Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 I am just curious as to how everyone out there handles the rude comments from strangers. My daughter Ally is now 3 and in a kid kart (wheelchair stroller) - she has neurological problems so her handicaps are very obvious. She is also the light of my life and my greatest blessing. If someone asks me " whats wrong with her " I try to see it as a opportunity to educate about CHARGE Syndrome. But the thing I cannot take is " oh isn't IT pitiful " - I want to scream!!! I have spent the last 3 years getting over the anger and the bitter feelings inside of me because of Ally's problems - I finally feel like I have total acceptance of what was dealt to me only to have people whisper as we stroll by " oh how sad - how pitiful " SHE IS NOT PITIFUL. I want to chase them down and tell them how she goes to pool therapy and loves to swim and ride horses and not to feel sorry for me. I am happy and so is she. I guess it is frustrating to know how much time we have invested into making every minute of her life the best we can and yet the outside world still shes her as " pitiful " . This seems to be happening EVERY time we go some where! Robin mom to Ally 3 1/2 yr CHARGE Cerebal Palsy microcephaly seizures BRISTOL VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 I am just curious as to how everyone out there handles the rude comments from strangers. My daughter Ally is now 3 and in a kid kart (wheelchair stroller) - she has neurological problems so her handicaps are very obvious. She is also the light of my life and my greatest blessing. If someone asks me " whats wrong with her " I try to see it as a opportunity to educate about CHARGE Syndrome. But the thing I cannot take is " oh isn't IT pitiful " - I want to scream!!! I have spent the last 3 years getting over the anger and the bitter feelings inside of me because of Ally's problems - I finally feel like I have total acceptance of what was dealt to me only to have people whisper as we stroll by " oh how sad - how pitiful " SHE IS NOT PITIFUL. I want to chase them down and tell them how she goes to pool therapy and loves to swim and ride horses and not to feel sorry for me. I am happy and so is she. I guess it is frustrating to know how much time we have invested into making every minute of her life the best we can and yet the outside world still shes her as " pitiful " . This seems to be happening EVERY time we go some where! Robin mom to Ally 3 1/2 yr CHARGE Cerebal Palsy microcephaly seizures BRISTOL VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Robin, Even thought I cannot relate to what you are going through I can still understand. I am sorry that there are such rude people out there.... Maybe when they say that you just tell them straight up she is not pitiful, be is beautiful, tell them what's pitiful is that you have not had the wonderful experience of having her in your life like I have. There are so many people out there when they see a special little girl like Ally they have no clue how to react so they do or say the first thing that comes to their mind and it usually comes out rude. And then there are those that just are plain rude. We can probably best deal with it by letting comments like that either slide by or come back with a more positive reaction. Most people are full of negativity and then project it as well, when you react to a negative situation with positive actions you are sure to either get no response or a positive one back. Good luck and I am sorry people hurt you like that. Take care. Hugs Kris - Mommy to (Austin - Aug 23, 1999 - Sept 22, 1999 CHARGE) -16, ie - 14, - 13, new baby due in July Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Robin, Even thought I cannot relate to what you are going through I can still understand. I am sorry that there are such rude people out there.... Maybe when they say that you just tell them straight up she is not pitiful, be is beautiful, tell them what's pitiful is that you have not had the wonderful experience of having her in your life like I have. There are so many people out there when they see a special little girl like Ally they have no clue how to react so they do or say the first thing that comes to their mind and it usually comes out rude. And then there are those that just are plain rude. We can probably best deal with it by letting comments like that either slide by or come back with a more positive reaction. Most people are full of negativity and then project it as well, when you react to a negative situation with positive actions you are sure to either get no response or a positive one back. Good luck and I am sorry people hurt you like that. Take care. Hugs Kris - Mommy to (Austin - Aug 23, 1999 - Sept 22, 1999 CHARGE) -16, ie - 14, - 13, new baby due in July Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Hi Robin, Guess what? To some extent it will never go away. Even though I've worked full time in the past for many years, gone to college, had many accomplishments, I still get it sometimes. Sometimes its just when a person comes by and pats you on the arm like you are a dog and you know they are thinking, poor thing, but other times they really say it. Its hard but you get to the point where you just have to feel sorry for them because they don't understand. Kay Re: RUDE PEOPLE > I am just