Guest guest Posted March 3, 2012 Report Share Posted March 3, 2012 I too had read about the life expectancy thing. But I have seen several people on this group post anything from 2 years to 11 years. Is anyone familiar with this issue? From: jenniferporterlove Sent: Saturday, March 03, 2012 8:23 AM To: LBDcaregivers Subject: My mother I have read that life expectancy is 6-8 yrs and was unsure if that was true? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2012 Report Share Posted May 14, 2012 Hello group. I am messaging you all because I need assistance. My mother has been diagnosed with LBD for about 6 years now and she has her long stretches of good times and now and again she has her bad episodes. My main question is at night, if she is having a bad night, she always insists on walking around and doing things. I try to get her to lay down and without physically restraining her I can't get her stay still. Like for instance I have a final exam tomorrow and I can't even study because I have been watching over her for the past two hours. Any suggestions? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2012 Report Share Posted May 15, 2012 Doctor has to prescribe it based on all medications given to your mother. This medication can also make a person very disoriented and dizzy. Melatonin without additives can be purchased over the counter. Start at 3mg by mouth one hour before bedtime. You can increase it to 6 mg after 4 days and to 9 mg after another 4 days if need it. Subject: Re: My mother To: LBDcaregivers Date: Tuesday, May 15, 2012, 7:49 AM  My father is like this fairly often. His doctor has prescribed a sleep medication. The generic is clonazepam. Near 8 pm each night he gets a 1mg dose. It really Helps him give up the fight, so to speak. He also takes other meds and his Quetiapine (Seroquel) is being increased. --Ida > > Hello group. I am messaging you all because I need assistance. My mother has been diagnosed with LBD for about 6 years now and she has her long stretches of good times and now and again she has her bad episodes. My main question is at night, if she is having a bad night, she always insists on walking around and doing things. I try to get her to lay down and without physically restraining her I can't get her stay still. Like for instance I have a final exam tomorrow and I can't even study because I have been watching over her for the past two hours. Any suggestions? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2012 Report Share Posted May 15, 2012 Hello Guy, I have a few suggestions that I used with my husband with LBD who would not lay down and would be up roaming around. Here are some examples: I got a baby monitor from " Toys R Us http://www.toysrus.com/category/index.jsp?categoryId=3252271 and put it in his room, when I was in another room or outside gardening, I could tell when he was getting up. (You have speakers, one in her room and one in yours) It was very easy to pass them on too, because people with babies wanted them, so when you no longer need the monitor, it's easy to get rid of them. There is a bed alarm http://www.mountainside-medical.com/products/Bed-Alarm-%26-6-Month-Sensor-Pad.h\ tml too that you can get and it goes off when your Loved One gets off the bed. With these you don't have to watch over her, but it does not keep her down either, it just warns you that she is getting up, so you don't have to constantly sit there and watch her. Or you can get a lap buddy http://www.alimed.com/alimed-inflatable-lap-buddy.html and bring her into your room, so she is not far from you and amuse her with something like TV, Magazine, or something to keep her busy that she likes while you study. CAUTION, some have figured out how to remove the lap buddy. Jan Colello ________________________________ To: LBDcaregivers Sent: Monday, May 14, 2012 10:33 PM Subject: My mother Hello group. I am messaging you all because I need assistance. My mother has been diagnosed with LBD for about 6 years now and she has her long stretches of good times and now and again she has her bad episodes. My main question is at night, if she is having a bad night, she always insists on walking around and doing things. I try to get her to lay down and without physically restraining her I can't get her stay still. Like for instance I have a final exam tomorrow and I can't even study because I have been watching over her for the past two hours. Any suggestions? ------------------------------------ Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2012 Report Share Posted May 15, 2012 Hello Guy, I have a few suggestions that I used with my husband with LBD who would not lay down and would be up roaming around. Here are some examples: I got a baby monitor from " Toys R Us http://www.toysrus.com/category/index.jsp?categoryId=3252271 and put it in his room, when I was in another room or outside gardening, I could tell when he was getting up. (You have speakers, one in her room and one in yours) It was very easy to pass them on too, because people with babies wanted them, so when you no longer need the monitor, it's easy to get rid of them. There is a bed alarm http://www.mountainside-medical.com/products/Bed-Alarm-%26-6-Month-Sensor-Pad.h\ tml too that you can get and it goes off when your Loved One gets off the bed. With these you don't have to watch over her, but it does not keep her down either, it just warns you that she is getting up, so you don't have to constantly sit there and watch her. Or you can get a lap buddy http://www.alimed.com/alimed-inflatable-lap-buddy.html and bring her into your room, so she is not far from you and amuse her with something like TV, Magazine, or something to keep her busy that she likes while you study. CAUTION, some have figured out how to remove the lap buddy. Jan Colello ________________________________ To: LBDcaregivers Sent: Monday, May 14, 2012 10:33 PM Subject: My mother Hello group. I am messaging you all because I need assistance. My mother has been diagnosed with LBD for about 6 years now and she has her long stretches of good times and now and again she has her bad episodes. My main question is at night, if she is having a bad night, she always insists on walking around and doing things. I try to get her to lay down and without physically restraining her I can't get her stay still. Like for instance I have a final exam tomorrow and I can't even study because I have been watching over her for the past two hours. Any suggestions? ------------------------------------ Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2012 Report Share Posted May 16, 2012 " The generic is clonazepam " As with all medications, you have to watch for reactions. My husband was very sensitive to Clonazepam or Klonopin and had a very bad reaction to it. He didn't wake up for an entire day and was all swollen on one side of his face. It works for many people with LBD, so I am just giving the warning. It is good to keep a watch on all new medications that are given. Start on a very low dosage if you begin this medication. ________________________________ To: LBDcaregivers Sent: Tuesday, May 15, 2012 6:10 AM Subject: Re: Re: My mother Doctor has to prescribe it based on all medications given to your mother. This medication can also make a person very disoriented and dizzy. Melatonin without additives can be purchased over the counter. Start at 3mg by mouth one hour before bedtime. You can increase it to 6 mg after 4 days and to 9 mg after another 4 days if need it. Subject: Re: My mother To: LBDcaregivers Date: Tuesday, May 15, 2012, 7:49 AM My father is like this fairly often. His doctor has prescribed a sleep medication. The generic is clonazepam. Near 8 pm each night he gets a 1mg dose. It really Helps him give up the fight, so to speak. He also takes other meds and his Quetiapine (Seroquel) is being increased. --Ida > > Hello group. I am messaging you all because I need assistance. My mother has been diagnosed with LBD for about 6 years now and she has her long stretches of good times and now and again she has her bad episodes. My main question is at night, if she is having a bad night, she always insists on walking around and doing things. I try to get her to lay down and without physically restraining her I can't get her stay still. Like for instance I have a final exam tomorrow and I can't even study because I have been watching over her for the past two hours. Any suggestions? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2012 Report Share Posted May 16, 2012 " The generic is clonazepam " As with all medications, you have to watch for reactions. My husband was very sensitive to Clonazepam or Klonopin and had a very bad reaction to it. He didn't wake up for an entire day and was all swollen on one side of his face. It works for many people with LBD, so I am just giving the warning. It is good to keep a watch on all new medications that are given. Start on a very low dosage if you begin this medication. ________________________________ To: LBDcaregivers Sent: Tuesday, May 15, 2012 6:10 AM Subject: Re: Re: My mother Doctor has to prescribe it based on all medications given to your mother. This medication can also make a person very disoriented and dizzy. Melatonin without additives can be purchased over the counter. Start at 3mg by mouth one hour before bedtime. You can increase it to 6 mg after 4 days and to 9 mg after another 4 days if need it. Subject: Re: My mother To: LBDcaregivers Date: Tuesday, May 15, 2012, 7:49 AM My father is like this fairly often. His doctor has prescribed a sleep medication. The generic is clonazepam. Near 8 pm each night he gets a 1mg dose. It really Helps him give up the fight, so to speak. He also takes other meds and his Quetiapine (Seroquel) is being increased. --Ida > > Hello group. I am messaging you all because I need assistance. My mother has been diagnosed with LBD for about 6 years now and she has her long stretches of good times and now and again she has her bad episodes. My main question is at night, if she is having a bad night, she always insists on walking around and doing things. I try to get her to lay down and without physically restraining her I can't get her stay still. Like for instance I have a final exam tomorrow and I can't even study because I have been watching over her for the past two hours. Any suggestions? > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.