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My  mother was recently diagnosed with LBD and has been in assisted living for

some unrelated health issues for about a month.  It is a small rural facility

and I am finding that the staff is not aware of LBD.  I bought a caregivers book

to educate myself but I can't expect the staff to read the full book.  Is there

a source for short, concise information under 10 pages long that I can print out

and provide to the staff to help educate them.  All I can find is something with

a couple paragraphs or the book, and nothing in between. 

 

Thanks,

 

Lynn

To: LBDcaregivers

Sent: Wednesday, April 4, 2012 7:05 PM

Subject: Re: Re: MY FIRST POST

Hi Shanon:  I wish you good luck on finding a good placement for your

mother.  Going through the " hoops " can be daunting.  Ask questions, keep a

log on who and what you talked about.  Gather up all documents for your

mother you can find: any bills she may have, all insurance papers, will,

any funeral planning she may have done, birth certificate, if married,

divorced, etc, any of those papers.  marriage license if it applies.  A

photo ID, any info on her bank accounts.  Any anything you may see that may

be important.  When you apply, they will make copies of anything they may

need, YOU keep all originals.

I hope this helps if you have not gathered any important documents.

Vivian

> **

>

>

> Hi Shanon,

> I haven't been posting much lately, but I did want to welcome you to the

> group. Please take care of yourself and allow yourself to rest and heal.

> Regards from NY,

> Helene

> (Mom 78, 12 years with LBD - late stage)

>

>

>

> > >> My name is Shanon and I have lived in SF since 1990. In July 2010 my

> mom got very sick and ended up in a psych ward in Glendale , CA I flew down

> there and to my surprise the mom that I had just talked to 2 days before

> was completely different. She didn't know where she was, what state we were

> in and thought that she worked at the hospital..I was in shock! in Dec of

> that your 5 days before Christmas my mom was diagnosed with LBD. I had

> never heard of it before and didn't know what to expect or do, all I know

> was I had to be there for her. I went back home put my stuff in storage and

> came back and was there when she was released from the hospital and have

> been her sole caregiver 24/7 since July 30th 2010. This has been the

> hardest thing I have ever done in my life and not in a millions years did I

> think something like this could happen to my mom. She was a very healthy

> out going person. A massage therapist as well. It's been almost 2 years that

> > >> I've been in LA and it's taking it's toll on me and unfortunately if

> your not rich, you pretty much screwed when it comes to help.

> > >>

> > >> I thought that my " so called family " would be there, but they haven't

> done a thing. My brother and sister who I haven't talked to in 20 years(

> they dis-owned me because I'm gay) hasn't called her in months and on Xmas

> didn't call or even send a card... " what kind of person does that? I'm so

> disappointed in how people acted it still to this day I just don't get it,

> How do you abandon your own mother? that's sick! I've been looking for a

> nursing home for my mom because I can't keep this up to much longer and I

> need to get my life back on track or I'll be in big trouble. Neither one of

> us has money and I feel terrible having to put her in a home but I have no

> choice, I'm all she has and if I don't take care of myself I'll end up sick

> and homeless. I try to stay positive but it's becoming more and more hard

> to do, that's why I joined this group in hopes that reading other peoples

> stories well give me strength. I had no idea there was such a group until

> > >> a few days ago. I now know that I'm not alone. I wish the best to all

> of you in your journey and prayer for us all.

> > >

> >

>

>

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Guest guest

Lynn,

Go to www.lbda.org and look at " Learn about LBD " and " For Professionals. "

The Professionals section, especially, has all sorts of things you can

share with the staff, most of them brief and to the point. I made sure

that any new medical professional, nurse or doctor, got a copy of the " Fact

Sheet. " (Though still keep an eye on them, as even with the fact sheet in

Mom's medical record - it was handed to the nursing staff - during a

hospital stay, she was still given Haldol.)

