Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 , our hearfelt prayers for Kennedy, hope all goes well with the surgery No 5, Loves Pushpa grandma to Aman 6 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 , our hearfelt prayers for Kennedy, hope all goes well with the surgery No 5, Loves Pushpa grandma to Aman 6 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 im sorry ive missed something, when and why is she having surgery? hope all goes well thinkong of u all bel Re: Kennedy > , our hearfelt prayers for Kennedy, hope all goes well with the > surgery No 5, Loves Pushpa grandma to Aman 6 months > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 im sorry ive missed something, when and why is she having surgery? hope all goes well thinkong of u all bel Re: Kennedy > , our hearfelt prayers for Kennedy, hope all goes well with the > surgery No 5, Loves Pushpa grandma to Aman 6 months > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 im sorry ive missed something, when and why is she having surgery? hope all goes well thinkong of u all bel Re: Kennedy > , our hearfelt prayers for Kennedy, hope all goes well with the > surgery No 5, Loves Pushpa grandma to Aman 6 months > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 , wishing Kennedy great success with this 5th surgery! [for choanal atresia] Many prayers and hugs sent your way. Hope all goes well, we'll be thinking about you! Jan H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 , wishing Kennedy great success with this 5th surgery! [for choanal atresia] Many prayers and hugs sent your way. Hope all goes well, we'll be thinking about you! Jan H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 , wishing Kennedy great success with this 5th surgery! [for choanal atresia] Many prayers and hugs sent your way. Hope all goes well, we'll be thinking about you! Jan H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Thanks Pushpa, We usually have a " routine maintenance " surgery every Spring for Kennedy (it's tune up time again). She will go in under ENT for her nose & new ear tubes, but she will also get new ear molds made, a new button popped into her stomach, and a dental cleaning. We are used to our yearly surgery now but hopefully it will stop in the future! Fingers crossed... Re: Kennedy , our hearfelt prayers for Kennedy, hope all goes well with the surgery No 5, Loves Pushpa grandma to Aman 6 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Thanks Pushpa, We usually have a " routine maintenance " surgery every Spring for Kennedy (it's tune up time again). She will go in under ENT for her nose & new ear tubes, but she will also get new ear molds made, a new button popped into her stomach, and a dental cleaning. We are used to our yearly surgery now but hopefully it will stop in the future! Fingers crossed... Re: Kennedy , our hearfelt prayers for Kennedy, hope all goes well with the surgery No 5, Loves Pushpa grandma to Aman 6 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Thanks Pushpa, We usually have a " routine maintenance " surgery every Spring for Kennedy (it's tune up time again). She will go in under ENT for her nose & new ear tubes, but she will also get new ear molds made, a new button popped into her stomach, and a dental cleaning. We are used to our yearly surgery now but hopefully it will stop in the future! Fingers crossed... Re: Kennedy , our hearfelt prayers for Kennedy, hope all goes well with the surgery No 5, Loves Pushpa grandma to Aman 6 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Bel, Yep, next week on the 9th, for choanal atresia...again. And a bunch of other routine maintenance stuff.... Lis Re: Kennedy > , our hearfelt prayers for Kennedy, hope all goes well with the > surgery No 5, Loves Pushpa grandma to Aman 6 months > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Bel, Yep, next week on the 9th, for choanal atresia...again. And a bunch of other routine maintenance stuff.... Lis Re: Kennedy > , our hearfelt prayers for Kennedy, hope all goes well with the > surgery No 5, Loves Pushpa grandma to Aman 6 months > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Bel, Yep, next week on the 9th, for choanal atresia...again. And a bunch of other routine maintenance stuff.... Lis Re: Kennedy > , our hearfelt prayers for Kennedy, hope all goes well with the > surgery No 5, Loves Pushpa grandma to Aman 6 months > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Thanks Jan, We don't get as wigged out over it now (I think this is number 10 or 11 in total) but it's always scary leaving her there at the last moment. I have great faith in her surgical team though... Lis Re: Kennedy , wishing Kennedy great success with this 5th surgery! [for choanal atresia] Many prayers and hugs sent your way. Hope all goes well, we'll be thinking about you! Jan H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 In a message dated 5/1/02 6:19:45 PM Central Daylight Time, gweir@... writes: >Thanks Jan, >We don't get as wigged out over it now (I think this is number 10 or 11 in total) but >it's always scary leaving her there at the last moment. I have great faith in her >surgical team though... >Lis , we find ourselves to be more 'hairied' with each anesthesia that endures! Probably because each time thus far, a new horrifying circumstance arose. And now it seems to be even more challenging because she and we are more aware of it all- 's next surgeries are scheduled for the 7th of August (releasing the glossopexy and repairing a 7 ml lateral fistula in her palate). It would be a blessing if we could get through these procedures without consequence?!? has had a cold (the simple but yet awful) for the past 3 wks. And has been teething as well (((((((secretions)))))))-- this has been enough to get us " wigged out. " Hope all goes smoothly on the 9th! Hugs, Jan H. Mom to 18 1/2 mo. CH(A?)RGE Wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2002 Report Share