Re: New to group, my intro Kinda long (sorry)

[Guest guest]

So sorry your in so much pain and discomfort. When was the last time

you visited your doctor. There are a lot of new meds available today

that were not available 15 yrs ago. Perhaps some of these new drugs

can help you more. Your husband needs to: a) go with you to the

doctors office & learn about the effects of the disease & how it

affects you. get support or learn info about the disease and how

it affects you/others possibly from the internet or drug pamflets.

arthritis.org, enbrel, orencia, and other have great information

explaining RA, etc. I will pray for you while you endure the stress

(not to mention that stress makes things worse.)

--- In , " Katrina Stiles " <spaladyfl@...>

wrote:

>

> Hello! My name is Katrina. I live on the West central coast of

Florida with my husband and our daughter. I am 40. I have 2 adult

children, ages 19 and 21 and a grandson who is 5 months old. We have

3 dogs.

>

> I was diagnosed with RA about 15 years ago, followed by diagnosis

of Fibro, CFS, PTSD, Clinical depression, etc. The doctors contribute

my illnesses to the abuse I endured as a child and in my first

marriage. I was with a man who physically abused me for 13 years. I

will own the fact that I stayed. I was young, I thought I could find

the magic button. It doesn't exist.

>

> I joined this group because like so many nights, I am sitting here

in such pain it hurts to breathe. I get my grandson from Thursday to

Sunday and let me tell you. I am in so much pain by the end of the

day anyway, but add walking the floors with a teething child, doing

the bounce and walk and holy cow...the pain becomes unbearable.

Today. it was such a nice day here, that we wanted to take him to the

local nature park. I was hurting a bit more than tolerable but I

agreed to go. We walked perhaps 1 mile? I have never measured the

trail. By the time I got home, I could barely walk. The pain in my

knees was so bad. Luckily, the trip wore my grandson out so he came

home and napped 3 hours so I got to rest my bones some. Not it is

12:50am and while the rest of the house sleeps, I sit awake with so

much pain in my knees that I am just in tears.

>

> I try so hard not to complain to my family. My daughter understands

as she has her own health issues. My husband (my second husband...not

the one who abused me) though...while he tries to be patient, he gets

on my nerves. Ha ha. Each time I try and explain that I am hurting so

I can't go for a walk or I can't stand outside with him. I will sit,

but he refuses to provide me a chair or makes a big deal out of it if

I ask for one. He gets frustrated when I can't get up and go like he

can. Each time I say my knees hurt or my shoulders ache, I get this

big story of how he works hard all day and his knees or his back or

his shoulders ache and his is worse. I understand he has aches and

pains, he is a mechanic and on his feet all day but I am talking

about me you know? Just once I'd love to have a conversation with him

where I can discuss how I feel physically without him butting in with

his aches and pains. Do you understand what I mean? So, I needed to

tell someone this tonight so I joined this community where I hope to

make friends, learn from folks and listen and offering a helping hand

when I can.

>

> Until then,

>

> Peace and fabulous smellies!

> Katrina

>

>

[Guest guest]

Hi Katrina, and welcome to our group. I am sorry to hear you are in so much

pain. It is so hard to be in so much pain all the time. I know you must enjoy

your little grandson, but their care takes a lot out of you! Things get hard

especially when you are tired and in lots of pain. I have had RA for 5 1/2

years, take MTX injection each week, Placquenal and Sulfasazaline every day. My

feet are the worst, and like you, I have some nights I just can't sleep due to

the pain, etc. The next day I am so tired I can't get out of my own way. Like

you, I am new to this wonderful group, who know what we are going through, and

how we suffer with pain, etc. It is good you decided to join.

I moved here to S.W. Florida 3 years ago, from Cape Cod. I couldn't take the

cold climate any more. Where do you live in Florida? I found the climate

better here, especially in the winter. I have flare-ups but not as bad as in

N.E., nor do they last as long.

