Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 I have a kind of neuropathy its called complex regional pain syndrome. Its not a good diagnosis, with mine it causes burning pain and at times its very hard to walk. There is also diabetic neuropthy as well. Lots of people with neuropathy take lyrica and drugs like anti epileptic drugs to help the nerve pain.> I would really suggest you get the fastet, treatment possible for this. Jolene In a message dated 3/29/2008 1:39:09 P.M. Eastern Daylight Time, mrussell@... writes: Does anyone on the list have RA and RA-related neuropathy? Saw the rheumatologist and she is concerned about the weakness and nerve symptoms I am having in my legs and is referring me to a neurologist. She mentioned neuropathy. I thought that neuropathy occurred only after years and years of RA - I have had it for just a bit over 5 years. I was just wondering about anyone else's experience with this. ~Marie [Non-text portions of this message have been removed] **************Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15 & ncid=aolhom00030\ 000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 I was just diagnosed with peripheral neuropathy and had a nerve test done to confirm it....it is new to me so any info is great. the doctor put me on Lyrica for the pain that it is causing...... a burning, stinking, stabbing pain in my hands and feet (my feet are worse than my hands the doc says) amber **************Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15 & ncid=aolhom00030\ 000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Both my mother and I have had problems w/neuropathy/neuro symptoms. My mother had SLE, peripheral neuropathies, Raynauds phenomenon, periodically went " out of her head " , weakness in her right arm (this started shortly after she first started having problems in her teens). Drug her right leg, lots of headaches. The headaches were also a lifelong thing. The Raynauds started late. The rest were w/i 5 years. I have RA, spinal neuropathies, weakness in right hand, right leg-all after several years. Headaches also after several years. Mine respond well to Neurontin. Mothers never did well w/anything. Marie Miley- <mrussell@...> wrote: Does anyone on the list have RA and RA-related neuropathy? Saw the rheumatologist and she is concerned about the weakness and nerve symptoms I am having in my legs and is referring me to a neurologist. She mentioned neuropathy. I thought that neuropathy occurred only after years and years of RA - I have had it for just a bit over 5 years. I was just wondering about anyone else's experience with this. ~Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 I have neuropathic pain that was diagnosed with my FMS --- Jolenefive@... wrote: > I have a kind of neuropathy its called complex > regional pain syndrome. Its > not a good diagnosis, with mine it causes burning > pain and at times its very > hard to walk. There is also diabetic neuropthy as > well. Lots of people with > neuropathy take lyrica and drugs like anti > epileptic drugs to help the nerve > pain.> I would really suggest you get the fastet, > treatment possible for > this. > > Jolene > > > In a message dated 3/29/2008 1:39:09 P.M. Eastern > Daylight Time, > mrussell@... writes: > > > > > Does anyone on the list have RA and RA-related > neuropathy? > > Saw the rheumatologist and she is concerned about > the weakness and nerve > symptoms I am having in my legs and is referring me > to a neurologist. She > mentioned neuropathy. > > I thought that neuropathy occurred only after years > and years of RA - I have > had it for just a bit over 5 years. I was just > wondering about anyone else's > experience with this. > > ~Marie > > > [Non-text portions of this message have been > removed] > > > > > > > > **************Create a Home Theater Like the Pros. > Watch the video on AOL > Home. > (http://home.aol.com/diy/home-improvement-eric-stromer?video=15 & ncid=aolhom00030\ 000000001) > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. http://tc.deals./tc/blockbuster/text5.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 They use lyrica for neuropathy as well. Jolene In a message dated 3/29/2008 7:53:38 P.M. Eastern Daylight Time, melyndagamez@... writes: hi marie, i to have neuropathy.the drs. dx it probably 8 months ago. i FREAKED OUT!! what other diseases am i going to get. im SOOOO TIRED!! just yesterday,i had a major flare, my right side was tingling & burning sensation. i felt as if i were paralyzed cuz i could not move at all. this SCARES ME! i do have 2 broken ribs, on my right side. im taking NEURONTINfor the NEUROPATHY, im not SURE if it WORKS though. im going to my orthopedic specialist on monday in san antonio,tx. to see if anything else is broken or fractured due to my severe pain.. wish me LUCK & PLEASE SAY PRAYERS,IF POSSIBLE.. god bless,melyndagamez 3/29/08 4:30p.m.central time ----- Original Message ---- From: stephanie <_stephieann2@stephiean_ (mailto:stephieann2@...) > _ @groRA-SUPP_ (mailto: ) Sent: Saturday, March 29, 2008 2:55:42 PM Subject: Re: [ ] RA and neuropathy I have neuropathic pain that was diagnosed with my FMS --- _Jolenefive@..._ (mailto:Jolenefive@...) wrote: > I have a kind of neuropathy its called complex > regional pain syndrome. Its > not a good diagnosis, with mine it causes burning > pain and at times its very > hard to walk. There is also diabetic neuropthy as > well. Lots of people with > neuropathy take lyrica and drugs like anti > epileptic drugs to help the nerve > pain.