Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 I take cymbalta and serequel as a mood stabalizer. I take methatrexate as well. havent had any problems with them.. Jolene In a message dated 4/16/2008 11:53:13 A.M. Eastern Daylight Time, spydre_74@... writes: I've not had enough luck to find a rhuematologist yet. I'm on Medicaid, so it's difficult to find a specialist that accepts it. My current medical doctor, is frankly, an idiot, and I'm going to be switching in another month and a half. So I started going to pain management. They put me on Lyrica, but after a week I bloated up so bad, and and gained so much weight, they were concerned about my kidneys, so they discontinued it. The bad thing about that is that the Lyrica was starting to work. Yeah, it made me sleepy, but my baseline amount of pain was lowered. I had an SI joint injection about a week ago....after a couple days I was thinking it was working, because no pain in that area. Then I woke up from a nap after work yesterday and was in so much pain.....today it's bad enough that I'm leaving work early (almost didn't come in). Every day I cart to work with me my heating pad with massager, my biofreeze, and my tennis ball,and alternate using them (I have a desk job). I usually have to take a break every hour or so to keep from getting too stiff. I'm on anti-inflammatories (Voltaren), but I have a history of GERD, so I try to only take it 1 - 2 times a day rather than 3. I also have bipolar disorder and epilepsy, which I imagine limit my treatment options even further. For example - many of the meds prescribed that I've heard about are anti-depressants. If I add another, I'm at risk for mania....and if I switch the one I'm on....well, we did that with (I can't remember the name, think it started with an S, new one) and it didn't control my moods all that well, and I had nightly muscle spams and leg pain so bad that it literally kept me up all night, and that was with 3 medications to help me sleep. Ah, cymbalta was the name, I think. Unfortunately, I don't qualify for any of the studies in the area on fibro treatments because of my epilepsy. I was so disappointed I just about cried. I'm working a temp job, but it gets stretched pretty thin. tina Katrina Stiles <_spaladyfl@..._ (mailto:spaladyfl@...) > wrote: Thank you so much for the wonderful email! After talking with my husband, I have decided that I am going to go back to my Rheumy. We considered the pain vs. the cost of the co-pay $35, the gas $7-8, then the prescription co-pay $50. Nearly $95 in one day for one doctor. Pretty scary huh? He said that I see him once a month, sometimes once every 6 weeks....he gives me trigger point injections which help me out so much. I hurt like the dickens the day after the shots...kinda like I have been beaten but in the long run, they do help. I am going to call today and make the appointment to go back to him. He is a really wonderful doctor. His name is Dr. Goodman and he is in Palm Harbor Florida for those of you that might live near there. I knew the first day I walked in his office that he was the doctor for me because the sheet on the exam table had purple circles and inside the purple circles, it said Fibromyalgia.said Fibromyalgia.<WBR>...it'd be easier for us to ask you I was like I AM HOME! LOL I take Darvon 65mg. ( I am allergic to most other pain meds) 1 capsule twice a day and then 2 at bedtime and then I take 25mg Lyrica twice a day and then 2 at bedtime. My primary did that set up. My Rheumy had me on 50mg. 3 times a day but the weight gain scared me so I lowered the dose myself. He wasn't happy and I know totally understand why. I have to also voice this concern...Lyrica for me has been the miracle drug. It really has, other than the weight gain. I just always worry so about 6-8 months from now seeing some class action lawsuit as that seems to always happen with one drug or another. Years ago, they wanted to put me on Vioxx. Luckily, it made me sicker than a dog...vomiting, muscle pain, I was pulled off it. Now, a class action lawsuit has been filed. (I am not part of it). Just a concern that I have about Lyrica. The too good to be true theory I guess. The bigger problem that the docs have with me is I have multiple health issues going on at the same time and I am not sure they truely know which one they are treating! I have a botched ankle surgery (tarsal tunnel) that is causing me knee problems. I have knee issues in both knees and like you, I have felt many times that if I could just chop them off, I'd feel better. I know, extreme, but sometimes...I know, extreme, but sometimes...<WBR>I feeling. I have 4 herniated discs in my lumbar spine due to a car accident that is causing me great issues as well. And of course the RA and the Fibro. I see my ortho, my Rheumy and my Primary sometimes just scratch their heads because I think they have come to a loss as to what they wish to try next. My Ortho is treating my knees, ankle and back. Rheumy of course my RA and Fibro and my Primary picks up the slack. Yesterday I had injections in my right knee and the doc said if it doesn't improve, he is scoping (surgery) it. He also gave me another SI injection in my back. He said if that doesn't work then he is moving on to different spinal injections which he believes might help. If those don't work, he said either surgery or I learn to live with the pain. Nice huh? Learn to live with the pain. As if. (Ha Ha! I just sounded so Valley Girl right then huh?) I have slowed down my reviewing and editing to a mere crawl. My reviewing I don't get paid for. I have a select handful of authors that I work with and they understand that sometimes, it might take me awhile to get the review in. I have been 'paid' for my reviews in the manner of my reviews actually getting on the covers and sometimes, insides of the books.I at one time was working with around 14 authors but that was overload for me and I cut it down to a mere handful. I get emails all the time from authors that want to work with me specifically because I am fair and honest but I remain just with my handful because I know I can do no more than that. It is also that select group of authors that I edit for. That I do get paid for. That only happens a few times a year though. So, my biggest income at this point is the in home spa parties which luckily, I can make my car payment in 2-3 parties. I also am the Publicist for one of my authors. I make 10% there. My husband pays all the bills luckily, he even makes my car payment but I am trying to take the load off of him. The money I have after my car payment, I spoil my grandson with! I have thought of giving up the in home spa parties because of the pain they bring and huband isn't been talked to about that. I know he likes that I get out of the house and I make new friends (although it's of no benefit to me because they give up on me when they realize that I can't get up and go like they can). He just knows I enjoy the out of the house time and feeling like I am doing something to help bring funds in. I also like with the in home parties, that I decide how many parties I want to do. I started off gung ho and was doing 4 parties a week but quickly learned that was INSANE and dropped it to less than 4 a month. The money isn't as good but the pain is less. Take care and have a great and hopefully pain free day. Gentle hugs! Peace and