Kate

> **

>

>

> My mother was recently diagnosed with LBD and has been in assisted living

> for some unrelated health issues for about a month. It is a small rural

> facility and I am finding that the staff is not aware of LBD. I bought a

> caregivers book to educate myself but I can't expect the staff to read the

> full book. Is there a source for short, concise information under 10 pages

> long that I can print out and provide to the staff to help educate them.

> All I can find is something with a couple paragraphs or the book, and

> nothing in between.

>

> Thanks,

>

> Lynn

>

>

> To: LBDcaregivers

> Sent: Wednesday, April 4, 2012 7:05 PM

> Subject: Re: Re: MY FIRST POST

>

> Hi Shanon: I wish you good luck on finding a good placement for your

> mother. Going through the " hoops " can be daunting. Ask questions, keep a

> log on who and what you talked about. Gather up all documents for your

> mother you can find: any bills she may have, all insurance papers, will,

> any funeral planning she may have done, birth certificate, if married,

> divorced, etc, any of those papers. marriage license if it applies. A

> photo ID, any info on her bank accounts. Any anything you may see that may

> be important. When you apply, they will make copies of anything they may

> need, YOU keep all originals.

>

> I hope this helps if you have not gathered any important documents.

>

> Vivian

>

>

>

> > **

> >

> >

> > Hi Shanon,

> > I haven't been posting much lately, but I did want to welcome you to the

> > group. Please take care of yourself and allow yourself to rest and heal.

> > Regards from NY,

> > Helene

> > (Mom 78, 12 years with LBD - late stage)

> >

> >

> >

> > > >> My name is Shanon and I have lived in SF since 1990. In July 2010 my

> > mom got very sick and ended up in a psych ward in Glendale , CA I flew

> down

> > there and to my surprise the mom that I had just talked to 2 days before

> > was completely different. She didn't know where she was, what state we

> were

> > in and thought that she worked at the hospital..I was in shock! in Dec of

> > that your 5 days before Christmas my mom was diagnosed with LBD. I had

> > never heard of it before and didn't know what to expect or do, all I know

> > was I had to be there for her. I went back home put my stuff in storage

> and

> > came back and was there when she was released from the hospital and have

> > been her sole caregiver 24/7 since July 30th 2010. This has been the

> > hardest thing I have ever done in my life and not in a millions years

> did I

> > think something like this could happen to my mom. She was a very healthy

> > out going person. A massage therapist as well. It's been almost 2 years

> that

> > > >> I've been in LA and it's taking it's toll on me and unfortunately if

> > your not rich, you pretty much screwed when it comes to help.

> > > >>

> > > >> I thought that my " so called family " would be there, but they

> haven't

> > done a thing. My brother and sister who I haven't talked to in 20 years(

> > they dis-owned me because I'm gay) hasn't called her in months and on

> Xmas

> > didn't call or even send a card... " what kind of person does that? I'm so

> > disappointed in how people acted it still to this day I just don't get

> it,

> > How do you abandon your own mother? that's sick! I've been looking for a

> > nursing home for my mom because I can't keep this up to much longer and I

> > need to get my life back on track or I'll be in big trouble. Neither one

> of

> > us has money and I feel terrible having to put her in a home but I have

> no

> > choice, I'm all she has and if I don't take care of myself I'll end up

> sick

> > and homeless. I try to stay positive but it's becoming more and more hard

> > to do, that's why I joined this group in hopes that reading other peoples

> > stories well give me strength. I had no idea there was such a group until

> > > >> a few days ago. I now know that I'm not alone. I wish the best to

> all

> > of you in your journey and prayer for us all.

> > > >

> > >

> >

> >

> >

>

>

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Share on other sites

Guest guest

Lynn,

Go to www.lbda.org and look at " Learn about LBD " and " For Professionals. "

The Professionals section, especially, has all sorts of things you can

share with the staff, most of them brief and to the point. I made sure

that any new medical professional, nurse or doctor, got a copy of the " Fact

Sheet. " (Though still keep an eye on them, as even with the fact sheet in

Mom's medical record - it was handed to the nursing staff - during a

hospital stay, she was still given Haldol.)

