Re: tired of being frustrated

April 1, 2008

You will be pleased to know that some of your lab work can aid in a RA

diagnosis. While bloodwork does help the process, there are many seronegative

RA patients. You would think RA factor would have been included, but hey, I am

not a doctor It does look like they are at least looking into the realm of

autoimmune disorders and ruling out diseases that are similar to them.

With your doctor you need to discuss the impact this pain is causing you. How

long has this been going on for? What could you do before that you cannot do

now? How have you had to modify your life? Do you have to take dose after dose

of Tylenol to semi-function? Is it causing sleep disruption? Are you fatigued?

Is it causing problems with concentration or work performance? Telling them you

hurt is relative as far as they are concerned. However, you need to find focus

on what is bothering you the most. Many doctors (but hopefully you have a

compassionate, thorough one) don't want to hear your life story. And truthfully

if you have a laundry list of things it is overwhelming to fix them all at once.

Good luck!

Shandi

amber michelle <ambermich@...> wrote:

I am soo tired of being frustrated. today it took a half an hour to

get up and get my daughter a PB & J sandwich....i am soo stiff and sore

today i cannot stand it.

Tomorrow i go to the doctors that i have been waiting to see me. The

ones i wanted for my primary care doctors. How do i go in there and

describe these problems to the doctors? i do nto want to just say, i

think i have rheumtoid arthritis.....but i am not sure how to

describe all this to them. What is the word to describe that awful

aching, odd i got to shake my leg while lying in bed feeling that

comes from my feet at night ?? how to make him understand even

though i look fine it takes me 5 to 10 minutes in the am to get up

out of bed (not dressed or anything else, just up)?? how do i not

appear to be that healthy looking person that is looking for

something else but really show the doctor how miserable i am???

on top of it all i have a bad cold, i feel like i got to cough up a

lung, THEN yesterday i went to the dentist and i have 2 teeth that

are worthless either needs pulled or a root canel with caps (which i

cannot afford) plus about 6 more cavities to fill....the dentist

cannot explain why my teeth are rotting at a fast pace. i swear i

look at my teeth one day and then a few days later there is a big

hole........they just rot away at a speedy rate.

i had my blood drawn yesterday from the doc who gave me the lyrica

and did the nerve study test thing...... i noticed there was no RA

labs. do you think he is not looking that direction??? he ordered a

cmp, cbc, lyme, lupus, folic acid, b12 level and ana...i do not think

i have the lupus symptoms as much as RA symptoms. why wouldn't he do

other test too?

anyway i am griping enough....any advice for the doctor would be

great !!!!

---------------------------------

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April 1, 2008

> the dentist

> cannot explain why my teeth are rotting at a fast pace. i swear i

> look at my teeth one day and then a few days later there is a big

> hole........ hole........<wbr>they just rot away>>>>>

>

Dry mouth? Get up in the middle of the night and brush your teeth....drink

some lemon juice. then rinse..

give up sugar. I have spent a ton on root canals, caps then lose the

tooth.....

DENTAL INPLANTS instead are (usually) forever!

Pris

**************

Create a Home Theater Like the Pros. Watch the video on AOL

Home.

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ncid=aolhom00030000000001)

April 2, 2008

I really have not had a problem with dry mouth, it does not seem dry. I am a

sugar addict I am trying to brush my teeth 3 or more times a day now and I

got some enamel rinse stuff to help protect what is left....

amber

**************Create a Home Theater Like the Pros. Watch the video on AOL

Home.

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000000001)

April 2, 2008

I wonder if that might be......I do not notice my mouth being dry but maybe

I am use to it now. I have a lot of " rotting " up near the gum line, I was

thinking some kind of gum disease but the dentist said no, gums look fine, she

could not explain it besides the fact I drink a lot of soda and might not be

brushing enough (which I know I am).... I might have to hunt that tooth paste

down and see if it helps, sure cannot hurt at this point. thanks for the

advice

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April 2, 2008

TRY BIOTENE TOOTHPASTE. IT IS MADE FOR DRY MOUTH AND IS ANTIBACTERIAL.

bylg673k@... wrote:

> the dentist

> cannot explain why my teeth are rotting at a fast pace. i swear i

> look at my teeth one day and then a few days later there is a big

> hole........ hole........<wbr>they just rot away>>>>>

>

Dry mouth? Get up in the middle of the night and brush your teeth....drink

some lemon juice. then rinse..

give up sugar. I have spent a ton on root canals, caps then lose the

tooth.....