fabulous smellies! Katrina --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. [Non-text portions of this message have been removed] **************It's Tax Time! Get tips, forms and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 Thank you so much for the wonderful email! After talking with my husband, I have decided that I am going to go back to my Rheumy. We considered the pain vs. the cost of the co-pay $35, the gas $7-8, then the prescription co-pay $50. Nearly $95 in one day for one doctor. Pretty scary huh? He said that I see him once a month, sometimes once every 6 weeks....he gives me trigger point injections which help me out so much. I hurt like the dickens the day after the shots...kinda like I have been beaten but in the long run, they do help. I am going to call today and make the appointment to go back to him. He is a really wonderful doctor. His name is Dr. Goodman and he is in Palm Harbor Florida for those of you that might live near there. I knew the first day I walked in his office that he was the doctor for me because the sheet on the exam table had purple circles and inside the purple circles, it said Fibromyalgia....it'd be easier for us to ask you where you DON'T hurt. I was like I AM HOME! LOL I take Darvon 65mg. ( I am allergic to most other pain meds) 1 capsule twice a day and then 2 at bedtime and then I take 25mg Lyrica twice a day and then 2 at bedtime. My primary did that set up. My Rheumy had me on 50mg. 3 times a day but the weight gain scared me so I lowered the dose myself. He wasn't happy and I know totally understand why. I have to also voice this concern...Lyrica for me has been the miracle drug. It really has, other than the weight gain. I just always worry so about 6-8 months from now seeing some class action lawsuit as that seems to always happen with one drug or another. Years ago, they wanted to put me on Vioxx. Luckily, it made me sicker than a dog...vomiting, muscle pain, I was pulled off it. Now, a class action lawsuit has been filed. (I am not part of it). Just a concern that I have about Lyrica. The too good to be true theory I guess. The bigger problem that the docs have with me is I have multiple health issues going on at the same time and I am not sure they truely know which one they are treating! I have a botched ankle surgery (tarsal tunnel) that is causing me knee problems. I have knee issues in both knees and like you, I have felt many times that if I could just chop them off, I'd feel better. I know, extreme, but sometimes...I'd never do it! It's just a feel like feeling. I have 4 herniated discs in my lumbar spine due to a car accident that is causing me great issues as well. And of course the RA and the Fibro. I see my ortho, my Rheumy and my Primary sometimes just scratch their heads because I think they have come to a loss as to what they wish to try next. My Ortho is treating my knees, ankle and back. Rheumy of course my RA and Fibro and my Primary picks up the slack. Yesterday I had injections in my right knee and the doc said if it doesn't improve, he is scoping (surgery) it. He also gave me another SI injection in my back. He said if that doesn't work then he is moving on to different spinal injections which he believes might help. If those don't work, he said either surgery or I learn to live with the pain. Nice huh? Learn to live with the pain. As if. (Ha Ha! I just sounded so Valley Girl right then huh?) I have slowed down my reviewing and editing to a mere crawl. My reviewing I don't get paid for. I have a select handful of authors that I work with and they understand that sometimes, it might take me awhile to get the review in. I have been 'paid' for my reviews in the manner of my reviews actually getting on the covers and sometimes, insides of the books.I at one time was working with around 14 authors but that was overload for me and I cut it down to a mere handful. I get emails all the time from authors that want to work with me specifically because I am fair and honest but I remain just with my handful because I know I can do no more than that. It is also that select group of authors that I edit for. That I do get paid for. That only happens a few times a year though. So, my biggest income at this point is the in home spa parties which luckily, I can make my car payment in 2-3 parties. I also am the Publicist for one of my authors. I make 10% there. My husband pays all the bills luckily, he even makes my car payment but I am trying to take the load off of him. The money I have after my car payment, I spoil my grandson with! I have thought of giving up the in home spa parties because of the pain they bring and huband isn't been talked to about that. I know he likes that I get out of the house and I make new friends (although it's of no benefit to me because they give up on me when they realize that I can't get up and go like they can). He just knows I enjoy the out of the house time and feeling like I am doing something to help bring funds in. I also like with the in home parties, that I decide how many parties I want to do. I started off gung ho and was doing 4 parties a week but quickly learned that was INSANE and dropped it to less than 4 a month. The money isn't as good but the pain is less. Take care and have a great and hopefully pain free day. Gentle hugs! Peace and fabulous smellies! Katrina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 I've not had enough luck to find a rhuematologist yet. I'm on Medicaid, so it's difficult to find a specialist that accepts it. My current medical doctor, is frankly, an idiot, and I'm going to be switching in another month and a half. So I started going to pain management. They put me on Lyrica, but after a week I bloated up so bad, and and gained so much weight, they were concerned about my kidneys, so they discontinued it. The bad thing about that is that the Lyrica was starting to work. Yeah, it made me sleepy, but my baseline amount of pain was lowered. I had an SI joint injection about a week ago....after a couple days I was thinking it was working, because no pain in that area. Then I woke up from a nap after work yesterday and was in so much pain.....today it's bad enough that I'm leaving work early (almost didn't come in). Every day I cart to work with me my heating pad with massager, my biofreeze, and my tennis ball,and alternate using them (I have a desk job). I usually have to take a break every hour or so to keep from getting too stiff. I'm on anti-inflammatories (Voltaren), but I have a history of GERD, so I try to only take it 1 - 2 times a day rather than 3. I also have bipolar disorder and epilepsy, which I imagine limit my treatment options even further. For example - many of the meds prescribed that I've heard about are anti-depressants. If I add another, I'm at risk for mania....and if I switch the one I'm on....well, we did that with (I can't remember the name, think it started with an S, new one) and it didn't control my moods all that well, and I had nightly muscle spams and leg pain so bad that it literally kept me up all night, and that was with 3 medications to help me sleep. Ah, cymbalta was the name, I think. Unfortunately, I don't qualify for any of the studies in the area on fibro treatments because of my epilepsy. I was so disappointed I just about cried. I'm working a temp job, but it gets stretched pretty thin. tina Katrina Stiles <spaladyfl@...