Re:KIM... Digest Number 1663

[Guest guest]

KIM... I DONT KNOW WHAT TO SAY, HON ! CFIDS & FMS ARE HARD TO DIAGNIOSE,

BUT THEY DO HAVE CERTAIN CRITERIA TO BE MET !! MAYBE IT IS SOMETHING

ELSE THAT IS WRONG WITH YOUR SON, HON ?? ANOTHER SOMETHING THAT IS HARD

TO DIAGNIOSE ? HAS HE BEEN TESTED FOR MONO ? EPSTIEN BARR ? NARCOLEPSY ?

ALLERGIES ? WHAT IS HE TAKING THAT HAS HELPED HIS FATIGUE ?! WE'RE NOT

DOCTORS HERE, BUT MOST OF US HAVE BEEN TO EVERY KIND OF DOC YOU CAN

IMAGINE !!!! MAYBE WITH ENOUGH INFO WE CAN STEER YA IN THE RIGHT

DIRECTION !!! 8^)

NOW, I HAVE A QUESTION. AS FAR AS I KNOW, MY SON DOES NOT HAVE THE ACHINESS OR SOME OF THE OTHER SYMPTOMS OF CFS. HIS MAIN THING IS THE EXHAUSTION AND FEELING UNWELL MOST OF THE TIME. NOW, HE DOES HAVE SOME OF THE SECONDARY THINGS LIKE A RINGING IN THE EARS, STOMACH PROBLEMS, HANDS AND FEET ARE ALWAYS COLD, ETC. I HAVE A FEELING THAT HE WOULD NOT BE DIAGNOSED BECAUSE OF NO SWELLING OR SORE THROAT. WHAT DO THEY DO THEN? EVEN THOUGH WE HAVE FOUND SOMETHING THAT HAS TRMENDOUSLY HELPED HIS FATIGUE, I STILL WANT A DR. WHO UNDERSTANDS WHAT HE IS GOING THROUGH. I AM SO GLAD THAT HE IS NOT AS BAD AS BEFORE. BUT WE STILL HAVE NO DIAGNOSIS.

KIM

THE RHEUMY WILL DO A TRIGGER POINT TEST, WHERE THEY PRESS AREAS AROUND YOUR BODY TO DETERMINE IF YOU HAVE LUMPS/SWELLINGS IN THE TRIGGER POINT AREAS. IF NOT, IT ISN'T FIBRO OR CFS (CFIDS). YOU SHOULD ALSO ASK FOR A LUPUS TEST. THIS IS A BLOOD TEST, THOUGH YOU HAVE TO BE IN FLARE FOR IT TO SHOW UP. SOUNDS LIKE YOU ARE IN FLARE THOUGH, SO IT SHOULD SHOW IF IT IS THAT. IF THESE TESTS ARE NEGATIVE, THEN YOU HAVE AT LEAST RULED THEM OUT AND THEY CAN TEST YOU FOR OTHER THINGS. BUT DEMAND TESTS UNTIL THEY DO FIGURE OUT WHAT YOU HAVE. YOUR HEALTH IS TOO IMPORTANT, AND THE SOONER YOU KNOW WHAT YOU HAVE, THE BETTER CHANCE YOU HAVE OF DOING SOMETHING ABOUT IT BEFORE IT GETS WORSE.