Like you, I hate to complain about my pain etc., but sometimes you just need

your husband to listen and really understand what you are saying, and give some

TLC and support. I think some men just get so overwhelmed that they shut down,

and can't handle seeing their wives suffer so. I try to keep a lot to myself,

but sometimes I just can't. We are retired, all the family is in N.E., and I

don't want to burden my children with all this. I have had to give into this

disease by resting more, giving up some things I can't do any-more, and don't

apoligize when I can't go places due to pain, etc. It has made my life easier

by doing this. I thought I could beat this disease, but I just have to learn to

live with it, and do the best I can each day.

I hope I have helped you a little, and I hope you have a better day today. I

will pray for you, and I hope you enjoy these wonderful sunny Florida days, and

all the beautiful flowers that are in bloom now. I do care.... Barbara

[ ] New to group, my intro Kinda long (sorry)

Hello! My name is Katrina. I live on the West central coast of Florida with my

husband and our daughter. I am 40. I have 2 adult children, ages 19 and 21 and a

grandson who is 5 months old. We have 3 dogs.

I was diagnosed with RA about 15 years ago, followed by diagnosis of Fibro, CFS,

PTSD, Clinical depression, etc. The doctors contribute my illnesses to the abuse

I endured as a child and in my first marriage. I was with a man who physically

abused me for 13 years. I will own the fact that I stayed. I was young, I

thought I could find the magic button. It doesn't exist.

I joined this group because like so many nights, I am sitting here in such pain

it hurts to breathe. I get my grandson from Thursday to Sunday and let me tell

you. I am in so much pain by the end of the day anyway, but add walking the

floors with a teething child, doing the bounce and walk and holy cow...the pain

becomes unbearable. Today. it was such a nice day here, that we wanted to take

him to the local nature park. I was hurting a bit more than tolerable but I

agreed to go. We walked perhaps 1 mile? I have never measured the trail. By the

time I got home, I could barely walk. The pain in my knees was so bad. Luckily,

the trip wore my grandson out so he came home and napped 3 hours so I got to

rest my bones some. Not it is 12:50am and while the rest of the house sleeps, I

sit awake with so much pain in my knees that I am just in tears.

I try so hard not to complain to my family. My daughter understands as she has

her own health issues. My husband (my second husband...not the one who abused

me) though...while he tries to be patient, he gets on my nerves. Ha ha. Each

time I try and explain that I am hurting so I can't go for a walk or I can't

stand outside with him. I will sit, but he refuses to provide me a chair or

makes a big deal out of it if I ask for one. He gets frustrated when I can't get

up and go like he can. Each time I say my knees hurt or my shoulders ache, I get

this big story of how he works hard all day and his knees or his back or his

shoulders ache and his is worse. I understand he has aches and pains, he is a

mechanic and on his feet all day but I am talking about me you know? Just once

I'd love to have a conversation with him where I can discuss how I feel

physically without him butting in with his aches and pains. Do you understand

what I mean? So, I needed to tell

someone this tonight so I joined this community where I hope to make friends,

learn from folks and listen and offering a helping hand when I can.

Until then,

Peace and fabulous smellies!

Katrina

[Guest guest]

Barbara,

Thanks so much for your welcoming letter. I live in the Tampabay area. I do

find the weather in Florida to be better for me. Although I am native here,

I have lived in Pennsylvania, Virginia and Tennessee. When I was in TN, my

health was incredible! Even hiking up there didn't hurt. I could hike! It

was incredible. I have thought of relocating there but will not leave

Florida now because my grandson is here.

Peace and fabulous smellies!

Katrina

[Guest guest]

Jeannette,

Thank you so much. I had to quit going to my Rheumo as he is a great

distance away and with gas prices what they are and then the $35 co-pay, I

just can't afford it anymore. So my primary takes care of it all. I am on

Lyrica and Darvon for pain and nothing else. I am allergic to Vicodin,

Loratab, Lorecet, Percodan, Percoset, I know there are more pain meds. My

reactions have been hives to petite mal seizures. I can't take Darvocet

because of the Tylenol properties in it and how it effects my liver. They

put me on 50mg of Lyrica twice a day and I gained 30#. I tried going off of

Lyrica because weight gain made no sense to me. Kinda of like an

oxymoron....yes the Lyrica helped the pain but the added weight created more

issues. I am now on 25mg. twice a day and 50mg. at night before bed. I think

I will have to concede and go back to the 50mg, perhaps 100mg. I don't want

to but the pain has become unbearable and I can't handle it much longer.

