Re: First Enbrel Shot

[Guest guest]

Good luck with the Enbrel. It is working so well for

me. after four injections, not a sign of a bruise,

rash, paleness, etc., like my rheumy warned me. I

sincerely hope you have as good a result from it as

me.

Anybody heard from Jayesh? Kinda worried about him.

I don't know why God intended that I needed to have

titanium plates in both wrists. But He didn't let me

die on the operating table -- TWICE. (three times if

you count the time I had to have my nose fixed.) But

He also sent me a great rheumatologist and a

medication that is working very well.

Can we please keep religion and politics off this

list?

To the new gal from Ireland - have you tried Ultravate

cream or ointment? Some of your comments really hit

home with me, especially about putting some of the

ointments on someone else. Keep that great sense of

humor. It really helps with this unpleasantness we

call P and PA.

Dianne

=====

A clean desk is a sign of a cluttered desk drawer.

__________________________________________________

[Guest guest]

I read some information from the Hospital of Special Surgery in New York

City, you may want to contact them regarding the discs.

[Guest guest]

In a message dated 6/23/03 11:19:10 PM Eastern Daylight Time,

piglet@... writes:

> I am wondering if anyone here has any ideas where to start searching

> for information about artificial discs. I have a damaged disc in my

> neck and the neurosurgeon does not want to do a fusion as I am a high

> risk for failure and he wants to wait until the artificial disc comes

> out. He thjinks it is about a year or so away.

>

> Lorna

>

>

>

>

Lorna,

I just went through what the my neuro and the nurses on my floor called " big

back surgery. I was in the hospital 8 days. All do to DDD (degenerative disc

disease). It involved a fusion, a cage, and 2 titanium rods. I know that

our group founder, , has also just recently had a fusion. My trouble

was at L5-S1. From the little you mentioned it sounds as though a lamenectomy

might suit you. I did ask my neuro about disc replacement and he said that it

would be years if ever that they would do it. The most recent study was using

a silicon filled pouch a kin to a breast implant and it did not fair well due

to the huge amounts of weight and pressure that is placed on a disk. I hope

some of this is helpful info to you. Please feel free to E-mail me personally

if you want any more info. My neuro is one of the best in the SE. He went

to Emory and practiced a bit in FL before coming to NC. Good luck to you!

[Guest guest]

I had read about your surgery.Am definately not wanting another

surgery as I have had three in the last 2 years that required a

hospital stay of three days or more. My neuro is young. He just

finished a spinal fellowship at the spine institute at Cedar Sinai in

2001. He did say if the pain got to be unmag\nagable he would

operate.

Lorna

[Guest guest]

In a message dated 7/4/2003 10:47:47 PM Eastern Daylight Time,

jackieszoo2002@... writes:

>

> I gave myself my first Enbrel shot tonight, and had a strange

> reaction, but I've been known to do the same thing when I get a

> massage. I'm just curious if anyone else has had this kind of

> reaction. I first got nauseous, then started sweating, then turned

> white and felt like I was going to pass out.

Hi Jackie,

That sounds like nerves and nothing to do with the Enbrel. My sister gets

like that when she looks at needles and practically passing out from having

blood taken or even at the sight of blood. It will get easier with each

injection. Trust me!!!

Janet

[Guest guest]

I was also fortunate to gain almost complete relief from Enbrel within a few

days, but fortunately without the migraines. In fact, I take my injections on

Wednesday and on Tuesday I can feel the pain and stiffness coming back,

Wednesday it gets worse, but on Thursday I have none at all.

~Marie

[Guest guest]

Hi,

I just stated Enbrel, and its the weekly dose. The first dose caused me a

horrible headache and muscle stiffness in the neck and shoulder area, nothing

at the injection site, and next day i felt fine. Tuesday will be dose

2...hopefully this will fade in time.

Heidi

To those who believe, no explanation is necessary; to those who dont, no

explanation is possible

In a message dated 4/20/2008 8:27:30 P.M. Eastern Daylight Time,

renandstimpy3@... writes:

Weekly

Re: [ ] First enbrel shot

I was also fortunate to gain almost complete relief from Enbrel within a few

days, but fortunately without the migraines. In fact, I take my injections

on Wednesday and on Tuesday I can feel the pain and stiffness coming back,

Wednesday it gets worse, but on Thursday I have none at all.

~Marie

[Guest guest]

Marie, Thank you for the reply... I thought it strange that I got

relief so quickly... I'm hoping over the next couple of weeks, the

migraines get less and less and the Enbrel starts working for longer

periods of time.

Bonnie R.

