Re: CAN ANYONE RELATE TO THIS????/Cut

[Guest guest]

Does anyone have an extra room? I do windows and bathrooms, but refuse to clean

fish.  

 

Jeff 

When you feel like giving up, remember why you held on for so long in the first

place. " ~ Unknown

>________________________________

>

>To: " LBD_caringspouses " <LBD_caringspouses >;

" LBDcaregivers " <LBDcaregivers >;

" LBDPatientFamilyCaregiversandFriends@... "

;

" LBDPatientFamilyCaregiversandFriends "

<LBDPatientFamilyCaregiversandFriends >

>Sent: Thursday, August 2, 2012 7:55 AM

>Subject: CAN ANYONE RELATE TO THIS????

>

>

> 

>I DON'T KNOW ABOUT YOU GUYS.........................  BUT*

> 

>I HAVE THOUGHT ABOUT RUNNING AWAY FROM HOME

>WAY MORE OFTEN AS AN ADULT

>THAN I EVER DID AS A KID!!!!!!

> 

>ANY PERTINENT THOUGHTS?

> 

>I LOVE YOU GUYS AND PRAY THAT ALL HAVE A RELATIVELY CARE FREE DAY

>GET IT????  CAREFREE/CARE FREE?????  WHATEVER, HAVE A GOOD ONE, GUYS

> 

>ALWAYS,

>ALL WAYS,

>

> Jo

>

>

[Guest guest]

Does anyone have an extra room? I do windows and bathrooms, but refuse to clean

fish.  

 

Jeff 

When you feel like giving up, remember why you held on for so long in the first

place. " ~ Unknown

>________________________________

>

>To: " LBD_caringspouses " <LBD_caringspouses >;

" LBDcaregivers " <LBDcaregivers >;

" LBDPatientFamilyCaregiversandFriends@... "

;

" LBDPatientFamilyCaregiversandFriends "

<LBDPatientFamilyCaregiversandFriends >

>Sent: Thursday, August 2, 2012 7:55 AM

>Subject: CAN ANYONE RELATE TO THIS????

>

>

> 

>I DON'T KNOW ABOUT YOU GUYS.........................  BUT*

> 

>I HAVE THOUGHT ABOUT RUNNING AWAY FROM HOME

>WAY MORE OFTEN AS AN ADULT

>THAN I EVER DID AS A KID!!!!!!

> 

>ANY PERTINENT THOUGHTS?

> 

>I LOVE YOU GUYS AND PRAY THAT ALL HAVE A RELATIVELY CARE FREE DAY

>GET IT????  CAREFREE/CARE FREE?????  WHATEVER, HAVE A GOOD ONE, GUYS

> 

>ALWAYS,

>ALL WAYS,

>

> Jo

>

>

[Guest guest]

Here's where I am going to add a bit of humor...or possibility it's reality...

Years ago I had the honor of seeing Patch here in Des Moines, Iowa,

September 11, 2002. He had the opportunity to go to Europe on the 1 year

anniversary of 9-11 but instead chose Iowa. He is amazing. I was able to go on

stage and meet him in person, even got his autograph in his book...and here's

where it all started...

I was mentioning his book in this group and could NOT, for the life of me,

remember the name of the book. remembered AFTER my post...it's " Gesundheit " ...

Well, my post was picked up by a few other caregivers in this group of which all

of us had/have decided there has to be a sense of caregiver's dementia that goes

along with this whole journey. I believe in my post I " thought " , using my

caregiver's memory at the time, the book was called " Gunthers " and so it began!

Gunthers became a facility of refuge for us caregivers. We plan to have our own

rooms and possibly start filling them with items we can relate to now in hopes

we will remember and recognize them at the time of our admittance. I drive a

Ford F150 extended cab so I have offered to pick up other caregivers on my/our

way to Gunthers. Gunthers, over the years has been the topic of conversation

back and forth, when needed, and will be there for any and all that might " need

a room " . It's open for you, too, Jeff. No fish cleaning required.

Also, I have organized 2 caregivers gatherings, the last being August of 2008.

A dear friend/caregiver in Canada sent for my birthday a t-shirt, with bold

block lettering across the top where sports jerseys names appear...GUNTHERS and

brought with her 2 lapel pins that read... " If lost please return to Gunthers " .

I pinned it on the visor of my truck back then and it's still there. My hope is

it may come in handy one of these days when I reside at Gunthers.

