New meds

[Guest guest]

Hi

Massage Therapy has been about the only thing besides accupuncture that has

helped the Fibro pain.... Massage thereapy - with the myofacial release seems to

be best - it helps those muscles dump the toxins they hold onto.

I recommend it highly.

Rose

hammy412000 <hammy412000@...> wrote: Hi

all. Hope everyone is doing well. I just went to the pain clinic

and had a med change. From loritabs to percocets. I am following the

prescription closely. I am pain free for the first time in two weeks.

I see my rhuemy on thursday about maybe message therapy for my fibro.

I hope it helps. If anyone has had message therapy could you share

your experience on whether it helped or not. Peace out.

Chris

---------------------------------

Boardwalk for $500? In 2007? Ha!

Play Monopoly Here and Now (it's updated for today's economy) at Games.

[Guest guest]

MTX big side effect is hair loss, minimized (not solved) by folic

acid. Plaquenil gives you eye sight issues.

--- In , " unicornmom1062 " <Donahuejk6@...>

wrote:

>

> My doctor is going to put me on Methotrexate 25mg / injections, I am

> also taking plaqunel. I have RA and lupus, am also diabetic. just

> wondering if this new meds will help or are there any side effects

they

> dont tell you about? Looking for a bit of releief

>

[Guest guest]

MTX causes me to have nausea and diarrhea about 2-3 days after I take the

dose. I take 6 pills once a week. It has haleped with my pain especially in

my knees. I can't say it has helped my hands however.

Heidi M

On 12/27/07, Jeanette <jhkerch@...> wrote:

>

> MTX big side effect is hair loss, minimized (not solved) by folic

> acid. Plaquenil gives you eye sight issues.

>

>

> >

> > My doctor is going to put me on Methotrexate 25mg / injections, I am

> > also taking plaqunel. I have RA and lupus, am also diabetic. just

> > wondering if this new meds will help or are there any side effects

> they

> > dont tell you about? Looking for a bit of releief

> >

>

>

>

[Guest guest]

thank you for the information, hope it helps me as well

jo

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[Guest guest]

thank you, not looking forward to any of that but just want the pain to

ease in my hands, I hope

jo

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[Guest guest]

I'm on six pills a week (once a week of course) of MTX and have

pretty extreme nausea starting about 24 hours after I dose. This

lasts for about 24 hours along with a general feeling of having a

stomach bug (body aches, fatigue, feeling just generally " ick " ). The

fatigue lasts about 3 days for me.

BUT, with that said, I've been on it for 5 weeks nows and I've had a

tremendous reduction in inflammation, pain, and stiffness! I've

responded very well to it.

I haven't noticed any hair thinning but maybe that will happen as

time progresses.

Kim

--- In , " unicornmom1062 " <Donahuejk6@...>

wrote:

>

> My doctor is going to put me on Methotrexate 25mg / injections, I

am

> also taking plaqunel. I have RA and lupus, am also diabetic. just

> wondering if this new meds will help or are there any side effects

they

> dont tell you about? Looking for a bit of releief

>

[Guest guest]

Hi, I take both those medications. 20mg of mtx orally and 400mg of plaquenil

daily. Can't say that they are helping all that much, but then I wouldn't be

game to go off them either. Lots of people get dirrohea from the plaquenil, but

it hasn't been a problem for me. I am affected by the mtx. I take it on Monday

night, and then just write Tuesday off, I sleep to about lunch time, and then

are just so vague for the rest of the day. I was making the Christmas Pavlova

on Christmas Eve and forgot to add the sugar, couldn't work out why it was so

flat!!!!! Never mind. Best of luck to you. I am told that the injections of

mtx cause less side effects, my rheummy has never suggested it, they seem to be

a bit anti injections in Australia, perhaps it costs more and the government

doesn't want to pick up the tab. Well good luck

Pennie in Australia

[ ] new meds

My doctor is going to put me on Methotrexate 25mg / injections, I am

also taking plaqunel. I have RA and lupus, am also diabetic. just

wondering if this new meds will help or are there any side effects they

dont tell you about? Looking for a bit of releief

Make the switch to the world's best email. Get the new 7 Mail now.

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[Guest guest]

Hi all, i need some imfo. I went to the ra doctor today and she wants to take

away salphasalazine and start me on methoxetrate. Is this med any better? what

are the side affects? I just am really scared to switch. I am taking prednisone

and salphasalazine, She said i should be doing better than i am so thats why she

wants to switch it. is this normal? has anyone else went through this? I have

gotten better but do still have some trouble, but isn't that normal? Do any of

you guys ever feel good and normal? i thought no matter what you try, it will

always be hard to be ok again. Please tell me what you go through and what i can

expect in the future. My blood sugar has already elevated. I think that is due

to prednisone. Thanks to you all

[Guest guest]

Hi ,

I've been on mtx for 8 years now, I believe I will be on it for life. I was

scared to death in the beginning, I can't tell you how many hours I sat looking

at those pills before I took them, when I finally swallowed them, I was waiting

for disaster to strike but nothing happened, nothing. I have no problem with

them, some do. Mtx is the standard of care from everything I have read so I

would just tell you not to be so afraid. I'd be more afraid of the prednisone,

I will not take that drug, I have for a week but after finding out what all it

can do, no. So good luck, the mtx returned my life to me. mary

[ ] New meds

Hi all, i need some imfo. I went to the ra doctor today and she wants to take

away salphasalazine and start me on methoxetrate. Is this med any better? what

are the side affects? I just am really scared to switch. I am taking prednisone

and salphasalazine, She said i should be doing better than i am so thats why she

wants to switch it. is this normal? has anyone else went through this? I have

gotten better but do still have some trouble, but isn't that normal? Do any of

you guys ever feel good and normal? i thought no matter what you try, it will

always be hard to be ok again. Please tell me what you go through and what i can

expect in the future. My blood sugar has already elevated. I think that is due

to prednisone. Thanks to you all

[Guest guest]

Hi :

I am taking MTX. injections 1x a week. I am at the max. dose. I also take

Sulfasalazine, 6 tabs, a day, Placquinal 2 tabs. a day, 5 mg. of Prednisone a

day. I also take Leucovorin 12 hrs. after my MTX. shot for nausea. I used to

take the MTX. in pill form, but they made me so sick that I switched to the

shot. It was so much better for me and my stomach. I have had RA for 5 1/2

years, and I am 68, and never heard of RA before. I have found with this

disease that I try what my Rheumy orders, and if it works well, then I stay on

it. From the day I got diagnosed I started MTX and prednisone. As time went

on, I had many flare ups with lots of pain and swelling, she then added Placq,

and Sulfasalazine. This has worked well for me, the flare ups are longer apart,

which I am grateful for. I do have to increase the Pred. when things get really

bad. The most problems for me are my feet and ankles, which have been just

awful, plus they get so

stiff I can hardly walk. The other problems are my hands and wrists, with pain

and swelling, and stiffness. Overall, the feet and ankles are my worst with RA.

I have some days that I just have to rest, and stay off these feet! I do suffer

from tiredness, which I have given into. I guess with RA you have to do what

you have to do to survive. I do make concessions, even though I don't want to.

I have found so many people on this site, who are so very nice and supportive.

Some have so many problems with RA and other auto-immune diseases, but they all

fight to live, and try to keep positive God Bless them all!!! I find them to

be so courageous, trying to fight these diseases, which none of us want to have.

The only thing i can tell you is to try to keep positive, find a great Rheumy.

that you trust and have faith in. Also, family and friends do make a wonderful

support group when you can tell them how you are feeling, etc. One thing I have

done is stop apologizing to my family and friends when I just can't go with

them, or can't have company, etc. I just tell them my RA is bad, period. That

took a lot of stress off my shoulders.