curious as to how everyone out there handles the rude comments from > strangers. My daughter Ally is now 3 and in a kid kart (wheelchair stroller) > - she has neurological problems so her handicaps are very obvious. She is > also the light of my life and my greatest blessing. If someone asks me > " whats wrong with her " I try to see it as a opportunity to educate about > CHARGE Syndrome. But the thing I cannot take is " oh isn't IT pitiful " - I > want to scream!!! I have spent the last 3 years getting over the anger and > the bitter feelings inside of me because of Ally's problems - I finally feel > like I have total acceptance of what was dealt to me only to have people > whisper as we stroll by " oh how sad - how pitiful " SHE IS NOT PITIFUL. I > want to chase them down and tell them how she goes to pool therapy and loves > to swim and ride horses and not to feel sorry for me. I am happy and so is > she. I guess it is frustrating to know how much time we have invested into > making every minute of her life the best we can and yet the outside world > still shes her as " pitiful " . This seems to be happening EVERY time we go > some where! > > Robin mom to Ally 3 1/2 yr CHARGE Cerebal Palsy microcephaly seizures > BRISTOL VA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Hi Robin, Guess what? To some extent it will never go away. Even though I've worked full time in the past for many years, gone to college, had many accomplishments, I still get it sometimes. Sometimes its just when a person comes by and pats you on the arm like you are a dog and you know they are thinking, poor thing, but other times they really say it. Its hard but you get to the point where you just have to feel sorry for them because they don't understand. Kay Re: RUDE PEOPLE > I am just curious as to how everyone out there handles the rude comments from > strangers. My daughter Ally is now 3 and in a kid kart (wheelchair stroller) > - she has neurological problems so her handicaps are very obvious. She is > also the light of my life and my greatest blessing. If someone asks me > " whats wrong with her " I try to see it as a opportunity to educate about > CHARGE Syndrome. But the thing I cannot take is " oh isn't IT pitiful " - I > want to scream!!! I have spent the last 3 years getting over the anger and > the bitter feelings inside of me because of Ally's problems - I finally feel > like I have total acceptance of what was dealt to me only to have people > whisper as we stroll by " oh how sad - how pitiful " SHE IS NOT PITIFUL. I > want to chase them down and tell them how she goes to pool therapy and loves > to swim and ride horses and not to feel sorry for me. I am happy and so is > she. I guess it is frustrating to know how much time we have invested into > making every minute of her life the best we can and yet the outside world > still shes her as " pitiful " . This seems to be happening EVERY time we go > some where! > > Robin mom to Ally 3 1/2 yr CHARGE Cerebal Palsy microcephaly seizures > BRISTOL VA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Robin, I too, get very angry and I am still in a bitter place once in a while. I don't mind telling you that I enjoy confusing and embarrassing them a little bit if they are outright rude (I know God forgives me for an occassional slip up and it really does make me feel better). I had a woman in the ENT clinic one time stare at us for a long time and whisper to her friend and then she asked me what was wrong with Aubrey, and what that thing was in her neck (her trach). This was back when Aubrey used to aspirate saliva with every breath. I said its called a tracheostomy, and she can't swallow so she is breathing her saliva. She said " can't swallow? " how does she eat? And I just said " she doesn't " . The look on their faces was priceless and I left them there in confusion. I don't feel it's my responsibility to educate every socially challenged person that I encounter. Your Ally is a blessing and what is pitiful is some people's lack of social grace. I hope eventually to be able to let those comments just slide by, but in the meantime, quick wit comes in handy. I think Kay is right, it isn't going to go away. Fortunately there are plenty of people who are just genuinely curious and know how to ask without being rude. Hang in there!! , mom to Ian and Aubrey (charge), wife to Bradley RobinAlanT@... wrote: I am just curious as to how everyone out there handles the rude comments from strangers. My daughter Ally is now 3 and in a kid kart (wheelchair stroller) - she has neurological problems so her handicaps are very obvious. She is also the light of my life and my greatest blessing. If someone asks me " whats wrong with her " I try to see it as a opportunity to educate about CHARGE Syndrome. But the thing I cannot take is " oh isn't IT pitiful " - I want to scream!!! I have spent the last 3 years getting over the anger and the bitter feelings inside of me because of Ally's problems - I finally feel like I have total acceptance of what was dealt to me only to have people whisper as we stroll by " oh how sad - how pitiful " SHE IS NOT PITIFUL. I want to chase them down and tell them how she goes to pool therapy and loves to swim and ride horses and not to feel sorry for me. I am happy and so is she. I guess it is frustrating to know how much time we have invested