So, in a nutshell, or " nutty-shell " that's the story behind the creation of

Gunthers. All here all are welcome!

I was caregiver to my dad, Merle, who passed away coming up on 10 years ago of

LBD. He was diagnosed at the age of 58 years old and passed away at age 65. I

became what felt like an orphan at the age of 39 back then.

Please remember to all, we are only responsible for the effort, not the result.

And, we only know what we know. Lots of hugs to all- Sandie

Des Moines, IA

dad, Merle, passed from LBD 9-20-02, age 65

----- CAN ANYONE RELATE TO THIS????

>

>

>

>I DON'T KNOW ABOUT YOU GUYS......................... BUT*

>

>I HAVE THOUGHT ABOUT RUNNING AWAY FROM HOME

>WAY MORE OFTEN AS AN ADULT

>THAN I EVER DID AS A KID!!!!!!

>

>ANY PERTINENT THOUGHTS?

>

>I LOVE YOU GUYS AND PRAY THAT ALL HAVE A RELATIVELY CARE FREE DAY

>GET IT???? CAREFREE/CARE FREE????? WHATEVER, HAVE A GOOD ONE, GUYS

>

>ALWAYS,

>ALL WAYS,

>

> Jo

>

>

[Guest guest]

LOL, I sure can relate! Remember those " Calgon, take me away " commercials?

Helene in NY

>

> Does anyone have an extra room? I do windows and bathrooms, but refuse to

clean fish.  

>  

> Jeff 

>

> When you feel like giving up, remember why you held on for so long in the

first place. " ~ Unknown

>

>

>

>

> >________________________________

> >

> >To: " LBD_caringspouses " <LBD_caringspouses >;

" LBDcaregivers " <LBDcaregivers >;

" LBDPatientFamilyCaregiversandFriends@... "

;

" LBDPatientFamilyCaregiversandFriends "

<LBDPatientFamilyCaregiversandFriends >

> >Sent: Thursday, August 2, 2012 7:55 AM

> >Subject: CAN ANYONE RELATE TO THIS????

> >

> >

> > 

> >I DON'T KNOW ABOUT YOU GUYS.........................  BUT*

> > 

> >I HAVE THOUGHT ABOUT RUNNING AWAY FROM HOME

> >WAY MORE OFTEN AS AN ADULT

> >THAN I EVER DID AS A KID!!!!!!

> > 

> >ANY PERTINENT THOUGHTS?

> > 

> >I LOVE YOU GUYS AND PRAY THAT ALL HAVE A RELATIVELY CARE FREE DAY

> >GET IT????  CAREFREE/CARE FREE?????  WHATEVER, HAVE A GOOD ONE, GUYS

> > 

> >ALWAYS,

> >ALL WAYS,

> >

> > Jo

> >

> >

[Guest guest]

LOL, I sure can relate! Remember those " Calgon, take me away " commercials?

Helene in NY

>

> Does anyone have an extra room? I do windows and bathrooms, but refuse to

clean fish.  

>  

> Jeff 

>

> When you feel like giving up, remember why you held on for so long in the

first place. " ~ Unknown

>

>

>

>

> >________________________________

> >

> >To: " LBD_caringspouses " <LBD_caringspouses >;

" LBDcaregivers " <LBDcaregivers >;

" LBDPatientFamilyCaregiversandFriends@... "

;

" LBDPatientFamilyCaregiversandFriends "

<LBDPatientFamilyCaregiversandFriends >

> >Sent: Thursday, August 2, 2012 7:55 AM

> >Subject: CAN ANYONE RELATE TO THIS????

> >

> >

> > 

> >I DON'T KNOW ABOUT YOU GUYS.........................  BUT*

> > 

> >I HAVE THOUGHT ABOUT RUNNING AWAY FROM HOME

> >WAY MORE OFTEN AS AN ADULT

> >THAN I EVER DID AS A KID!!!!!!

> > 

> >ANY PERTINENT THOUGHTS?

> > 

> >I LOVE YOU GUYS AND PRAY THAT ALL HAVE A RELATIVELY CARE FREE DAY

> >GET IT????  CAREFREE/CARE FREE?????  WHATEVER, HAVE A GOOD ONE, GUYS

> > 

> >ALWAYS,

> >ALL WAYS,

> >

> > Jo

> >

> >

[Guest guest]

I too can relate...Ive had that thought many times.  My husband is in the VA

hospital now..with LBD...its amazing how many of the people know nothing of this

disease.  He is probably in fairly mid to late stage of dementia.

