Re: New member Barb (was re: my mother has LBD and Im struggling with decisions)

[Guest guest]

Barb I just wanted to write and say that I understand your excitement

from first-hand experience, having gone through something similar with

my mom...I didn't even know what LBD was at the time, but she was given

Ativan in the hospital, it made her wild and aggressive so they gave her

Haldol which turned her into a zombie except for sudden violent attacks

at people around her. When I had her moved to another hospital she saw a

geriatric neurologist who did a special brain scan and that, together

with her history, led to the diagnosis of LBD. He told me that she'd had

so much of the drugs for so long (several days) that she may not recover

to her previous state...but she did, and getting my mother back was the

most exciting thing! So when I read what you wrote, I just wanted to

reply and tell you that I understand, and if we were in the same room we

could dance around together! Even knowing that my mom would decline, and

that LBD is fatal, I was so thrilled to have her given back to me that

it didn't matter so much. And her decline in the nearly 3 years since

has been gradual, but though she has typical LBD behaviors, her

personality is still intact, and this has been 3 years that I wouldn't

have had.

All my best to you and to your mom .

--

His,

Sherry

daughter/guardian of , dx 4/09 with LBD, living in a nearby NH

> Hi, my name is barb, i just wanted to give everyone a update on my mother, she

went into the hospital dec 2, for hallucination, Her neuro dr. day before said a

few test confirmed she had LBD, Drs, in the hospital had never heard of LDB, so

they decided they would treat her like a demenia patient, plus gave her a

cocktail of pills, for her hallucination, she declined so fast, laid in her bed,

cried for hours, couldnt walk, feed herself, she had a dr. come in and told my

mother there was nothing he could do, from that point on, we felt she had just

given up, wouldnt eat, couldnt get up out of bed some days,drs. from Mayo said

theyve never heard of anyone going down that fast, the 26th of Dec, they sent

her home, thinking she may have 2 wks left, after 3 days on the bad medicine, we

told the drs. to take her off everything, which they did,we took her

home!!Smiles!! I asked everyone everyday to pray for my mom, I believe in

MIRACLES!!! Since Dec 2,

> Six of her children have been with her around the clock, my shift is Thurs

thru Sat, last sat, we got up, mother ate (feeding herself) a big breakfast, we

went shopping , then took a ride downtown INdpls, she loved it it was her first

outing, this weekend we're going shopping again, shes doing everything

herself, She takes excedrin everyday, and sqeraril (low dose) every evening

helps her sleep, (in her own bed)!! GOD IS GOOD!! She does not see the lil

people anylonger. Thank you God for giving us our mother back !! Sorry this

was so long, but i wanted you to know she is doing better, going to a new neuro

the 31st to see what he thinks. wil keep you updated!! God Bless ...

Barb