Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 , When I was on Remicade I could do all the old things that I hadn't been able to do for years and I had no side effects I was on it for over a year untill my husband got cancer and I had to leave my job to take care of him and lost my insurance I sure thought it was worth it. <iMarzz@...> wrote: Just wondering if any of you who have taken Remicade thought the improvement in your symptoms was worth the risks of the drug? I am awaiting insurance approval and then will be scheduled for my first dose. Thanks --------------------------------- Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Hi ...I was on Remicade for a few months and it worked quickly but then stopped working, so doses were increased fairly rapidly. But after about 3 months I developed a serious and stubborn pneumonia my rheumy thought was directly related to my lowered immune system with Remicade. So, I had to go off and could not go back on. I know our immune systems are altered while on biologics so I suppose this could happen while being on any. I wish you all the best! Cheryle -- " The path before all of us sometimes is strewn with shards of glass and this world does not always provide strong, protective shoes. So as the poem " Footprints " says, God will carry me, when I cannot carry myself. He loves me enough to do that for me...I surrender this struggle and am crawling up into His arms. " ~ CJB, 1/14/2008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Yes and no. I only had 2 infusions. It took my RD at the time almost 2 years to talk me into taking Remicade. I finally caved out of desperation and had problems during my infusion...trouble catching my breath. They thought it might have been panic attacks, which I have been known to do. Aftwards I felt GREAT! I could " jog " up the stairs, it was a God send. Then the second infusion, I had the same trouble with my breathing. Mind you I was ready to take more of it, so it wasn't anxiety. The next morning after the second infusion, I couldn't move. I forgot the explanation, but to that point I had never been in so much pain and I wasn't going to have any more of it. When sitting during infusions, I talked with ladies who had been on it for ages. The one lady didn't have a reaction until she had been on it for 11 months, she had a horrible rash, but apparently that didn't deter her. Most have no problems. Obviously you need to be informed, but you have to realize (and I am guilty of panicking about side effects that effect .0001 of the population) that the percentage of HORRIBLE reactions are almost nill. However, they can happen. Shandi <iMarzz@...> wrote: Just wondering if any of you who have taken Remicade thought the improvement in your symptoms was worth the risks of the drug? I am awaiting insurance approval and then will be scheduled for my first dose. Thanks --------------------------------- Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 , Every drug has risk. I have been on Remicade for a year. It has helped me massively. It took my major pain away. I was still having a some trouble, so we just added Ariva and an NSAID to my MTX and Remicade. It has been worth it too me. Honestly, I'm more worried about the NSAID and the ulcer risk. I want to climb a mountain! Kate G Hashi's AS At 09:15 AM 2/20/2008, you wrote: >Just wondering if any of you who have taken Remicade thought the >improvement in your symptoms was worth the risks of the drug? > >I am awaiting insurance approval and then will be scheduled for my >first dose. > >Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 , It was like a difference between night and day in how I felt. After my 1st infusion...I felt back to my old self, went jogging since I felt like I had in months. Needless to say, is that I overdid it and was sore the next day. I learned I had to do things in moderation...but I loved being on remicade. I was on it for about 3 years. (I relocated to another state) and my new rheumatologist didn't think I needed it. I wish I could get back on it, but since I don't have health insurance...I am at the mercy of the indigent care program at the local general hospital. I don't remember having any side effects, I just remember being able to get out of bed and not have to take a few hours to " warm up " . I would encourage you to at least try it. I was never on enbrel or humaira and I was on methatrexate then arava when I was on remicade. Hope it all works out for you. > > Just wondering if any of you who have taken Remicade thought the > improvement in your symptoms was worth the risks of the drug? > > I am awaiting insurance approval and then will be scheduled for my > first dose. > > Thanks > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.