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Re: Enbrel, Humira or Remicade

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I'm currently on Remicade. When it came time to choose between the three, I did

not want to self inject. I liked the fact that Remicade has been around the

longest, liked the fact that during infustion there is a RN overseeing you at

all times and a doctor onsite if a problem arose (I'm a big chicken). I go

every two months, have a seat in a private room for about an hour, 45 min and I

usually catch up on my reading at that time, it's very restful and easy. The RN

is taking care of all the ordering and administering. mary

Re: [ ] Enbrel, Humira or Remicade

Hello Heidi!

I tried the Humira and it works really well for me. The downside of Remicade

is that you have to have infusions at a doctor's office. I only need to inject

myself once every two weeks which is no big deal. I also have to mail order the

Humira, which is kind of nice because it comes right to my door.

HTH,

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

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Hello Heidi!

I tried the Humira and it works really well for me. The downside of Remicade is

that you have to have infusions at a doctor's office. I only need to inject

myself once every two weeks which is no big deal. I also have to mail order the

Humira, which is kind of nice because it comes right to my door.

HTH,

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

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Hi there,

So far I only got 2 responses. Thank you to you both. I've pretty much

decided against the Remicade because I do not take to IVs very well. It's so

bad

that when I get my Iron, they've discussed a possible port during that

nightmare. Now it's between the Enbrel and the Humira. I was hoping I'd get

more

responses, thanks anyway.

Happy Easter,

Heidi

To those who believe, no explanation is necessary; to those who dont, no

explanation is possible

In a message dated 3/21/2008 10:06:41 A.M. Eastern Daylight Time,

McNacks@... writes:

I'm currently on Remicade. When it came time to choose between the three, I

did not want to self inject. I liked the fact that Remicade has been around

the longest, liked the fact that during infustion there is a RN overseeing you

at all times and a doctor onsite if a problem arose (I'm a big chicken). I go

every two months, have a seat in a private room for about an hour, 45 min

and I usually catch up on my reading at that time, it's very restful and easy.

The RN is taking care of all the ordering and administering. mary

----- Original Message -----

From: Stitching Queen

_ @groRA-SUPP_ (mailto: )

Sent: Friday, March 21, 2008 10:58 AM

Subject: Re: [ ] Enbrel, Humira or Remicade

Hello Heidi!

I tried the Humira and it works really well for me. The downside of Remicade

is that you have to have infusions at a doctor's office. I only need to

inject myself once every two weeks which is no big deal. I also have to mail

order the Humira, which is kind of nice because it comes right to my door.

HTH,

Lori

_http://home.http://home.http://home.<WB_

(http://home.comcast.net/~queenstitcher/)

_http://stitchingquehttp://stitchtt_ (http://stitchingqueen.multiply.com/)

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

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I am on Humira, so far I really cannot tell any difference, but its only

been a couple months. The doctor said the difference between Enbrel and Humira

is one kills( think that's how he worded it) certain cells or something like

that, were the Enbrel is a blocker, cause I was having all over body itching

after my Humira shots and he said that is because the nerves at the end near

the top of the skin are real sensative because of the med, hard for me to

explain, so i would ask the doc the difference between the 2 to really decide

which is best for you. I know my doc said if the itching continued then he was

going to switch me, but it went away once my body got used to the med.

In a message dated 3/22/2008 7:58:24 A.M. Central Daylight Time,

sposy@... writes:

So far I only got 2 responses. Thank you to you both. I've pretty much

decided against the Remicade because I do not take to IVs very well. It's

so bad

that when I get my Iron, they've discussed a possible port during that

nightmare. Now it's between the Enbrel and the Humira. I was hoping I'd

get more

responses, thanks anyway.

**************Create a Home Theater Like the Pros. Watch the video on AOL

Home.

(http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\

000000001)

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Thank you ! Phyllis, do you still get flare ups with the Enbrel, has it

totally relived pain? I realize nothing is 100%...i've even found relief with a

new cream! i work on a computer all day, and truthfully after 3 it's an

effort and then some!