into making every minute of her life the best we can and yet the outside world still shes her as " pitiful " . This seems to be happening EVERY time we go some where! Robin mom to Ally 3 1/2 yr CHARGE Cerebal Palsy microcephaly seizures BRISTOL VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Robin, I too, get very angry and I am still in a bitter place once in a while. I don't mind telling you that I enjoy confusing and embarrassing them a little bit if they are outright rude (I know God forgives me for an occassional slip up and it really does make me feel better). I had a woman in the ENT clinic one time stare at us for a long time and whisper to her friend and then she asked me what was wrong with Aubrey, and what that thing was in her neck (her trach). This was back when Aubrey used to aspirate saliva with every breath. I said its called a tracheostomy, and she can't swallow so she is breathing her saliva. She said " can't swallow? " how does she eat? And I just said " she doesn't " . The look on their faces was priceless and I left them there in confusion. I don't feel it's my responsibility to educate every socially challenged person that I encounter. Your Ally is a blessing and what is pitiful is some people's lack of social grace. I hope eventually to be able to let those comments just slide by, but in the meantime, quick wit comes in handy. I think Kay is right, it isn't going to go away. Fortunately there are plenty of people who are just genuinely curious and know how to ask without being rude. Hang in there!! , mom to Ian and Aubrey (charge), wife to Bradley RobinAlanT@... wrote: I am just curious as to how everyone out there handles the rude comments from strangers. My daughter Ally is now 3 and in a kid kart (wheelchair stroller) - she has neurological problems so her handicaps are very obvious. She is also the light of my life and my greatest blessing. If someone asks me " whats wrong with her " I try to see it as a opportunity to educate about CHARGE Syndrome. But the thing I cannot take is " oh isn't IT pitiful " - I want to scream!!! I have spent the last 3 years getting over the anger and the bitter feelings inside of me because of Ally's problems - I finally feel like I have total acceptance of what was dealt to me only to have people whisper as we stroll by " oh how sad - how pitiful " SHE IS NOT PITIFUL. I want to chase them down and tell them how she goes to pool therapy and loves to swim and ride horses and not to feel sorry for me. I am happy and so is she. I guess it is frustrating to know how much time we have invested into making every minute of her life the best we can and yet the outside world still shes her as " pitiful " . This seems to be happening EVERY time we go some where! Robin mom to Ally 3 1/2 yr CHARGE Cerebal Palsy microcephaly seizures BRISTOL VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 > get to the point where you just have to feel sorry for them because they > don't understand. Well put! Yes, I do feel sorry for them when they make comments like that. Chantelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Ok, normaly I advocate kind responces, but if someone is beeing down right rude and nasty then you can say in responce to wahts wrong with her: " She seems perfectly normal to me " and just walk away. Chantelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Ok, normaly I advocate kind responces, but if someone is beeing down right rude and nasty then you can say in responce to wahts wrong with her: " She seems perfectly normal to me " and just walk away. Chantelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Re: RUDE PEOPLE > Ok, normaly I advocate kind responces, but if someone is beeing down > right rude and nasty then you can say in responce to wahts wrong with > her: " She seems perfectly normal to me " and just walk away. > > Chantelle > > Good one Chantelle!> Here's another retort: " Why would you ask something so personal and insulting??? " > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Re: RUDE PEOPLE > Ok, normaly I advocate kind responces, but if someone is beeing down > right rude and nasty then you can say in responce to wahts wrong with > her: " She seems perfectly normal to me " and just walk away. > > Chantelle > > Good one Chantelle!> Here's another retort: " Why would you ask something so personal and insulting??? " > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Robin, People are RUDE ! Their ignorance blinds them to the fact that our children brings us as much if not more joy as their children does them. We are all very proud of our children and I'm very sorry that you are encountering such foolish people. Leisa ( 's Mom ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Robin, People are RUDE ! Their ignorance blinds them to the fact that our children brings us as much if not more joy as their children does them. We are all very proud of our children and I'm very sorry that you are encountering such foolish people. Leisa ( 's Mom ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Robin, People are RUDE ! Their ignorance blinds them to the fact that our children brings us as much if not more joy as their children does them. We are all very proud of our children and I'm very sorry that you are encountering such foolish people. Leisa ( 's Mom ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 