Guest guest Posted April 5, 2012 Report Share Posted April 5, 2012 Lynn, I did this inservice for my husband's facility and it describes LBD in 5 pages: http://health.groups.yahoo.com/group/LBDcaregivers/files/Inservice%20by%20Janet/ I got all the information from http://www.lbd.org and other internet sites and the LBD Assoc. went over it to make sure it was all factual. Hope this helps you. Jan Colello Husband, Jim, dx w/LBD October, 2003 Deceased, January, 2011 ________________________________ To: " LBDcaregivers " <LBDcaregivers > Sent: Wednesday, April 4, 2012 9:16 PM Subject: LBD Info My mother was recently diagnosed with LBD and has been in assisted living for some unrelated health issues for about a month. It is a small rural facility and I am finding that the staff is not aware of LBD. I bought a caregivers book to educate myself but I can't expect the staff to read the full book. Is there a source for short, concise information under 10 pages long that I can print out and provide to the staff to help educate them. All I can find is something with a couple paragraphs or the book, and nothing in between. Thanks, Lynn To: LBDcaregivers Sent: Wednesday, April 4, 2012 7:05 PM Subject: Re: Re: MY FIRST POST Hi Shanon: I wish you good luck on finding a good placement for your mother. Going through the " hoops " can be daunting. Ask questions, keep a log on who and what you talked about. Gather up all documents for your mother you can find: any bills she may have, all insurance papers, will, any funeral planning she may have done, birth certificate, if married, divorced, etc, any of those papers. marriage license if it applies. A photo ID, any info on her bank accounts. Any anything you may see that may be important. When you apply, they will make copies of anything they may need, YOU keep all originals. I hope this helps if you have not gathered any important documents. Vivian > ** > > > Hi Shanon, > I haven't been posting much lately, but I did want to welcome you to the > group. Please take care of yourself and allow yourself to rest and heal. > Regards from NY, > Helene > (Mom 78, 12 years with LBD - late stage) > > > > > >> My name is Shanon and I have lived in SF since 1990. In July 2010 my > mom got very sick and ended up in a psych ward in Glendale , CA I flew down > there and to my surprise the mom that I had just talked to 2 days before > was completely different. She didn't know where she was, what state we were > in and thought that she worked at the hospital..I was in shock! in Dec of > that your 5 days before Christmas my mom was diagnosed with LBD. I had > never heard of it before and didn't know what to expect or do, all I know > was I had to be there for her. I went back home put my stuff in storage and > came back and was there when she was released from the hospital and have > been her sole caregiver 24/7 since July 30th 2010. This has been the > hardest thing I have ever done in my life and not in a millions years did I > think something like this could happen to my mom. She was a very healthy > out going person. A massage therapist as well. It's been almost 2 years that > > >> I've been in LA and it's taking it's toll on me and unfortunately if > your not rich, you pretty much screwed when it comes to help. > > >> > > >> I thought that my " so called family " would be there, but they haven't > done a thing. My brother and sister who I haven't talked to in 20 years( > they dis-owned me because I'm gay) hasn't called her in months and on Xmas > didn't call or even send a card... " what kind of person does that? I'm so > disappointed in how people acted it still to this day I just don't get it, > How do you abandon your own mother? that's sick! I've been looking for a > nursing home for my mom because I can't keep this up to much longer and I > need to get my life back on track or I'll be in big trouble. Neither one of > us has money and I feel terrible having to put her in a home but I have no > choice, I'm all she has and if I don't take care of myself I'll end up sick > and homeless. I try to stay positive but it's becoming more and more hard > to do, that's why I joined this group in hopes that reading other peoples > stories well give me strength. I had no idea there was such a group until > > >> a few days ago. I now know that I'm not alone. I wish the best to all > of you in your journey and prayer for us all. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2012 Report Share Posted April 5, 2012 Sorry, you have to type http://www.lewybodydementia.org out now, lbd.org is another site now. ________________________________ To: " LBDcaregivers " <LBDcaregivers > Sent: Thursday, April 5, 2012 4:38 PM Subject: Re: LBD Info/Lynn Lynn, I did this inservice for my husband's facility and it describes LBD in 5 pages: http://health.groups.yahoo.com/group/LBDcaregivers/files/Inservice%20by%20Janet/ I got all the information from http://www.lbd.org and other internet sites and the LBD Assoc. went over it to make sure it was all factual. Hope this helps you. Jan Colello Husband, Jim, dx w/LBD October, 2003 Deceased, January, 2011 ________________________________ To: " LBDcaregivers " <LBDcaregivers > Sent: Wednesday, April 4, 2012 9:16 PM Subject: LBD Info My mother was recently diagnosed with LBD and has been in assisted living for some unrelated health issues for about a month. It is a small rural facility and I am finding that the staff is not aware of LBD. I bought a caregivers book to educate myself but I can't expect the staff to read the full book. Is there a source for short, concise information under 10 pages long that I can print out and provide to the staff to help educate them. All I can find is something with a couple paragraphs or the book, and nothing in between. Thanks, Lynn To: LBDcaregivers Sent: Wednesday, April 4, 2012 7:05 PM Subject: Re: Re: MY FIRST POST Hi Shanon: I wish you good luck on finding a good placement for your mother. Going through the " hoops " can be daunting. Ask questions, keep a log on who and what you talked about. Gather up all documents for your mother you can find: any bills she may have, all insurance papers, will, any funeral planning she may have done, birth certificate, if married, divorced, etc, any of those papers. marriage license if it applies. A photo ID, any info on her bank accounts. Any anything you may see that may be important. When you apply, they will make copies of anything they may need, YOU keep all originals. I hope this helps if you have not gathered any important documents. Vivian > ** > > > Hi Shanon, > I haven't been posting much lately, but I did want to welcome you to the > group. Please take care of yourself and allow yourself to rest and heal. > Regards from NY, > Helene > (Mom 78, 12 years with LBD - late stage) > > > > > >> My name is Shanon and I have lived in SF since 1990. In July 2010 my > mom got very sick and ended up in a psych ward in Glendale , CA I flew down > there and to my surprise the mom that I had just talked to 2 days before > was completely different. She didn't know where she was, what state we were > in and thought that she worked at the hospital..I was in shock! in Dec of > that your 5 days before Christmas my mom was diagnosed with LBD. I had > never heard of it before and didn't know what to expect or do, all I know > was I had to be there for her. I went back home put my stuff in storage and > came back and was there when she was released from the hospital and have > been her sole caregiver 24/7 since July 30th 2010. This has been the > hardest thing I have ever done in my life and not in a millions years did I > think something like this could happen to my mom. She was a very healthy > out going person. A massage therapist as well. It's been almost 2 years that > > >> I've been in LA and it's taking it's toll on me and unfortunately if > your not rich, you pretty much screwed when it comes to help. > > >> > > >> I thought that my " so called family " would be there, but they haven't > done a thing. My brother and sister who I haven't talked to in 20 years( > they dis-owned me because I'm gay) hasn't called her in months and on Xmas > didn't call or even send a card... " what kind of person does that? I'm so > disappointed in how people acted it still to this day I just don't get it, > How do you abandon your own mother? that's sick! I've been looking for a > nursing home for my mom because I can't keep this up to much longer and I > need to get my life back on track or I'll be in big trouble. Neither one of > us has money and I feel terrible having to put her in a home but I have no > choice, I'm all she has and if I don't take care of myself I'll end up sick > and homeless. I try to stay positive but it's becoming more and more hard > to do, that's why I joined this group in hopes that reading other peoples > stories well give me strength. I had no idea there was such a group until > > >> a few days ago. I now know that I'm not alone. I wish the best to all > of you in your journey and prayer for us all. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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