Heidi

To those who believe, no explanation is necessary; to those who dont, no

explanation is possible

In a message dated 3/22/2008 2:17:32 P.M. Eastern Daylight Time,

mammap@... writes:

I am on Enbrel. I have been on it about 6 months now and I will say that it

has made a huge difference in my life. I had tried all the other oral

medications to the detriment of my stomach. Enbrel has allowed me quite a bit

of

relief. I didn't realize how much until I became ill and had to go off it for a

couple of weeks.

I would highly recommend it.

Phyllis

Re: [ ] Enbrel, Humira or Remicade

I am on Humira, so far I really cannot tell any difference, but its only

been a couple months. The doctor said the difference between Enbrel and

Humira

is one kills( think that's how he worded it) certain cells or something like

that, were the Enbrel is a blocker, cause I was having all over body itching

after my Humira shots and he said that is because the nerves at the end near

the top of the skin are real sensative because of the med, hard for me to

explain, so i would ask the doc the difference between the 2 to really

decide

which is best for you. I know my doc said if the itching continued then he

was

going to switch me, but it went away once my body got used to the med.

In a message dated 3/22/2008 7:58:24 A.M. Central Daylight Time,

_sposy@..._ (mailto:sposy@...) writes:

So far I only got 2 responses. Thank you to you both. I've pretty much

decided against the Remicade because I do not take to IVs very well. It's

so bad

that when I get my Iron, they've discussed a possible port during that

nightmare. Now it's between the Enbrel and the Humira. I was hoping I'd

get more

responses, thanks anyway.

************************<WBR>**Create a Home Theater Like the Pros. Watch

Home.

(_http://home.http://home.http://home.<WBRhttp://home.<Whttp://hohttp://home.<

WBRhttp://ho_

(http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\

000000001) )

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HI Heidi!

Happy Easter! I'm going to begin Enbrel in my next

step of treatment. We were giving my Sulfasalazine a

little more time to work with my Plaquenil, due to the

fact that I take several medications for other health

issues. From the posts I have read, several seem to

do well on Enbrel. I had asked about it awhile back.

The most posts I have read seem to be on Humira or

Enbrel. Good luck:)

--- sposy@... wrote:

> Hi there,

>

> So far I only got 2 responses. Thank you to you

> both. I've pretty much

> decided against the Remicade because I do not take

> to IVs very well. It's so bad

> that when I get my Iron, they've discussed a

> possible port during that

> nightmare. Now it's between the Enbrel and the

> Humira. I was hoping I'd get more

> responses, thanks anyway.

>

> Happy Easter,

> Heidi

>

> To those who believe, no explanation is necessary;

> to those who dont, no

> explanation is possible

>

>

> In a message dated 3/21/2008 10:06:41 A.M. Eastern

> Daylight Time,

> McNacks@... writes:

>

>

>

>

> I'm currently on Remicade. When it came time to

> choose between the three, I

> did not want to self inject. I liked the fact that

> Remicade has been around

> the longest, liked the fact that during infustion

> there is a RN overseeing you

> at all times and a doctor onsite if a problem arose

> (I'm a big chicken). I go

> every two months, have a seat in a private room for

> about an hour, 45 min

> and I usually catch up on my reading at that time,

> it's very restful and easy.

> The RN is taking care of all the ordering and

> administering. mary

> ----- Original Message -----

> From: Stitching Queen

> _ @groRA-SUPP_

> (mailto: )

> Sent: Friday, March 21, 2008 10:58 AM

> Subject: Re: [ ] Enbrel, Humira or

> Remicade

>

> Hello Heidi!

> I tried the Humira and it works really well for me.

> The downside of Remicade

> is that you have to have infusions at a doctor's

> office. I only need to

> inject myself once every two weeks which is no big

> deal. I also have to mail

> order the Humira, which is kind of nice because it

> comes right to my door.

> HTH,

> Lori

> _http://home.http://home.http://home.<WB_

> (http://home.comcast.net/~queenstitcher/)

> _http://stitchingquehttp://stitchtt_

> (http://stitchingqueen.multiply.com/)

>

> [Non-text portions of this message have been

> removed]

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

>

>

> **************Create a Home Theater Like the Pros.

