Re: Newly Diagnosed and Scared

[Guest guest]

jla31459 <jauerbach@...> wrote:

looking for alternative treatmentI am also diabetic, can anyone help? I'm currently taking milk thistle, liver-rite,olive leaf, lipoic acid and artichokewould like any info on meso silverThanks,Jane

[Guest guest]

Ms. Newly,

There seems to be as many treatments for PA as theris people that have

it. I am sure that some of the more " natural " treatments could be an

alternative for you, however, please try keep an open mind about the

more usual medical protocols. With this disease, it seems that what

works wonderfully for one person, does nothing for another. Your

antidote could lie in either field, so you may end up trying more than

one approach to find one that works for you. In any case, it should be

something that you are comfortable with and can live with, otherwise

your anxiety will likely cause more problems than the PA.

Stay Well,

[Guest guest]

Welcome Ms. Newly Diagnosed,

I know all too well the trails of trying to get a diagnosis. My psoriasis began

around the age of 11 or 12 years old. However, I only thought it was dandruff

being a child at the time didn't think anything of a small patch of Psoriasis at

the nape of my neck, between the nape and the scalp. Years later, about 15 yrs

old I injured my ankle and everything went downhill from there. Began having

pains in my feet, ankles, toes, knees, elbows, shoulders, hips, wrists, fingers.

You name it. Little did I know it was PA. What my parents primary doc thought

was a minor foot injury ended up bieng a ruptured tendon. Not even sure how it

happened to be honest. We could never pinpoint the time that the injury

occurred. We put surgery off for a year and a half trying alter. to surgery but

nothing helped. When the specialist finally got me to go for surgery he said the

tendon had actually ruptured in half and they had no way to know by the mri

films. Ok fast forward from 15 when the onset of pain started I began to see a

rheumy, four years and no diagnosis. So I decided to find another one. He was

not being very helpful. I was on anti-imflammatories for all that time. I was

now 21, and in dire pain, family would have to help me out of bed every day. I

worked retail I really do not know how I even made it everyday to be honest. I

know a little about what you mean with the pain and what it's like to be on your

feet all day. On the very first vist the doc pretty much told me I had PA, I

showed her the Psoriasis which had spread all over my scalp by this time and in

my ear canals, behind my ears it was terrible. I had patches on my back, on my

legs on my arms. Not nearly as bad as what was in my scalp but that had been

there since I was 11 or 12. She waited for labs to confirm but she told me she

was pretty sure I had PA. Said at first when she read my chart she thought I may

have Fibro but after meeting me and examing me she knew it was Pa. I was in so

much pain I was ready for anything to take it away. If the homeopathic stuff is

working for you then go for it. But from the sounds of it you seem to be in a

lot of pain still. The pain of PA is nothing to joke about. That's one thing we

all know about here. One of the important things is stopping the progression of

the joint and soft tissue damage. If you don't want to go on the drugs to do

that then the pain may only get worse. I didn't go on Methotrexate, I was on

Sulfasalize. My doctor never even considered Methotrexate for me. She said

because I am of child bearing age and it can cause birth defects, ect. I went on

Enbrel back in I think Jan 2003 with combo of Sulfasalizine and Vioxx till it

was taken from the market. Six months after starting Enbrel my labs were finally

back in the nomal limits and I was able to come off of the Sulfasalize which I

had been on for nearly 5 years. I am now on Enbel and Mobic and my Pain of PA is

controlled pretty well until I get sick that is and have to stop my Enbrel. My

disease hasn't worsened and to me that means a lot more than anything else I can

think of. At the age of 27, I can walk without a limp. My friends and family

used to call me " Crip " . Short for cripple, when I was a teen and young adult

before getting on treatment that was controlling the PA. Now they don't call me

that but it's still there in the back of your head. It didn't really even bother

me then but now I think about it and was like that's not very nice. How long

have you done homeopathic? What all have they told you to try thus far? I'm

intrested to know, i have a friend with PA who lives in Canada and she's looking

into the same thing. He of course told her that he knows he can cure her. She is

skeptical as am I. She has also tried the medical treatments and they have not

worked thus far and her insurance will not pay for the biologics yet. Two more

treatments have to fail her first. Sorry to be so long winded here. The last

month or so my scalp has flared up on me and last night soaked my scalp with

Epiylt lotion Concentrate. Atleast that feels better today. I hope you find some

helpful info her. Again sorry for going on and on. lol! Good luck with which

ever treatments you decide to go with, different things work for different

people.

