Guest guest Posted July 19, 2012 Report Share Posted July 19, 2012 Hello: My husband is 66 and I am 50. I work for a school system so I have summers off. My son and daughter-in-law help. My hope/goal is to work as long as possible and bank my sick days to have when I need them. He seems like he has aged a lot over the past year. I am glad you joined and hope you find this forum helpful as you travel the road of " Lewy " . Vivian > ** > > > You don't mention your name, but welcome. I am from Monroe Washington. > Where are you, you don't' say. This group has members wide spread, and I > have met some of them in my area. A good hug and should of someone who has > been there, is invaluable. > > I too am younger than my husband who has aged leaps and bounds in the last > year. I feel like I am with my grandfather. I work fulltime at an outside > job and also run a small business. And I just moved my mentally ill adult > son back into the house. I say this all to let you know you are not alone > and there are others like you. There is another chat group on Yahoo called > LBDSpouses. It has husbands and wives as caregivers. While this list has > been a wonderful resource and I have gotten loads of support, please also > consider joining the other group as well. There are more people like us > there. This group also has spouses, but it has caregivers who are children > or grandchildren. They have their hands full, as we all do, but being a > spouse caregiver is different. we watch our life partner die in front of > our > eyes, much before their time. Being a younger wife does make us feel > unprepared to be dealing with what we feel is an old age issue. I know it > makes me feel and look older than I know I am, and I rebel against that. > But I think it gives us energy to deal with this more than we could if we > were older. This is all part of the struggle. > > I am sorry for your stress, but please, email if you need any of us. > > - 57, husband Len 63, dx Parkinsons 12/2010, dx LBD 1/2012, dx FTD > 4/2012 > > From: LBDcaregivers [mailto:LBDcaregivers ] > On Behalf Of Bugsie > Sent: Wednesday, July 18, 2012 3:24 PM > To: LBDcaregivers > Subject: My Husband > > > My husband is 61 and has been diagnosed with LBD. It all started about 6 > years ago when he began to forget things and was unable to function well. > We own our own company and he has not been able to work much throughout > these years. We also have a 13 year old son. I am 7 years younger than my > husband. I feel as though my whole life has been turned upside down and my > primary role now is to take care of my husband. I'm trying to keep our > company afloat, raise our child, take care of him, and let's not forget > about me. > > It is very hard finding people to talk to about this disease. Especially, > younger people like myself. Most of the stories I read are elderly, 70's > 80's and such. > > I am scared of the future. I'm afraid of all the work this is going to be. > I'm afraid of losing myself. I'm afraid of just about everything. > > I would love to hear from people who have younger LBD husbands, wives, etc. > > Thank you. > > Quote Link to comment Share on other sites More sharing options...
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