Kate

> **

>

>

> My mother was recently diagnosed with LBD and has been in assisted living

> for some unrelated health issues for about a month. It is a small rural

> facility and I am finding that the staff is not aware of LBD. I bought a

> caregivers book to educate myself but I can't expect the staff to read the

> full book. Is there a source for short, concise information under 10 pages

> long that I can print out and provide to the staff to help educate them.

> All I can find is something with a couple paragraphs or the book, and

> nothing in between.

>

> Thanks,

>

> Lynn

>

>

> To: LBDcaregivers

> Sent: Wednesday, April 4, 2012 7:05 PM

> Subject: Re: Re: MY FIRST POST

>

> Hi Shanon: I wish you good luck on finding a good placement for your

> mother. Going through the " hoops " can be daunting. Ask questions, keep a

> log on who and what you talked about. Gather up all documents for your

> mother you can find: any bills she may have, all insurance papers, will,

> any funeral planning she may have done, birth certificate, if married,

> divorced, etc, any of those papers. marriage license if it applies. A

> photo ID, any info on her bank accounts. Any anything you may see that may

> be important. When you apply, they will make copies of anything they may

> need, YOU keep all originals.

>

> I hope this helps if you have not gathered any important documents.

>

> Vivian

>

>

>

> > **

> >

> >

> > Hi Shanon,

> > I haven't been posting much lately, but I did want to welcome you to the

> > group. Please take care of yourself and allow yourself to rest and heal.

> > Regards from NY,

> > Helene

> > (Mom 78, 12 years with LBD - late stage)

> >

> >

> >

> > > >> My name is Shanon and I have lived in SF since 1990. In July 2010 my

> > mom got very sick and ended up in a psych ward in Glendale , CA I flew

> down

> > there and to my surprise the mom that I had just talked to 2 days before

> > was completely different. She didn't know where she was, what state we

> were

> > in and thought that she worked at the hospital..I was in shock! in Dec of

> > that your 5 days before Christmas my mom was diagnosed with LBD. I had

> > never heard of it before and didn't know what to expect or do, all I know

> > was I had to be there for her. I went back home put my stuff in storage

> and

> > came back and was there when she was released from the hospital and have

> > been her sole caregiver 24/7 since July 30th 2010. This has been the

> > hardest thing I have ever done in my life and not in a millions years

> did I

> > think something like this could happen to my mom. She was a very healthy

> > out going person. A massage therapist as well. It's been almost 2 years

> that

> > > >> I've been in LA and it's taking it's toll on me and unfortunately if

> > your not rich, you pretty much screwed when it comes to help.

> > > >>

> > > >> I thought that my " so called family " would be there, but they

> haven't

> > done a thing. My brother and sister who I haven't talked to in 20 years(

> > they dis-owned me because I'm gay) hasn't called her in months and on

> Xmas

> > didn't call or even send a card... " what kind of person does that? I'm so

> > disappointed in how people acted it still to this day I just don't get

> it,

> > How do you abandon your own mother? that's sick! I've been looking for a

> > nursing home for my mom because I can't keep this up to much longer and I

> > need to get my life back on track or I'll be in big trouble. Neither one

> of

> > us has money and I feel terrible having to put her in a home but I have

> no

> > choice, I'm all she has and if I don't take care of myself I'll end up

> sick

> > and homeless. I try to stay positive but it's becoming more and more hard

> > to do, that's why I joined this group in hopes that reading other peoples

> > stories well give me strength. I had no idea there was such a group until

> > > >> a few days ago. I now know that I'm not alone. I wish the best to

> all

> > of you in your journey and prayer for us all.

