Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 Hello to all, I am trying to catch up after being gone last week for more back/leg therapy. Congrats to and Cheryl and the other pregnant ladies on the list. How exciting and nerve wracking at the same time. My prayers are with you all. Gwen, great news about your lining! Wow your story is incredible! I will look for your updates as you progress in your journey. Even in North Dakota, I too heard about Dr. G and was told that Valle was the one to see, not Gleicher (spelling?) Janet, WOW!! I am so thrilled for you and your sister and cannot imagine what you guys are experiencing right now. I probably will be facing this same situation soon and will be anxiously awaiting your news on the 19th! I have to ask what the injectable drugs did to you and if you had any side effects from it. I was on 20 MG of Chlomid and had alot of pain and then got wacky on 40mg of Chlomid. I am a bit nervous about those drugs, but excited about the whole thing. My prayers and thoughts are with you both during this time.! Yeah! , Take one day at a time with your decision. I too was at this point about a month ago..facing the decisions about adding to our family. I actually laid in bed one night and began hyperventilating and crying not knowing what to do. I pray so much about it and try to follow my heart. We have decided to pursue a Gr but only because it was so easy to find her and seems so right. Had she not come into our lives so easily, I would face different choices. I guess what we did was try and explore each path and whichever one would have a roadblock or felt bad we would eliminate and then go down the next path. I am sorry for what you are feeling, but do understand so completely! Please take one option and one day at a time. Talk to a professional too if you can. HUGS to you! Liz in ND ______________________________________________ FREE Personalized Email at Mail.com Sign up at http://www.mail.com/?sr=signup Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 bonnie, glad to hear " some things " are going well, hope others improve, but she IS 16 and I'm sure you don't know a thing!! please take pictures and send me one!!! Patty inspires me--just think of it this way, if she ends up in boston atleast you can go visit both girls at once!! hope your father-in-law is doing better--we've had the virus here too. have a good week, maria catching up > > Hi everyone, > > Welcome to all the new families and prayers said for those children > who are in need. > > We have been busy here with my father-in-law being very ill. He's home > > now. We also have had some viruses here... Anyway, I last said Patty was > getting a digital crossover hearing system. So far she only has the right > aid and it is not set to her best frequency yet so we don't know how well she > > really will do. She has to get used to it. So far, so good though. > > > Just to catch up more, Patty's OCD issues are still here. We have > finally gotten her off of one of her meds but she is still having some of the > same issues like picking her > fingers, changing her clothing... And now we have some really great moods! > One of the hardest things now is she really is battling me. Of course I > " don't know much " and she can't wait to move out of here. Oh well, one day > she will know what I do is only for her best and I love her. Teenagers are > fun! > > I recently was watching a video of my family and on it was Patty at > around 3 1/2. It is absolutely incredible how far she has come. She was > talking but it was guttural and she didn't move her lips or mouth. Then she > was outside, just standing there, and fell down. This was also during the > time she had one of her stents and you could see her suck the mucus out of > her sinus through her back of her throat. Now I look at her and she is doing > > tremendously well! I wish there were a way I could get that video on here > and show you all where she was and where she is now. She is a totally > different person, though still the same. We have been incredibly lucky with > her. > > Last, we went shopping last night for her prom shoes (which obviously > are flat-but still pretty)! Yes, Patty is going to her Junior Prom! She met > > a young man last summer at the Perkins program who she has remained friends > with. They call each other and speak to each other on instant messages. She > > asked him if he would go with her and he said yes! She is so excited, as are > > we. He lives about two hours away so we will be picking him up and driving > him home the next day. He lives near Boston where our other daughter is in > school so the drive is something we are doing anyway. Patty's sister just > HAS to come home for this. Cross your fingers and hope she has fun. It is > April 6th. He is a fine young man and I believe they will. > > Oh, we are still discussing transition issues for her. She is FINALLY > > on computers at school and doing remarkably well. I knew she would. She is > even learning Power Point. They want her to stay two more years instead of > one. I need to hear all options before we make any decisions. She still > struggles in math and needs help with purchasing things, understanding money > concepts. This kid thinks she will be living in Boston. That terrifies me. > > Obviously she will need assistance but you know I have never told her she > couldn't do something and I can't start now. She has to try things herself > and usually if she can't do something she finds another way. We will see > where life leads her. Like I said, we are lucky. But I also honestly feel > the early intervention she received in the beginning is what made a > difference in where she is now. So has the specialists outside of the > district who come in and assist in educating her. Without them, it scares > me. There have been true angels in her life. > > Take care. > Bonnie, Mom to Kris 19, Patty CHARGE 17, and wife to > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.