-- In , " Marie Miley- " <mrussell@...>

wrote:

>

> I was also fortunate to gain almost complete relief from Enbrel

within a few days, but fortunately without the migraines. In fact, I

take my injections on Wednesday and on Tuesday I can feel the pain and

stiffness coming back, Wednesday it gets worse, but on Thursday I have

none at all.

>

> ~Marie

>

>

[Guest guest]

Bonnie, I still use the twice-weekly 25mg Enbrel. I tried the

once-weekly, and it didn't seem to last as long for me as the other.

That might be something to think about, but then you are just starting

it, and it hasn't had any time to build up in your system. It's

wonderful that it gave you such quick results.

Sue

On Sunday, April 20, 2008, at 05:27 PM, Bonnie wrote:

> Marie, Thank you for the reply... I thought it strange that I got

> relief so quickly... I'm hoping over the next couple of weeks, the

> migraines get less and less and the Enbrel starts working for longer

> periods of time.

[Guest guest]

that is normal, I take my shots on friday and by thursday I start feeling some

of the pain come back. I have been on enbrel since December. As for the pain

you feel on wednesday that will go away with time the more you get the enbrel

into your system. It takes a good 4 to 6 weeks to get the full benefits of

enbrel but will tell you it does wonders.

Re: [ ] First enbrel shot

I was also fortunate to gain almost complete relief from Enbrel within a few

days, but fortunately without the migraines. In fact, I take my injections on

Wednesday and on Tuesday I can feel the pain and stiffness coming back,

Wednesday it gets worse, but on Thursday I have none at all.

~Marie

[Guest guest]

When I first started enbrel I would get headaches within a few weeks they went

away.

[ ] First enbrel shot

Has anyone experienced almost immediate relief from Enbrel?

I got my first shot last Tuesday, and my joints were great on

Wednesday but I gained a migraine headache... Ugh! Then on Thursday,

I still had a pretty intense headache but not as bad as the day prior

and my joints were a little tender but a breeze compared to what I'm

used too dealing with. My headache left as of Friday! Yea!

Apparently my joints are getting a little worse each day now since I

got that first shot... I can hardly wait to see what happens this

week after I get the second shot... My Doctor said it could take up

to three months to work, but could sometimes work as little as two

weeks... But wow, I swear I got relief from the first one...

Also, has anyone else gained migraines from Enbrel? I mean

debilitating migraines where it hurts to open your eyes or even turn

your head...

Thanks everyone!

Bonnie R.

[Guest guest]

do you take your shots weekly or bi-weekly? thanks rita

Re: [ ] First enbrel shot

I was also fortunate to gain almost complete relief from Enbrel within a few

days, but fortunately without the migraines. In fact, I take my injections on

Wednesday and on Tuesday I can feel the pain and stiffness coming back,

Wednesday it gets worse, but on Thursday I have none at all.

~Marie

[Guest guest]

Weekly

Re: [ ] First enbrel shot

I was also fortunate to gain almost complete relief from Enbrel within a few

days, but fortunately without the migraines. In fact, I take my injections on

Wednesday and on Tuesday I can feel the pain and stiffness coming back,

Wednesday it gets worse, but on Thursday I have none at all.

~Marie

[Guest guest]

So far, I will be taking them weekly...

>

> do you take your shots weekly or bi-weekly? thanks rita

>

>

>

> Re: [ ] First enbrel shot

>

> I was also fortunate to gain almost complete relief from Enbrel

within a few days, but fortunately without the migraines. In fact, I

take my injections on Wednesday and on Tuesday I can feel the pain and

stiffness coming back, Wednesday it gets worse, but on Thursday I have

none at all.

>

> ~Marie

>

>

[Guest guest]

Heidi,

Tuesday will be my second dose as well... I am nervous about giving

myself the shot and anxious about getting the relief I felt those

first few days... As I wrote earlier, I got migraines the first two

days after the first shot, but I also have felt the stiffness in the

neck.. I'm praying that the migraines will go away after the first

few shots...

Best of Luck

Bonnie R.

>

> Hi,

>

> I just stated Enbrel, and its the weekly dose. The first dose

caused me a

> horrible headache and muscle stiffness in the neck and shoulder

area, nothing

> at the injection site, and next day i felt fine. Tuesday will be dose

> 2...hopefully this will fade in time.

>

> Heidi

>

> To those who believe, no explanation is necessary; to those who

dont, no

> explanation is possible

>

>

> In a message dated 4/20/2008 8:27:30 P.M. Eastern Daylight Time,

> renandstimpy3@... writes:

>

>

>

>

> Weekly

>

>

>

> Re: [ ] First enbrel shot

>

> I was also fortunate to gain almost complete relief from Enbrel

within a few

> days, but fortunately without the migraines. In fact, I take my

injections

> on Wednesday and on Tuesday I can feel the pain and stiffness

coming back,

> Wednesday it gets worse, but on Thursday I have none at all.