 

To: LBDcaregivers

Sent: Thursday, August 2, 2012 6:36 PM

Subject: Re: CAN ANYONE RELATE TO THIS????/Cut

 

LOL, I sure can relate! Remember those " Calgon, take me away " commercials?

Helene in NY

>

> Does anyone have an extra room? I do windows and bathrooms, but refuse to

clean fish.  

>  

> Jeff 

>

> When you feel like giving up, remember why you held on for so long in the

first place. " ~ Unknown

>

>

>

>

> >________________________________

> >

> >To: " mailto:LBD_caringspouses%40yahoogroups.com "

<mailto:LBD_caringspouses%40yahoogroups.com>;

" mailto:LBDcaregivers%40yahoogroups.com "

<mailto:LBDcaregivers%40yahoogroups.com>;

" LBDPatientFamilyCaregiversandFriends@... "

;

" mailto:LBDPatientFamilyCaregiversandFriends%40yahoogroups.com "

<mailto:LBDPatientFamilyCaregiversandFriends%40yahoogroups.com>

> >Sent: Thursday, August 2, 2012 7:55 AM

> >Subject: CAN ANYONE RELATE TO THIS????

> >

> >

> > 

> >I DON'T KNOW ABOUT YOU GUYS.........................  BUT*

> > 

> >I HAVE THOUGHT ABOUT RUNNING AWAY FROM HOME

> >WAY MORE OFTEN AS AN ADULT

> >THAN I EVER DID AS A KID!!!!!!

> > 

> >ANY PERTINENT THOUGHTS?

> > 

> >I LOVE YOU GUYS AND PRAY THAT ALL HAVE A RELATIVELY CARE FREE DAY

> >GET IT????  CAREFREE/CARE FREE?????  WHATEVER, HAVE A GOOD ONE, GUYS

> > 

> >ALWAYS,

> >ALL WAYS,

> >

> > Jo

> >

> >

[Guest guest]

I too can relate...Ive had that thought many times.  My husband is in the VA

hospital now..with LBD...its amazing how many of the people know nothing of this

disease.  He is probably in fairly mid to late stage of dementia.

 

To: LBDcaregivers

Sent: Thursday, August 2, 2012 6:36 PM

Subject: Re: CAN ANYONE RELATE TO THIS????/Cut

 

LOL, I sure can relate! Remember those " Calgon, take me away " commercials?

Helene in NY

>

> Does anyone have an extra room? I do windows and bathrooms, but refuse to

clean fish.  

>  

> Jeff 

>

> When you feel like giving up, remember why you held on for so long in the

first place. " ~ Unknown

>

>

>

>

> >________________________________

> >

> >To: " mailto:LBD_caringspouses%40yahoogroups.com "

<mailto:LBD_caringspouses%40yahoogroups.com>;

" mailto:LBDcaregivers%40yahoogroups.com "

<mailto:LBDcaregivers%40yahoogroups.com>;

" LBDPatientFamilyCaregiversandFriends@... "

;

" mailto:LBDPatientFamilyCaregiversandFriends%40yahoogroups.com "

<mailto:LBDPatientFamilyCaregiversandFriends%40yahoogroups.com>

> >Sent: Thursday, August 2, 2012 7:55 AM

> >Subject: CAN ANYONE RELATE TO THIS????

> >

> >

> > 

> >I DON'T KNOW ABOUT YOU GUYS.........................  BUT*

> > 

> >I HAVE THOUGHT ABOUT RUNNING AWAY FROM HOME

> >WAY MORE OFTEN AS AN ADULT

> >THAN I EVER DID AS A KID!!!!!!

> > 

> >ANY PERTINENT THOUGHTS?

> > 

> >I LOVE YOU GUYS AND PRAY THAT ALL HAVE A RELATIVELY CARE FREE DAY

> >GET IT????  CAREFREE/CARE FREE?????  WHATEVER, HAVE A GOOD ONE, GUYS

> > 

> >ALWAYS,

> >ALL WAYS,

> >

> > Jo

> >

> >

[Guest guest]

Oh Sandie, you can't imagine how often I've thought of Gunthers the past couple

of months! Of course I forgot the name. lol Ninety-three year old mother in

law with " mild dementia " but still living " independently " with some ongoing

support from us fell the end of May and needed a hip replacement. Here we go!

