Toni - Humira

[Guest guest]

Hi Toni....I took Humira once along time ago and then a couple of years

later, wanted to try it again. The preservative burned me like heck. It didn't

just burn while injecting...it kept burning even after. It would be okay for a

day and then the next day the burn came back for another 3 days

continuously...it then caused a big purple red area and I couldn't even put

pants on or a

sheet over my leg. There was a bruise about 4inches around. I had to have the

ceiling fan blowing on my leg all night..it hurt so bad. I called the dr and

they said to take benadryl and the next time it would be fine. I did that and

it wasn't as bad but still very painful and caused a red purplish dark hard

area on my leg. I went off of it....cause even the benadryl wasn't going to

help me. The one area on my leg got very hard and the purple site stayed with

me for weeks. There was a sore that scabbed over and looked like it was going

to heal and fall off...well, it didn't and it turned into a decubitis

ulcer..or bedsore. I went to my pcp and she sent me to the wound care center

where I

had to get it cleaned out and pack it for about 1 1/2 months until the wound

healed. There is now a crater where the humira injection was given and part of

my muscle is gone. When I called the rheumy about it, they said..oh it

always burns but it will go away...I said no way is it going away. I think they

don't give much creedance to the idea that the humira burns and that sometimes

it can keep burning and not stop. I was miserable.

I'm on enbrel now and will only use the one that I have to mix myself since

the preservative is what caused the problem for me. I'm having great results

with enbrel.

So, I can relate.

a

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