> I would really suggest you get the fastet, > treatment possible for > this. > > Jolene > > > In a message dated 3/29/2008 1:39:09 P.M. Eastern > Daylight Time, > _mrussell@..._ (mailto:mrussell@...) writes: > > > > > Does anyone on the list have RA and RA-related > neuropathy? > > Saw the rheumatologist and she is concerned about > the weakness and nerve > symptoms I am having in my legs and is referring me > to a neurologist. She > mentioned neuropathy. > > I thought that neuropathy occurred only after years > and years of RA - I have > had it for just a bit over 5 years. I was just > wondering about anyone else's > experience with this. > > ~Marie > > > [Non-text portions of this message have been > removed] > > > > > > > > ************ ************<WBR>**Create a Home Theater > Watch the video on AOL > Home. > (_http://home.http://home.http://home.<WBRhttp://home.<Whttp://h & <WBR>ncid=aol hom<WBR>ncid_ (http://home.aol.com/diy/home-improvement-eric-stromer?video=15 & ncid=aolhom00030\ 000000001) ) > > > [Non-text portions of this message have been > removed] > > __________________________________________________________ You rock. That's why Blockbuster'You rock. That's why Blockbuster'<WBR>s offering you one month _http://tc.deals.http://tc.http://tc.dealshttp://tc_ (http://tc.deals./tc/blockbuster/text5.com) ------------------------------------ This is a private list. Should you wish to forward any mail to nonsubscribers, you must first obtain the writer's permission. We are NOT physicians. Information on this list is not to be construed as medical advice, and we cannot guarantee the accuracy and currency of the information provided. For archives or to change subscription options: _http://health.http://healthhttp://heahttp://health._ ( ) ! Groups Links __________________________________________________________ Special deal for users & friends - No Cost. Get a month of Blockbuster Total Access now _http://tc.deals.http://tc.http://tc.dealshttp://tc_ (http://tc.deals./tc/blockbuster/text3.com) [Non-text portions of this message have been removed] **************Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15 & ncid=aolhom00030\ 000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 hi marie, i to have neuropathy.the drs. dx it probably 8 months ago. i FREAKED OUT!! what other diseases am i going to get. im SOOOO TIRED!! just yesterday,i had a major flare, my right side was tingling & burning sensation. i felt as if i were paralyzed cuz i could not move at all. this SCARES ME! i do have 2 broken ribs, on my right side. im taking NEURONTINfor the NEUROPATHY, im not SURE if it WORKS though. im going to my orthopedic specialist on monday in san antonio,tx. to see if anything else is broken or fractured due to my severe pain.. wish me LUCK & PLEASE SAY PRAYERS,IF POSSIBLE.. god bless,melyndagamez 3/29/08 4:30p.m.central time Re: [ ] RA and neuropathy I have neuropathic pain that was diagnosed with my FMS --- Jolenefive@... wrote: > I have a kind of neuropathy its called complex > regional pain syndrome. Its > not a good diagnosis, with mine it causes burning > pain and at times its very > hard to walk. There is also diabetic neuropthy as > well. Lots of people with > neuropathy take lyrica and drugs like anti > epileptic drugs to help the nerve > pain.> I would really suggest you get the fastet, > treatment possible for > this. > > Jolene > > > In a message dated 3/29/2008 1:39:09 P.M. Eastern > Daylight Time, > mrussell@... writes: > > > > > Does anyone on the list have RA and RA-related > neuropathy? > > Saw the rheumatologist and she is concerned about > the weakness and nerve > symptoms I am having in my legs and is referring me > to a neurologist. She > mentioned neuropathy. > > I thought that neuropathy occurred only after years > and years of RA - I have > had it for just a bit over 5 years. I was just > wondering about anyone else's > experience with this. > > ~Marie > > > [Non-text portions of this message have been > removed] > > > > > > > > **************Create a Home Theater Like the Pros. > Watch the video on AOL > Home. > (http://home.aol.com/diy/home-improvement-eric-stromer?video=15 & ncid=aolhom00030\ 000000001) > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. http://tc.deals./tc/blockbuster/text5.com ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Yes i take cymbalta.. Neurontin ended me up in the er so cant take lyrica as its a siser to it. I also take kepra for nerve pain similar class as Neurontin. Jolene In a message dated 3/29/2008 9:39:18 P.M. Eastern Daylight Time, stephieann2@... writes: For those that can't take Lyrica, Cymbalta also works for neuropathic pain. I took it for over a year until it began to affect my mood. --- Melynda Gamez <_melyndagamez@melyndaga_ (mailto:melyndagamez@...) > wrote: > hi marie, i to have neuropathy.the drs. dx it > probably 8 months ago. i