I just tell them I would not change him or the experience for the world (I am sure you all know if I could make my child well I would) http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 I just tell them I would not change him or the experience for the world (I am sure you all know if I could make my child well I would) http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 I just tell them I would not change him or the experience for the world (I am sure you all know if I could make my child well I would) http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 it drives me CRAZY when people say poor baby how can you do this to him I always say 1st of all yes he is a baby and he does NOT know life any differnt 2nd what the heck do they mean how can I do this to him (usually about suctioning him) well he is kinda fond of breathing (although you wouldnt know it by the last couple days) but I tend to be an a@# whole when I get mad hehe http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 it drives me CRAZY when people say poor baby how can you do this to him I always say 1st of all yes he is a baby and he does NOT know life any differnt 2nd what the heck do they mean how can I do this to him (usually about suctioning him) well he is kinda fond of breathing (although you wouldnt know it by the last couple days) but I tend to be an a@# whole when I get mad hehe http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 HI, i know what you mean i HATE it when people feel sorry for me. I like the way my friends and other perople treat me like i dont have a disability, and they only mention it if they have to (etc if i need lecture notes cause i cant see) I was talking to a friend the other day and anyway i get free public transport because im vision impaired (which i gues sis kind of fair but really public trasport is cheaper then driving) and at uni i can get in to whatever tute i want becuase i have a disabliity and i purposly dont use my disability to that advantage becuase its stupid i was telling my friend how i get free p/trasnport and she was loike thast stupid thers nothing wrong with you, and i guess i just liked the way she said it because i hate it when people feel sorry for you Belinda Re: RUDE PEOPLE > > > > I am just curious as to how everyone out there handles the rude comments > from > > strangers. My daughter Ally is now 3 and in a kid kart (wheelchair > stroller) > > - she has neurological problems so her handicaps are very obvious. She is > > also the light of my life and my greatest blessing. If someone asks me > > " whats wrong with her " I try to see it as a opportunity to educate about > > CHARGE Syndrome. But the thing I cannot take is " oh isn't IT itiful " - > I > > want to scream!!! I have spent the last 3 years getting over the anger > and > > the bitter feelings inside of me because of Ally's problems - I finally > feel > > like I have total acceptance of what was dealt to me only to have people > > whisper as we stroll by " oh how sad - how pitiful " SHE IS NOT PITIFUL. I > > want to chase them down and tell them how she goes to pool therapy and > loves > > to swim and ride horses and not to feel sorry for me. I am happy and so is > > she. I guess it is frustrating to know how much time we have invested > into > > making every minute of her life the best we can and yet the outside world > > still shes her as " pitiful " . This seems to be happening EVERY time we go > > some where! > > > > Robin mom to Ally 3 1/2 yr CHARGE Cerebal Palsy microcephaly seizures > > BRISTOL VA > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 HI, i know what you mean i HATE it when people feel sorry for me. I like the way my friends and other perople treat me like i dont have a disability, and they only mention it if they have to (etc if i need lecture notes cause i cant see) I was talking to a friend the other day and anyway i get free public transport because im vision impaired (which i gues sis kind of fair but really public trasport is cheaper then driving) and at uni i can get in to whatever tute i want becuase i have a disabliity and i purposly dont use my disability to that advantage becuase its stupid i was telling my friend how i get free p/trasnport and she was loike thast stupid thers nothing wrong with you, and i guess i just liked the way she said it because i hate it when people feel sorry for you Belinda Re: RUDE PEOPLE > > > > I am just curious as to how everyone out there handles the rude comments > from > > strangers. My daughter Ally is now 3 and in a kid kart (wheelchair > stroller) > > - she has neurological problems so her handicaps are very obvious. She is > > also the light of my life and my greatest blessing. If someone asks me > > " whats wrong with her " I try to see it as a opportunity to educate about > > CHARGE Syndrome. But the thing I cannot take is " oh isn't IT itiful " - > I > > want to scream!!! I have spent the last 3 years getting over the anger > and > > the bitter feelings inside of me because of Ally's problems - I finally > feel > > like I have total acceptance of what was dealt to me only to have people > > whisper as we stroll by " oh how sad - how pitiful " SHE IS NOT PITIFUL. I > > want to chase them down and tell them how she goes to pool therapy and > loves > > to swim and ride horses and not to