Re: New to group - have leukemia and RA...

April 29, 2008

, Some people go into remission or get great control of symptoms with the

right med combo and some of us have a harder time and are happy to have our

symptoms somewhat controlled. And with RA the situation can change from day to

day-one day almost normal and the next everything hurts. I have had to slow

down some (I was always extrememly high enery and acitive) and modify the way I

do some things but most things do get done. My husband opens jars for me if he

is around and if not I have Jar opener that I use. I have lost a lot of

strenght in my hands and can not grip and lift things and move furniture that I

once could but that is when grown sons come it handy. You just learn to adapt

and go on with life. you can't give in to it and let it defeat you. Hopefully

you will find the right med combo andhardly know that it is present. linda

thea7441 <thea7441@...> wrote: Hello Everyone,

I am new to the group, and I've recently been diagnosed with RA.

I have had CML (leukemia) since 2000, and take the drug Gleevec. Now

my doctors are trying to see if I can take methotrexate or paquinal

with Gleevec. I really would like to take methotrexate, as I hear it

is the best, but I'm not sure yet if I can. I hear that methotrexate

supresses your bone marrow, and I take Gleevec which also supresses

your bone marrow. By the way, I've been in complete molecular

remission on Gleevec since 2000.

So, I have a few questions...does the pain of RA ever go away?

Every joint in my hands, and my wrists, are in a great deal of pain.

I feel as if my wrists are breaking any time I lift things. Will

this go away once the doc's put me on paquenal, which is what I think

they're going to start me on next week.

I do take Alieve, and I've been given a script for naproxin.

This is new to me, and the symptoms just started last fall, so I

would appreciate any advice.

Thanks to all,

---------------------------------

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April 29, 2008

Jar openers are great but the electric one touch can opener is a blessing from

above. I can make my pasta sauce again.

Boyd <lindagb52@...> wrote: , Some people go into

remission or get great control of symptoms with the right med combo and some of

us have a harder time and are happy to have our symptoms somewhat controlled.

And with RA the situation can change from day to day-one day almost normal and

the next everything hurts. I have had to slow down some (I was always extrememly

high enery and acitive) and modify the way I do some things but most things do

get done. My husband opens jars for me if he is around and if not I have Jar

opener that I use. I have lost a lot of strenght in my hands and can not grip

and lift things and move furniture that I once could but that is when grown sons

come it handy. You just learn to adapt and go on with life. you can't give in to

it and let it defeat you. Hopefully you will find the right med combo andhardly

know that it is present. linda