Thanks!

Peace and fabulous smellies!

Katrina

[Guest guest]

we might be neighbors....who is your physician?

Katrina Stiles <spaladyfl@...> wrote:

Barbara,

Thanks so much for your welcoming letter. I live in the Tampabay area. I do

find the weather in Florida to be better for me. Although I am native here,

I have lived in Pennsylvania, Virginia and Tennessee. When I was in TN, my

health was incredible! Even hiking up there didn't hurt. I could hike! It

was incredible. I have thought of relocating there but will not leave

Florida now because my grandson is here.

Peace and fabulous smellies!

Katrina

Raniolo

[Guest guest]

Hi :

I live in North Port, and my Rheumy is Dr. Tatianna Huguenin, in the

Sarasota Arthritis practice. Where in Florida do you live?

Barbara

Re: [ ] New to group, my intro Kinda long (sorry)

we might be neighbors... .who is your physician?

Katrina Stiles <spaladyflverizon (DOT) net> wrote:

Barbara,

Thanks so much for your welcoming letter. I live in the Tampabay area. I do

find the weather in Florida to be better for me. Although I am native here,

I have lived in Pennsylvania, Virginia and Tennessee. When I was in TN, my

health was incredible! Even hiking up there didn't hurt. I could hike! It

was incredible. I have thought of relocating there but will not leave

Florida now because my grandson is here.

Peace and fabulous smellies!

Katrina

Raniolo

[Guest guest]

I am a mile north of the skyway bridge in Gulfport, south of St sburg. I go

to the St sburg arthritis center on 38 th ave north and see Dr.. I am

very pleased with him.

Barbara Creedon <bcreedon@...> wrote: Hi :

I live in North Port, and my Rheumy is Dr. Tatianna Huguenin, in the Sarasota

Arthritis practice. Where in Florida do you live?

Barbara

Re: [ ] New to group, my intro Kinda long (sorry)

we might be neighbors... .who is your physician?

Katrina Stiles <spaladyflverizon (DOT) net> wrote:

Barbara,

Thanks so much for your welcoming letter. I live in the Tampabay area. I do

find the weather in Florida to be better for me. Although I am native here,

I have lived in Pennsylvania, Virginia and Tennessee. When I was in TN, my

health was incredible! Even hiking up there didn't hurt. I could hike! It

was incredible. I have thought of relocating there but will not leave

Florida now because my grandson is here.

Peace and fabulous smellies!

Katrina

Raniolo

[Guest guest]

Dr. Goodman in Palm Harbor...wait...I think Safety Harbor? It's by

Countryside Mease Hospital. Off of McMullen Booth Rd.

Peace and fabulous smellies!

Katrina

[Guest guest]

hi katrina, ive been off line for a couple of days so i just got to the

e-mails... im SORRY to hear about your situation. im 38yrs.old have had ra since

i was 5yrs.old, since then i have developed osteo,neuropathy & severe

depression... like you i also have several nights when i dont sleep & now even

all day long... i to am married, i dont work due to my illnesses but i do care

for my 11 yr.old daughter, alyssa... my hub like yours just dont understand

sometimes, we r in pain not pretending but they have to put their 2 cents in &

say ive been working all day & im in pain & ache too... MEN R SUCH BIG BABIES!!

LOL! im not saying hes not tired cuz i now he is but its diffeent than what we

feel & go through everey single day of our lives day in & day out... im in pain

all the time so what i do now is try to do something productive or fun so if im

going to be in pain, let it be for a reason.... i HOPE YOU FEEL BETTER SOON!!

god bless,melyndagamez 4/16/08

10:35a.m.central time

[ ] New to group, my intro Kinda long (sorry)

Hello! My name is Katrina. I live on the West central coast of Florida with my

husband and our daughter. I am 40. I have 2 adult children, ages 19 and 21 and a

grandson who is 5 months old. We have 3 dogs.