feel sorry for me. I am happy and so is > > she. I guess it is frustrating to know how much time we have invested > into > > making every minute of her life the best we can and yet the outside world > > still shes her as " pitiful " . This seems to be happening EVERY time we go > > some where! > > > > Robin mom to Ally 3 1/2 yr CHARGE Cerebal Palsy microcephaly seizures > > BRISTOL VA > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 HI, i know what you mean i HATE it when people feel sorry for me. I like the way my friends and other perople treat me like i dont have a disability, and they only mention it if they have to (etc if i need lecture notes cause i cant see) I was talking to a friend the other day and anyway i get free public transport because im vision impaired (which i gues sis kind of fair but really public trasport is cheaper then driving) and at uni i can get in to whatever tute i want becuase i have a disabliity and i purposly dont use my disability to that advantage becuase its stupid i was telling my friend how i get free p/trasnport and she was loike thast stupid thers nothing wrong with you, and i guess i just liked the way she said it because i hate it when people feel sorry for you Belinda Re: RUDE PEOPLE > > > > I am just curious as to how everyone out there handles the rude comments > from > > strangers. My daughter Ally is now 3 and in a kid kart (wheelchair > stroller) > > - she has neurological problems so her handicaps are very obvious. She is > > also the light of my life and my greatest blessing. If someone asks me > > " whats wrong with her " I try to see it as a opportunity to educate about > > CHARGE Syndrome. But the thing I cannot take is " oh isn't IT itiful " - > I > > want to scream!!! I have spent the last 3 years getting over the anger > and > > the bitter feelings inside of me because of Ally's problems - I finally > feel > > like I have total acceptance of what was dealt to me only to have people > > whisper as we stroll by " oh how sad - how pitiful " SHE IS NOT PITIFUL. I > > want to chase them down and tell them how she goes to pool therapy and > loves > > to swim and ride horses and not to feel sorry for me. I am happy and so is > > she. I guess it is frustrating to know how much time we have invested > into > > making every minute of her life the best we can and yet the outside world > > still shes her as " pitiful " . This seems to be happening EVERY time we go > > some where! > > > > Robin mom to Ally 3 1/2 yr CHARGE Cerebal Palsy microcephaly seizures > > BRISTOL VA > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 hahaha thats funny Belinda Re: Re: RUDE PEOPLE > > Robin, > I too, get very angry and I am still in a bitter place once in a while. I don't mind telling you that I enjoy confusing and embarrassing them a little bit if they are outright rude (I know God forgives me for an occassional slip up and it really does make me feel better). I had a woman in the ENT clinic one time stare at us for a long time and whisper to her friend and then she asked me what was wrong with Aubrey, and what that thing was in her neck (her trach). This was back when Aubrey used to aspirate saliva with every breath. I said its called a tracheostomy, and she can't swallow so she is breathing her saliva. She said " can't swallow? " how does she eat? And I just said " she doesn't " . The look on their faces was priceless and I left them there in confusion. I don't feel it's my responsibility to educate every socially challenged person that I encounter. > Your Ally is a blessing and what is pitiful is some people's lack of social grace. I hope eventually to be able to let those comments just slide by, but in the meantime, quick wit comes in handy. I think Kay is right, it isn't going to go away. Fortunately there are plenty of people who are just genuinely curious and know how to ask without being rude. Hang in there!! > , mom to Ian and Aubrey (charge), wife to Bradley > RobinAlanT@... wrote: I am just curious as to how everyone out there handles the rude comments from > strangers. My daughter Ally is now 3 and in a kid kart (wheelchair stroller) > - she has neurological problems so her handicaps are very obvious. She is > also the light of my life and my greatest blessing. If someone asks me > " whats wrong with her " I try to see it as a opportunity to educate about > CHARGE Syndrome. But the thing I cannot take is " oh isn't IT pitiful " - I > want to scream!!! I have spent the last 3 years getting over the anger and > the bitter feelings inside of me because of Ally's problems - I finally feel > like I have total acceptance of what was dealt to me only to have people > whisper as we stroll by " oh how sad - how pitiful " SHE IS NOT PITIFUL. I > want to chase them down and tell them how she goes to pool therapy and loves > to swim and ride horses and not to feel sorry for me. I am happy and so is > she. I guess it is frustrating to know how much time we have invested into > making every minute of her life the best we can and yet the outside world > still shes her as " pitiful " . This seems to be happening EVERY time we go > some where! > > Robin mom to Ally 3 1/2 yr CHARGE Cerebal Palsy microcephaly seizures > BRISTOL VA > > > Quote Link to comment Share on other sites More sharing options...
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