Re: dialysis survival rates

[Guest guest]

>Dialysis survival rates:

>

>one year - 78.4 percent

>two years - 62.8 percent

>five years - 31.3 percent

>ten years - 8.7 percent

>

>Susie

Gosh this is awful Susie. The guy I know that has been on it for 17 years is

obviously the exception. He is very wealthy and has his own machine at home.

Don't know if that makes a difference. My stepbrother was on dialysis for

almost ten years before he passed away. He had complete kidney failure at age

13, no diabetes though. He unfortunately didn't have a good match for a

kidney donor so he wasn't able to get a transplant. Now it seems they can do

transplants without having it be such a perfect match (blood relative). He

had a shunt in his arm and had to go to the unit three time a week. Really an

awful condition I feel for anyone that has to go through it.

[Guest guest]

>Dialysis survival rates:

>

>one year - 78.4 percent

>two years - 62.8 percent

>five years - 31.3 percent

>ten years - 8.7 percent

>

>Susie

Gosh this is awful Susie. The guy I know that has been on it for 17 years is

obviously the exception. He is very wealthy and has his own machine at home.

Don't know if that makes a difference. My stepbrother was on dialysis for

almost ten years before he passed away. He had complete kidney failure at age

13, no diabetes though. He unfortunately didn't have a good match for a

kidney donor so he wasn't able to get a transplant. Now it seems they can do

transplants without having it be such a perfect match (blood relative). He

had a shunt in his arm and had to go to the unit three time a week. Really an

awful condition I feel for anyone that has to go through it.

[Guest guest]

More incentive for good control!

I don't EVER want to have to deal with dialysis!

Vicki

In a message dated 06/21/2002 3:56:58 PM US Mountain Standard Time,

ssskrc@... writes:

> ). He

> had a shunt in his arm and had to go to the unit three time a week. Really

> an

> awful condition I feel for anyone that has to go through it.

>

[Guest guest]

More incentive for good control!

I don't EVER want to have to deal with dialysis!

Vicki

In a message dated 06/21/2002 3:56:58 PM US Mountain Standard Time,

ssskrc@... writes:

> ). He

> had a shunt in his arm and had to go to the unit three time a week. Really

> an

> awful condition I feel for anyone that has to go through it.

>

[Guest guest]

wrote:

<< Gosh this is awful Susie. The guy I know that has been on it for 17 years is

obviously the exception. He is very wealthy and has his own machine at home.

Don't know if that makes a difference. My stepbrother was on dialysis for almost

ten years before he passed away. >>

I agree ... that is really a grim statistic. I hope to hear more from Sandy,

following her research. What I can pick up so far is that a common killer is

pneumonia and tuberculosis (so *get your shots*). Another killer is that people

get discouraged and cut back on their treatments, and finally don't show up at

all for their treatments. It's basically 3.5 hours a day, three days a week, and

then you will likely need to spend the rest of the day in bed. So you have

Tuesdays, Thursdays, Saturdays and Sundays to live your life ... and even on

those days you will likely need a nap. It takes a *lot* of motivation to assure

longevity. I hope we can come up with a better way to do this ...

Susie

[Guest guest]

I agree ... that is really a grim statistic. I hope to hear more from

Sandy, following her research. What I can pick up so far is that a common

killer is pneumonia and tuberculosis (so *get your shots*). Another killer

is that people get discouraged and cut back on their treatments, and finally

don't show up at all for their treatments. It's basically 3.5 hours a day,

three days a week, and then you will likely need to spend the rest of the

day in bed.

Another problem with it, Susie, is that people feel so sick on it that

they don't show up or the hospital won't do the treatment when they're

feeling ill, according to my mom. My sister has been so ill that they

rescheduled her dialysis. I thought that it was just my sister that felt so

sick, but from what I've been reading, that's pretty common. I've read that

the kind that patients take while they sleep is not so disruptive, and

patients don't feel so ill. I know that my sister goes to the hospital and

is there almost 4 hours. She gets it Monday, Wednesday, and Friday.

Sandy

[Guest guest]

I agree ... that is really a grim statistic. I hope to hear more from

Sandy, following her research. What I can pick up so far is that a common

killer is pneumonia and tuberculosis (so *get your shots*). Another killer

is that people get discouraged and cut back on their treatments, and finally

don't show up at all for their treatments. It's basically 3.5 hours a day,

three days a week, and then you will likely need to spend the rest of the

day in bed.

Another problem with it, Susie, is that people feel so sick on it that

they don't show up or the hospital won't do the treatment when they're

feeling ill, according to my mom. My sister has been so ill that they

rescheduled her dialysis. I thought that it was just my sister that felt so

sick, but from what I've been reading, that's pretty common. I've read that

the kind that patients take while they sleep is not so disruptive, and

patients don't feel so ill. I know that my sister goes to the hospital and

is there almost 4 hours. She gets it Monday, Wednesday, and Friday.