> wrote: Thank you so much for the wonderful email! After talking with my husband, I have decided that I am going to go back to my Rheumy. We considered the pain vs. the cost of the co-pay $35, the gas $7-8, then the prescription co-pay $50. Nearly $95 in one day for one doctor. Pretty scary huh? He said that I see him once a month, sometimes once every 6 weeks....he gives me trigger point injections which help me out so much. I hurt like the dickens the day after the shots...kinda like I have been beaten but in the long run, they do help. I am going to call today and make the appointment to go back to him. He is a really wonderful doctor. His name is Dr. Goodman and he is in Palm Harbor Florida for those of you that might live near there. I knew the first day I walked in his office that he was the doctor for me because the sheet on the exam table had purple circles and inside the purple circles, it said Fibromyalgia....it'd be easier for us to ask you where you DON'T hurt. I was like I AM HOME! LOL I take Darvon 65mg. ( I am allergic to most other pain meds) 1 capsule twice a day and then 2 at bedtime and then I take 25mg Lyrica twice a day and then 2 at bedtime. My primary did that set up. My Rheumy had me on 50mg. 3 times a day but the weight gain scared me so I lowered the dose myself. He wasn't happy and I know totally understand why. I have to also voice this concern...Lyrica for me has been the miracle drug. It really has, other than the weight gain. I just always worry so about 6-8 months from now seeing some class action lawsuit as that seems to always happen with one drug or another. Years ago, they wanted to put me on Vioxx. Luckily, it made me sicker than a dog...vomiting, muscle pain, I was pulled off it. Now, a class action lawsuit has been filed. (I am not part of it). Just a concern that I have about Lyrica. The too good to be true theory I guess. The bigger problem that the docs have with me is I have multiple health issues going on at the same time and I am not sure they truely know which one they are treating! I have a botched ankle surgery (tarsal tunnel) that is causing me knee problems. I have knee issues in both knees and like you, I have felt many times that if I could just chop them off, I'd feel better. I know, extreme, but sometimes...I'd never do it! It's just a feel like feeling. I have 4 herniated discs in my lumbar spine due to a car accident that is causing me great issues as well. And of course the RA and the Fibro. I see my ortho, my Rheumy and my Primary sometimes just scratch their heads because I think they have come to a loss as to what they wish to try next. My Ortho is treating my knees, ankle and back. Rheumy of course my RA and Fibro and my Primary picks up the slack. Yesterday I had injections in my right knee and the doc said if it doesn't improve, he is scoping (surgery) it. He also gave me another SI injection in my back. He said if that doesn't work then he is moving on to different spinal injections which he believes might help. If those don't work, he said either surgery or I learn to live with the pain. Nice huh? Learn to live with the pain. As if. (Ha Ha! I just sounded so Valley Girl right then huh?) I have slowed down my reviewing and editing to a mere crawl. My reviewing I don't get paid for. I have a select handful of authors that I work with and they understand that sometimes, it might take me awhile to get the review in. I have been 'paid' for my reviews in the manner of my reviews actually getting on the covers and sometimes, insides of the books.I at one time was working with around 14 authors but that was overload for me and I cut it down to a mere handful. I get emails all the time from authors that want to work with me specifically because I am fair and honest but I remain just with my handful because I know I can do no more than that. It is also that select group of authors that I edit for. That I do get paid for. That only happens a few times a year though. So, my biggest income at this point is the in home spa parties which luckily, I can make my car payment in 2-3 parties. I also am the Publicist for one of my authors. I make 10% there. My husband pays all the bills luckily, he even makes my car payment but I am trying to take the load off of him. The money I have after my car payment, I spoil my grandson with! I have thought of giving up the in home spa parties because of the pain they bring and huband isn't been talked to about that. I know he likes that I get out of the house and I make new friends (although it's of no benefit to me because they give up on me when they realize that I can't get up and go like they can). He just knows I enjoy the out of the house time and feeling like I am doing something to help bring funds in. I also like with the in home parties, that I decide how many parties I want to do. I started off gung ho and was doing 4 parties a week but quickly learned that was INSANE and dropped it to less than 4 a month. The money isn't as good but the pain is less. Take care and have a great and hopefully pain free day. Gentle hugs! Peace and fabulous smellies! Katrina --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 Unfortunately, we have found with a lot of psychiatric meds, if there is a strange side effect to be had, I'll get it. I was on Geodon for years, in addition to my other meds, but I developed a severe tremor, and had to stop all anti-psychotics (some mild tremors are permanent though, because I didn't get off of them quick enough). My trileptal for my epilepsy acts as my mood stablizer, but I had a heck of a time with the Cymbalta - had to call off 5 times from work a couple of years ago due to side effects from it (in just a couple months - my boss was incredibly thrilled). So I got switched to Prozac. No pain relief, but no staying up all night long screaming (it was bad enough on the cymbalta that my husband was cuddling up behind me, and put his arm on my leg, and I thought he pinched me.). I know my experience with it was rare, though. Tina Jolenefive@... wrote: I take cymbalta and serequel as a mood stabalizer. I take methatrexate as well. havent had any problems with them.. Jolene Recent Activity 27 New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Achy Joint? Common arthritis myths debunked. Dog Groups on discuss everything related to dogs. . --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 Hi Tina! I know its very frustrating trying to find a good doctor when options are limited and certain insurances not accepted. I had the same problem with Lyrica. I gained 9 pounds in one week and I was nauseated from the med, so was barely eating. Because it caused the bloating up like that I was removed from it immediately. I have joint knee effusions and that's one of the most severe areas of inflammation. I wasn't able to participate in a FMS study because I have anxiety. Which I found quite odd because the larger majority of those with FMS have either depression or anxiety. Some get anxiety just from having it. Then there are those that are lucky that have neither. Tina Schmidt <spydre_74@...