>

> ~Marie

>

>

[Guest guest]

Thank you everyone for your responses... Its so great to know that

I'm not alone in all of this....

You are all wonderful

Bonnie R.

[Guest guest]

Bonnie, did you have a history of migraines before the shot? If so,

could this migraine have been caused by worrying about giving yourself

the shot and whether or not it would help? I hope the migraines don't

continue, because I know what they feel like. After you give yourself

the shots for a while, you'll be an old pro. I know that I was nervous

at first, too. I inject into my stomach, where there are fewer nerves.

That's supposed to be the least painful place. Good luck.

Sue

On Sunday, April 20, 2008, at 10:08 PM, Bonnie wrote:

>

> Tuesday will be my second dose as well... I am nervous about giving

> myself the shot and anxious about getting the relief I felt those

> first few days... As I wrote earlier, I got migraines the first two

> days after the first shot, but I also have felt the stiffness in the

> neck.. I'm praying that the migraines will go away after the first

> few shots...

[Guest guest]

Sue, I use to get migraines a several times per month, but that was

years ago now... and yes, it is possible that the migraines were

because of my nervous nature... I'm normally the first one to say

that anything is possible... I guess I'll find out over the next

couple of weeks..

My first shot was in my thigh and I'll probably continue there for as

long as I can, only because I can't imagine giving myself a shot in

the stomach... Perhaps that will change with time as well.

Thank you for your suggestion and advise.

Bonnie R.

> >

> > Tuesday will be my second dose as well... I am nervous about giving

> > myself the shot and anxious about getting the relief I felt those

> > first few days... As I wrote earlier, I got migraines the first two

> > days after the first shot, but I also have felt the stiffness in the

> > neck.. I'm praying that the migraines will go away after the first

> > few shots...

>

[Guest guest]

Hi ,

I have taken my 2nd enbrel shot. I take it Monday nights and 8 mtx on

Thursdays. I have seen benefits from the MTX, but not the enbrel yet. I think

it's

going to take 4 or 5 doses to really tell. The headache was less though 2nd

time around.

Heidi

To those who believe, no explanation is necessary; to those who dont, no

explanation is possible

In a message dated 4/24/2008 6:46:45 A.M. Eastern Daylight Time,

ortizd73@... writes:

I had my first Enbrel shot yesterday and did not have any adverse

reactions to the shot as of yet. I did not have any inflammation at the

injection site. I did not have any headaches and actually feel well,

other than having some pain in my hands. Also, my insurance finally

approve Enbrel and my pharmacy has already filled my prescription and

my co-pay is only $50.00, all this in four days. I thought it was going

to be much higher than that.

I will still be taking my methotrexate on Friday and my Enbrel on

Tuesday. Hopefully I will begin seeing some improvement soon. I have

already changed my diet and started exercising on a daily basis. It was

only three months ago that I was ready to give up from the pain, but

now things are beginning to turn around. Has anyone else seen benefits

from methotrexate and Enbrel?

.

**************Need a new ride? Check out the largest site for U.S. used car

listings at AOL Autos.

(http://autos.aol.com/used?NCID=aolcmp00300000002851)

[Guest guest]

Hello ,

I have had great control with Enbrel and Methotrexate. I also take

Plaquanil and Prednisone (5 mg maintenance). I have been on my

current " med cocktail " for about 4 years now. Occasionally have some

break through pain but usually manageable! If me pea brain recalls

correctly, I believe it was about 3-4 weeks before I really noticed an

improvement with the Enbrel. Good luck.

>

> I had my first Enbrel shot yesterday and did not have any adverse

> reactions to the shot as of yet. I did not have any inflammation at the

> injection site. I did not have any headaches and actually feel well,

> other than having some pain in my hands. Also, my insurance finally

> approve Enbrel and my pharmacy has already filled my prescription and

> my co-pay is only $50.00, all this in four days. I thought it was going

> to be much higher than that.

> I will still be taking my methotrexate on Friday and my Enbrel on

> Tuesday. Hopefully I will begin seeing some improvement soon. I have

> already changed my diet and started exercising on a daily basis. It was

> only three months ago that I was ready to give up from the pain, but

> now things are beginning to turn around. Has anyone else seen benefits

> from methotrexate and Enbrel?

>

> .

>

[Guest guest]

I was taking MX and Enbrel for about 2 years. I experienced some hair

loss which drove me crazy. About 6 months ago my rhemy decided to

take me off MX so now I'm taking Arava and my hair is growing back. I

think the MX Enbrel combo was more effective though.

Hugz

PeggyH