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In a message dated 5/27/2004 10:35:51 PM Pacific Standard Time,

spottedlee@... writes:

any

traveling trips with CI.

YIKE<,,,,,, i mean traveling TIPS!

Lee

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  • 3 years later...

I appreciate hearing how far you all have traveled to find a good

doctor and where you all are. My husband has enjoyed moving too much

and used to think we needed to move somewhere else for better care,

jobs, people.... Each time I read your posts (2 hours travel, 100+

miles, etc) I tell him and now he's settled to not moving. He can not

bear to see me be jacked around again, nor seeing me paralyzed in pain.

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Jeanette,

I used to live in Pasadena, California and I had great doctors all in

Pasadena. When me and my husband relocated to Denver, Colorado a fews

ago, it was harder to find good doctors. For some odd reason, doctors

here didn't beleive that I had RA and many think fibromyaglia is not a

disease. Eventually, through trial and error, I found some good

doctors who are willing to treat me. They are fairly close to where I

live, so I can't complain too bad. The only thing is that I haven't

been able to find is a good pain management doctor here.

The economy sucks balls here though...my husband has been out of work

since December and hasn't had much luck w/ finding a job. I had to

quit working because my RA/fibro went into overdrive. I am staying w/

my mom until I get approved for SSDI.

I wouldn't recommend moving to Colorado, the climate is too crazy and

the winters tend to make me flare-up worse then they did when I lived

in Southern California. I think I am the only person on this board

who is in Colorado. Take care.

>

> I appreciate hearing how far you all have traveled to find a good

> doctor and where you all are. My husband has enjoyed moving too

much

> and used to think we needed to move somewhere else for better care,

> jobs, people.... Each time I read your posts (2 hours travel, 100+

> miles, etc) I tell him and now he's settled to not moving. He can

not

> bear to see me be jacked around again, nor seeing me paralyzed in

pain.

>

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Good luck with your SSDI !! I finally got mine a

little over a year ago. I had been denied due to a

" clerical error " supposedly but retained an attorney

and then ended up winning. He was even able to get me

back pay for the entire 5 years my fight took. I

still find it impossible to believe they made a

clerical error since I did not pass their physicians

exams, have severe panic disorder with panic attacks

and generalized anxiety, FMS, MPS, cardiac issues, and

the RA. The person that had been in charge of my case

and my rehabilitation counselor had both said " oh you

look too good, you are young and educated. Try

working at Mcdonalds they hire disabled people! " I was

so angry! My specialists had filled out tons of forms

with my restrictions of not being able to even lift 10

lbs. I hope things go very smoothly for you! I

traveled to southern california a few years ago and I

felt miraculous for a few days (I'm in Michigan) but

when I go to Florida, I get very sick there. I'm not

sure if its the humidity there or what, but every time

I go I relapse:(

--- <man_u8@...> wrote:

> Jeanette,

>

> I used to live in Pasadena, California and I had

> great doctors all in

> Pasadena. When me and my husband relocated to

> Denver, Colorado a fews

> ago, it was harder to find good doctors. For some

> odd reason, doctors

> here didn't beleive that I had RA and many think

> fibromyaglia is not a

> disease. Eventually, through trial and error, I

> found some good

> doctors who are willing to treat me. They are

> fairly close to where I

> live, so I can't complain too bad. The only thing

> is that I haven't

> been able to find is a good pain management doctor

> here.

> The economy sucks balls here though...my husband has

> been out of work

> since December and hasn't had much luck w/ finding a

> job. I had to

> quit working because my RA/fibro went into

> overdrive. I am staying w/

> my mom until I get approved for SSDI.

> I wouldn't recommend moving to Colorado, the climate

> is too crazy and

> the winters tend to make me flare-up worse then they

> did when I lived

> in Southern California. I think I am the only

> person on this board

> who is in Colorado. Take care.

>

>

>

>

>

> >

> > I appreciate hearing how far you all have traveled

> to find a good

> > doctor and where you all are. My husband has

> enjoyed moving too

> much

> > and used to think we needed to move somewhere else

> for better care,

> > jobs, people.... Each time I read your posts (2

> hours travel, 100+

> > miles, etc) I tell him and now he's settled to not

> moving. He can

> not

> > bear to see me be jacked around again, nor seeing

> me paralyzed in

> pain.

> >

>

>

>

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