She went from being fully mobile, paying her own bills, making her own albeit

meagre meals, doing her own laundry and " cleaning " (lacking in many ways) to

hallucinating, being incredibly confused, diapered, a 2 person assist, full care

including needing to be spoon fed, coerced into eating. Six weeks into this she

started to come out of the ravages of the anaesthetic to become more alert, able

to self feed with some assistance even though still hallucinating and with

cognition fluctuations and full care. Then she needed a second anaesthetic to

pull a broken tooth as in her confused state she fought off the dentist when he

tried pulling it under a local, even though in her showtime she had agreed and

thanked him for the plan to pull it. We are back into the throws of full

dementia, now much time spent with eyes closed, sometimes able to respond with

slurred yes or no, or not at all, drooling pocketed liquids. This is all

impacting me on so many levels with Mom dying 6 years ago this month after her

13 plus years declining from PDD. This week finds me so very weary by end of

day, earlier and earlier each day and we are just back into it. Mil remains in

acute care in hospital now awaiting a bed in long term care, with 8 on the list.

I go into this with eyes wide open, a very good knowledge base but older and

obviously still greatly affected from the years coping with Mom. Hubbie is here

to cover this time, so when can you make it up here for a long distance pickup?

Hopefully you can pick Jeff up enroute.

Love and hugs,

>

> Here's where I am going to add a bit of humor...or possibility it's reality...

> Years ago I had the honor of seeing Patch here in Des Moines, Iowa,

September 11, 2002. He had the opportunity to go to Europe on the 1 year

anniversary of 9-11 but instead chose Iowa. He is amazing. I was able to go on

stage and meet him in person, even got his autograph in his book...and here's

where it all started...

> I was mentioning his book in this group and could NOT, for the life of me,

remember the name of the book. remembered AFTER my post...it's " Gesundheit " ...

>

>

> Well, my post was picked up by a few other caregivers in this group of which

all of us had/have decided there has to be a sense of caregiver's dementia that

goes along with this whole journey. I believe in my post I " thought " , using

my caregiver's memory at the time, the book was called " Gunthers " and so it

began! Gunthers became a facility of refuge for us caregivers. We plan to

have our own rooms and possibly start filling them with items we can relate to

now in hopes we will remember and recognize them at the time of our admittance.

I drive a Ford F150 extended cab so I have offered to pick up other caregivers

on my/our way to Gunthers. Gunthers, over the years has been the topic of

conversation back and forth, when needed, and will be there for any and all that

might " need a room " . It's open for you, too, Jeff. No fish cleaning required.

> Also, I have organized 2 caregivers gatherings, the last being August of 2008.

A dear friend/caregiver in Canada sent for my birthday a t-shirt, with bold

block lettering across the top where sports jerseys names appear...GUNTHERS and

brought with her 2 lapel pins that read... " If lost please return to Gunthers " .

I pinned it on the visor of my truck back then and it's still there. My hope is

it may come in handy one of these days when I reside at Gunthers.

> So, in a nutshell, or " nutty-shell " that's the story behind the creation of

Gunthers. All here all are welcome!

> I was caregiver to my dad, Merle, who passed away coming up on 10 years ago of

LBD. He was diagnosed at the age of 58 years old and passed away at age 65. I

became what felt like an orphan at the age of 39 back then.

> Please remember to all, we are only responsible for the effort, not the

result. And, we only know what we know. Lots of hugs to all- Sandie

> Des Moines, IA

> dad, Merle, passed from LBD 9-20-02, age 65

>

> ----- CAN ANYONE RELATE TO THIS????

> >

> >

> >

> >I DON'T KNOW ABOUT YOU GUYS......................... BUT*

> >

> >I HAVE THOUGHT ABOUT RUNNING AWAY FROM HOME

> >WAY MORE OFTEN AS AN ADULT

> >THAN I EVER DID AS A KID!!!!!!

> >

> >ANY PERTINENT THOUGHTS?

> >

> >I LOVE YOU GUYS AND PRAY THAT ALL HAVE A RELATIVELY CARE FREE DAY

> >GET IT???? CAREFREE/CARE FREE????? WHATEVER, HAVE A GOOD ONE, GUYS

> >

> >ALWAYS,

> >ALL WAYS,

> >

> > Jo

> >

> >

[Guest guest]

Oh Sandie, you can't imagine how often I've thought of Gunthers the past couple

of months! Of course I forgot the name. lol Ninety-three year old mother in

law with " mild dementia " but still living " independently " with some ongoing

support from us fell the end of May and needed a hip replacement. Here we go!

