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Re: For Tania

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You know, that's a great idea! I'm going to suggest all of this to Mum. Neither

Mum nor Dad are that great with trying new things but if it means she and Dad

get some better quality sleep, surely they'll be up for it!? Thanks Cassie.

Tania...

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> > > **

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> > > Hi all. It's been a while since I posted on here last but that's not to

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> > > say lots of stuff hasn't happened. But it's taken a fairly severe turn for

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> > > the worse of late.

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> > >

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> > > A couple of weeks ago, Mum left Dad (dx PD 2010 then LBD 2011 and finally

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> > > PDD 2012) for a few minutes and after she'd been home for a while, noticed

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> > > a huge dent in the side of the oven. She asked Dad if he'd had a fall and

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> > > he said he had. This is just the latest of many bad falls he's had in the

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> > > past couple of years. But this time it's worse.

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> > >

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> > > Dad's right buttock was extremely sore/tender after the fall and after not

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> > > getting any better, we took him to see his doctor (GP) on Thursday. He

(the

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> > > doctor) was extremely concerned about Dad's breathlessness and was worried

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> > > he may have a clot somewhere. Long story short, after 8.5 hours in

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> > > emergency and x-rays, blood tests, ECGs, etc later, they said Dad had

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> > > (thank God) no broken bones but does have a damaged piriformis muscle in

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> > > the behind which explains his extreme pain and that he would need further

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> > > tests to determine if he has a blood clot (which can be fatal) although

the

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> > > blood tests were indicating that there was. Now we have to wait until

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> > > Tuesday for a " VQ " scan to find out if there is indeed a clot.

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> > >

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> > > Aside from the obvious danger of the clot, the GP has advised that it is a

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> > > dangerous situation whether we were to treat a clot or ignore it. To treat

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> > > it, Dad would need to take Warfarin - a powerful blood thinner. He is

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> > > already on blood thinners for his heart but this is way more powerful.

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> > > Warfarin would probably help the clot but if Dad were to have a fall

whilst

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> > > on this medication, he could bleed to death. But if he does have a clot

and

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> > > it's left untreated, it may be OK, but could also be fatal.

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> > >

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> > > When Dad was diagnosed with this awful disease, I pictured him dying from

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> > > perhaps pneumonia, a few years down the track. Now, and only now, I

realise

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> > > that the only thing you can be sure of with this disease is that you can't

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> > > be sure of anything.

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> > >

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> > > Thanks for listening. I don't quite know what it is I'm trying to say. I

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> > > guess I just wanted to put these horrible feelings into words as Dad seems

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> > > to be worsening and it's heartbreaking.

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> > >

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> > > Tania....

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> > --

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> > Kate Knapp, OIT

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> > University of Minnesota

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> > You were born with certain gifts and talents.

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> > In kindergarten you were taught to share.

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> > The world needs all of the gifts it can get.

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> > Don't be shy.

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> >

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> >

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> >

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