Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 hahaha thats funny Belinda Re: Re: RUDE PEOPLE > > Robin, > I too, get very angry and I am still in a bitter place once in a while. I don't mind telling you that I enjoy confusing and embarrassing them a little bit if they are outright rude (I know God forgives me for an occassional slip up and it really does make me feel better). I had a woman in the ENT clinic one time stare at us for a long time and whisper to her friend and then she asked me what was wrong with Aubrey, and what that thing was in her neck (her trach). This was back when Aubrey used to aspirate saliva with every breath. I said its called a tracheostomy, and she can't swallow so she is breathing her saliva. She said " can't swallow? " how does she eat? And I just said " she doesn't " . The look on their faces was priceless and I left them there in confusion. I don't feel it's my responsibility to educate every socially challenged person that I encounter. > Your Ally is a blessing and what is pitiful is some people's lack of social grace. I hope eventually to be able to let those comments just slide by, but in the meantime, quick wit comes in handy. I think Kay is right, it isn't going to go away. Fortunately there are plenty of people who are just genuinely curious and know how to ask without being rude. Hang in there!! > , mom to Ian and Aubrey (charge), wife to Bradley > RobinAlanT@... wrote: I am just curious as to how everyone out there handles the rude comments from > strangers. My daughter Ally is now 3 and in a kid kart (wheelchair stroller) > - she has neurological problems so her handicaps are very obvious. She is > also the light of my life and my greatest blessing. If someone asks me > " whats wrong with her " I try to see it as a opportunity to educate about > CHARGE Syndrome. But the thing I cannot take is " oh isn't IT pitiful " - I > want to scream!!! I have spent the last 3 years getting over the anger and > the bitter feelings inside of me because of Ally's problems - I finally feel > like I have total acceptance of what was dealt to me only to have people > whisper as we stroll by " oh how sad - how pitiful " SHE IS NOT PITIFUL. I > want to chase them down and tell them how she goes to pool therapy and loves > to swim and ride horses and not to feel sorry for me. I am happy and so is > she. I guess it is frustrating to know how much time we have invested into > making every minute of her life the best we can and yet the outside world > still shes her as " pitiful " . This seems to be happening EVERY time we go > some where! > > Robin mom to Ally 3 1/2 yr CHARGE Cerebal Palsy microcephaly seizures > BRISTOL VA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 hahaha thats funny Belinda Re: Re: RUDE PEOPLE > > Robin, > I too, get very angry and I am still in a bitter place once in a while. I don't mind telling you that I enjoy confusing and embarrassing them a little bit if they are outright rude (I know God forgives me for an occassional slip up and it really does make me feel better). I had a woman in the ENT clinic one time stare at us for a long time and whisper to her friend and then she asked me what was wrong with Aubrey, and what that thing was in her neck (her trach). This was back when Aubrey used to aspirate saliva with every breath. I said its called a tracheostomy, and she can't swallow so she is breathing her saliva. She said " can't swallow? " how does she eat? And I just said " she doesn't " . The look on their faces was priceless and I left them there in confusion. I don't feel it's my responsibility to educate every socially challenged person that I encounter. > Your Ally is a blessing and what is pitiful is some people's lack of social grace. I hope eventually to be able to let those comments just slide by, but in the meantime, quick wit comes in handy. I think Kay is right, it isn't going to go away. Fortunately there are plenty of people who are just genuinely curious and know how to ask without being rude. Hang in there!! > , mom to Ian and Aubrey (charge), wife to Bradley > RobinAlanT@... wrote: I am just curious as to how everyone out there handles the rude comments from > strangers. My daughter Ally is now 3 and in a kid kart (wheelchair stroller) > - she has neurological problems so her handicaps are very obvious. She is > also the light of my life and my greatest blessing. If someone asks me > " whats wrong with her " I try to see it as a opportunity to educate about > CHARGE Syndrome. But the thing I cannot take is " oh isn't IT pitiful " - I > want to scream!!! I have spent the last 3 years getting over the anger and > the bitter feelings inside of me because of Ally's problems - I finally feel > like I have total acceptance of what was dealt to me only to have people > whisper as we stroll by " oh how sad - how pitiful " SHE IS NOT PITIFUL. I > want to chase them down and tell them how she goes to pool therapy and loves > to swim and ride horses and not to feel sorry for me. I am happy and so is > she. I guess it is frustrating to know how much time we have invested into > making every minute of her life the best we can and yet the outside world > still shes her as " pitiful " . This seems to be happening EVERY time we go > some where! > > Robin mom to Ally 3 1/2 yr CHARGE Cerebal Palsy microcephaly seizures > BRISTOL VA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 yeah sometiems it depends i mean sometimes someone might actually be interested and they are not being mean, I was on the bus a few weeks ago when these two twelve year old girls just started asking me what waws wrong with my eye and if i can hear etc, i didnt mind answering them becuase they were interested they werent being mean abou it Belinda Re: RUDE PEOPLE > Ok, normaly I advocate kind responces, but if someone is beeing down > right rude and nasty then you can say in responce to wahts wrong with > her: " She seems perfectly normal to me " and just walk away. > > Chantelle > > > > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 yeah sometiems it depends i mean sometimes someone might actually be interested and they are not being mean, I was on the bus a few weeks ago when these two twelve year old girls just started asking me what waws wrong with my eye and if i can hear etc, i didnt mind answering them becuase they were interested they werent being mean abou it Belinda Re: RUDE PEOPLE > Ok, normaly I advocate kind responces, but if someone is beeing down > right rude and nasty then you can say in responce to wahts wrong with > her: " She seems perfectly normal to me " and just walk away. > > Chantelle > > > > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
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