She went from being fully mobile, paying her own bills, making her own albeit

meagre meals, doing her own laundry and " cleaning " (lacking in many ways) to

hallucinating, being incredibly confused, diapered, a 2 person assist, full care

including needing to be spoon fed, coerced into eating. Six weeks into this she

started to come out of the ravages of the anaesthetic to become more alert, able

to self feed with some assistance even though still hallucinating and with

cognition fluctuations and full care. Then she needed a second anaesthetic to

pull a broken tooth as in her confused state she fought off the dentist when he

tried pulling it under a local, even though in her showtime she had agreed and

thanked him for the plan to pull it. We are back into the throws of full

dementia, now much time spent with eyes closed, sometimes able to respond with

slurred yes or no, or not at all, drooling pocketed liquids. This is all

impacting me on so many levels with Mom dying 6 years ago this month after her

13 plus years declining from PDD. This week finds me so very weary by end of

day, earlier and earlier each day and we are just back into it. Mil remains in

acute care in hospital now awaiting a bed in long term care, with 8 on the list.

I go into this with eyes wide open, a very good knowledge base but older and

obviously still greatly affected from the years coping with Mom. Hubbie is here

to cover this time, so when can you make it up here for a long distance pickup?

Hopefully you can pick Jeff up enroute.

Love and hugs,

>

> Here's where I am going to add a bit of humor...or possibility it's reality...

> Years ago I had the honor of seeing Patch here in Des Moines, Iowa,

September 11, 2002. He had the opportunity to go to Europe on the 1 year

anniversary of 9-11 but instead chose Iowa. He is amazing. I was able to go on

stage and meet him in person, even got his autograph in his book...and here's

where it all started...

> I was mentioning his book in this group and could NOT, for the life of me,

remember the name of the book. remembered AFTER my post...it's " Gesundheit " ...

>

>

> Well, my post was picked up by a few other caregivers in this group of which

all of us had/have decided there has to be a sense of caregiver's dementia that

goes along with this whole journey. I believe in my post I " thought " , using

my caregiver's memory at the time, the book was called " Gunthers " and so it

began! Gunthers became a facility of refuge for us caregivers. We plan to

have our own rooms and possibly start filling them with items we can relate to

now in hopes we will remember and recognize them at the time of our admittance.

I drive a Ford F150 extended cab so I have offered to pick up other caregivers

on my/our way to Gunthers. Gunthers, over the years has been the topic of

conversation back and forth, when needed, and will be there for any and all that

might " need a room " . It's open for you, too, Jeff. No fish cleaning required.

> Also, I have organized 2 caregivers gatherings, the last being August of 2008.

A dear friend/caregiver in Canada sent for my birthday a t-shirt, with bold

block lettering across the top where sports jerseys names appear...GUNTHERS and

brought with her 2 lapel pins that read... " If lost please return to Gunthers " .

I pinned it on the visor of my truck back then and it's still there. My hope is

it may come in handy one of these days when I reside at Gunthers.

> So, in a nutshell, or " nutty-shell " that's the story behind the creation of

Gunthers. All here all are welcome!

> I was caregiver to my dad, Merle, who passed away coming up on 10 years ago of

LBD. He was diagnosed at the age of 58 years old and passed away at age 65. I

became what felt like an orphan at the age of 39 back then.

> Please remember to all, we are only responsible for the effort, not the

result. And, we only know what we know. Lots of hugs to all- Sandie

> Des Moines, IA

> dad, Merle, passed from LBD 9-20-02, age 65

>

> ----- CAN ANYONE RELATE TO THIS????

> >

> >

> >

> >I DON'T KNOW ABOUT YOU GUYS......................... BUT*

> >

> >I HAVE THOUGHT ABOUT RUNNING AWAY FROM HOME

> >WAY MORE OFTEN AS AN ADULT

> >THAN I EVER DID AS A KID!!!!!!

> >

> >ANY PERTINENT THOUGHTS?

> >

> >I LOVE YOU GUYS AND PRAY THAT ALL HAVE A RELATIVELY CARE FREE DAY

> >GET IT???? CAREFREE/CARE FREE????? WHATEVER, HAVE A GOOD ONE, GUYS

> >

> >ALWAYS,

> >ALL WAYS,

> >

> > Jo

> >

> >