> Watch the video on AOL

> Home.

>

(http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\

000000001)

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

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I am on Enbrel. I have been on it about 6 months now and I will say that it has

made a huge difference in my life. I had tried all the other oral medications

to the detriment of my stomach. Enbrel has allowed me quite a bit of relief. I

didn't realize how much until I became ill and had to go off it for a couple of

weeks.

I would highly recommend it.

Phyllis

Re: [ ] Enbrel, Humira or Remicade

I am on Humira, so far I really cannot tell any difference, but its only

been a couple months. The doctor said the difference between Enbrel and Humira

is one kills( think that's how he worded it) certain cells or something like

that, were the Enbrel is a blocker, cause I was having all over body itching

after my Humira shots and he said that is because the nerves at the end near

the top of the skin are real sensative because of the med, hard for me to

explain, so i would ask the doc the difference between the 2 to really decide

which is best for you. I know my doc said if the itching continued then he was

going to switch me, but it went away once my body got used to the med.

In a message dated 3/22/2008 7:58:24 A.M. Central Daylight Time,

sposy@... writes:

So far I only got 2 responses. Thank you to you both. I've pretty much

decided against the Remicade because I do not take to IVs very well. It's

so bad

that when I get my Iron, they've discussed a possible port during that

nightmare. Now it's between the Enbrel and the Humira. I was hoping I'd

get more

responses, thanks anyway.

**************Create a Home Theater Like the Pros. Watch the video on AOL

Home.

(http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\

000000001)

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Guest guest

I'm on Enbrel. It made a pretty big difference after one injection. I

have had 2 injections now. I can finally squat down and sit on the

floor again. I don't have any morning stiffness.

I am on methotrexate too.

>

> Hi there,

>

> So far I only got 2 responses. Thank you to you both. I've pretty

much

> decided against the Remicade because I do not take to IVs very

well. It's so bad

> that when I get my Iron, they've discussed a possible port during

that

> nightmare. Now it's between the Enbrel and the Humira. I was

hoping I'd get more

> responses, thanks anyway.

>

> Happy Easter,

> Heidi

>

> To those who believe, no explanation is necessary; to those who

dont, no

> explanation is possible

>

>

> In a message dated 3/21/2008 10:06:41 A.M. Eastern Daylight Time,

> McNacks@... writes:

>

>

>

>

> I'm currently on Remicade. When it came time to choose between the

three, I

> did not want to self inject. I liked the fact that Remicade has

been around

> the longest, liked the fact that during infustion there is a RN

overseeing you

> at all times and a doctor onsite if a problem arose (I'm a big

chicken). I go

> every two months, have a seat in a private room for about an hour,

45 min

> and I usually catch up on my reading at that time, it's very

restful and easy.

> The RN is taking care of all the ordering and administering. mary

> ----- Original Message -----

> From: Stitching Queen

> _ @groRA-SUPP_ (mailto:RA-

SUPPORT )

> Sent: Friday, March 21, 2008 10:58 AM

> Subject: Re: [ ] Enbrel, Humira or Remicade

>

> Hello Heidi!

> I tried the Humira and it works really well for me. The downside

of Remicade

> is that you have to have infusions at a doctor's office. I only

need to

> inject myself once every two weeks which is no big deal. I also

have to mail

> order the Humira, which is kind of nice because it comes right to

my door.

> HTH,

> Lori

> _http://home.http://home.http://home.<WB_

> (http://home.comcast.net/~queenstitcher/)

> _http://stitchingquehttp://stitchtt_

(http://stitchingqueen.multiply.com/)

>

> [Non-text portions of this message have been removed]

>

> [Non-text portions of this message have been removed]

>

>

>

>

>

>

>

>

> **************Create a Home Theater Like the Pros. Watch the video

on AOL

> Home.

> (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?

ncid=aolhom00030000000001)

>

>

>

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Hello, I have been on Humira for 3 years now, it really works for me.