> wrote: I've not had enough luck to find a rhuematologist yet. I'm on Medicaid, so it's difficult to find a specialist that accepts it. My current medical doctor, is frankly, an idiot, and I'm going to be switching in another month and a half. So I started going to pain management. They put me on Lyrica, but after a week I bloated up so bad, and and gained so much weight, they were concerned about my kidneys, so they discontinued it. The bad thing about that is that the Lyrica was starting to work. Yeah, it made me sleepy, but my baseline amount of pain was lowered. I had an SI joint injection about a week ago....after a couple days I was thinking it was working, because no pain in that area. Then I woke up from a nap after work yesterday and was in so much pain.....today it's bad enough that I'm leaving work early (almost didn't come in). Every day I cart to work with me my heating pad with massager, my biofreeze, and my tennis ball,and alternate using them (I have a desk job). I usually have to take a break every hour or so to keep from getting too stiff. I'm on anti-inflammatories (Voltaren), but I have a history of GERD, so I try to only take it 1 - 2 times a day rather than 3. I also have bipolar disorder and epilepsy, which I imagine limit my treatment options even further. For example - many of the meds prescribed that I've heard about are anti-depressants. If I add another, I'm at risk for mania....and if I switch the one I'm on....well, we did that with (I can't remember the name, think it started with an S, new one) and it didn't control my moods all that well, and I had nightly muscle spams and leg pain so bad that it literally kept me up all night, and that was with 3 medications to help me sleep. Ah, cymbalta was the name, I think. Unfortunately, I don't qualify for any of the studies in the area on fibro treatments because of my epilepsy. I was so disappointed I just about cried. I'm working a temp job, but it gets stretched pretty thin. tina Katrina Stiles <spaladyfl@...> wrote: Thank you so much for the wonderful email! After talking with my husband, I have decided that I am going to go back to my Rheumy. We considered the pain vs. the cost of the co-pay $35, the gas $7-8, then the prescription co-pay $50. Nearly $95 in one day for one doctor. Pretty scary huh? He said that I see him once a month, sometimes once every 6 weeks....he gives me trigger point injections which help me out so much. I hurt like the dickens the day after the shots...kinda like I have been beaten but in the long run, they do help. I am going to call today and make the appointment to go back to him. He is a really wonderful doctor. His name is Dr. Goodman and he is in Palm Harbor Florida for those of you that might live near there. I knew the first day I walked in his office that he was the doctor for me because the sheet on the exam table had purple circles and inside the purple circles, it said Fibromyalgia....it'd be easier for us to ask you where you DON'T hurt. I was like I AM HOME! LOL I take Darvon 65mg. ( I am allergic to most other pain meds) 1 capsule twice a day and then 2 at bedtime and then I take 25mg Lyrica twice a day and then 2 at bedtime. My primary did that set up. My Rheumy had me on 50mg. 3 times a day but the weight gain scared me so I lowered the dose myself. He wasn't happy and I know totally understand why. I have to also voice this concern...Lyrica for me has been the miracle drug. It really has, other than the weight gain. I just always worry so about 6-8 months from now seeing some class action lawsuit as that seems to always happen with one drug or another. Years ago, they wanted to put me on Vioxx. Luckily, it made me sicker than a dog...vomiting, muscle pain, I was pulled off it. Now, a class action lawsuit has been filed. (I am not part of it). Just a concern that I have about Lyrica. The too good to be true theory I guess. The bigger problem that the docs have with me is I have multiple health issues going on at the same time and I am not sure they truely know which one they are treating! I have a botched ankle surgery (tarsal tunnel) that is causing me knee problems. I have knee issues in both knees and like you, I have felt many times that if I could just chop them off, I'd feel better. I know, extreme, but sometimes...I'd never do it! It's just a feel like feeling. I have 4 herniated discs in my lumbar spine due to a car accident that is causing me great issues as well. And of course the RA and the Fibro. I see my ortho, my Rheumy and my Primary sometimes just scratch their heads because I think they have come to a loss as to what they wish to try next. My Ortho is treating my knees, ankle and back. Rheumy of course my RA and Fibro and my Primary picks up the slack. Yesterday I had injections in my right knee and the doc said if it doesn't improve, he is scoping (surgery) it. He also gave me another SI injection in my back. He said if that doesn't work then he is moving on to different spinal injections which he believes might help. If those don't work, he said either surgery or I learn to live with the pain. Nice huh? Learn to live with the pain. As if. (Ha Ha! I just sounded so Valley Girl right then huh?) I have slowed down my reviewing and editing to a mere crawl. My reviewing I don't get paid for. I have a select handful of authors that I work with and they understand that sometimes, it might take me awhile to get the review in. I have been 'paid' for my reviews in the manner of my reviews actually getting on the covers and sometimes, insides of the books.I at one time was working with around 14 authors but that was overload for me and I cut it down to a mere handful. I get emails all the time from authors that want to work with me specifically because I am fair and honest but I remain just with my handful because I know I can do no more than that. It is also that select group of authors that I edit for. That I do get paid for. That only happens a few times a year though. So, my biggest income at this point is the in home spa parties which luckily, I can make my car payment in 2-3 parties. I also am the Publicist for one of my authors. I make 10% there. My husband pays all the bills luckily, he even makes my car payment but I am trying to take the load off of him. The money I have after my car payment, I spoil my grandson with! I have thought of giving up the in home spa parties because of the pain they bring and huband isn't been talked to about that. I know he likes that I get out of the house and I make new friends (although it's of no benefit to me because they give up on me when they realize that I can't get up and go like they can). He just knows I enjoy the out of the house time and feeling like I am doing something to help bring funds in. I also like with the in home parties, that I decide how many parties I want to do. I started off gung ho and was doing 4 parties a week but quickly learned that was INSANE and dropped it to less than 4 a month. The money isn't as good but the pain is less. Take care and have a great and hopefully pain free day. Gentle hugs! Peace and fabulous smellies! Katrina --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 Cymbalta was prescribed to me for my numbness tingling pain. It worked very well for over a year and a half. Then all of a sudden, it affected my mood very severely. It was disappointing to have to stop it as it had worked so well for so long. Now, I'm given Effexor XR for that, as they both work on the same two chemicals in the brain. Yet, studies on Effexor XR for pain have not been as promising as those with Cymbalta were (according to three of my doctors). I did read that they are working on another drug for FMS that they hope would be out this year. Tina Schmidt <spydre_74@...