Re: NO PAIN WITH MINOCYCLINE/Diane

March 16, 2008

Hi Joy,

Actually I was on MTX for 3 1/2 years and this January, in fact New

years Eve, I got sick with a bronchial infection. I went to the

doctor and he treated me with antibiotic ZPack...well, it never got

better. I went through another ZPack and 3 inhalers and breathing

treatments and about 10 bottles of cough medicine...finally, I

decided to stop taking the MTX on 2/9/08..At the same time I saw

Larry King and the actress Kathleen was on there talking about

her RA. I researched on the computer to see what she was on, she

wouldn't say on TV, and found out about Minocycline...which I had

never heard of before. I immediately called my Rheumatologist for an

appointment and when I went to him I asked him if he knew of

Minocycline. He said yes that he had some patients on it and asked

me if i wanted to give it a try. I said yes and that was that...

I started taking it on 2/28/08. I had been in a major flare from

going off the MTX...so I had a few more days of pain...I am now in my

7th or 8th day of waking up with absolutely NO PAIN...I haven't had

pain free days like this since before being DX'd in 2/02. I also

stopped my NSAID, so all I take is the Minocycline.

If I can answer any other questions, please ask.

Diane

In , Joy <jhoorm01@...> wrote:

>

> Diane

> How long did it take for the minocycline to work? Did you go off

all drugs when you started

> it or waited awhile?

> Joy

>

> Diane <carol.incognito@...> wrote:

> Hi ,

> I only take 100 mgs of Minocycline a day. After over 5 years of the

> typical RA meds, the last being MTX...I am thrilled to be pain free

> for the past 6 days...I have not had a pain free day in years. I am

> also not taking any Prednisone or NSAIDS. I stopped them all. I

> remain very optimistic that I have found my answer to this

nightmare.

> Diane

>

> > >

> > > If you remember me I was on MTX and Meloxicam for 3 1/2 years

for

> > my

> > > RA. After finding out about Minocycline just last month and

> being

> > sick

> > > with a bronchial infection for almost 2 months...I stopped the

> MTX

> > on

> > > 2/9. I saw my Rheumatoid Dr and told him I wanted to try

> > Minocycline.

> > > I started on 2/28. I just wanted to give an update of how I am

> > doing.

> > > Today is the 3rd. day that I woke up with NO PAIN AND no signs

of

> > RA.

> > > I am in shock, this is unbelievable. I have even stopped the

> > > Prednisone and Meloxicam. Could it really be this simple for

> me?

> > Why

> > > wasn't I offered this AB therapy 5 years ago? At least given

the

> > > option. I am trying not to be angry about it. I am very

> grateful

> > to

> > > be having pain free days and I am very optimistic that the AB

> > treatment

> > > will work for me.

> > > I hope everyone knows about this therapy. I had never heard of

> > it. I

> > > thought I was well read and intelligent when it came to RA. I

> was

> > > nothing short of ignorant I see now.

> > > Diane

> > >

> >

>

> ------------------------------------

>

March 16, 2008

I get a lot of upper respiratory stuff too and my doc switched me off humira to

mtx

about 6 months ago. I have had more infections since I started on all the RA

meds

but I did have infections before just seemed to get over them quicker.

I have RA/and PA and when I asked the doc about the minocycline she said it

wouldn't do anything for the PA. So I really don't know what to think. My

Psoriasis is under control but I don't want it to get worse either.

Joy

Diane <carol.incognito@...> wrote: