Sherry...

[Guest guest]

Hi,

Just reading your reply to Pam.

It sounds like you have the severe kind like I have and I have been

on other boards looking for others with severe RA so as not to scare

the ones with mild and mooderate RA. We all have it differently but

sometimes in talking to others about what's going on with you people

can become fearful they will have it the same way. Some have severe

RA but also respond to treatment. I have been on Orencia too and

all of the others. The only thing I haven't been on is rituxan.

Just saw a new rheumatologists who does not recommend this to her

patients. She like Orencia, however. It didn't last long for me

but I am having a lot of problems with pleural effusion. The last

thoracentesis a liter of fluid was removed and tested. The

pulmonologist mentioned esophagitis and fungal infection in the

fluid tested. I wonder now if it was because of the Orencia from

reading your post. The RA has never been controlled. The hands are

always hot and achy. They look the worst as well. The hips are

severely affected and is what's on my mind constantly only because

like you it is difficult to walk. I do have a walker but it isn't

much help so I just rather hop along without it. Until the lung

thing started that is how I got around at work. Now I am on medical

leave. I have now started looking into resurfacing for the hips.

Not sure if I am a candidate but sure would like to try it if my

insurance will pay for it.

Well, take care. I may mention you at the pulmonologist visit and

your reaction to the Orencia. I was never restarted on the Orencia,

however. the doctor at the time said it was doing me more harm than

good.

blessings,

Ebny

--- In , sherry elkins <se54summers@...>

wrote:

>

> Hey Pam,Glad to meet you.I don't know where Lexington is but I'll

look it up.The leg brace was the same for me,but you may need it

adjusted if it doesn't feel right.I had to take mine back a couple

of times,before i got it right. I am 57 and have had RA since I

was 38.Every time I read posts here its hard not to reply and

say,thats what happened to me ,I've got all those symptoms ,my tests

are all just the same!!! At this point in my life I am pretty

much disabled.I can't walk very far but use a walker when I do have

to go out. I have been on all first,second,and some third line

treatments. I started Orencia several months ago,and it seemed

hopeful,then I got a thrush infection from my mouth ,down my

esophagus and into my stomache.So stopped,Orencia to get treatment

for fungal infection:( Now that is cleared,I will try Orencia again.

Like every body else here,I am always hopeful that some relief is

just around the corner. Take care ,Sherry PS. I live in

> Wilmington,New hanover Co.

>

>

> ---------------------------------

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