Sandy

[Guest guest]

Susie,

Thanks for this... it's good to know what my sister is up against.

Sandy

---------------

http://www.niddk.nih.gov/health/kidney/pubs/kustats/kustats.htm

[Guest guest]

Susie,

Thanks for this... it's good to know what my sister is up against.

Sandy

---------------

http://www.niddk.nih.gov/health/kidney/pubs/kustats/kustats.htm

[Guest guest]

Hello sandypaws5@...,

In reference to your comment:

ð I've read that the kind that patients take while they

ð sleep is not so disruptive, and patients don't feel so ill. 

ð I know that my sister goes to the hospital and is there

ð almost 4 hours.  She gets it Monday, Wednesday, and

ð Friday

Right, adn that's administered at home... etc...

btw i'm talking about hemodialysis, not peritoneal dialysis, this is new

this one is showing to be much better, much more like having functional

kidneys.

they've done periotineal dialisys for some people esp kids at home for years,

but the hemo at home while sleepign is relatively new, and showing great

promise, but to me the best promise is not having to need any.

[Guest guest]

Hello sandypaws5@...,

In reference to your comment:

ð I've read that the kind that patients take while they

ð sleep is not so disruptive, and patients don't feel so ill. 

ð I know that my sister goes to the hospital and is there

ð almost 4 hours.  She gets it Monday, Wednesday, and

ð Friday

Right, adn that's administered at home... etc...

btw i'm talking about hemodialysis, not peritoneal dialysis, this is new

this one is showing to be much better, much more like having functional

kidneys.

they've done periotineal dialisys for some people esp kids at home for years,

but the hemo at home while sleepign is relatively new, and showing great

promise, but to me the best promise is not having to need any.

[Guest guest]

Right, adn that's administered at home... etc...

btw i'm talking about hemodialysis, not peritoneal dialysis, this is new

this one is showing to be much better, much more like having functional

kidneys.

That's what my sister has, . She said they trained to do the at

home type, but it would have been too hard on my mom... she's in her 70's

and is my sister's major care giver. She can't do a lot , though. My

sister does hemodialysis at the hospital... she has an assistant who takes

her, but my mom goes with her for company.

Sandy

[Guest guest]

My father was on hemodialysis, then switched to peritoneal dialysis

for about 8 months before he died. He found that the peritoneal

dialysis was much less rough on his already very weakened system, and

gave him a lot more time and energy for other things. I had to learn

how to do the peritoneal dialysis as my mother's backup, so if anyone

has any questions, feel free to email me.

Dad hated the idea of going on dialysis, and probably waited too

long. He had many, many other health problems by the time he started

dialysis, too. But he did feel much better after he started dialysis

than before. He had gotten to the point that he couldn't even walk

across the room without running out of breath and needing to sit down

prior to dialysis, but after he started the home peritoneal dialysis

we took him out every weekend to yard sales, flea markets and antique

venues, something he loved to do and really missed. He even

travelled to visit relatives in other states, and just packed his

supplies along.

The statistics are really scary, and a big motivator to keep your

diabetes under control, but if any of you out there is avoiding

dialysis when they need it, you may be surprised at the quality of

life it can bring back to you.

Christy

> http://www.niddk.nih.gov/health/kidney/pubs/kustats/kustats.htm

>

> Dialysis survival rates:

>

> one year - 78.4 percent

> two years - 62.8 percent

> five years - 31.3 percent

> ten years - 8.7 percent

>

> Susie

[Guest guest]

My father was on hemodialysis, then switched to peritoneal dialysis

for about 8 months before he died. He found that the peritoneal

dialysis was much less rough on his already very weakened system, and

gave him a lot more time and energy for other things.

Christy,

That's what I've read....

I had to learn

how to do the peritoneal dialysis as my mother's backup, so if anyone

has any questions, feel free to email me.

My sister said she and my mom took training for the peritoneal dialysis,

but they decided it was too hard on my mom to do it. She's in her 70's, and

I live almost 3 hours away, so I can't do it.

Dad hated the idea of going on dialysis, and probably waited too

long. He had many, many other health problems by the time he started

dialysis, too. But he did feel much better after he started dialysis

than before. He had gotten to the point that he couldn't even walk

across the room without running out of breath and needing to sit down

prior to dialysis, but after he started the home peritoneal dialysis

we took him out every weekend to yard sales, flea markets and antique

venues, something he loved to do and really missed. He even

travelled to visit relatives in other states, and just packed his

supplies along.

That's so good that he was able to do some things that he loved before he

died.

Sandy