I was diagnosed with RA about 15 years ago, followed by diagnosis of Fibro, CFS,

PTSD, Clinical depression, etc. The doctors contribute my illnesses to the abuse

I endured as a child and in my first marriage. I was with a man who physically

abused me for 13 years. I will own the fact that I stayed. I was young, I

thought I could find the magic button. It doesn't exist.

I joined this group because like so many nights, I am sitting here in such pain

it hurts to breathe. I get my grandson from Thursday to Sunday and let me tell

you. I am in so much pain by the end of the day anyway, but add walking the

floors with a teething child, doing the bounce and walk and holy cow...the pain

becomes unbearable. Today. it was such a nice day here, that we wanted to take

him to the local nature park. I was hurting a bit more than tolerable but I

agreed to go. We walked perhaps 1 mile? I have never measured the trail. By the

time I got home, I could barely walk. The pain in my knees was so bad. Luckily,

the trip wore my grandson out so he came home and napped 3 hours so I got to

rest my bones some. Not it is 12:50am and while the rest of the house sleeps, I

sit awake with so much pain in my knees that I am just in tears.

I try so hard not to complain to my family. My daughter understands as she has

her own health issues. My husband (my second husband...not the one who abused

me) though...while he tries to be patient, he gets on my nerves. Ha ha. Each

time I try and explain that I am hurting so I can't go for a walk or I can't

stand outside with him. I will sit, but he refuses to provide me a chair or

makes a big deal out of it if I ask for one. He gets frustrated when I can't get

up and go like he can. Each time I say my knees hurt or my shoulders ache, I get

this big story of how he works hard all day and his knees or his back or his

shoulders ache and his is worse. I understand he has aches and pains, he is a

mechanic and on his feet all day but I am talking about me you know? Just once

I'd love to have a conversation with him where I can discuss how I feel

physically without him butting in with his aches and pains. Do you understand

what I mean? So, I needed to tell

someone this tonight so I joined this community where I hope to make friends,

learn from folks and listen and offering a helping hand when I can.

Until then,

Peace and fabulous smellies!

Katrina

[Guest guest]

I'm new as well, Katrina. I totally understand about the husband thing. My

husband, is just baffled. He seems to think he knows about what I'm going

through because 15 years ago or so he had a back injury and had to do a couple

of months of physical therapy. At least they knew what was wrong him then, and

PT helped him. Within the last week or so is the first time a possible

diagnosis has come up....and that really doesn't do anything to help me, if we

can't find an effective way to treat it as of yet. Which of course, depresses

me. This is the second time I've tried to work with it - the first was a temp

job not set up ergonomically well, which made the pain worse, of course. This

one is set up better, but not great, but I don't have so much reaching to do as

I did. I know if I was still at the job I was in previous to this happening, I

would be in much worse pain, and probably would get less patience from my

employers over it as well.

Tina

Melynda Gamez <melyndagamez@...> wrote:

[ ] New to group, my intro Kinda long (sorry)

Hello! My name is Katrina. I live on the West central coast of Florida with my

husband and our daughter. I am 40. I have 2 adult children, ages 19 and 21 and a

grandson who is 5 months old. We have 3 dogs.

I was diagnosed with RA about 15 years ago, followed by diagnosis of Fibro, CFS,

PTSD, Clinical depression, etc. The doctors contribute my illnesses to the abuse

I endured as a child and in my first marriage. I was with a man who physically

abused me for 13 years. I will own the fact that I stayed. I was young, I

thought I could find the magic button. It doesn't exist.

I joined this group because like so many nights, I am sitting here in such pain

it hurts to breathe. I get my grandson from Thursday to Sunday and let me tell

you. I am in so much pain by the end of the day anyway, but add walking the

floors with a teething child, doing the bounce and walk and holy cow...the pain

becomes unbearable. Today. it was such a nice day here, that we wanted to take

him to the local nature park. I was hurting a bit more than tolerable but I

agreed to go. We walked perhaps 1 mile? I have never measured the trail. By the

time I got home, I could barely walk. The pain in my knees was so bad. Luckily,

the trip wore my grandson out so he came home and napped 3 hours so I got to

rest my bones some. Not it is 12:50am and while the rest of the house sleeps, I

sit awake with so much pain in my knees that I am just in tears.