> wrote: Unfortunately, we have found with a lot of psychiatric meds, if there is a strange side effect to be had, I'll get it. I was on Geodon for years, in addition to my other meds, but I developed a severe tremor, and had to stop all anti-psychotics (some mild tremors are permanent though, because I didn't get off of them quick enough). My trileptal for my epilepsy acts as my mood stablizer, but I had a heck of a time with the Cymbalta - had to call off 5 times from work a couple of years ago due to side effects from it (in just a couple months - my boss was incredibly thrilled). So I got switched to Prozac. No pain relief, but no staying up all night long screaming (it was bad enough on the cymbalta that my husband was cuddling up behind me, and put his arm on my leg, and I thought he pinched me.). I know my experience with it was rare, though. Tina Jolenefive@... wrote: I take cymbalta and serequel as a mood stabalizer. I take methatrexate as well. havent had any problems with them.. Jolene Recent Activity 27 New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Achy Joint? Common arthritis myths debunked. Dog Groups on discuss everything related to dogs. . --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 Katrina, I hear you sister...I have other health problems too, besides RA/fibro. I had a botched abdominal surgery where my bowel was puntured, I went septic...I spent one month in a coma and another few months recovering from it. Ever since then, my symptoms have gotten much worse. I have a HUGE hernia at the incision site (I look like I was gutted) which makes it painful to twist. It has left me with PTSD (I have night terrors of being intibated), and anxiety about going to new doctors in general. It doesn't help that I am bi-polar, too. I am on SSDI now...but I miss working. I was reading your post and I was wondering what kind of genre do you do reviews for? My husband is an author (1st book coming out in August) and he does freelance editing and proof-reading for his publisher. If you get boggled down with requests, I can give you my husband's information and he can edit, review, proof-read etc. He doesn't charge much for editing or proof-reading. Of course, that is if you want too or if you want to see some of his work...I can get you in touch w/ him. (I'm in Colorado and he's in Virginia at the moment). The way he puts it is that publishing moves at the speed of a glacier so getting paid takes FOREVER. He has been trying to find work since he got laid off, but with the economy...it's been difficult to find anything. Lyrica has been working for me, but the weight gain scares me, (I have gained about 15 lbs in almost 2 months from the medication). My rheumy thinks that since I am finding relief, it's worth the risk of the side effects. --- In , " Katrina Stiles " <spaladyfl@...> wrote: > > Thank you so much for the wonderful email! After talking with my husband, I > have decided that I am going to go back to my Rheumy. We considered the pain > vs. the cost of the co-pay $35, the gas $7-8, then the prescription co-pay > $50. Nearly $95 in one day for one doctor. Pretty scary huh? He said that I > see him once a month, sometimes once every 6 weeks....he gives me trigger > point injections which help me out so much. I hurt like the dickens the day > after the shots...kinda like I have been beaten but in the long run, they do > help. I am going to call today and make the appointment to go back to him. > He is a really wonderful doctor. His name is Dr. Goodman and he is in > Palm Harbor Florida for those of you that might live near there. I knew the > first day I walked in his office that he was the doctor for me because the > sheet on the exam table had purple circles and inside the purple circles, it > said Fibromyalgia....it'd be easier for us to ask you where you DON'T hurt. > I was like I AM HOME! LOL > > I take Darvon 65mg. ( I am allergic to most other pain meds) 1 capsule twice > a day and then 2 at bedtime and then I take 25mg Lyrica twice a day and then > 2 at bedtime. My primary did that set up. My Rheumy had me on 50mg. 3 times > a day but the weight gain scared me so I lowered the dose myself. He wasn't > happy and I know totally understand why. I have to also voice this > concern...Lyrica for me has been the miracle drug. It really has, other than > the weight gain. I just always worry so about 6-8 months from now seeing > some class action lawsuit as that seems to always happen with one drug or > another. Years ago, they wanted to put me on Vioxx. Luckily, it made me > sicker than a dog...vomiting, muscle pain, I was pulled off it. Now, a class > action lawsuit has been filed. (I am not part of it). Just a concern that I > have about Lyrica. The too good to be true theory I guess. > > The bigger problem that the docs have with me is I have multiple health > issues going on at the same time and I am not sure they truely know which > one they are treating! I have a botched ankle surgery (tarsal tunnel) that > is causing me knee problems. I have knee issues in both knees and like you, > I have felt many times that if I could just chop them off, I'd feel better. > I know, extreme, but sometimes...I'd never do it! It's just a feel like > feeling. I have 4 herniated discs in my lumbar spine due to a car accident > that is causing me great issues as well. And of course the RA and the Fibro. > I see my ortho, my Rheumy and my Primary sometimes just scratch their heads > because I think they have come to a loss as to what they wish to try next. > My Ortho is treating my knees, ankle and back. Rheumy of course my RA and > Fibro and my Primary picks up the slack. Yesterday I had injections in my > right knee and the doc said if it doesn't improve, he is scoping (surgery) > it. He also gave me another SI injection in my back. He said if that doesn't > work then he is moving on to different spinal injections which he believes > might help. If those don't work, he said either surgery or I learn to live > with the pain. Nice huh? Learn to live with the pain. As if. (Ha Ha! I just > sounded so Valley Girl right then huh?) > > I have slowed down my reviewing and editing to a mere crawl. My reviewing I > don't get paid for. I have a select handful of authors that I work with and > they understand that sometimes, it might take me awhile to get the review > in. I have been 'paid' for my reviews in the manner of my reviews actually > getting on the covers and sometimes, insides of the books.I at one time was > working with around 14 authors but that was overload for me and I cut it > down to a mere handful. I get emails all the time from authors that want to > work with me specifically because I am fair and honest but I remain just > with my handful because I know I can do no more than that. It is also that > select group of authors that I edit for. That I do get paid for. That only > happens a few times a year though. So, my biggest income at this point is > the in home spa parties which luckily, I can make my car payment in 2-3 > parties. I also am the Publicist for one of my authors. I make 10% there. My > husband pays all the bills luckily, he even makes my car payment but I am > trying to take the load off of him. The money I have after my car payment, I > spoil my grandson with! I have thought of giving up the in home spa parties > because of the pain they bring and huband isn't been talked to about that. I > know he likes that I get out of the house and I make new friends (although > it's of no benefit to me because they give up on me when they realize that I > can't get up and go like they can). He just knows I enjoy the out of the > house time and feeling like I am doing something to help bring funds in. I > also like with the in home parties, that I decide how many parties I want to > do. I started off gung ho and was doing 4 parties a week but quickly learned > that was INSANE and dropped it to less than 4 a month. The money isn't as > good but the pain is less. > > Take care and have a great and hopefully pain free day. Gentle hugs! > > > > > > Peace and fabulous smellies! > Katrina > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 ..........OMG. I had 8 abdominal surgeries in 2 years, 4 of which they cut into my lower bowel! I had an incisional hernia that they ended up going back in to repair and now I have barely intestines, large or small because they hacked them up so darn bad! Kills me, absolutely kills me. You are the first person I have met you has had their bowels punctured during a botched surgery. Holy cow. I have PTSD as well from my first husband abuse. I have been with my now husband for 13 years and he still freaks out when I duck when he talks with his hands. He's Italian so he is a flailer! LOL I have learned to no longer run from the room when he starts yelling about something. I have even graduated to slamming doors in his face if he attempts to follow me while yelling. He has had to learn that it will trigger a panic attack if he continues. He has seen a few of those and it scared the hell out of him I think more than it did me! Hugs, Peace and fabulous smellies! Katrina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 Katrina, OMG is right, lol. I am missing 2 feet of colon, and I had to live w/ a colostomy for a few months before I had the repair done. I had some ovarian cysts removed along w/ an endometrial ablation and my bowel got puntured almost 2 years ago. I swear, the sepsis destroyed my body. I had RA/fibro well before...but it became unmanageable after the sepsis. Because of my anxiety and PTSD from the whole hospitalization...I haven't gone back into surgery to repair the hernia. I am terrified. I might need to have a hysterectomy (complications from the 1st surgery) and if I do, I will get the hernia fixed. What gets me really angry is that considering the complications I have suffered since, the finacical/emotion distress...I can't sue the bastard. I live in Colorado and the laws here make it impossible to sue a doctor. I have talked to dozens of lawyers and I keep getting " if you died, we would be happy to take the case " . That makes you feel good inside. Because of the hospitalization, I lost my home, car, job. I tried to get a new job, but considering I have always worked in healthcare...it would trigger panic attacks. Alas, I applied for SSDI and I just got approved. My husband wrote a novel while I was home recovering, it's coming out in August. We are trying to get back on our feet, he had a job offer in Virginia, so he went there while I stayed in Colorado. He got laid off 6 weeks after he moved out there and has been struggling to find work ever since. Like I said, he does freelance editing and proof-reading work and he is making a name for himself since he is through and fairly quick. If you get boggled down w/ editing...my husband will be more then willing to pick up the slack. I know what it's like to have RA/fibro on top of missing a few feet of colon...lol. Take care. --- In , " Katrina Stiles " <spaladyfl@...> wrote: > > ..........OMG. I had 8 abdominal surgeries in 2 years, 4 of which they > cut into my lower bowel! I had an incisional hernia that they ended up going > back in to repair and now I have barely intestines, large or small because > they hacked them up so darn bad! Kills me, absolutely kills me. You are the > first person I have met you has had their bowels punctured during a botched > surgery. Holy cow. > > I have PTSD as well from my first husband abuse. I have been with my now > husband for 13 years and he still freaks out when I duck when he talks with > his hands. He's Italian so he is a flailer! LOL I have learned to no longer > run from the room when he starts yelling about something. I have even > graduated to slamming doors in his face if he attempts to follow me while > yelling. He has had to learn that it will trigger a panic attack if he > continues. He has seen a few of those and it scared the hell out of him I > think more than it did me! > > Hugs, > > > > Peace and fabulous smellies! > Katrina > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 , You are freaking me out here! I had cysts all over my ovaries and uterus (PCOS) Polycystic Ovarian Syndrome. That resulted in me having a complete hysterectomy in 2003. That was one of my 8 abdominal surgeries. You know......with all of us having such similiar circumstances, similar diagnosis.........you don't think that is wierd? I can't help but wonder if there IS something already in the water/air.......somewhere. Am I the only one? Peace and fabulous smellies! Katrina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 I have PCOS and endometriosis as well. Katrina Stiles <spaladyfl@...> wrote: , You are freaking me out here! I had cysts all over my ovaries and uterus (PCOS) Polycystic Ovarian Syndrome. That resulted in me having a complete hysterectomy in 2003. That was one of my 8 abdominal surgeries. You know......with all of us having such similiar circumstances, similar diagnosis.........you don't think that is wierd? I can't help but wonder if there IS something already in the water/air.......somewhere. Am I the only one? Peace and fabulous smellies! Katrina --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 I had polyscystic ovary syndrome in the 70's. It led to ovarian cancer in the 90's. Some felt the fertilty drugs over stimulated the ovaries. I had 8 pregnancies and 6 miscarriages. Cause was never found. We now wonder if the auto immune issue was the cause. I am just throwing out this data in case we discover similarities. Scientists seem to study diseases in a vacuum. Arthritis specialists are not familiar with gynecology etc. The body works as a whole. A house divided can not stand....Grin stephanie <stephieann2@...> wrote: I have PCOS and endometriosis as well. Katrina Stiles <spaladyfl@...> wrote: , You are freaking me out here! I had cysts all over my ovaries and uterus (PCOS) Polycystic Ovarian Syndrome. That resulted in me having a complete hysterectomy in 2003. That was one of my 8 abdominal surgeries. You know......with all of us having such similiar circumstances, similar diagnosis.........you don't think that is wierd? I can't help but wonder if there IS something already in the water/air.......somewhere. Am I the only one? Peace and fabulous smellies! Katrina --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 OK...this is really freaky! When I had the cysts removed, my rheumy said they are not related. Last week, I went in for my yearly pap (my first since the sepsis) and they couldn't give me the exam because I have so much scar tissue that is blocking my uterus. I am scheduled to get an ultrasound done and if I have as much scar tissue as they think I do, they would recommend that I get a hysterectomy. I am just 31 and I have a family history of cervical/uterian cancer...so I am thinking I will get it done. I don't have any kids...but I am not worried about that. My husband and I were talking about adoption long before my health took a nose dive. Considering a few of us here have had simular problems and have RA/fibro...I wonder if there is truely something in the water. I see my rheumy next week...something I should ask. I don't beleive in coincidences!?!?? The truth is out there!! --- In , " Katrina Stiles " <spaladyfl@...