I hope in some way I have answered some of your questions, and I pray that you

don't suffer too much with RA. Life does go on, no matter what. We just have

to do the best for ourselves that we can. We are all striving to find the right

combination of meds. to give us relief from suffering, pain, and have more

quality to our lives.

Barbara

[ ] New meds

Hi all, i need some imfo. I went to the ra doctor today and she wants to take

away salphasalazine and start me on methoxetrate. Is this med any better? what

are the side affects? I just am really scared to switch. I am taking prednisone

and salphasalazine, She said i should be doing better than i am so thats why she

wants to switch it. is this normal? has anyone else went through this? I have

gotten better but do still have some trouble, but isn't that normal? Do any of

you guys ever feel good and normal? i thought no matter what you try, it will

always be hard to be ok again. Please tell me what you go through and what i can

expect in the future. My blood sugar has already elevated. I think that is due

to prednisone. Thanks to you all

[Guest guest]

Dear ,

I agree with . MTX is the standard of care. I take 8 pills every Wednesday

night

without any problems. Long-term Prednisone should be @ the lowest dose

possible, and

less than 10 mg/day.

in NJ

[Guest guest]

I have been on MTX for about 5 yrs now. I have had no problems at all with

it. I just started Humira a couple months ago also. So far other than

plaquanil, I have not been on anything else and so far doing fine. I never feel

100

percent, but understand that I never will. I feel lucky in that mine is not

advanced so I don't even look like I have anything wrong, just stiffness and

aches most all the time, but of course that is what the pain med is for, I only

take that when needed. I also was scared at first since I heard all the bad,

but the doctor said that it is such a low dose that I would be fine, I did

have nausea with it when I took it at night, but since I switched to taking it

in the morn, no problems at all. Last time I was in talked to him about the

prednisone and he told me that for him that is a last resort med cause of all

the damage it causes to the body, so there is no way I will take that one.

Hope the MTX works for you also.

In a message dated 3/25/2008 11:38:50 P.M. Central Daylight Time,

mapetry0177@... writes:

Hi all, i need some imfo. I went to the ra doctor today and she wants to

take away salphasalazine and start me on methoxetrate. Is this med any

better?

what are the side affects? I just am really scared to switch. I am taking

prednisone and salphasalazine, She said i should be doing better than i am so

thats why she wants to switch it. is this normal? has anyone else went through

this? I have gotten better but do still have some trouble, but isn't that

normal? Do any of you guys ever feel good and normal? i thought no matter what

you try, it will always be hard to be ok again. Please tell me what you go

through and what i can expect in the future. My blood sugar has already

elevated. I think that is due to prednisone. Thanks to you all

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[Guest guest]

Hi, Kathy. I am so happy for you! I found the same to be true...and when you

come out from the " brain fog " it's like night and day! I felt the fatigue and

fog lift almost immediately as well. I took injections for the first month -

twice a week...my dr. says the testosterone is especially effective. Now I am on

specially compounded creams from Bellevue Pharmacy and capsules that I take

daily. I go for an injection every other week. During the last few days of the

second week I can feel the deep burning pains in my hips and shoulders coming

back. I know this is the most likely place for most folks to feel more pain (if

their RA already has involved these joints) because the synovial fluid " settles "

there overnight. I also now am confirmed in the help of the injections as this

pain subsides within a day to be barely there.

I am still intent on the AT and will probably start as soon as I can next week.

Meanwhile I haven't needed a nap since I started the BHRT!

Best of luck,

rheumatic new meds

Hi all. I thought id mention I started on my biotidentical hormones and armour

thyroid this week (tuesday to be exact) they said i wouldnt see any difference

for weeks, but I usually do alot quicker on meds than most (more sensitve)

anyway. I will say that by weds...I didnt need a nap!!! Ive gone3 days with no

lunch-time nap!!!!! not only that, I shut off the TV and went outside and worked

in the garden during my lunch break! so maybe thats a coincidence, but I dont

think so. But i actually sit around thinking " what can i go do next " which i

havent done in 15 years... so Im hoping this is true and the meds are helping me

out and I can get my life better now!!!! Kathy