and may you have many wonderful happy memories.

All the best,

Helene in NY

>

> Hello everyone,

>

> I continue to read this forum and think often about you and your loved ones.

died February 21 and I still haven't taken it all in. I'm just grateful he

didn't have to suffer to the full extent this disease would have taken him. He

did, indeed, have Lewy Body based on the autopsy that was done at UCSF. Had he

not contracted multiple myeloma, I imagine he would have continued to

deteriorate to the point at which he needed to go to a nursing home. I'm so

grateful he was able to be at home. Please know that my empathy and care extends

to you all and my respect for your long term care giving is deep and sincere.

's memorial is coming up on the 24 of June and I am looking forward to

celebrating him and his life with friends and his fellow scientific co-workers.

I'm told that at some point the memories get easier. Warmly, Wild

>