> wrote: > > , > > You are freaking me out here! I had cysts all over my ovaries and uterus > (PCOS) Polycystic Ovarian Syndrome. That resulted in me having a complete > hysterectomy in 2003. That was one of my 8 abdominal surgeries. > > You know......with all of us having such similiar circumstances, similar > diagnosis.........you don't think that is wierd? I can't help but wonder if > there IS something already in the water/air.......somewhere. Am I the only > one? > > Peace and fabulous smellies! > Katrina > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 What's even worse....well, I had a doctor's appointment this afternoon - all my bloodwork came back negative, I was in severe pain, and I wanted him to finally put a label on it. About 3 weeks ago, he was willing to say it was fibro. Now today, he says he's not so sure, that he has absolutely no clue what is going on with me. He wants to try amitryptiline for a month and see if that helps. By the time he gets to that point in the conversation, I was ready to walk out - I had been taken back to a room 15 minutes after my appointment time, and I waited another hour in the room before he got to me, and I am sick and tired of him giving me the run around. He would much rather say he doesn't know what's wrong with me, because he doesn't know how to treat me - he admitted he didn't know treatment protocols, etc, for fibro, other than the lyrica. In seven weeks I see the new doctor and I'm crossing my fingers. I can't take six more months of treatment like I've gotten. Tina stephanie <stephieann2@...> wrote: Hi Tina! I know its very frustrating trying to find a good doctor when options are limited and certain insurances not accepted. I had the same problem with Lyrica. I gained 9 pounds in one week and I was nauseated from the med, so was barely eating. Because it caused the bloating up like that I was removed from it immediately. I have joint knee effusions and that's one of the most severe areas of inflammation. I wasn't able to participate in a FMS study because I have anxiety. Which I found quite odd because the larger majority of those with FMS have either depression or anxiety. Some get anxiety just from having it. Then there are those that are lucky that have neither. --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 I did, as well. I still have 1 ovary, but the endometriosis was bad enough that I had to have a hysterectomy when I was 25. stephanie <stephieann2@...> wrote: I have PCOS and endometriosis as well. Katrina Stiles <spaladyfl@...> wrote: , You are freaking me out here! I had cysts all over my ovaries and uterus (PCOS) Polycystic Ovarian Syndrome. That resulted in me having a complete hysterectomy in 2003. That was one of my 8 abdominal surgeries. You know......with all of us having such similiar circumstances, similar diagnosis.........you don't think that is wierd? I can't help but wonder if there IS something already in the water/air.......somewhere. Am I the only one? Peace and fabulous smellies! Katrina --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2008 Report Share Posted April 17, 2008 I'm so sorry! I know its frustrating when you don't get an answer right away. It took me 2 years to get the FMS diagnosis. He's right in a way. The only medications they do give is antidepressants, maybe a muscle relaxer if you have evidence of bad spasms, and possibly Utlram or tramadol. A large majority shy away from narcotic meds as the studies show our brains don't respond to the opiods. It may be too, that if something is in the very early stages, that it will take time to diagnose you. I've had the inflammatory issues going on for 2 years untreated and 2 years treated with medication. They still don't have any answers. My CRP and Sed and Westegren levels are elevated, and anti ccp, but no RA or ANA. So one day they will say its arthralgia with no known cause, another time its seronegative ra, and another time its unspecified diffuse connective tissue disease. Sometimes, if things come on slowly, the signs take a little bit longer to diagnose. Its always good to get a second opinion too though! Tina Schmidt <spydre_74@...> wrote: What's even worse....well, I had a doctor's appointment this afternoon - all my bloodwork came back negative, I was in severe pain, and I wanted him to finally put a label on it. About 3 weeks ago, he was willing to say it was fibro. Now today, he says he's not so sure, that he has absolutely no clue what is going on with me. He wants to try amitryptiline for a month and see if that helps. By the time he gets to that point in the conversation, I was ready to walk out - I had been taken back to a room 15 minutes after my appointment time, and I waited another hour in the room before he got to me, and I am sick and tired of him giving me the run around. He would much rather say he doesn't know what's wrong with me, because he doesn't know how to treat me - he admitted he didn't know treatment protocols, etc, for fibro, other than the lyrica. In seven weeks I see the new doctor and I'm crossing my fingers. I can't take six more months of treatment like I've gotten. Tina stephanie <stephieann2@...> wrote: Hi Tina! I know its very frustrating trying to find a good doctor when options are limited and certain insurances not accepted. I had the same problem with Lyrica. I gained 9 pounds in one week and I was nauseated from the med, so was barely eating. Because it caused the bloating up like that I was removed from it immediately. I have joint knee effusions and that's one of the most severe areas of inflammation. I wasn't able to participate in a FMS study because I have anxiety. Which I found quite odd because the larger majority of those with FMS have either depression or anxiety. Some get anxiety just from having it. Then there are those that are lucky that have neither. --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2008 Report Share Posted April 17, 2008 Thanks. I'm working on the second opinion (more about that in another e-mail). He has me on Voltaren and Flexeril, and the pain management has me on Norco for now, with trigger point injections as needed. Sometimes the meds work, sometimes they don't. Yesterday, they didn't. At all. Although my pain was greater today, the meds kicked in and worked (didn't take away the pain, just reduced it), so I was at least able to work. I do know that I'm looking at having to make a serious lifestyle change, though. Not just in my diet, but, for example, I take a tote bag (which I throw all my " stuff " , including meds in) to work + my purse. Having soda, lunch, bottles of pills, cd's, and the current book I'm reading is a bit....weighty, and has given me real problems on the days I have a lot of pain. So the tote is going to get cleaned out so I don't have so much weight to carry around. And my purse definitely has to get more streamlined as well....I've moved just the essentials over to my new purse stephanie <stephieann2@...