As for the Enbrel I had an asthma attack, not sure if it was from the

Enbrel or not but they took me off of it, I know when it is time to

give a shot when I do I feel better the next day. When I first gave it

to myself I felt relief overnight, within weeks I was able to put my

rings back on. I do get flares with it. Have tried lots of NSAID and

the rheumatologist put me on Celebrex it scares me though.. but you do

also need an anti- inflamatory. I have severe RA. Hope this helps you

can email me at beacon316@aol <mailto:beacon316@aol> if you have any

other questions..Sandy

> >

>

>

>

> **************Create a Home Theater Like the Pros. Watch the video on

AOL

> Home.

>

(http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aol\

hom00030000000001)

>

>

>

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Last time I went to see the doc he said if I keep improving on the Humira

then we could look at stopping the methotrexate, not sure if that is true for

everyone.though.

In a message dated 3/22/2008 6:18:45 P.M. Central Daylight Time,

sposy@... writes:

When you are on an injection, is there a chance the methotrexate will be

decreased? I have a feeling it'll remain the same, I'm on 8 a week now.

**************Create a Home Theater Like the Pros. Watch the video on AOL

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My Doctor said that if the methyltrexate didn't show significant

improvement then we would discuss starting Enbrel this next visit...

Not alot of improvement has occured and even some new symptoms... So I

guess we'll be seriously looking at our options.

My next visit is this Tuesday and I'm nervous as all get out!

I was just reading through all of the replies for this topic, and I

was just wondering..... With Enbrel Do you have to do your own

injections? Where do you inject it? Can you visit the doctor and

have them do it?

I'm just very curious... My Doc didn't even mention the choices of

having the remicade or the humira... Should I be given this option?

Thanks

Bonnie

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Bonnie,

My doctor is VERY aggressive (my opinion), he suggested either the Remicade,

Enbrel or Humera (sp?). I was disappointed in him that he didn't recommend one

over the other (after all, he's the expert), then again, I was impressed with

him for not recommending one over the other to the extent that I felt that he

didn't give loyalty to one pharmasutical company (boy, I can't spell today). It

was my choice, I chose Remicade. If I have to change, I will look into Orencia.

mary

[ ] Re: Enbrel, Humira or Remicade

My Doctor said that if the methyltrexate didn't show significant

improvement then we would discuss starting Enbrel this next visit...

Not alot of improvement has occured and even some new symptoms... So I

guess we'll be seriously looking at our options.

My next visit is this Tuesday and I'm nervous as all get out!

I was just reading through all of the replies for this topic, and I

was just wondering..... With Enbrel Do you have to do your own

injections? Where do you inject it? Can you visit the doctor and

have them do it?

I'm just very curious... My Doc didn't even mention the choices of

having the remicade or the humira... Should I be given this option?

Thanks

Bonnie

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Guest guest

hi bonnie,i also take mtx7pills every friday.i also take humira injections..i

give the shots by myself,in the stomach or thigh area. does not hurt at all.

good luck on whatever you decide is the BEST for you!! god bless,melynda

[ ] Re: Enbrel, Humira or Remicade

My Doctor said that if the methyltrexate didn't show significant

improvement then we would discuss starting Enbrel this next visit...

Not alot of improvement has occured and even some new symptoms... So I

guess we'll be seriously looking at our options.

My next visit is this Tuesday and I'm nervous as all get out!

I was just reading through all of the replies for this topic, and I

was just wondering..... With Enbrel Do you have to do your own

injections? Where do you inject it? Can you visit the doctor and

have them do it?

I'm just very curious... My Doc didn't even mention the choices of

having the remicade or the humira... Should I be given this option?

Thanks

Bonnie

------------------------------------

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Guest guest

hi heidi,i take mtx every friday,(7pills).i have been on it for a while.i also

take humira injections every day.i give my own shots,its not bad at all!! i HOPE

you find a med. to give you some kind of relief..humira works for me!!! god

bless,melynda gamez 3/22/08 9:07p.m.central time.

Re: [ ] Enbrel, Humira or Remicade

>

> Hello Heidi!