I try so hard not to complain to my family. My daughter understands as she has

her own health issues. My husband (my second husband...not the one who abused

me) though...while he tries to be patient, he gets on my nerves. Ha ha. Each

time I try and explain that I am hurting so I can't go for a walk or I can't

stand outside with him. I will sit, but he refuses to provide me a chair or

makes a big deal out of it if I ask for one. He gets frustrated when I can't get

up and go like he can. Each time I say my knees hurt or my shoulders ache, I get

this big story of how he works hard all day and his knees or his back or his

shoulders ache and his is worse. I understand he has aches and pains, he is a

mechanic and on his feet all day but I am talking about me you know? Just once

I'd love to have a conversation with him where I can discuss how I feel

physically without him butting in with his aches and pains. Do you understand

what I mean? So, I needed to tell

someone this tonight so I joined this community where I hope to make friends,

learn from folks and listen and offering a helping hand when I can.

Until then,

Peace and fabulous smellies!

Katrina

[Guest guest]

I went through this with my wife almost 20 years ago. When the RA hit me, it

was with both fists! It took a few years for her to be able to tell that I

was really hurting and got to the point of telling me how I felt from the

way I greeted her in the mornings. Now, we both understand the other's

challenges and hurts, working together to get things done. We'll celebrate

44 years this fall, and are still close as we can be.

Dennis in eastexas- 8<}

MEN R SUCH BIG BABIES!!

[ ] New to group, my intro Kinda long (sorry)

>

> Hello! My name is Katrina. I live on the West central coast of Florida

> with my husband and our daughter. I am 40. I have 2 adult children, ages

> 19 and 21 and a grandson who is 5 months old. We have 3 dogs.

>

> I was diagnosed with RA about 15 years ago, followed by diagnosis of

> Fibro, CFS, PTSD, Clinical depression, etc. The doctors contribute my

> illnesses to the abuse I endured as a child and in my first marriage. I

> was with a man who physically abused me for 13 years. I will own the fact

> that I stayed. I was young, I thought I could find the magic button. It

> doesn't exist.

>

> I joined this group because like so many nights, I am sitting here in such

> pain it hurts to breathe. I get my grandson from Thursday to Sunday and

> let me tell you. I am in so much pain by the end of the day anyway, but

> add walking the floors with a teething child, doing the bounce and walk

> and holy cow...the pain becomes unbearable. Today. it was such a nice day

> here, that we wanted to take him to the local nature park. I was hurting a

> bit more than tolerable but I agreed to go. We walked perhaps 1 mile? I

> have never measured the trail. By the time I got home, I could barely

> walk. The pain in my knees was so bad. Luckily, the trip wore my grandson

> out so he came home and napped 3 hours so I got to rest my bones some. Not

> it is 12:50am and while the rest of the house sleeps, I sit awake with so

> much pain in my knees that I am just in tears.

>

> I try so hard not to complain to my family. My daughter understands as she

> has her own health issues. My husband (my second husband...not the one who

> abused me) though...while he tries to be patient, he gets on my nerves. Ha

> ha. Each time I try and explain that I am hurting so I can't go for a walk

> or I can't stand outside with him. I will sit, but he refuses to provide

> me a chair or makes a big deal out of it if I ask for one. He gets

> frustrated when I can't get up and go like he can. Each time I say my

> knees hurt or my shoulders ache, I get this big story of how he works hard

> all day and his knees or his back or his shoulders ache and his is worse.

> I understand he has aches and pains, he is a mechanic and on his feet all

> day but I am talking about me you know? Just once I'd love to have a

> conversation with him where I can discuss how I feel physically without

> him butting in with his aches and pains. Do you understand what I mean?

> So, I needed to tell

> someone this tonight so I joined this community where I hope to make

> friends, learn from folks and listen and offering a helping hand when I

> can.

>

> Until then,

>

> Peace and fabulous smellies!

> Katrina