Guest guest Posted June 12, 2000 Report Share Posted June 12, 2000 Joan wrote: Greetings,everyone!I, too, want to say how much I enjoy your posts, Gillian-you open up another world we'd probably all like to at least visit because of your great anecdotes!I've got an appt this week to see my GP. I haven't seen a Rheumie for-actually I think I only saw the 2nd one, who was very nice, once and stayed on the same NSAID for 10 years. The 1st one I Joan, I too am allergic to codine and sulfa...morphine sometimes...I don't know why sometimes and sometimes not...so I just say something else please....I've tried MTX in the big guns, but didn't notice a change in the PA but I quit flaking and itching.My skin felt like " real " skin for about 3 years. I guess I've never been in remission either. I just know that I didn't feel any change in mobility or pain with the PA. The others in the group will have to tell you their experiences. I'm going to have to see my rheumy soon too...my Nsaid isn't working either or at least not very much...two toes swollen and three fingers..no fist and no grip in that hand...Hey we could be book ends. HA. Have a good week. Donna in Mi.------------------------------------------------------------------------Go to Expedia.com to win airfare to Vegas for you and 20 friends, $15,000 and a suite at Bellagio for New Year's. Or win 2 roundtriptickets anywhere in the U.S. given away daily. Click here for a chance win.1/5295/3/_/494167/_/960815835/------------------------------------------------------------------------Please visit our new web page at:http://www.wpunj.edu/icip/paWe are currently discussing new chat times. moderates a chat on arthritis atwww.about.com on Thursday evenings, so check thatout in the meantime! E mail at RA@... for details. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 On June 11, Joan wrote: > Greetings,everyone! > > I've got an appt this week to see my GP. I haven't seen a > Rheumie for-actually I think I only saw the 2nd one, who was very > nice, once and stayed on the same NSAID for 10 years. The 1st one I > saw, however, was highly touted and said to be the best in the area > but before I had even finished sitting down in his office and without > even looking at me he said very harshly " You're NOT having any more > children! " I wanted to say " Nice meeting you, too " . It went from bad > to worse when the first drug he prescribed gave me horrible > headaches, so for the next Rx he prescribed I asked what the possible > side effects were (I was learning)and when he said I didn't need to > know that, I left the prescription there and said good-bye. > Joan > > Hi, Joan: There's nothing like encountering a physician who has the bedside manner of a cardboard box. . . and the arrogance to go along with it. Unfortunately their cohorts in rheumatology don't know what these doctors say behind closed doors, hence can't move to try to modify their behavior and probably wouldn't even if they had the chance. The most important thing about your story is that you spotted the arrogant sob and got yourself away from his potentially " toxic " impact on you and that's to celebrate. I encountered one of such members of the rheumatology fraternity/sorority. He tried to convince me that I should take what he called a medical " soup " complete with prednizone, MTX and a few whose names I couldn't pronounce. He said he would play with the mix until he came up with something that wouldn't be so debilitating that it just might do me some good. I will say that he did give me a brochure on MTX to take home and read. When I came back and said I didn't want his soup he said, " well, it seems you have some aversion to medication " and wrote on his physicians prescription pad that perhaps I should be on prozac. At that point I decided we wouldn't meet again. A year later I was on the Enbrel study with a physician who is in the same clinic as this clown and the experience is the difference between night and day. It is so scary when you're looking for help and you think if you don't accept the one in front of you that you just might not find any one to suite even half way (kind of like looking for the prince among the frogs) but it never fails to leave the frogs behind. You just have to keep your options open and proactively act in your own behalf and believe that there's something better around the corner. (which is exactly what you did.) I salute you. Maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 Well, I'm haven't been given Enbrel yet.... My doc increased the metheltrexate from 3 pills once a week up to 4 pills once per week. She then decreased the roids from 16mg to 12mg due to the length of time I've been taking them and has now given me Lyrica to take one pill a day. I had MRI's done my last visit and she reported that they shown early erosive damage... so I'll be getting that test again as well as soon as my insurance approves it... Depending on how the changes work, she said Enbrel is still going to remain an option... Thanks again for everyones advise and concerns Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 hi bonnie,oh my you used to take 16mg.of pred.? how long had you been taking that dose,if you dont mind me asking? i have been taking pred. for over 17yrs. im cutting down though,i now take 4mg.a day. i also take mtx(7pills) every friday and i skip the folic acid. WHAT is the LYRICA for? goodness i HOPE things WORK out for you. god bless,melyndagamez 3/25/08 10:24p.m.central time [ ] Dr. Appt Well, I'm haven't been given Enbrel yet.... My doc increased the metheltrexate from 3 pills once a week up to 4 pills once per week. She then decreased the roids from 16mg to 12mg due to the length of time I've been taking them and has now given me Lyrica to take one pill a day. I had MRI's done my last visit and she reported that they shown early erosive damage... so I'll be getting that test again as well as soon as my insurance approves it... Depending on how the changes work, she said Enbrel is still going to remain an option... Thanks again for everyones advise and concerns Bonnie ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Mylinda, I have been on Pred. since march of last year, but I've only been on 16mg since December. To the best of my knowledge the Lyrica is too help with the pain... Its mostly given to people with fybermyalgia and diabetics... But my Doc said it should help the pain I'm having in my fingers and feet. We'll see. > > hi bonnie,oh my you used to take 16mg.of pred.? how long had you been taking that dose,if you dont mind me asking? i have been taking pred. for over 17yrs. im cutting down though,i now take 4mg.a day. i also take mtx(7pills) every friday and i skip the folic acid. WHAT is the LYRICA for? goodness i HOPE things WORK out for you. god bless,melyndagamez 3/25/08 10:24p.m.central time > > > [ ] Dr. Appt > > Well, I'm haven't been given Enbrel yet.... My doc increased the > metheltrexate from 3 pills once a week up to 4 pills once per week. > She then decreased the roids from 16mg to 12mg due to the length of > time I've been taking them and has now given me Lyrica to take one > pill a day. > I had MRI's done my last visit and she reported that they shown early > erosive damage... so I'll be getting that test again as well as soon > as my insurance approves it... > Depending on how the changes work, she said Enbrel is still going to > remain an option... > Thanks again for everyones advise and concerns > Bonnie > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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