Guest guest Posted August 3, 2012 Report Share Posted August 3, 2012 Dear , and everyone, has been gone for 5 1/2 months and I still find myself reading the posts most days. My heart breaks for the struggles of both those afflicted with this terrible disease and those who are care-giving. I am particularly triggered to write regarding your struggles with Kay, . She is so very young. 's symptoms became noticeable by the times he was 67 and it was not until his last year that he had such disabilities as to require a hospital bed. We tried a Hoyer lift and it was awful. Cumbersom and hard to get the sling right. I was able to hire care-givers, and at the worst of things had them from 10 am to 8 or 9 pm. They were well trained, in that they had been taught a special lift, using a gait belt, that allowed them to lift-slide from one chair to another when he became too weak to stand. Of course, the potty chair was a special challenge. Toward the end, he did his bowel movements, etc. in a diaper. It is excruciatingly painful to watch a vital person change so drastically. That is why I once said that my heart breaks every day. I hope you can get some help, get trained on the way to lift with the gait belt and/or get some respite on a frequent basis. If I had one thing to say to everyone it would be PLEASE take care of yourself! During this period I contracted brreast cancer. I'm not saying it was only the stress that caused it, but I'm sure it didn't help. I'm fine now and grateful. Take care, all. My thoughts are with you. Wild Husband , diagnosed LBD June, 2011. Symptoms and disability began 2007. Passed away of multiple myeloma Feb. 21, 2012 Quote Link to comment Share on other sites More sharing options...
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