FREAKED OUT!! what other > diseases am i going to get. im SOOOO TIRED!! just > yesterday,i had a major flare, my right side was > tingling & burning sensation. i felt as if i were > paralyzed cuz i could not move at all. this SCARES > ME! i do have 2 broken ribs, on my right side. im > taking NEURONTINfor the NEUROPATHY, im not SURE if > it WORKS though. im going to my orthopedic > specialist on monday in san antonio,tx. to see if > anything else is broken or fractured due to my > severe pain.. wish me LUCK & PLEASE SAY PRAYERS,IF > POSSIBLE.. god bless,melyndagamez 3/29/08 > 4:30p.m.central time > > > Re: [ ] RA and neuropathy > > I have neuropathic pain that was diagnosed with my > FMS > --- _Jolenefive@..._ (mailto:Jolenefive@...) wrote: > > > I have a kind of neuropathy its called complex > > regional pain syndrome. Its > > not a good diagnosis, with mine it causes burning > > pain and at times its very > > hard to walk. There is also diabetic neuropthy as > > > well. Lots of people with > > neuropathy take lyrica and drugs like anti > > epileptic drugs to help the nerve > > pain.> I would really suggest you get the fastet, > > treatment possible for > > this. > > > > Jolene > > > > > > In a message dated 3/29/2008 1:39:09 P.M. Eastern > > Daylight Time, > > _mrussell@..._ (mailto:mrussell@...) writes: > > > > > > > > > > Does anyone on the list have RA and RA-related > > neuropathy? > > > > Saw the rheumatologist and she is concerned about > > the weakness and nerve > > symptoms I am having in my legs and is referring > me > > to a neurologist. She > > mentioned neuropathy. > > > > I thought that neuropathy occurred only after > years > > and years of RA - I have > > had it for just a bit over 5 years. I was just > > wondering about anyone else's > > experience with this. > > > > ~Marie > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > > > ************ ************<WBR>**Create a Home Thea > > Watch the video on AOL > > Home. > > > (_http://home.http://home.http://home.<WBRhttp://home.<Whttp://h & <WBR>ncid=aol hom<WBR>ncid_ (http://home.aol.com/diy/home-improvement-eric-stromer?video=15 & ncid=aolhom00030\ 000000001) ) > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > __________________________________________________________ > You rock. That's why Blockbuster' You rock. Tha > month of Blockbuster Total Access, No Cost. > _http://tc.deals.http://tc.http://tc.dealshttp://tc_ (http://tc.deals./tc/blockbuster/text5.com) > > ------------ -------- -------- ----- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 For those that can't take Lyrica, Cymbalta also works for neuropathic pain. I took it for over a year until it began to affect my mood. --- Melynda Gamez <melyndagamez@...> wrote: > hi marie, i to have neuropathy.the drs. dx it > probably 8 months ago. i FREAKED OUT!! what other > diseases am i going to get. im SOOOO TIRED!! just > yesterday,i had a major flare, my right side was > tingling & burning sensation. i felt as if i were > paralyzed cuz i could not move at all. this SCARES > ME! i do have 2 broken ribs, on my right side. im > taking NEURONTINfor the NEUROPATHY, im not SURE if > it WORKS though. im going to my orthopedic > specialist on monday in san antonio,tx. to see if > anything else is broken or fractured due to my > severe pain.. wish me LUCK & PLEASE SAY PRAYERS,IF > POSSIBLE.. god bless,melyndagamez 3/29/08 > 4:30p.m.central time > > > Re: [ ] RA and neuropathy > > I have neuropathic pain that was diagnosed with my > FMS > --- Jolenefive@... wrote: > > > I have a kind of neuropathy its called complex > > regional pain syndrome. Its > > not a good diagnosis, with mine it causes burning > > pain and at times its very > > hard to walk. There is also diabetic neuropthy as > > > well. Lots of people with > > neuropathy take lyrica and drugs like anti > > epileptic drugs to help the nerve > > pain.> I would really suggest you get the fastet, > > treatment possible for > > this. > > > > Jolene > > > > > > In a message dated 3/29/2008 1:39:09 P.M. Eastern > > Daylight Time, > > mrussell@... writes: > > > > > > > > > > Does anyone on the list have RA and RA-related > > neuropathy? > > > > Saw the rheumatologist and she is concerned about > > the weakness and nerve > > symptoms I am having in my legs and is referring > me > > to a neurologist. She > > mentioned neuropathy. > > > > I thought that neuropathy occurred only after > years > > and years of RA - I have > > had it for just a bit over 5 years. I was just > > wondering about anyone else's > > experience with this. > > > > ~Marie > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > > > **************Create a Home Theater Like the Pros. > > Watch the video on AOL > > Home. > > > (http://home.aol.com/diy/home-improvement-eric-stromer?video=15 & ncid=aolhom00030\ 000000001) > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > ________________________________________________________________________________\ ____ > You rock. That's why Blockbuster's offering you one > month of Blockbuster Total Access, No Cost. > http://tc.deals./tc/blockbuster/text5.com > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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