> > > >

> > >

> >

> >

> >

>

>

Link to comment
Share on other sites

Guest guest

Lynn,

Go to www.lbda.org and look at " Learn about LBD " and " For Professionals. "

The Professionals section, especially, has all sorts of things you can

share with the staff, most of them brief and to the point. I made sure

that any new medical professional, nurse or doctor, got a copy of the " Fact

Sheet. " (Though still keep an eye on them, as even with the fact sheet in

Mom's medical record - it was handed to the nursing staff - during a

hospital stay, she was still given Haldol.)

Kate

> **

>

>

> My mother was recently diagnosed with LBD and has been in assisted living

> for some unrelated health issues for about a month. It is a small rural

> facility and I am finding that the staff is not aware of LBD. I bought a

> caregivers book to educate myself but I can't expect the staff to read the

> full book. Is there a source for short, concise information under 10 pages

> long that I can print out and provide to the staff to help educate them.

> All I can find is something with a couple paragraphs or the book, and

> nothing in between.

>

> Thanks,

>

> Lynn

>

>

> To: LBDcaregivers

> Sent: Wednesday, April 4, 2012 7:05 PM

> Subject: Re: Re: MY FIRST POST

>

> Hi Shanon: I wish you good luck on finding a good placement for your

> mother. Going through the " hoops " can be daunting. Ask questions, keep a

> log on who and what you talked about. Gather up all documents for your

> mother you can find: any bills she may have, all insurance papers, will,

> any funeral planning she may have done, birth certificate, if married,

> divorced, etc, any of those papers. marriage license if it applies. A

> photo ID, any info on her bank accounts. Any anything you may see that may

> be important. When you apply, they will make copies of anything they may

> need, YOU keep all originals.

>

> I hope this helps if you have not gathered any important documents.

>

> Vivian

>

>

>

> > **

> >

> >

> > Hi Shanon,

> > I haven't been posting much lately, but I did want to welcome you to the

> > group. Please take care of yourself and allow yourself to rest and heal.

> > Regards from NY,

> > Helene

> > (Mom 78, 12 years with LBD - late stage)

> >

> >

> >

> > > >> My name is Shanon and I have lived in SF since 1990. In July 2010 my

> > mom got very sick and ended up in a psych ward in Glendale , CA I flew

> down

> > there and to my surprise the mom that I had just talked to 2 days before

> > was completely different. She didn't know where she was, what state we

> were

> > in and thought that she worked at the hospital..I was in shock! in Dec of

> > that your 5 days before Christmas my mom was diagnosed with LBD. I had

> > never heard of it before and didn't know what to expect or do, all I know

> > was I had to be there for her. I went back home put my stuff in storage

> and

> > came back and was there when she was released from the hospital and have

> > been her sole caregiver 24/7 since July 30th 2010. This has been the

> > hardest thing I have ever done in my life and not in a millions years

> did I

> > think something like this could happen to my mom. She was a very healthy

> > out going person. A massage therapist as well. It's been almost 2 years

> that

> > > >> I've been in LA and it's taking it's toll on me and unfortunately if

> > your not rich, you pretty much screwed when it comes to help.

> > > >>

> > > >> I thought that my " so called family " would be there, but they

> haven't

> > done a thing. My brother and sister who I haven't talked to in 20 years(

> > they dis-owned me because I'm gay) hasn't called her in months and on

> Xmas

> > didn't call or even send a card... " what kind of person does that? I'm so

> > disappointed in how people acted it still to this day I just don't get

> it,

> > How do you abandon your own mother? that's sick! I've been looking for a

> > nursing home for my mom because I can't keep this up to much longer and I

> > need to get my life back on track or I'll be in big trouble. Neither one

> of

> > us has money and I feel terrible having to put her in a home but I have

> no

> > choice, I'm all she has and if I don't take care of myself I'll end up

> sick

> > and homeless. I try to stay positive but it's becoming more and more hard

> > to do, that's why I joined this group in hopes that reading other peoples

> > stories well give me strength. I had no idea there was such a group until

> > > >> a few days ago. I now know that I'm not alone. I wish the best to

> all

> > of you in your journey and prayer for us all.

> > > >

> > >

> >

> >

> >

>

>

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