Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 Hi ,e I'm taking Enbrel too and there was concern that I might have MS at one point too d/t my MRI. I'm curious to know what it was that tipped off your doctor's to the diagnosis of MS for you- if you wouldn't mind sharing. Thanks, Abby In a message dated 5/1/2008 8:13:30 P.M. Pacific Daylight Time, kuehnlej@... writes: I have been diagnosed with RA for about 3 years and was diagnosed with MS this past week. I am just wondering if there is anyone else on the list who has both diseases. My rheumy said I had to come off Enbrel and can't go on any biologicals anymore. I have read as much as I can find but there just doesn't seem like there is much information. From what I am reading it seem like Orencia has been used for both diseases. I don't really know how it is different than the others but I am just SO against going back to all the pain I was in with my RA. It isn't gone but it sure is better. Does anyone have any information? **************Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 My goodness. I have RA about 6 years since diagnosis. I blamed everything on RA. My Doc said RA is not causing many of my symptoms and tomorrow I am having an MRI for MS.....I have about 80 percent of stmptoms on their check l;ist....... kuehnlej <kuehnlej@...> wrote: Hello, I have been diagnosed with RA for about 3 years and was diagnosed with MS this past week. I am just wondering if there is anyone else on the list who has both diseases. My rheumy said I had to come off Enbrel and can't go on any biologicals anymore. I have read as much as I can find but there just doesn't seem like there is much information. From what I am reading it seem like Orencia has been used for both diseases. I don't really know how it is different than the others but I am just SO against going back to all the pain I was in with my RA. It isn't gone but it sure is better. Does anyone have any information? in St. Louis RA, MS taking prednisone 20mg daily, methotrexate injections once a week, folic acid 3 mg daily, singulair 10 mg, gabepentin 1200 mg daily, wellbutrin 150 mg, prozac 40 mg. Raniolo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 , How did your physicians decide that it is MS and not an adverse effect of Enbrel? Over the years, we have had reports from a few members who have been told they have both RA and MS. We have also had some reports of MS-like symptoms suspected to be associated with the use of anti-TNF biologics. Not an MD > [ ] RA and Now MS > > Hello, > > I have been diagnosed with RA for about 3 years and was diagnosed with > MS this past week. I am just wondering if there is anyone else on the > list who has both diseases. My rheumy said I had to come off Enbrel > and can't go on any biologicals anymore. I have read as much as I can > find but there just doesn't seem like there is much information. > From what I am reading it seem like Orencia has been used for both > diseases. I don't really know how it is different than the others but > I am just SO against going back to all the pain I was in with my RA. > It isn't gone but it sure is better. > Does anyone have any information? > > in St. Louis RA, MS taking prednisone 20mg daily, > methotrexate injections once a week, folic acid 3 mg daily, singulair > 10 mg, gabepentin 1200 mg daily, wellbutrin 150 mg, prozac 40 mg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 My symptoms were present prior to the start of Enbrel too. There were changes on the MRI as well. Enbrel can worsen the effects. Abby In a message dated 5/2/2008 9:50:30 A.M. Pacific Daylight Time, minyslater@... writes: I have had RA and MS for 4 years. Both diagnosed within a four month period prior to taking any biologics. I just finished my 1st year on Orencia. So far so good. My rhemy chose Orencia because it would only stayed in my system for 30 days should something go wrong. Orencia has made a dramatic improvement on my RA. Would recommend without hesitation. **************Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 I have had RA and MS for 4 years. Both diagnosed within a four month period prior to taking any biologics. I just finished my 1st year on Orencia. So far so good. My rhemy chose Orencia because it would only stayed in my system for 30 days should something go wrong. Orencia has made a dramatic improvement on my RA. Would recommend without hesitation. [ ] RA and Now MS Hello, I have been diagnosed with RA for about 3 years and was diagnosed with MS this past week. I am just wondering if there is anyone else on the list who has both diseases. My rheumy said I had to come off Enbrel and can't go on any biologicals anymore. I have read as much as I can find but there just doesn't seem like there is much information. From what I am reading it seem like Orencia has been used for both diseases. I don't really know how it is different than the others but I am just SO against going back to all the pain I was in with my RA. It isn't gone but it sure is better. Does anyone have any information? in St. Louis RA, MS taking prednisone 20mg daily, methotrexate injections once a week, folic acid 3 mg daily, singulair 10 mg, gabepentin 1200 mg daily, wellbutrin 150 mg, prozac 40 mg. ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 > > Hi ,e > I'm taking Enbrel too and there was concern that I might have MS at one > point too d/t my MRI. I'm curious to know what it was that tipped off your > doctor's to the diagnosis of MS for you- if you wouldn't mind sharing. > Thanks, > Abby > > > I developed a tremendous weakness in my legs that really didn't hurt, it was like my legs had a very small amount of energy and at the end of that (10-12 steps) I would fall. It was horrible. I went to my rheumy who was the first to suggest MS and she sent me to a neurologist. He didn't think it was MS but scheduled me for nerve conduction tests. While I waited for the test day, I began having a lot of trouble with eye pain and then the next day had about 50% of my visual field in my left eye just disappear. I went to the ophthalmologist who said I had optic neuritis and that it was a " Major player " in MS. He ordered an MRI of my brain and found 9 lesions then found 3 in my spinal cord. They compared it to an MRI I had about two years ago where there was 1 lesion in my spinal cord and none in my brain. The neurologist also ordered a bunch of blood tests. I will have the nerve conduction tests finally Monday (it took 6 weeks to get in for them). Since then the weakness has improved. Are you being tested for MS now? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 --- In , " " <Matsumura_Clan@...> wrote: > > , > > How did your physicians decide that it is MS and not an adverse effect of > Enbrel? > > Over the years, we have had reports from a few members who have been told > they have both RA and MS. We have also had some reports of MS-like symptoms > suspected to be associated with the use of anti-TNF biologics. > > > > Not an MD > > > Well, I don't know and will definately ask. It may be because I stopped taking Enbrel about a month before the weakness began. I will have to ask because it would be great to find out it will go away since I have stayed off Enbrel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 It sounds terrible, . Why did you have an MRI two years ago? How long were you on Enbrel and why did you stop it? Not an MD > I developed a tremendous weakness in my legs that really didn't hurt, > it was like my legs had a very small amount of energy and at the end > of that (10-12 steps) I would fall. It was horrible. I went to my > rheumy who was the first to suggest MS and she sent me to a > neurologist. He didn't think it was MS but scheduled me for nerve > conduction tests. While I waited for the test day, I began having a > lot of trouble with eye pain and then the next day had about 50% of my > visual field in my left eye just disappear. I went to the > ophthalmologist who said I had optic neuritis and that it was a " Major > player " in MS. He ordered an MRI of my brain and found 9 lesions then > found 3 in my spinal cord. They compared it to an MRI I had about two > years ago where there was 1 lesion in my spinal cord and none in my > brain. The neurologist also ordered a bunch of blood tests. I will > have the nerve conduction tests finally Monday (it took 6 weeks to get > in for them). Since then the weakness has improved. > > Are you being tested for MS now? > > Quote Link to comment Share on other sites More sharing options...
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