Posted May 3, 2002 Thanks Jan, I hope 's feeling better soon...meanwhile I'm feeling like my pneumonia that was so called " done " is coming back...oh joy... Weir Mom to Kennedy 4yr old CHARGEr, 12, 10, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://personal.nbnet.nb.ca/gweir ICQ #1426476 " In three words I can sum up everything I've learned about life: it goes on. " - Frost Re: Kennedy In a message dated 5/1/02 6:19:45 PM Central Daylight Time, gweir@... writes: >Thanks Jan, >We don't get as wigged out over it now (I think this is number 10 or 11 in total) but >it's always scary leaving her there at the last moment. I have great faith in her >surgical team though... >Lis , we find ourselves to be more 'hairied' with each anesthesia that endures! Probably because each time thus far, a new horrifying circumstance arose. And now it seems to be even more challenging because she and we are more aware of it all- 's next surgeries are scheduled for the 7th of August (releasing the glossopexy and repairing a 7 ml lateral fistula in her palate). It would be a blessing if we could get through these procedures without consequence?!? has had a cold (the simple but yet awful) for the past 3 wks. And has been teething as well (((((((secretions)))))))-- this has been enough to get us " wigged out. " Hope all goes smoothly on the 9th! Hugs, Jan H. Mom to 18 1/2 mo. CH(A?)RGE Wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2002 Report Share Posted May 3, 2002 , First, I haven't had time to resend the pictures yet. I'll see what I can do another day. Now, I don't know what is happening but I didn't read you had phnumonia? I hope you get better soon and don't relapse. Kennedy is having surgery again? I hope all goes well and this one works. You know we all wish only the best for her. Take care and have some sweet quiet time with her. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2002 Report Share Posted May 4, 2002 , hope you're feeling well soon! And also have the opportunity to get some much needed rest! Cheers, Jan H. (everyone's ill and tired in our home!) ick...... 's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2002 Report Share Posted May 4, 2002 , hope you're feeling well soon! And also have the opportunity to get some much needed rest! Cheers, Jan H. (everyone's ill and tired in our home!) ick...... 's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2002 Report Share Posted May 4, 2002 Bonnie, Yep, I had pneumonia, thought it was gone, but am now thinking it's back...(fun fun). Kennedy is having choanal atresia #6 (I think I said 5 earlier, but actually it's 6th...yippeee) done next Thursday along with some new ear tubes, molds, a new g-button, cardiac ECHO & a dental cleaning while she is out....routine maintenance... Re: Kennedy , First, I haven't had time to resend the pictures yet. I'll see what I can do another day. Now, I don't know what is happening but I didn't read you had phnumonia? I hope you get better soon and don't relapse. Kennedy is having surgery again? I hope all goes well and this one works. You know we all wish only the best for her. Take care and have some sweet quiet time with her. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2002 Report Share Posted May 4, 2002 Bonnie, Yep, I had pneumonia, thought it was gone, but am now thinking it's back...(fun fun). Kennedy is having choanal atresia #6 (I think I said 5 earlier, but actually it's 6th...yippeee) done next Thursday along with some new ear tubes, molds, a new g-button, cardiac ECHO & a dental cleaning while she is out....routine maintenance... Re: Kennedy , First, I haven't had time to resend the pictures yet. I'll see what I can do another day. Now, I don't know what is happening but I didn't read you had phnumonia? I hope you get better soon and don't relapse. Kennedy is having surgery again? I hope all goes well and this one works. You know we all wish only the best for her. Take care and have some sweet quiet time with her. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2002 Report Share Posted May 5, 2002 Jan, I had a good sleep in today (I'm finally done my job as of yesterday @ 2pm - although they tried to get me to stay later)... but we had a late night last night with having a play at his school and then off to see " Spiderman " at the movies from 9-11... When does life EVER slow down??? (I wish!) Take care, Weir Mom to Kennedy 4yr old CHARGEr, 12, 10, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://personal.nbnet.nb.ca/gweir ICQ #1426476 " In three words I can sum up everything I've learned about life: it goes on. " - Frost Re: Kennedy , hope you're feeling well soon! And also have the opportunity to get some much needed rest! Cheers, Jan H. (everyone's ill and tired in our home!) ick...... 's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2002 Report Share Posted May 5, 2002 more good lucks and hope ur feeling better Bel Re: Kennedy , First, I haven't had time to resend the pictures yet. I'll see what I can do another day. Now, I don't know what is happening but I didn't read you had phnumonia? I hope you get better soon and don't relapse. Kennedy is having surgery again? I hope all goes well and this one works. You know we all wish only the best for her. Take care and have some sweet quiet time with her. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2002 Report Share Posted May 5, 2002 more good lucks and hope ur feeling better Bel Re: Kennedy , First, I haven't had time to resend the pictures yet. I'll see what I can do another day. Now, I don't know what is happening but I didn't read you had phnumonia? I hope you get better soon and don't relapse. Kennedy is having surgery again? I hope all goes well and this one works. You know we all wish only the best for her. Take care and have some sweet quiet time with her. Bonnie Quote Link to comment Share on other sites More sharing options...
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