DENTAL INPLANTS instead are (usually) forever!

Pris

**************

Create a Home Theater Like the Pros. Watch the video on AOL

Home.

(http://home.aol.com/diy/home-improvement-eric-stromer?video=15 & amp;

ncid=aolhom00030000000001)

April 2, 2008

i have the sjorgens syndrome (dry mouth, eye,etc) sensodyne has just came out

with a toothpaste with biotene. this is especially for sjorgens patients.

works wonders.....the sjorgens causes decay in the teeth. there is not enough

saliva to clean well. i have just had to have 18 porcelain inlays on 18 teeth

to save them. they were breaking due to dryness. i have found that a cool mist

humidifier in most rooms helps your saliva and teeth. rita

Re: [ ] tired of being frustrated

I really have not had a problem with dry mouth, it does not seem dry. I am a

sugar addict I am trying to brush my teeth 3 or more times a day now and I

got some enamel rinse stuff to help protect what is left....

amber

************ **Create a Home Theater Like the Pros. Watch the video on AOL

Home.

(http://home. aol.com/diy/ home-improvement -eric-stromer? video=15 &

ncid=aolhom00030 000000001)

April 2, 2008

>

> I wonder if that might be......I do not notice my mouth being dry

but maybe

> I am use to it now. I have a lot of " rotting " up near the gum line,

I was

> thinking some kind of gum disease but the dentist said no, gums

look fine, she

> could not explain it besides the fact I drink a lot of soda and

might not be

> brushing enough (which I know I am).... I might have to hunt that

tooth paste

> down and see if it helps, sure cannot hurt at this point. thanks

for the

> advice

I am sure this will sound crazy, but you might want to look into

using tooth soap instead of toothpate. I am a soapmaker and the topic

kept coming up and despite taking good care of me teeth they aren't

in good shape, so I figured I'd try it. I swear my teeth feel

cleaner, look brighter, and I KNOW they are much less sensitive. I

have been using the tooth soap about a month and can't belive how

much my dental health has improved. I have had to use sensitive

toothpaste for several years and have never been able to get off it

until I used the tooth soap. I was also starting to have problems

with my gums, my gums were bleeding every time I brushed. I was sort

of at wits end and so I tried it more out of desperation but I like

it so much I will never use commercial toothpaste again. My gums

aren't bleeding anymore! I have had 2 root canals already and expect

more, but my gum health had me worried, so this is a good thing

indeed. There is a lot of glyverin in commercial toothpaste that

supposedly helps prevent the proper re-enamalization of your teeth.

Another benifit is that I don't get that " morning mouth " ickiness

anymore. If you google tooth soap you will find sellers and more info

you can read on, if you are interested. I can't recommend any in

particular; as I said, I make soap so I just made my own (and no, I

don't sell LOL!).

April 2, 2008

hi amber michelle, first let me start off by saying I LOVE YOUR NAME!!! i can

sooo RELATE to you as if i wrote your message myself.. yesterday was a BAD day

for me as well.. im 38yrs.old,married for 13yrs & have an 11yr.old

daughter,alyssa.... i have severe ra,osteo & neuropathy.... i have been sick since

age 5 & have dealt with alot in my lifetime ESPECIALLY PAIN!!! yes FRUSTRATED

everyday & sometimes you dont know how to express yourself to others cuz they

dont know how you feel.... i can say im LUCKY to have what i have cuz i never

thought in my right mind i would ever get married or have children & i have

both.... how long have you been suffering with this unknown pain?? i to have

been having a pain in my right side of my body & the drs. cant find anything

wrong with me. however they sure want to give me MEDS,MEDS,MEDS, SO WHEN I WENT

TO MY ORTHO i decided to ask what he thought(I TRUST HIM WITH MY LIFE). anyway

he is going to do a nuclear study on

me,they put an iv put a dye or something then i have to go back in 3 hours &

they take x-rays.. i hope he finds the answers i NEED & looking for cuz im TIRED

of being in PAIN & not knowing the cause of the numbing,tingling sensation im

feeling... so yes its frustrating amber michelle, YOURE NOT ALONE!!! i would ask

or simply say what you said in your opening sentence frustrated then tell your

story about how & what you yourself feels... the UNKNOWN IS SCARRY!!!!!! good

luck & hang in there amber michelle... god bless,melyndagamez 4/2/08

1:09p.m.central time

[ ] tired of being frustrated