Re:SAM... KAREN AND OTHERS--KIDS WITH FMS

[Guest guest]

SAM.. STEVE DOESNT GO ONLINE MUCH ANYMORE, BUT I'LL TELL HIM ABOUT

COURTNEY, HON ! THANKS ! MY RHEUMY DIDNT WANT TO 'LABEL' HIM EITHER !!

HE SAID HE HAS MUSCLES THAT ARE EXTREMELY SENSITIVE TO PAIN !!! (HE HAD

A NAME FOR IT, BUT I CANT REMEMBER !) BUT THAT IT WILL PROBABLY LEAD TO

FMS !! STEVE INSISTS IT IS FMS, NOW !!! HE ALSO GETS MIGRAINES ! HAS FOR

YEARS !! 8^)

KAREN

COURTNEY WAS FINALLY DIAGNOSED IN THE PAST YEAR. WE HAVE BEEN TRYING TO

FIND OUT WHY SHE HAS BEEN HAVING " GROWING PAINS " (HER WORDS) FOR ALMOST

5 YEARS NOW. ONE DOCTOR WE SAW ABOUT TWO YEARS AGO (PEDIATRIC

RHEUMATOLOGIST) DIDN'T WANT TO " LABEL " COURTNEY WITH " SUCH A DISABLING

CONDITION THAT COULD AFFECT HER WHOLE LIFE " . WHEN HER CURRENT DOCTOR

SENT HER TO ANOTHER PEDIACTRIC RHEUMATOLOGIST, HE AGREED THAT COURTNEY

DOES HAVE FMS. SHE STILL COMES TO ME AND TELLS ME HER " GROWING PAINS

HURT "

SHE TAKES IBUPROFEN WHEN NEEDED. I AM SORRY TO HEAR ABOUT YOUR SON

HAVING IT ALSO.

IF HE EVER WANTS TO E-MAIL WITH COURTNEY JUST LET ME NOW, I THINK IT'S

GOOD FOR KIDS TO KNOW THEY ARE NOT THE ONLY ONE THEIR AGE WITH THIS DD.

HUGS

SAM