Guest guest Posted July 19, 2012 Report Share Posted July 19, 2012 You don't mention your name, but welcome. I am from Monroe Washington. Where are you, you don't' say. This group has members wide spread, and I have met some of them in my area. A good hug and should of someone who has been there, is invaluable. I too am younger than my husband who has aged leaps and bounds in the last year. I feel like I am with my grandfather. I work fulltime at an outside job and also run a small business. And I just moved my mentally ill adult son back into the house. I say this all to let you know you are not alone and there are others like you. There is another chat group on Yahoo called LBDSpouses. It has husbands and wives as caregivers. While this list has been a wonderful resource and I have gotten loads of support, please also consider joining the other group as well. There are more people like us there. This group also has spouses, but it has caregivers who are children or grandchildren. They have their hands full, as we all do, but being a spouse caregiver is different. we watch our life partner die in front of our eyes, much before their time. Being a younger wife does make us feel unprepared to be dealing with what we feel is an old age issue. I know it makes me feel and look older than I know I am, and I rebel against that. But I think it gives us energy to deal with this more than we could if we were older. This is all part of the struggle. I am sorry for your stress, but please, email if you need any of us. - 57, husband Len 63, dx Parkinsons 12/2010, dx LBD 1/2012, dx FTD 4/2012 From: LBDcaregivers [mailto:LBDcaregivers ] On Behalf Of Bugsie Sent: Wednesday, July 18, 2012 3:24 PM To: LBDcaregivers Subject: My Husband My husband is 61 and has been diagnosed with LBD. It all started about 6 years ago when he began to forget things and was unable to function well. We own our own company and he has not been able to work much throughout these years. We also have a 13 year old son. I am 7 years younger than my husband. I feel as though my whole life has been turned upside down and my primary role now is to take care of my husband. I'm trying to keep our company afloat, raise our child, take care of him, and let's not forget about me. It is very hard finding people to talk to about this disease. Especially, younger people like myself. Most of the stories I read are elderly, 70's 80's and such. I am scared of the future. I'm afraid of all the work this is going to be. I'm afraid of losing myself. I'm afraid of just about everything. I would love to hear from people who have younger LBD husbands, wives, etc. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2012 Report Share Posted July 19, 2012 You don't mention your name, but welcome. I am from Monroe Washington. Where are you, you don't' say. This group has members wide spread, and I have met some of them in my area. A good hug and should of someone who has been there, is invaluable. I too am younger than my husband who has aged leaps and bounds in the last year. I feel like I am with my grandfather. I work fulltime at an outside job and also run a small business. And I just moved my mentally ill adult son back into the house. I say this all to let you know you are not alone and there are others like you. There is another chat group on Yahoo called LBDSpouses. It has husbands and wives as caregivers. While this list has been a wonderful resource and I have gotten loads of support, please also consider joining the other group as well. There are more people like us there. This group also has spouses, but it has caregivers who are children or grandchildren. They have their hands full, as we all do, but being a spouse caregiver is different. we watch our life partner die in front of our eyes, much before their time. Being a younger wife does make us feel unprepared to be dealing with what we feel is an old age issue. I know it makes me feel and look older than I know I am, and I rebel against that. But I think it gives us energy to deal with this more than we could if we were older. This is all part of the struggle. I am sorry for your stress, but please, email if you need any of us. - 57, husband Len 63, dx Parkinsons 12/2010, dx LBD 1/2012, dx FTD 4/2012 From: LBDcaregivers [mailto:LBDcaregivers ] On Behalf Of Bugsie Sent: Wednesday, July 18, 2012 3:24 PM To: LBDcaregivers Subject: My Husband My husband is 61 and has been diagnosed with LBD. It all started about 6 years ago when he began to forget things and was unable to function well. We own our own company and he has not been able to work much throughout these years. We also have a 13 year old son. I am 7 years younger than my husband. I feel as though my whole life has been turned upside down and my primary role now is to take care of my husband. I'm trying to keep our company afloat, raise our child, take care of him, and let's not forget about me. It is very hard finding people to talk to about this disease. Especially, younger people like myself. Most of the stories I read are elderly, 70's 80's and such. I am scared of the future. I'm afraid of all the work this is going to be. I'm afraid of losing myself. I'm afraid of just about everything. I would love to hear from people who have younger LBD husbands, wives, etc. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2012 Report Share Posted July 19, 2012 You don't mention your name, but welcome. I am from Monroe Washington. Where are you, you don't' say. This group has members wide spread, and I have met some of them in my area. A good hug and should of someone who has been there, is invaluable. I too am younger than my husband who has aged leaps and bounds in the last year. I feel like I am with my grandfather. I work fulltime at an outside job and also run a small business. And I just moved my mentally ill adult son back into the house. I say this all to let you know you are not alone and there are others like you. There is another chat group on Yahoo called LBDSpouses. It has husbands and wives as caregivers. While this list has been a wonderful resource and I have gotten loads of support, please also consider joining the other group as well. There are more people like us there. This group also has spouses, but it has caregivers who are children or grandchildren. They have their hands full, as we all do, but being a spouse caregiver is different. we watch our life partner die in front of our eyes, much before their time. Being a younger wife does make us feel unprepared to be dealing with what we feel is an old age issue. I know it makes me feel and look older than I know I am, and I rebel against that. But I think it gives us energy to deal with this more than we could if we were older. This is all part of the struggle. I am sorry for your stress, but please, email if you need any of us. - 57, husband Len 63, dx Parkinsons 12/2010, dx LBD 1/2012, dx FTD 4/2012 From: LBDcaregivers [mailto:LBDcaregivers ] On Behalf Of Bugsie Sent: Wednesday, July 18, 2012 3:24 PM To: LBDcaregivers Subject: My Husband My husband is 61 and has been diagnosed with LBD. It all started about 6 years ago when he began to forget things and was unable to function well. We own our own company and he has not been able to work much throughout these years. We also have a 13 year old son. I am 7 years younger than my husband. I feel as though my whole life has been turned upside down and my primary role now is to take care of my husband. I'm trying to keep our company afloat, raise our child, take care of him, and let's not forget about me. It is very hard finding people to talk to about this disease. Especially, younger people like myself. Most of the stories I read are elderly, 70's 80's and such. I am scared of the future. I'm afraid of all the work this is going to be. I'm afraid of losing myself. I'm afraid of just about everything. I would love to hear from people who have younger LBD husbands, wives, etc. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2012 Report Share Posted July 19, 2012 Hello: My husband is 66 and I am 50. I work for a school system so I have summers off. My son and daughter-in-law help. My hope/goal is to work as long as possible and bank my sick days to have when I need them. He seems like he has aged a lot over the past year. I am glad you joined and hope you find this forum helpful as you travel the road of " Lewy " . Vivian > ** > > > You don't mention your name, but welcome. I am from Monroe Washington. > Where are you, you don't' say. This group has members wide spread, and I > have met some of them in my area. A good hug and should of someone who has > been there, is invaluable. > > I too am younger than my husband who has aged leaps and bounds in the last > year. I feel like I am with my grandfather. I work fulltime at an outside > job and also run a small business. And I just moved my mentally ill adult > son back into the house. I say this all to let you know you are not alone > and there are others like you. There is another chat group on Yahoo called > LBDSpouses. It has husbands and wives as caregivers. While this list has > been a wonderful resource and I have gotten loads of support, please also > consider joining the other group as well. There are more people like us > there. This group also has spouses, but it has caregivers who are children > or grandchildren. They have their hands full, as we all do, but being a > spouse caregiver is different. we watch our life partner die in front of > our > eyes, much before their time. Being a younger wife does make us feel > unprepared to be dealing with what we feel is an old age issue. I know it > makes me feel and look older than I know I am, and I rebel against that. > But I think it gives us energy to deal with this more than we could if we > were older. This is all part of the struggle. > > I am sorry for your stress, but please, email if you need any of us. > > - 57, husband Len 63, dx Parkinsons 12/2010, dx LBD 1/2012, dx FTD > 4/2012 > > From: LBDcaregivers [mailto:LBDcaregivers ] > On Behalf Of Bugsie > Sent: Wednesday, July 18, 2012 3:24 PM > To: LBDcaregivers > Subject: My Husband > > > My husband is 61 and has been diagnosed with LBD. It all started about 6 > years ago when he began to forget things and was unable to function well. > We own our own company and he has not been able to work much throughout > these years. We also have a 13 year old son. I am 7 years younger than my > husband. I feel as though my whole life has been turned upside down and my > primary role now is to take care of my husband. I'm trying to keep our > company afloat, raise our child, take care of him, and let's not forget > about me. > > It is very hard finding people to talk to about this disease. Especially, > younger people like myself. Most of the stories I read are elderly, 70's > 80's and such. > > I am scared of the future. I'm afraid of all the work this is going to be. > I'm afraid of losing myself. I'm afraid of just about everything. > > I would love to hear from people who have younger LBD husbands, wives, etc. > > Thank you. > > Quote Link to comment Share on other sites More sharing options...
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