> wrote: I'm so sorry! I know its frustrating when you don't get an answer right away. It took me 2 years to get the FMS diagnosis. He's right in a way. The only medications they do give is antidepressants, maybe a muscle relaxer if you have evidence of bad spasms, and possibly Utlram or tramadol. A large majority shy away from narcotic meds as the studies show our brains don't respond to the opiods. It may be too, that if something is in the very early stages, that it will take time to diagnose you. I've had the inflammatory issues going on for 2 years untreated and 2 years treated with medication. They still don't have any answers. My CRP and Sed and Westegren levels are elevated, and anti ccp, but no RA or ANA. So one day they will say its arthralgia with no known cause, another time its seronegative ra, and another time its unspecified diffuse connective tissue disease. Sometimes, if things come on slowly, the signs take a little bit longer to diagnose. Its always good to get a second opinion too though! --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2008 Report Share Posted April 17, 2008 You may want to ditch the purse. I got a back pack at a thrift shop with good shoulder straps. It holds all. I keep it as empty as possible but it is much easier to carry. I live in a high rise and find it much easier to get my groceries inside. My hands give out.... Tina Schmidt <spydre_74@...> wrote: Thanks. I'm working on the second opinion (more about that in another e-mail). He has me on Voltaren and Flexeril, and the pain management has me on Norco for now, with trigger point injections as needed. Sometimes the meds work, sometimes they don't. Yesterday, they didn't. At all. Although my pain was greater today, the meds kicked in and worked (didn't take away the pain, just reduced it), so I was at least able to work. I do know that I'm looking at having to make a serious lifestyle change, though. Not just in my diet, but, for example, I take a tote bag (which I throw all my " stuff " , including meds in) to work + my purse. Having soda, lunch, bottles of pills, cd's, and the current book I'm reading is a bit....weighty, and has given me real problems on the days I have a lot of pain. So the tote is going to get cleaned out so I don't have so much weight to carry around. And my purse definitely has to get more streamlined as well....I've moved just the essentials over to my new purse stephanie <stephieann2@...> wrote: I'm so sorry! I know its frustrating when you don't get an answer right away. It took me 2 years to get the FMS diagnosis. He's right in a way. The only medications they do give is antidepressants, maybe a muscle relaxer if you have evidence of bad spasms, and possibly Utlram or tramadol. A large majority shy away from narcotic meds as the studies show our brains don't respond to the opiods. It may be too, that if something is in the very early stages, that it will take time to diagnose you. I've had the inflammatory issues going on for 2 years untreated and 2 years treated with medication. They still don't have any answers. My CRP and Sed and Westegren levels are elevated, and anti ccp, but no RA or ANA. So one day they will say its arthralgia with no known cause, another time its seronegative ra, and another time its unspecified diffuse connective tissue disease. Sometimes, if things come on slowly, the signs take a little bit longer to diagnose. Its always good to get a second opinion too though! --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2008 Report Share Posted April 17, 2008 Hi Tina! I'm so glad you are working on a second opinion!! I find Flexeril helps me a great deal. I began taking it 6 years ago, one a day. If I miss one at all, my muscles shake like jello, and I can see the spasms moving the muscles. I wondered too, if a TENS unit might be possible from the pain management. I don't use mine a lot, but it has been somewhat helpful when the muscles are really sore! The doctor shouldn't have twisted and turned someone in pain!! Mine does a trigger point exam, but gently very gently touches the areas of the body where they are located. She does do a slight range of motion. She will take my knees and rotate them in a circle, or have me tilt my head to my chest as far as I can. She does this very lightly though. Sometimes she will have me raise my arms as high as I can. And that exam that neurologists commonly do, where you take their fingers and pull them towards you as hard as you can. That is a great idea about carrying less! I do that too when I go out. I always have a ton of medicine to take with me, water, I take a book, and a puzzle book, then all the stuff in my handbag as well! My doctor has me on a weight restriction of lifting less than 10lbs. That's getting hard now that I'm a first time aunt and my nephew is now 18lbs But all the little things we can do to help not exacerbate the pain is a good thing!! Keep hanging in there!! Tina Schmidt <spydre_74@...> wrote: Thanks. I'm working on the second opinion (more about that in another e-mail). He has me on Voltaren and Flexeril, and the pain management has me on Norco for now, with trigger point injections as needed. Sometimes the meds work, sometimes they don't. Yesterday, they didn't. At all. Although my pain was greater today, the meds kicked in and worked (didn't take away the pain, just reduced it), so I was at least able to work. I do know that I'm looking at having to make a serious lifestyle change, though. Not just in my diet, but, for example, I take a tote bag (which I throw all my " stuff " , including meds in) to work + my purse. Having soda, lunch, bottles of pills, cd's, and the current book I'm reading is a bit....weighty, and has given me real problems on the days I have a lot of pain. So the tote is going to get cleaned out so I don't have so much weight to carry around. And my purse definitely has to get more streamlined as well....I've moved just the essentials over to my new purse stephanie <stephieann2@...> wrote: I'm so sorry! I know its frustrating when you don't get an answer right away. It took me 2 years to get the FMS diagnosis. He's right in a way. The only medications they do give is antidepressants, maybe a muscle relaxer if you have evidence of bad spasms, and possibly Utlram or tramadol. A large majority shy away from narcotic meds as the studies show our brains don't respond to the opiods. It may be too, that if something is in the very early stages, that it will take time to diagnose you. I've had the inflammatory issues going on for 2 years untreated and 2 years treated with medication. They still don't have any answers. My CRP and Sed and Westegren levels are elevated, and anti ccp, but no RA or ANA. So one day they will say its arthralgia with no known cause, another time its seronegative ra, and another time its unspecified diffuse connective tissue disease. Sometimes, if things come on slowly, the signs take a little bit longer to diagnose. Its always good to get a second opinion too though! --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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