Re: has anyone tried LDN

[Guest guest]

Hi everyone. I have juvenile rheumatoid arthritis since 1969 and am 41 years

old now. I am on minocycline (antibiotic used as a disease modifying drug

for RA) since August 2007. After being on it for months, I feel it is helping

my joint pain and swelling especially my knees. I am also taking LDN (low

dose naltrexone) since May 2007. Has anyone tried LDN for rheumatoid

arthritis? I also belong to the low dose naltrexone group. Mostly everyone

in

that group has multiple sclerosis and is on LDN and are doing great. I want to

hear from people with RA who have tried LDN. Best wishes to everyone,

**************Create a Home Theater Like the Pros. Watch the video on AOL

Home.

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000000001)

[Guest guest]

hi christine,my name is Melynda,im 38yrs.young.i have had ra since i was

5yrs.old.i take soo MANY MEDS.i dont recall the med you take.is that the brand

name or generic? sometimes i get both so i sometimes get CONFUSED with the names

of the meds.i would like to know if theres another name for the LDN, if you dont

mind? god bless,MelyndaGamez 3/21/08 3:40p.m.

[ ] Re: has anyone tried LDN

Hi everyone. I have juvenile rheumatoid arthritis since 1969 and am 41 years

old now. I am on minocycline (antibiotic used as a disease modifying drug

for RA) since August 2007. After being on it for months, I feel it is helping

my joint pain and swelling especially my knees. I am also taking LDN (low

dose naltrexone) since May 2007. Has anyone tried LDN for rheumatoid

arthritis? I also belong to the low dose naltrexone group. Mostly everyone

in

that group has multiple sclerosis and is on LDN and are doing great. I want to

hear from people with RA who have tried LDN. Best wishes to everyone,

**************Create a Home Theater Like the Pros. Watch the video on AOL

Home.

(http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\

000000001)

[Guest guest]

> brand name or generic? sometimes i get both so i sometimes get CONFUSED with

> the names of the meds.i would like to know if theres another name for the

> LDN, if you dont mind? god bless,MelyndaGamez 3/21/08 3:40p.m.

" Naltrexone is an opioid receptor antagonist used primarily in the

management of alcohol dependence and opioid dependence. It is marketed

in generic form as its hydrochloride salt, naltrexone hydrochloride,

and marketed under the trade names Revia and Depade. In some countries

including the United States, an extended-release formulation is

marketed under the trade name Vivitrol. "

Some people have used naltrexone off label to treat chronic pain and

certin autoimmune disorders. Beyond that, I know very little about

it.

[Guest guest]

jamie THANK YOU FOR INFO.god bless,melynda

Re: [ ] Re: has anyone tried LDN

> brand name or generic? sometimes i get both so i sometimes get CONFUSED with

> the names of the meds.i would like to know if theres another name for the

> LDN, if you dont mind? god bless,MelyndaGamez 3/21/08 3:40p.m.

" Naltrexone is an opioid receptor antagonist used primarily in the

management of alcohol dependence and opioid dependence. It is marketed

in generic form as its hydrochloride salt, naltrexone hydrochloride,

and marketed under the trade names Revia and Depade. In some countries

including the United States, an extended-release formulation is

marketed under the trade name Vivitrol. "

Some people have used naltrexone off label to treat chronic pain and

certin autoimmune disorders. Beyond that, I know very little about

it.

------------------------------------

[Guest guest]

I've just joined this group. I had symptoms of RA suddenly make an impact on me

last September. In December I went on a short Prednisone course, which helped,

as did another in January, then a month of it Feb/March. I saw the

rheumatologist who told me to have blood tests (all negative) and xrays. Then he

told me I had arthritis and prescribed Cerebrex (?spell? whatever, I chucked it

in the fire)

By then I had started preparing to go on low dose naltrexone. The 50mg dose is

for addiction. The ldn dose is 3mg taken at night.

Anyway, I stopped all medication. For pain and swelling I'm taking antioxidants

- it meant taking Vitamin E 400, and fish oil. I should also take zinc and some

others but got fed up with it all so didn't. I stopped eating animal fats,

including cheese, eggs, and stopped bread and any cereals. I'm eating a lot more

potatoes than before. Once a day I have chicken, or duck, or salmon. The rest is

vegetables, nuts (for breakfast).

I am taking clorella to help my system get rid of toxic residues.

There is so much less pain and swelling I've almost felt normal. But exhaustion

was still a problem.

I started ldn on 22 April at 1.5mg just to see what happened. Nothing did so I

increased it two nights ago to 3mg taken at 10 pm.

First thing this morning I picked up the kettle with one hand - haven't done

that for ages. I've a long way to go but feel hopeful that it'll get better.

Maybe sometimes it'll be one step forward and two back but when it's two forward

and one back that's a gain.

I got most of my information from:

http://ldn.proboards.com/index.cgi

Although most of the posters have MS, it's really worth looking into.

yours

Margaret

[Guest guest]

hi margaret

i tried ldn last summer but unfortunately it gave me nausea dizziness

and migraines for 6 wks so i had to stop it. it really helped my RA

though and fortunately most ppl don;t get bad side effects from it.

cutting out anything processed dairy and grains really does make a

difference doesn't it?

good to hear you are doing well

monique