> I tried the Humira and it works really well for me. The downside

of Remicade

> is that you have to have infusions at a doctor's office. I only

need to

> inject myself once every two weeks which is no big deal. I also

have to mail

> order the Humira, which is kind of nice because it comes right to

my door.

> HTH,

> Lori

> _http://home.http://home.http://home.<WB_

> (http://home.comcast.net/~queenstitcher/)

> _http://stitchingquehttp://stitchtt_

(http://stitchingqueen.multiply.com/)

>

> [Non-text portions of this message have been removed]

>

> [Non-text portions of this message have been removed]

>

>

>

>

>

>

>

>

> **************Create a Home Theater Like the Pros. Watch the video

on AOL

> Home.

> (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?

ncid=aolhom00030000000001)

>

>

>

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Bonnie,

I was on Enbrel for about a year. You have to give

yourself injections. However, my hubby (who has no

nursing experience) did mine mainly on the upper thigh

or in the belly. It just goes in above the skin...not

deep as a normal shot. My hubby did it for most of

the year but I did go to the doctor's office and the

nurse gave it to me. She did leave bruises so my

hubby did most of my shots.

Enbrel did not work for me and as I changed jobs I

also had to change RA doctors. The new doctor put me

on Remicade in 2006 but after 2 years and just some

relief, he put me on Orencia in January 2008. It is

working GREAT!! I am feeling better-still with some

pain-but mainly just need to fix all the damage done

by the RA from the past.

I also must add that I have quit work in 2007 and have

been able to rest; however, it is quite a drain on our

financials. So I cannot determine if it is the change

in medication or quitting work that has made me feel

better.

Hope this helps.

Joanne

--- Bonnie <tiredtaz@...> wrote:

> My Doctor said that if the methyltrexate didn't show

> significant

> improvement then we would discuss starting Enbrel

> this next visit...

> Not alot of improvement has occured and even some

> new symptoms... So I

> guess we'll be seriously looking at our options.

> My next visit is this Tuesday and I'm nervous as all

> get out!

> I was just reading through all of the replies for

> this topic, and I

> was just wondering..... With Enbrel Do you have to

> do your own

> injections? Where do you inject it? Can you visit

> the doctor and

> have them do it?

> I'm just very curious... My Doc didn't even

> mention the choices of

> having the remicade or the humira... Should I be

> given this option?

> Thanks

> Bonnie

>

>

> ------------------------------------

>

>

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Guest guest

Joeanne,

Thank you for the information... My Hubby has already volunteered to

help give the shots if it comes down to it... But I don't know if it

would just be better to do it myself... When I see my Doc this

Tuesday, I guess I'm gonna have a lot to discuss...

Thanks for all the info

Bonnie

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Guest guest

Bonnie,

I give them in y stomach and don't feel the needle t all. You do need to

take it out of the refrigerator and let it get room temp. If its cold it

stings worse.

Heidi M

On Sun, Mar 23, 2008 at 12:36 PM, Bonnie <tiredtaz@...> wrote:

> Joeanne,

>

> Thank you for the information... My Hubby has already volunteered to

> help give the shots if it comes down to it... But I don't know if it

> would just be better to do it myself... When I see my Doc this

> Tuesday, I guess I'm gonna have a lot to discuss...

> Thanks for all the info

> Bonnie

>

>

>

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Hi Louise,

Wow, that's quite an adventure. I do realize that the list will not make my

decision for me. I just utilized the ability to learn more " real " stories

about each to help me understand and learn a little more about each one instead

of listening to and reading all of the clinical literature. The " Human " side

always provides more insight, but... Thank you for taking the time to write

your story!

