Re: tawn-yin (hard y, like yet)

[Guest guest]

Flora how does you voice sound. Is it like a whisper with a nose

wang? Is it worse when you are sitting and do you feel like you

don't have enough air to get your words out? I wonder if Botox

would help me. I'm almost afraid to ask for it. When I had my

tongue stuck by my neuro, he went up though my throat and hit a

blood vestle. It caused a huge hematoma and I was sore (like swolen

glands) for weeks.

Thank you for your imput, I was concerned about being the only one

with speech problems.

Donna

> Tanniyny, My PLS started with my voice we think. My neurologist

thinks I may

> have both PLS & Spasmodic Dystonia. My vocal cords are squeezed

together

> making it hard to speak they call this the abductor (sp) stage. I

believe

> most of the other PLS'er are just the opposite their voice cords

are in the

> relaxed stage were the vocal cords are not coming together. There

is a name

> for that but I can't remember it at the moment. I get the Botox

shots into

> the vocal cords. Botox is injected protein that stops the

contraction of the

> muscles around the injection area. The voice problem start in

1991 and I had

> no other symptoms until 1995 when I started to trip and I would

fall

> backwards. The other symptoms later were exaggerated

reflex,fascicilation

> twitches, emotional libility,loss of balance.

> Hope I have helped you regarding the voice being the first symptom

in MY case

> it was.

>

> Flora Brand

> St sburg FL.

>

>

>

[Guest guest]

Flora how does you voice sound. Is it like a whisper with a nose

wang? Is it worse when you are sitting and do you feel like you

don't have enough air to get your words out? I wonder if Botox

would help me. I'm almost afraid to ask for it. When I had my

tongue stuck by my neuro, he went up though my throat and hit a

blood vestle. It caused a huge hematoma and I was sore (like swolen

glands) for weeks.

Thank you for your imput, I was concerned about being the only one

with speech problems.

Donna

> Tanniyny, My PLS started with my voice we think. My neurologist

thinks I may

> have both PLS & Spasmodic Dystonia. My vocal cords are squeezed

together

> making it hard to speak they call this the abductor (sp) stage. I

believe

> most of the other PLS'er are just the opposite their voice cords

are in the

> relaxed stage were the vocal cords are not coming together. There

is a name

> for that but I can't remember it at the moment. I get the Botox

shots into

> the vocal cords. Botox is injected protein that stops the

contraction of the

> muscles around the injection area. The voice problem start in

1991 and I had

> no other symptoms until 1995 when I started to trip and I would

fall

> backwards. The other symptoms later were exaggerated

reflex,fascicilation

> twitches, emotional libility,loss of balance.

> Hope I have helped you regarding the voice being the first symptom

in MY case

> it was.

>

> Flora Brand

> St sburg FL.

>

>

>

[Guest guest]

Flora how does you voice sound. Is it like a whisper with a nose

wang? Is it worse when you are sitting and do you feel like you

don't have enough air to get your words out? I wonder if Botox

would help me. I'm almost afraid to ask for it. When I had my

tongue stuck by my neuro, he went up though my throat and hit a

blood vestle. It caused a huge hematoma and I was sore (like swolen

glands) for weeks.

Thank you for your imput, I was concerned about being the only one

with speech problems.

Donna

> Tanniyny, My PLS started with my voice we think. My neurologist

thinks I may

> have both PLS & Spasmodic Dystonia. My vocal cords are squeezed

together

> making it hard to speak they call this the abductor (sp) stage. I

believe

> most of the other PLS'er are just the opposite their voice cords

are in the

> relaxed stage were the vocal cords are not coming together. There

is a name

> for that but I can't remember it at the moment. I get the Botox

shots into

> the vocal cords. Botox is injected protein that stops the

contraction of the

> muscles around the injection area. The voice problem start in

1991 and I had

> no other symptoms until 1995 when I started to trip and I would

fall

> backwards. The other symptoms later were exaggerated

reflex,fascicilation

> twitches, emotional libility,loss of balance.

> Hope I have helped you regarding the voice being the first symptom

in MY case

> it was.

>

> Flora Brand

> St sburg FL.

>

>

>

[Guest guest]

Thanks Flora. I think I'll try my plastic sergeon, he knows where

the muscles are and I trust him with a needle. He has done some

fall clean up on my face before.

Take care,

Donna

> Donna, I do run out of air when talking. I got my last shot in

January

> 17 of this year so I am about ready for one but I do stretch them

out. I

> should get one ever 6 to 7 months but I really don't like going

through it.

> It doesn't hurt, really but its always been the idea what they are

doing to

> me. You think I would be use to them. I think since 1991 I've had

12 to 13

> shots by three different doctors but I love my ENT doctor that

does it now.

> In the beginning there were not many doctors around that knew much

about it.

> My first was at University of Fla. Medical Center by a doctor

Riddell. He

> went on a medical sabbatical so I went to another ENT in Tampa but

I left

> crying. He had only done a few patients and had stuck me 4 times

so I told

> him to stop because compared to Dr Riddel this doctor didn't have

a clue.

> Now I have Dr Coundreotis here in St Pete. When I go in for the

procedure my

> neurologist and his tech person (that puts the probes on my neck

to let them

> know were the muscles are) and the ENT doctor is there. So I feel

relaxed

> knowing I have that many minds on ME!! After they all agree they

are in the

> right spot the botox is released. The entire procedure is over in

5 to 10

> minutes because they do both sides of the vocal cords. Before I

have the

> procedure I take a valium that just takes the edge off of things.

I go home

> and resume my normal activity. Right now my voice is ok but if I

talk a lot I

> do run out of air and strain to get the words out. My voice has

always been

> deep but after the shot it gets deeper after the botox wears off.

I should

> say that in about a week after the shot you lose your voice to a

whisper. It

> can vary to three to six weeks before your voice gets back to

normal (what

> ever that is). What ever decision you make I would look long and

hard for a

> doctor that has done this a number of times. By the way my voice

is loud!!!

> .............................Flora

>

>

>