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Re: off thyroid med now

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Debbie,

Sorry you are going off thyroid hormone. What is the doctor going to

do? Was there growth in the tissue in the past year? Being off thyroid

hormone causes you to be hypo..hypo causes joint pain. I hope you have

forewarned your hubby that your emotions will be upside down :-(

Glad to hear your scan was normal, that's great news.

Kate G

Hash's

AS

At 10:22 AM 1/24/2008, you wrote:

>Have been neglecting this great group to concentrate on other health

>problems. Last week I had a whole body scan to check for thyroid

>cancer. Found out there still is some residual tissue in my thyroid bed

>area. Don't have a thyroid gland. My endo said since these results are

>the same as the 2006 ones, he wants me to get treatment. I have to go

>off my thyroid med for that so my TSH will elevate. Being off thyroid

>med makes my fibro symptoms worse. Probably have the treatment about 6

>weeks from now.

>

>Did have elevated liver enzymes recently. Monday had a HIDA scan to

>check my liver and biliary tree. That scan was normal.

>

>Debbie L

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Hi Kate,

Thanks for your reply. I posted this note mostly for you Kate. Last

year had a neck ultrasound and it showed I have two small nodules in

my former thyroid bed. The scan picked them up, also. That's why my

endo wants me to get the RAI treatment to get rid of them. Hype

symptoms are very similiar to fibromyalgia also.

Debbie L

>

> Debbie,

>

> Sorry you are going off thyroid hormone. What is the doctor going

to

> do? Was there growth in the tissue in the past year? Being off

thyroid

> hormone causes you to be hypo..hypo causes joint pain. I hope you

have

> forewarned your hubby that your emotions will be upside down :-(

>

> Glad to hear your scan was normal, that's great news.

>

> Kate G

> Hash's

> AS

>

>

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Hi Kate,

Don't think my tiny nodules have grown. The ultrasound last year just

found them. Have to find the report and see if they were measured.

Didn't get an US this year though. My previous RAI gave me horrible

heartburn and nausea for several days. Told my endo about it and he

said if I didn't vomit from it, then it would be ok. Right now my

stomach is totally burning anyway. Waiting for my GI doctor to call

back. Tomorrow will research the RAI and then maybe get a second

opinion.

Debbie J

>

> Hi Debbie,

>

> Have the nodules grown in the past year? What size are they? I

have no

> personal experience with RAI, my sister had it and was " heck " on

her. I do

> know some people on two thyroid boards with some " horror " stories

about

> RAI. I guess my though would be if they haven't grown why poison

your

> body? Just my two cents, you need to do what you feel is right for

> your...but I recommend research and maybe a second opinion.

>

> I got clearance to go for an US once a year now...my thyroid

nodules

> haven't grown in the past two years. Largest is holding steady at

> 7mm. Takes 1cm for a FNA.

>

> Let us know how it goes....take care!

>

> Kate

>

>

>> >

> >

> >

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