Keli

>

> Hi all. Ms. newly diagnosed here and probably in denial ( which ain't just a

river in Egypt) I have had psoriosis since age 13 am now 45. Slow progressive

pain in joints and muscles from my neck,shoulders,elbows,hands,wrists,spine, and

hips over the last 4 years. All blood work normal. Rhum. doc could'nt feel or

see any inflammation in joints. I told her i've had psor since 13 she than got

on it with a scan of my sacrol iliac joints and confirmed inflammation in these

joints and diagnosed me with PA. She called me with the findings and said she

found inflammation and needed to start me on a med right away called

methotrxate.I was freaked and said whoa stop the presses! i know what this drug

is cause my mom has RA and she was on this drug a very short time and developed

another autoimmune disease called TTP. A very nasty blood platelet disease. i

think there is a corrulation with using methotrxate and developing the TTP.

Anywho... I am seeking a 2nd. rhu doc opinion and want more tests done to get a

more confirmed diagnosis. I am afraid of going on these potent synthetic drugs.

I am on some homeopathic medicines from a naturopathic doc. she says i don't

need the poison drugs. What do you all think? I try to stay as natural as

possible. I am in pain most of the time, toss and turn all night do to pain. I

also own a hair salon and stand all day with my arms up. Any comments

?suggestions ?words of wisdom? all are appreciated. Thank you for listening to

my worries....May the universal goodness be with you all!

>

>

>

[Guest guest]

In a message dated 11/1/05 9:21:50 PM GMT Standard Time,

dayelynn007@... writes:

Hi all. Ms. newly diagnosed here and probably in denial ( which ain't just a

river in Egypt) I have had psoriosis since age 13 am now 45.

Hi Dayelynn (Is it Lynn?)

A belated welcome to the group. Are you any further forward on getting your

second opinion?

I've been on MTX probably for a couple of years now with no real issues but

I know you have got to be 100% happy with what you are taking.

Well............ that's not true when I think of it.

I guess none of us taking MTX, or any other drug for this disease, will be

anywhere near 100% happy at having to take it but you have just got to weigh

up the pros and cons and decide what is best for you. I hope whatever decision

you make and whatever med you end up on works out for you.

Good luck and again, welcome,

[Guest guest]

Hi ....

Greetings from Humble Texas!! As a 50 Y.O. man who has dealt with OA, RA and

gout for way toooooo long....just want you to know...everyone here is great and

there is a lot of support on here.

A lot of us were scared as you know what when we found out we had RA. Include me

in that group!!!! Luckily, the med I take for it works like a magic shot for me.

My Osteoarthritis bothers me way more than my RA does. I do get flare ups from

time to time, but it's usually near the end of the month when I am due to get my

next shot...and as soon as I get my shot, I get to feeling much better in a day

or so.

I try not to worry about what I cannot do, and concentrate on what I can do!!!

In fact, in November, my doctors...cardiac, RA and Orthopedic docs.... all gave

me the go ahead to play golf again. You do not know how good it felt to finally

get that word from them...in fact...they are encouraging me to play as much as I

can stand!!!! I have played golf since I was a young boy and love the sport...in

fact I spent most of the 1990's working at a pro shop, and carried a 4 handicap

for the longest time. I had sold all my clubs, and given up any hope of ever

playing again until my cardiac doctor asked me if I had ever played golf. He

thought it would be good for my physical and mental health. So for Christmas I

bought a brand new set of clubs....not just the irons, but everything..including

a new bag. I have been to the driving range a few times now, and although it is

not possible for me to use my old swing...my knees and hips don't move that way

anymore....I have been using a 3/4 swing where I keep my lower body still, and

mainly use my arms to swing the club. ( Sorry for the golf lingo everyone!!!) I

cried the first time out on the driving range...I was so happy just to be able

to practice again.

I also teach special ed kids ....pre K to 5th grade...and they also keep me on

my toes. What can I say...I love my kids!!!! Believe me...I have found that the

more I give of myself to others in need, the less I think about my own pain.

Don't get me wrong...I am like everyone else here...I hurt, I get frustrated,

mad, and don't know what to do about the pain at times. But, I find the more

concentrate on what I can do, I find I can do a whole lot more than what I ever

thought I could do.

Larry Holmack

KarLa Bichon Frise

Humble Texas Bichondaddy1057@...

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