Heidi

To those who believe, no explanation is necessary; to those who dont, no

explanation is possible

In a message dated 3/23/2008 10:32:34 P.M. Eastern Daylight Time,

louwheres@... writes:

Heidi--I keep finding out personally( although I

already know it) just how everyone can widely vary in

there responses to any medication. I was on Humira

for 5 weeks with no response--my MD increased the dose

to weekly for another 7 weeks--no response good or

bad. When I first tried Enbrel I got bilateral ear

infections within a month , enlarged lymph nodes, and

elevated white count--had to D/C it. I made the

difficult decision to try it again 2 years later with

a new Rheum.--it has been a year now and it makes a

huge difference in my life. Less fatigue, less pain;

and no side-effects. Now I will be on disability

provided Medicare in June --and am finding out i

probably won't be able to afford it--even with the

best Medicare Advantage Plan. I'll keep looking for

help. Anyway--other'help. Anyway--other'<WBR>s expe

can't tell you anything about how well (or not) it

would work for you. Good Luck! Louise

__________________________________________________________

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know-it-all with Mobile. Try it now.

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Heidi,

Bringing the serum to room temperature reminds me when I use to get

allergy shots when I was a child... I would always hold it in my

hands until it got warm and then the nurse would give me my shot... I

went through that for 9 1/2 years... (thats why I hate needles)...

I had forgotten all about that until I read your post... Thanks for

the great tip!

Bonnie

>

> > Joeanne,

> >

> > Thank you for the information... My Hubby has already volunteered to

> > help give the shots if it comes down to it... But I don't know if it

> > would just be better to do it myself... When I see my Doc this

> > Tuesday, I guess I'm gonna have a lot to discuss...

> > Thanks for all the info

> > Bonnie

> >

> >

> >

>

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Heidi--I keep finding out personally( although I

already know it) just how everyone can widely vary in

there responses to any medication. I was on Humira

for 5 weeks with no response--my MD increased the dose

to weekly for another 7 weeks--no response good or

bad. When I first tried Enbrel I got bilateral ear

infections within a month , enlarged lymph nodes, and

elevated white count--had to D/C it. I made the

difficult decision to try it again 2 years later with

a new Rheum.--it has been a year now and it makes a

huge difference in my life. Less fatigue, less pain;

and no side-effects. Now I will be on disability

provided Medicare in June --and am finding out i

probably won't be able to afford it--even with the

best Medicare Advantage Plan. I'll keep looking for

help. Anyway--other's experiences with drugs really

can't tell you anything about how well (or not) it

would work for you. Good Luck! Louise

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Hi Heidi,

I recently started Remicade. I think it is very convenient as it is

infused at my Rheumy's office by his RN, it is also dosed based on

your weight and how well it is working for you, because there is a

wide dosing range. I can have my bloodwork done at the same time.

And if I were to have a reaction the staff and doctor's are right

there to treat me.

After the loading doses the infusions are about once every 8 weeks or

so and you can get on with your life without thinking about it all the

time. Sorry, yes you still need to take MTX with it.

Good luck with your decision and whatever you decide I hope you find

the relief you are looking for.

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I tried the Enbrel and got no releif from it. went to the Remicade and it

worked well for about a year. Then I went to Orencia and that only worked

for about 6 months- now an on Rituxan. That is working the best. But I get

it every 3 months instead of every 6 months like most people.

Jill

On 3/22/08, McNally <McNacks@...> wrote:

>

> Bonnie,

>

> My doctor is VERY aggressive (my opinion), he suggested either the

> Remicade, Enbrel or Humera (sp?). I was disappointed in him that he didn't

> recommend one over the other (after all, he's the expert), then again, I was

> impressed with him for not recommending one over the other to the extent

> that I felt that he didn't give loyalty to one pharmasutical company (boy, I

> can't spell today). It was my choice, I chose Remicade. If I have to change,

> I will look into Orencia. mary

> [ ] Re: Enbrel, Humira or Remicade

>

> My Doctor said that if the methyltrexate didn't show significant

> improvement then we would discuss starting Enbrel this next visit...

> Not alot of improvement has occured and even some new symptoms... So I

> guess we'll be seriously looking at our options.

> My next visit is this Tuesday and I'm nervous as all get out!

> I was just reading through all of the replies for this topic, and I

> was just wondering..... With Enbrel Do you have to do your own

> injections? Where do you inject it? Can you visit the doctor and

> have them do it?

> I'm just very curious... My Doc didn't even mention the choices of

> having the remicade or the humira... Should I be given this option?

> Thanks

> Bonnie

>

>

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